Re: Got a question for Tony Blair?

[PostHuman2113]

They would just claim there have been people cured by CBT/psychological methods because a certain number of people have been diagnosed who never even had it, and were subsequently they were pronounced as 'cured' by the same incompetent bloody doctors who (mis)diagnosed them in the first place. See? THEY always have an answer. THEY will never let you win. THEY don't want to help.

And your appeal to T.B. will fall on deaf ears as he's not capable of getting anything done.

He's Blair after all.

[freedomfromme]

Please do take a look at our channel for more specialised videos on ME/CFS and thanks for sharing this video

[applocetto1]

I have had Fibromyalgia for 8 years and am becoming increasingly worse as of the last year. My cognitive skills have been decreasing and I am hardly able to function at my job. Fatigue and pain are all much worse. Is ME the same as Fibro and Chronic Fatigue? I feel as though I am just going through the motions of being alive.

[elparrot]

shit

I just arrived here looking for information on the lymphatic system, and upon reading the description realized I have all of those symptoms. I am scared. :s

[fogggygyrl]

Excellent job on this video! Thank you for making it. I pray that one day we will have the recognition and treatments we need.

[caloriequeen2]

erm i dont get it (whats m.e ?) you

[dexhaven]

This video is about M.E. - a neurological disease Myalgic Encephalomyelitis.

[caloriequeen2]

oh right i agree with you on this

xxx thanks

[antares4141]

I've noticed two things that cause the up and down swings. 1. Is mold expousure. I have moved 12 times and every time had different symptoms, and different degree of reactivity.

2. My reactivity to food can be reduced by cooking it thoughly. If I want to take a crash all I need to is eat salad a few days in a row. Theory is immune system is trahsed and normal organisism that don't give regular people any trouble devestate me.

WE NEED RESEARCH THAT BRINGS THIS PHENOMINON TO LIGHT!!!

[truemirror]

disability in USA does not reconise fibro and CFS as an illness, so patients are diagnosed mental in order to get disability.

[ragonhild]

Yes! Good! But there IS treatment because many that are being diagnozed with ME are in fact infected with borrelia burgdorferi.

You out there, try to get on antibiotics. Doxycycline to strat with. If you feel WORSE in the beginning of medication then you should continue, because these symtoms results from bacteria dying off.

[Suzanne42]

I live with this devastating illness, and it amazes me, on a daily basis, the ignorance that exists about such a life-altering illness. I am as sick as someone with end-stage AIDS, as sick, if not sicker than someone with MS and as sick as someone undergoing checmotherapy, yet people do not understand. I blame most all of the misunderstanding on the medical field. Bless you, and hang in there.

[dexhaven]

Thanks to all. It was with great effort that I tried to ensure a response from Mr Blair, however (and as usual) even the most impassioned pleas fall on deaf (and ignorant) ears. There was no response from Blair, and a feeble attempt from a health minister. PWME are ignored by government, so we must find our strength from within.

[harriethains]

Brilliant. Superb. Made me weep with relief that our voice is being put out there so well. Wish it could be on TV.

[bobbypil]

for as long as suffering brings revenue, it wont be stopped

[zzharrispgzz]

Good Video - isn't it sad that the funding can be found for finding better ways of killing each other during acts of war - The War Mongers - Death is their Moto and creed

[Alexsk1]

Well done on a very powerful video Dexhaven.

PLEASE LISTEN TO WHAT THE ME COMMUNITY IS CRYING OUT TO YOU MR BLAIR!

[deadgirldreaming]

Thank you!

That is a fantastic video.

I hope you can finally see us Mr Blair - we have been invisible for far too long.

[devongirlme]

Hope Tony Balir sees this and takes note. Well done

[paula2048]

Another brilliant video - thanks.

[ivortick]

Brilliant, thanks!

[Katyak11]

A superb video, Dexhaven. Thank you. You make your points cogently. PLEASE LISTEN MR BLAIR.

[kaazoom]

Thank you Dex for such a powerful video. I only hope that he, and other politicians get to see it. Paul