Added: 3 years ago
From: flyjack01
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  • please feel free to contact me. i've been at this a long time and have experience with a variety of meds and diagnoses, treatments and areas of medicine throughout my journey. it is not just you. pain is severely undertreated in the US. they know this but the DEA is running things, storming doctors' offices and taking names. become as much of an activist as you can.

  • don't buy into the opioid-hysteria. there is a big difference between additction and dependence. take the meds or your neurons will begin overfiring and create a superhighway to receptors, creating permanent physical changes in the way you experience pain. once my son was 4, i no longer had to carry him at all...my pain went down a little...i didn't consciously decide to take less meds for breakthrough pain...it happened easily and naturally because i was not constantly looking at the clock.

  • believe me...i've had chronic, intractable pain for nearly 10 years...began when i was 30 and pregnant. i've had same physiatrist while i visited more than 50 medical professionals and have had to take opioid derivatives for this amount of time. the DEA has been on a witch hunt and closing down clinics because of one patient who will divert or sell the meds. since my doctor's practice dropped chronic pain patients, i cannot find a doctor who will treat me. more and more are turning to suicide

  • Thank you for your video. You are correct about the misconceptions surrounding pain medications and young people. My husband was 28 years old when his pain began taking on a chronic form. He also struggled with misconceptions from both the health community and family members about the need for medication. I commend you for being your own advocate. Hang in there and on the hard days look for happiness in hidden places.

  • I am 15 and I have full body RSD/CRPS with organ involvement. I have tried pages pages written of medications! I have tried many treatments and nothing has helped It makes me sick I pass out from pain I dont have a life. My next option is a crazy one but its where I am going which is Ketamine!

  • So you see narcotics as your only answer...and have given yourself permission to use more than your loved ones think is wise. Hmmmm.

  • Wow, I had chronic pain since i was 14 and am now 22. It took me 6-7 months of therapy for the pain to subside. I know where you are coming from. It sucked while it lasted. Still in therapy and getting better and am hoping for the best for you.

  • I feel you, I don't have chronic pain, but chronic nausea and sickness. Watching this makes me feel a whole lot better!

  • im 26 and it took me that long to get the relief i needed from a back surgery at 16 and another this past year..... parents had the same feelings.....i hear you

  • I think I have some hallucination disorder. I think they should make that separate from schizophrenia. I was watching dead people run across the property. I think schizophrenia label just transformed me into overly liberal,, which destroyed my life.  I mean, I entertained fantasy to the point that I got delusional.

  • I found a good natural therapy for my chronic back pain called Light Axis Healing. It really helped me. Hope this finds you well.

  • Im 22 and I have chronic pain problems :( and chronic fatigue syndrome

  • OMG story of my life!!!...i always here "your to young, youll get addicted" "heres 800,g motrin take this 3xs a day with this 10mg muscle relaxer 3xs a day"....yet i still have days where im in tears!!!...im 27 and been havin problems since 14, yet they do the xrays and mri's and say wow your condition is getting worse WTF!!!....can u turn a dr. in for not helping you? my insurance pays them, im not an addict or have any history like that, i just wanna be able to get outta damn bed!!

  • I really understand what your going through, I've had chronic pain since I was 9 and was put on anti depressants at 11 because the doctors thought I was just grabbing for attention. It took till I was 15 to finally get someone to believe me, and by that time my family and I truly believed I was crazy. I'm 17 now and I'm having a very hard time figuring out what to do for pain medication. The only pills I've taken that get ride of the pain takes me out of the real world so either way I'm incapac

  • I have given up almost all my pain meds for Cannibis. The pain level is low enough to functiion. I feel so much better today than when I was on the Patch. Anyway I know that Cannibis is illegal to use but it is a miracle plant. I feel sorry for people who live in pain. I am 39 now but I have been on pain meds for the past 11 years constant. Good luck everyone. I just heard a report that said Vitamin D at proper levels is good for Chronic Pain.

  • I have had chronic pain since I was 14 (I'm 22 now) and I have never been prescribed pain medication from any one of the dozen doctors I have seen. I completely understand where you're coming from. This was two years ago...how are you doing now?

  • What's chronic pain?

