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  • Wonderful video, thank you for sharing. We'll give EVERYTHING...but up!!!!

  • Wow there are so many similarities between my boy and yours!! Mine has Tsc and dealt with infantile spams.Kasey was born on 10-12-06 he recently had brain surgery his whole right temperal lobe removed! How is your son doing? Is the vns working? I hope so!!! Take Care

  • Such a touching video. I am an in-home nurse of a 6 month old who has been diagnosed with LGS, which caused me to want to learn more about it. I wish the best for your family and your beautiful son. He sure is a trooper. As a mother myself I can't even imagine what it is like for you to go through the obstacles you must deal with. Thank you for sharing!

  • God bless and thank you for sharing Rhys story, it helps to know we're not alone.

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