i was glad to see this one here. probably going to be trying kuvan myself and probably soon. Your videos helped me to know what to expect . Thanks . I hope all is going well for you .
Yes, I did have to get my blood level checked right before starting Kuvan. I also had to keep a three day diet record, which I will have to do two more times during my month long trial.
I look forward to following you testing with Kuvan. Can you post how you are feeling before the seventh day and any changes you are experiencing? Good luck to you.
i am getting kuvan my pedeatrition wont give it 2 me just yet.
itsamber01 2 years ago
i was glad to see this one here. probably going to be trying kuvan myself and probably soon. Your videos helped me to know what to expect . Thanks . I hope all is going well for you .
flutterygal 2 years ago
Philip,
Did you have to check your blood level before starting Kuvan to get a baseline Phe ?
seychelle07 3 years ago
Yes, I did have to get my blood level checked right before starting Kuvan. I also had to keep a three day diet record, which I will have to do two more times during my month long trial.
ProjectKuvan 3 years ago
I look forward to following you testing with Kuvan. Can you post how you are feeling before the seventh day and any changes you are experiencing? Good luck to you.
teachwalk 3 years ago
Yes, I think it would be a good Idea for me to create a video update before the 7th and 28th days.
ProjectKuvan 3 years ago
How have you been feeling ?
seychelle07 3 years ago