Wilson's Disease

[Showinbulge]

How very sad. I so hope he is able to get the care he deserves. To be so young and suffering with such is very sad indeed.

I wish him health and strength in 2012.

[BarryAirdrieFromDaUK]

i just got diagnosed with Wilson's Disease in November of 2010 and have been taking treatment for it (Penicillamine) since December of 2010.

[micure97]

@BarryAirdrieFromDaUK Penicillamine causes more neurologic side effects as compared to the other chellating agent trientine. However, even with trientine, if treated longer than necessary, neurologic conditions worsens. My son has WD and had such experience. He is now on Zinc Gluconate and symptoms are getting better. The only cure is liver transplant.

[Arabova159]

what is wilson's disease?

[Iamtheoverlord89]

@Arabova159 Wilson's Disease is a disorder in which the body is unable to properly metabolize copper. It falls under the neurological category of movement disorders. However, unlike Parkinson's and Huntington's, it is not a progressive degeneration of neurons. It is classified as a movement disorder because one of the key symptoms is dystonia, or abnormal jerks. If you're really curious, the book "Newton's Madness: Further tales of Clinical Neurology" has a a story about it. It's worth reading.

[Arabova159]

@Iamtheoverlord89 Thank you,dear...I do really appreciate it...Best Regards !

[sandyj5166]

My daughter has been with WD for 8 years now. We were very fortunate to have her diagnosed early. Though we went to several doctors, ultimately her prognosis was WD. It has been a frightening journey. She is now stable, and we have her on Gluzin 50 mg 3x a day.

[OJ81868]

I had switched over to GNC's Zinc a few years back when I lost my insurance, but had trouble with my WD symptoms, I some trembling after 2 months, so I went back to Galzin.

I have made the switch over to Gluzin - 3 months and counting. Gluzin is much less irritating for me then Galzin. I actually have no more nausea. I had just gotten my test results back and everything is normal. Unless there are any unexpected symptoms, Gluzin is my zinc of choice.

[SaraH5281968]

My daughter and I both have WD. I have been on Galzin for over 8 years. We had made the switch from Galzin to Gluzin more than 9 months ago. I am on Gluzin 50 mg, while she is on Gluzin 25 mg smaller capsules, because she has a hard time swallowing. My daughter's recent test came back normal. I have a few oversea friends, that have a difficult time getting a good quality Zinc product - now they can order Gluzin for their WD treatment!

[master716248]

Gluzin is the best form of zinc, espeacially with nausea!!

[BBrown91878]

Great video!! My cousin was diagnosed with WD 5 yrs ago. He has been aggressive on treatments from early rollercoaster copper chleations to being finally stable with Zinc only. He was on Galzin for 3 yrs, but Galzin gave him nausea, upset & vomiting. He had switched to Gluzin/Zinc Gluconate 6 months ago, and has tested normal with no more upset GI. I have been taking Gluzin as a precaution, since WD possibilities are high. Gluzin is the recommended generic Zinc OTC by the WDA.

[TheDweedledee]

This video was cited in the American Academy of Family Physicians, March 15, 2011. Thanks to the physician and the patient for providing this educational clip.

[ScrewHeaven]

Use of penicillamine can be associated with hypersensitivity reactions, neurologic deterioration, and proteinuria, as well as blood dyscrasias. Therefore, trientine may be a better first-line agent.

[foxyjane10]

If you have these symptoms with penicillamine, it is because it causes a Vit B6 deficiency. So ask your doctor to associate Pyridoxine (which is a vit B6 supplement).

[micure97]

@ScrewHeaven you are right, however, overtreatment with trientine also causes worsening of symptoms as what my son experienced, so be very watchful of the length of treatment with trientine, usually 6 months and then switched or continued with zinc gluconate. My son's symptoms got better after he was stopped on trientine (he was on it for 1 year). He now takes zinc gluconate

[returnoftheramble3]

i feel you guys.  the government trapped me in a void. prior, i had too much dopamine, which made me happy in shitty conditions. you're just not allowed to be happy when placed in Hell, so I keep appealing to Putin to fix it. If we all sacrifice ourselves for research, there wont' be any problems.

[EcuadorWeedSmoker]

i have this disease too, but i have never engage in treatment, i am 21 , and i am starting to have problems, if i eat too much chocolate next day i start vomiting and get a bad diarrhea, i am also a really depressive person , fuck , i am not as lucky as i thought,

[gatogrisalho]

@EcuadorWeedSmoker Usted no uede seguir sin tratamiento, Wilson's Disease te llevara a muerte se no tratada. Tienes que buscar ayuda medica ahora mismo, se posible uno neurologista o hepatologista. Si queires hablar comigo, escrivame: lmazz@bol.com.br

[IkerUnzalu]

Actually it displays the neurological symptoms associated with Wilsons, especially the involvement of the basal ganglia more specifically the Putamen and sub thalamic nucleus which are structures involved in thalamic homeostasis. These are the structures which are excited by dopamine. So the patient is exhibiting parkinsons like symptoms. It is very unfortunate to see this individual suffering. It makes me sad to see this.

[stormy17night]

What do you want to demonstrate by showing this video? There is nothing educative, there are not exposed the main simptoms. Just a poor suffering man. It's not right to make such videos for a large public!

[mjluver2000]

what is wilsons disease?