  • @strawberrymotion101 it's when u hurt somewhere 4 a long period of time

  • Oh Sweety, this makes me so sad. Some one so young should never have to carry the burden of constant, unrelenting suffering. I have to say though, as far as doctors' doubts...don't feel as if it's only the teens or very young adults who are victims of disbelief. I'm in my mid-thirties and it wasn't until I dragged my father to a visit to an urgent care center that I was able to get a physician to believe me. It's as if I were on trial and required a "credible" witness. It's depressing...

  • Believe me when I say, you do NOT want to use opioid pain killers unless you are dieing with NO hope to live. Avoid any form of opioid! Take this from someone who knows the price of withdrawal and the consequences of aftermath!

  • @CEJM12345

    Opoid withdrawal is hell but it's better than suicide, friend. Take what you HAVE to to survive, and the fewer / less opiates the better but don't take them off of the table entirely. Please.

  • Getting high is my little present to myself for having to go through stupid pain. I see it as a holiday from hell. I'm the one who has to hobble around yelling shit in my head for every step I take so it's nice to lie down, put a nice movie on and remove the pain for a little bit. The only reason there is a stigma to feeling good is people have to do bad stuff to do it. Fortunately I get about $1000 worth of "drugs" (sorry, meds) for $5. Why can't it cost that much for everyone?

  • yea i Know!!!! I waited a month for a pain clinic appointment & was looking forward to relief, but noooo they gave me an anti-depressant i took the other day & am still waiting for the side effects to wear off!!!! Anti-Depressants are hell on me!!! They make me so much more worse!! with my mood & everything!! idk, why they keep approving these for fibro!!!

  • @ElizabethCorkins This is horrible and I hope things change with your caregivers. NO ONE deserves to live in chronic pain with no end in site. It's wrong and can be stopped or at least helped. Try the Spinal Cord Stimulator. It's a trial fisrt then the surgery if it works. This changes people's lives. Please look into it. Your U.S. pain doc should have a free video or contact St. Jude or Medtronix for details. Good luck!!

  • As far as narcotic pain medication goes, after being on many different kinds, I find that a long-acting transdermal patch works the best for me, with short-acting pills for breakthrough pain.

    Emotionally, once I found the right anti-depressant for me, I have complete control over my depression and am alot more positive toward my future. I no longer dwell on what happened to me, or try to place blame, and realized that my pain doesn't define me. It definitely makes you appreciate what you CAN do

  • @maybememory me too, buprenorphine patches are great because you dont get the peak and trough effect, its more or less constant!

  • I agree with you 100%.

    I am also 22, and have had chronic pain for the past two years after being in a series of car accidents.

    For the first year and a half I was being treated by my family doctor, and he basically told me that my pain was "all in my head" and that I needed to get on with my life.

    It wasn't until I saw my pain specialist that they even acknowledged that I had a legitimate condition. It is just really difficult for people to grasp pain as it's own disease, and not as a symptom.

  • @maybememor

    My doc said the same "it's in your head" thing. I now believe he meant, however, that I had neuropathic (nerve) pain that my brain was experiencing via impulses from my spine / pain site, even though I was on very strong opoids, which are VERY resistant to nerve/neuropathic pain. So spinal column stim is indicated for those who can't take or for whom opoids don't work and who aren't surgical candidates to relieve the pain otherwise. Good luck.

  • FREE CHRONIC PAIN RELIEF

    Hi guys. Just to let you know that I provide free hypnosis audios MP3 Downloads on my website. They are used successfully all over the world. Give it a go. Jason Newland x

    jason newland dot com

  • for years and years i always had my mom with me, but now she goes off on them to much and that becomes a bigger issue. so now i dunno. i try to handle them better though with new doctors i often still bring my mom. Though with more local apt. i am starting to try to bring my partner.

    I have had Endometriosis symptoms since the age of 14 and chronic pain since 21

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  • Hi! I am 15, I have chronic pain in my back, feet and hands that prevents me from going to school and going outside, so i know how you feel :]

  • Sorry to hear about your situation.

    Have you ever considered the MUA procedure?

  • Hey I've started a blog for people with Chronic Pain/Genetic DIsorders...I have a genetic disorder called Ehlers-Danlos, I've suffered chronic pain for years and just now have the answer...I think laughter and being positive helps a great deal, along with staying busy, I mean pain killers do as well, but I don't like to take many of them, only when I feel like I can't take it any more. The blog explains it all... edsshegetitfromhermomma.blogsp­ot.com/

  • I have pain in my knees all the time, ive had doctors refuse for pain killers anymore. My chromes disease is flaring up no pain killers I wished someone would shot me in the head. Fucking hell this world is... doctors need to give pain killers.

