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this disease ruined my life

this disease ruined my life. I suffered for years before I got diagnosed and was then bedridden for years. Please study this more to help find a cure

SUNMAYDEN518 1 year ago

I self Catheterize everyday and it helps... I was diagnosed in 1992 about a year after my hysterectomy for Endometreosis Holly

kidofponymaker 1 year ago

The IC diet is totally bad. Meat and dairy are some of the worst things an person with IC could eat. The treatments for IC are barbaric and damaging in the long term. The best thing you can do is buy some PH strips and keep your body as neutral as possible. But even that is not gonna help everyone.

shapeofabee 1 year ago

@shapeofabee I totally agree with you that meat and dairy are the worst food to eat for an IC patient and I would add most grains to the list (Gluten especially) since they are so acidic. For me, the key to success is : Eating a low fat raw vegan diet (fresh whole fruits, greens and vegetables), exercises, yoga, stretches, breathing exercises and even meditation !

elyze8 1 year ago

Thanks for posting. Let's make the world aware of this dread illness. BTW, they say mostly women have IC. Well let me mention that I am a man and I am 99% certain I have IC. I wasted years in the doctors offices being treated for an enlarged prostate and never got an ounce of relief. Some days the pain is so bad I wish I would die. IC has worn me down and made me more miserable than I already am.

BUNGLEJYME 2 years ago

I feel relief getting this diagnosis after years of being treated for kidney and UTI infections, I feel hopeful that there is something I can do about it, not to mention the people in my life that told me to suck it up, (I would like to see them catheterized ever week and injected with heparin)

I am grateful for getting this far...

tinainfla 2 years ago

I feel your pain. Ive been there and Im still there and im fighting with everyting ive got. My doctor has likened this pain to cancer.

Melissa230984 2 years ago

I was just diagnosed with IC today. This stuff about how the bladder looks is scary. :(

Hopefuly it will get better.

Boriqua1994 2 years ago

I am also an IC patient who went years undiagnosised, finally found my Dr God and with a fist full of meds and Interstim I have some quality of life back.

bestshine08 3 years ago

I also am an IC patient. Along with the physical and emotional pain, there is FISCAL PAIN beyond belief. Please also check my video here on YouTube done by Jay Johnson of California Nurses Association. It's called "Janet Stephens Real People Denied Real Health Care."

I hope Obama can get health care reform passed ASAP. He wins the award for a new President who has the biggest, worst plateful to start out.....God speed Pres. Obama

jans1736 3 years ago

good post jan

sunlover518 3 years ago

Don't hold you breath with Obama-care.

BUNGLEJYME 2 years ago

im 17 years old and i can remember always going home in kendergarden because i would hurt so bad. For 11 years i would always be out of school or doctor. just last year i finally had my surgery and found out i had IC. This is prolly the wost thing to have being so young it has changed my whole life!

kellitheawesome 3 years ago

I have had IC for 10 yrs :(

BellatrixAlicia 3 years ago

My doc thinks i may have ic...i go back in a few weeks ...i totaly feel like im doomed.i have been suffering for 6 years with the pain and feel that it is getting worse...i dont want to live on pain pills! I am so sorry for the people that have this...and i pray that i am not one of them

Candi5150 3 years ago

I know this is bad because I have it. Took like over a year for them to find out what I had..My life is not the same now, I hate having this, I just wish it could go away..

Socialpsychotics 3 years ago