[Mastur1337Cheef]

lol he's batting off ^^

[copperrising]

Careful......... Wilson's patients are not known for their patience after they've exited stage two and it starts to effect the way we think, loser. You wanna die in your sleep or shaking and unable to talk while your family fears for you every day? Does that sound fun to you????

[copperrising]

this was intended for that creep making fun of this video. It is not fun or funny. Some of the earlier symptoms are photophobia and audiophobia and magnetic field disturbances. I am 30 and look 15 because my skin is full of copper. For most people copper is a healthy thing -- it is in almost all veggies and in whole wheat breads, etc. Most people don't get enough. Unless you are the 1:300,000.

[anitakabara]

@Mastur1337Cheef You stupid jerk. These are called spasms and they are very, very painful.

[rayrayluvvin]

@Mastur1337Cheef your an idiot.

[PunkHippie1971]

@Mastur1337Cheef Suffering is not a funny thing. One day you'll come to understand that. 

[nightstalk3r19]

@Mastur1337Cheef

 you disgust me

[nilsepils94]

i have both pencilimine and zinc

[nastyriz]

Dear frnds,

My lil sister is also suffering from this disease and usually her body gets stiffed. She can hardly swallow anything.. She is still under medication. What i need to know is how much time does a condition like the one in the vdo takes to cure.. Kindly guide me into this matter..

[rakioniztah17]

thats like me too =[ i dnt understand wilsons disease =[

[gatogrisalho]

@nastyriz Wilson's disease has no cure, but with adequate treatment most of its simptons can be stoped. For more details see the Wilson's Disease Association (WDA) site.

[checkeredskid]

I have wilson's disease too. Not nearly as severe as the case in this video. Basically, wilson's disease is where your body doesn't filter out the mineral copper in the foods you eat day in and day out. The body stores the excess copper in the brain and liver causing severe brain damage and liver failure if left untreated. It's tricky to detect in the early stages and extremely rare so many people go undiagnosed and die at an early age. It is a genetic disorder.

[BlackRonsky07]

i have it to,for one year now..i got lucky to know that at my young age (22)..i discovered it accidentally..doctor noticed that keiser-fleycher ring in my eye..anyway what i wanted to say although it is a disease and it must be taken seriously, that doesnt have to affect on persons life..what do you think?? i mean, that guy down said that he is depressed, but i think there are much worse deseases than Wilson..i just don't think of myself now as a sick person

[checkeredskid]

Your story sounds very similar to mine: in that I also came upon my diagnosis of the disease accidentally at an early age (18) and have been very fortunate to not have progressed into a severe state of this disease. However, while you and I may be able to live close to normal lives, many wilson's disease patients are not as fortunate. I think the severity of the disease differs so much from case to case for me to agree with your statement about wilson's not be severe.

[shannoninpa]

@BlackRonsky07

You've had Wilson's Disease for 22 years -- not just one. I am finding that each person's case of Wilson's to be different. At the age of 17, I, too, thought I was a healed person and decided to stop taking the pills -- much to find out, I am very lucky to not have suffered what my younger brother had -- when he stopped taking the pills, and then started again -- he developed an allergic reaction to it -- and now has to take different pills.

[BlackRonsky07]

@shannoninpa

why did u stop taking the pills??i dont underrstand, cuz i have been told that i'll be taking mine whole my life..therefore, wilson's disease is incurable..that's what i have been told..but i'm still learning about it, and maybe, like u said, each persons case is different..apart of taking the pills my life style didn't dramatically change..i feel no pain, have no problems, i just get tired more quickly than before..

[rakioniztah17]

what about me??????

[shannoninpa]

I will clarify that in high school I stopped taking the pills on my own -- no doctor ever told me to stop -- I just didn't feel like I needed it anymore because I did feel well. First I forgot to take my pills -- of which I do take them all at once in the morning (doctor okayed that for me) and nothing happened. I decided not to take them a second day and a third day -- and in my ignorance thought "maybe I'm cured"

Seeing these videos shows me I am blessed that I don't suffer in this way yet

[BlackRonsky07]

hopefully you never will...stay well.. :)

[ruixalves]

You can't stop taking your pills. WD doesn't get cured. It's cronical. You MUST take them to life. because your (and mine) body cannot treat the cupper - if you don't have anything dayly to make it out - without treatment you can die in months.

[drpapenhagendc]

Dear Check and Black,

I'm sorry for your condition. I too suffer from a life threatening condition but wanted to let you know not to give up. Look at all of the alternatives that are available. Something that I specifically considered is adult stem cell therapy. I have no afiliation to them but it should be considered. Look up Don Margolis Adult Stem Cell Institute. My theory is think out of the box. Good luck and live today like it is the last day. :) DRTP

[MickeyLove01]

Tom Hanks had the nicer version if the disease in Cast Away

[PunkHippie1971]

i have wilson's disease =[. It sucks but if you treat it early you'll be fine. I'm currently failing school because of it and going through mass depression because of it.

[herndon5]

i hope you get better

[austinrq97]

wat exactly is it??

and im sry btw(:

[copperrising]

@austinrq97

Wilson's disease is a hereditary condition where the copper that you consume from the foods which you eat adhere to all of the connective tissue in your body - blood, bones, organs, the stuff covering organs, skin, eyes, hair, teeth, nails, liver, spleen, brain. Everyone starts out with different symptoms. It is also known as non-alcoholic cirrhosis and occurs in 1: 300,000 people internationally.

[Skoda130]

@PunkHippie1971 What is Wilson's disease?