  • For anyone interested in watching more videos on chronic pain visit our youtube page at youtube.com / bayrecovery

  • I agree with much of your video except where you say "As long as you take narcotic pain medicine as prescribed you wont become addicted." This unfortunately is NOT TRUE at all! There is no way to avoid this from happening except to stop taking it after a couple weeks. Past that you will become physically addicted, meaning you WILL go through physical withdrawal when you stop taking these medicines. Please research this if you do not believe me.

  • @ccjohncc1 Wrong. Physical withdrawal from opiod medication is NOT an indication of addiction. Addiction happens when someone uses a substance or behavior to alter their consciousness with no medical reason to do so. Jackie may develop tolerance to prescription narcotics (90% of the population will), but will not be an addict unless she uses her meds to go beyond pain relief to habitually get high. Addiction defined by withdrawal alone is out of date and incorrect.

  • @longlakeshore Yes I am not refering to addiction but rather "Physical Addiction" I see you are so quik to say this is out of date but you fail to let me know what it is called? Or do you know? It is not Tolerance. My Doctor calls it "Physical Addiction" It will always occur at a certain point from prolonged use of any prescribed narcotic pain reliever.

  • @ccjohncc1 The phenomenon of requiring higher doses over time to achieve the same pain relief is called tolerance. What you call "physical addiction" or "withdrawal" is called detox. Both a heroin addict and a chronic pain patient will go thru flu-like symptoms of detox if they stop taking their respective opiate, but the chronic pain patient is not an addict UNLESS s/he habitually uses pain meds to get high.

  • I don't understand why medical professionals deem it necessary to allow victims to suffer, as if everyone deserves to be tormented and exploring a state of well-being is a cardinal sin that leads to Hell. To those with chronic pain and that have a doctor that refuses to treat you effectively...I suggest you do whatever you have to do, be it legal or illegal. You deserve to have your life back and your family deserves to have you back.

  • @PrettyFreakinWise If you can't get opiate medication through a family gp then see an addiction doctor. Iv been on 7x10mg physeptone methadone tablets for two years and 2x20mg oxynorm for breakthrough pain. Before that it was a nightmare. A couple of different meds work better than one. I always got too dependant on oxycontin and methadone is too weak.Plus addiction doctors have more power to dispense and understand the meds better.They also know if your full of shit which is good. Hope I helped

  • God put certain natural resources on this earth for a reason, flyjack01. It is only man that has viewed them as 'evil.' Opiates and cannibanoids do what they do because it is what they were designed to do. Abuse is only anything outside of moderation and, if you take them as prescribed, you avoid both addiction and tolerance. It's that simple. Unfortunately, someone like me has to look to the street because some idiot with a practice won't listen or view me as a human being.

  • People need to understand that doctors can have poor judgment based on what they think is right. Your care is in the hands of personal ethics, morals and convictions, not sound medicine or treatments. Only you can know how you work, feel and respond to any given thing. Sometimes the best doctor is you! No matter what the law states or the opinions of others dictate, you have to do what is best for you. Living life in misery and without quality is equal to suicide when you have the power to live.

  • I have researched methods of treatment for over 11 years, as applicable to myself. I have tried everything that I have known of or that has been suggested to me. I know what works for me and what does not. The problem that we have is that most doctors view you as a criminal if you dare ask for a narcotic and they pawn it off on regulation pressures by the FDA as an excuse to say no....The famous 'limitations' of their narcotics lisence. It has come down to what is best for his job and not me.

  • I am 26 and have been suffering from perpetual chronic headaches for 14 years due to radiation thearpy causing cranial nerve damage. I have tried alternative methods, prescription narcotics and illegal drugs in an attempt to find a solution. Natual or holistic methods do not work, marijuana is highly effective but illegal in my state and Percocet is hard to come by. As of now, I have to routinely visit an emergency room to find relief via Percocet or Vicodin just to find a night's sleep.

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  • I TOTALLY FEEL YOUR PAIN!!!!!!!

  • It's simply not true that addiction, tolerance, dependency, or whatever you'd like to call it doesn't occur when using pain as prescribed. It's a much more gradual process when you use them as prescribed, but it occurs nonetheless. That's the nature of unfortunate nature of narcotic medications.

