I know this response is forever late, but here I go anyway. I have MS, the doc's put me on copaxon to start with, and after several months they changed me to betaseron, I've been on beta now for like 4 years. IM doing well with it. Pain in injection sites come and go, but all in all IM doing good. As for my spinal tap, never again, I told that doc as he was walking out with my fluid "if you drop it you aint getting NO MORE!" terrible. SO what are you on now?? Good luck sweetie.
Still taking Avonex, I think I'm on my fourth month now. Not too much trouble with side effects as far as I can tell, as long as I remember to take my naprelan before hand. However, I'm not a fan of the big needle and the intramuscular injections!
Thinking of either having the nurse come back out to show my boyfriend how to give me the injection in my arm or switching to Rebiff, which is the same chemical, only intravenous and taken three times a week as opposed to the once a week intramuscular.
well good luck with it my Friend.. IM pretty happy with betaseron, it's been good for me so far. And I take it three times a week, off on weekends, keep it all room temp, and auto inject, that auto ject makes it very worth while for me :) anyway I sud'ed u if ya dont mind,,talk atcha later!
Hi Cari, I just reviewed your video & listened to your comments..., please note that Tysabri is for "relapsing forms" of MS & it has a superior efficacy rate for preventing further relapses, slow in the disease process down by 67% whereas the ABCRs only have an effective rate of between 29% and 34%. Plus Tysabri has been proven to show improvements in symptoms, providing that the damage is not permanent. Feel free to e-mail me if you have questions..., all the best to you, Lauren :)
Don't wait to go on Tysabri~It is halting and helping lesions dissappear~Don't wait until your MS gets worse! Do some research! TYSABRI! The other drugs you mentioned suck!
You are indeed a warrior of a woman. Needles in the spine....ouch. I hope you're feeling better after running that gauntlet of test and things of that nature.
May I submit that you speak with a friend of mine in which you may share information and the such with?
No anesthesia? Ouch! That must have been a scary experience to have it happen when you were young.
librarising79 2 years ago
Be careful with tysabri, 10 cases of PML since it came back!!!
dmanagua 2 years ago 2
I know this response is forever late, but here I go anyway. I have MS, the doc's put me on copaxon to start with, and after several months they changed me to betaseron, I've been on beta now for like 4 years. IM doing well with it. Pain in injection sites come and go, but all in all IM doing good. As for my spinal tap, never again, I told that doc as he was walking out with my fluid "if you drop it you aint getting NO MORE!" terrible. SO what are you on now?? Good luck sweetie.
WORRO01 2 years ago
Still taking Avonex, I think I'm on my fourth month now. Not too much trouble with side effects as far as I can tell, as long as I remember to take my naprelan before hand. However, I'm not a fan of the big needle and the intramuscular injections!
librarising79 2 years ago
Thinking of either having the nurse come back out to show my boyfriend how to give me the injection in my arm or switching to Rebiff, which is the same chemical, only intravenous and taken three times a week as opposed to the once a week intramuscular.
librarising79 2 years ago
well good luck with it my Friend.. IM pretty happy with betaseron, it's been good for me so far. And I take it three times a week, off on weekends, keep it all room temp, and auto inject, that auto ject makes it very worth while for me :) anyway I sud'ed u if ya dont mind,,talk atcha later!
WORRO01 2 years ago
Hi Cari, I just reviewed your video & listened to your comments..., please note that Tysabri is for "relapsing forms" of MS & it has a superior efficacy rate for preventing further relapses, slow in the disease process down by 67% whereas the ABCRs only have an effective rate of between 29% and 34%. Plus Tysabri has been proven to show improvements in symptoms, providing that the damage is not permanent. Feel free to e-mail me if you have questions..., all the best to you, Lauren :)
msladyinca 3 years ago
Don't wait to go on Tysabri~It is halting and helping lesions dissappear~Don't wait until your MS gets worse! Do some research! TYSABRI! The other drugs you mentioned suck!
pdixon9111 3 years ago
Always happy to see your presence. I will probably be doing a combination of prescribed and holistic medicine....
librarising79 3 years ago
'Spinal tap'...Sounds like some kind of medieval torture... ;)
It's good to see that you have a great postive attitude. As Rh1no1 suggested it really will help you in the long run.
Best Regards
THG (Kev and Rick)
TheHonestGuys 3 years ago
It kind of felt like it LOL thank God for local anesthesia....
librarising79 3 years ago
You have a great attitude and approach. That will help you infinitely!
Best wishes,
Linds
Rh1no1 3 years ago
Can't let this get me down. Life is just beginning!
librarising79 3 years ago
You are indeed a warrior of a woman. Needles in the spine....ouch. I hope you're feeling better after running that gauntlet of test and things of that nature.
May I submit that you speak with a friend of mine in which you may share information and the such with?
H3ADY1313
She's making MS her bitch.
MeanBlackDude 3 years ago
Cool, thanks.
librarising79 3 years ago
I subbed and sent her a friend request. Take care...
librarising79 3 years ago