  • @doctorgone "or whatever you'd like to call it" wtf? not helpful at all. Addiction happens when one makes a habit of using a substance or behavior to alter one's consciousness when there's no medical reason to do so. Tolerance to narcotic pain meds happens to nearly everyone (90%) who use them long term under a doctor's care for chronic pain, like Jackie here. She may develop tolerance to her meds, but it's not addiction unless she uses the meds to push past relief and get high habitually.

  • I think you're getting hung up on the connotation of the word "addiction". In psycho-pharmacology, we use the terms "addiction", "tolerance", and "dependency" are pretty much interchangeably, as do many in the medical community. You are applying your own special definition to the "addiction" to only a apply to those who abuse narcotics. And, I do think it's helpful to clarify that dependency will most likely occur when that is not the message that viewers will necessarily receive from this.

  • @doctorgone If you use the terms addiction, tolerance, and dependency interchangeably, then you are WAY behind the times and need to update your ongoing medical education. My definitions aren't mine but those of the pain management professionals who care for me. Nor have their definitions changed much in the 14 years I've been in their care. I'm not surprised if you're behind the times on pain: the vast majority of medical professionals are, even some who specialize in pain management.

  • Well said. Elders condescend to younger people, a simple but common prejudice. My chronic pain began at age 7 and I was told to be a brave boy. My pain worsened dramatically after surgery at 21, and no one believed me. When I reached mid-30's, a middle-aged pain doc finally accepted me as patient. I have often wondered if reaching the same age-peer group as my physicians had something to do with it. Thanks so much for posting this. Hope you have a good pain day, too!

  • I am a chronic pain specialist from Australia. I am currently doing a research project with demonstrations all over Tasmania. Does your pain have a known cause?

    Did you have a car accident sometime before?

  • there is a big difference, there is an addiction and then theres dependancy. just a thought i would throw out there, i am 20 and have a shattered T-12 in which i have no pain meds to take anymore.. this is true what you say about there being a difference between someone 10 years older than someone in their early 20's. theres not alot of doctors who want to treat young people because they dont want you to even be dependant on pain medication.

  • it may be helpful to you to look up other pain relief methods such as relaxation, meditation, exersize, distraction, anything that helps reduce your pain before taking the meds. i was on narcotics just for my pain not drug seeking and i didn't do it for the high. i didn't see anything wrong with it. now that i'm off.... i have my life back. the pain is there with or without the meds, so for me is better to be functional with the pain and no meds then non functional with the meds

  • I am 21 and have been in chronic pain since i was 18.I realized that narcotics are addictive even if you take it as prescribed.I have learned that lief is better without the narcotics. My pain is extremely bad and sits around a 8/10 regularly.Since coming off the narcotics my pain has actually improved and i'm so much more functional.while on the narcotics i didnt realize how out of it i was. now that i'm off i'm able to do things i didn't think i could before. think about it. get your life back

  • I am there with you, in chronic pain since 21. Now 24, analgesia has always been a problem. Even though I have herniated disk l5-s1 from the millitary with s1 nerve damage. Id get "your a fit young man, all u need is motrin, ice and rest". Battery of tests and 3 neuro drs later was sent to a PM Dr. Now with "manageble" pain i can do basic things.walk (w/cane), cook, bath, school.etc,gdlck. KIT :). I noe its a hard change, loss of vitalty, youth. Hurts, I hope it improves keep ur head up ;)

  • Chronis pain sucks. And it sucks even worse when you have chronic pain at a young age. I've had chronic pain since I was 8 years old that's gotten progressively worse untill needing narcotics but even with my mom being a doctor herself it's been horribly frustrating for both of us to get the narcotics that I've needed. Even now we're still stuggling to get pain relief but we'll keep trying until we get there.

  • I am 23 and have Fibro....Im so glad you made this video...thank you!

  • Unfortunately there are many being mistreated for chronic pain. To see some optimistic videos search bayrecovery

  • Glad to hear someone else has the same type of chronic pain, and is going though the same problems. The issues surrounding controlled substances really make me angry some times. I hope things go well for you.

  • I totally understand!!!!! Mine started at 24!

  • i am a 22 year old dealing with chronic back pain as well. At our age it is hard to believe that chronic pain is real, family doctors dont understand that. Do you see a pain doc? they understand and never second guess perscribing narcotics. Another thing, you said nothing is wrong with you visually, i believe you used the word "deformed", when you go to the doc show him your films and tests... then tell him about your pain. what meds are you on?

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