Tammytoe, until you've spent a day in the life of a child with Tourette's Syndrome, stop bullying Jonah's youtube page. You need to google search Jaylens Challenge and educate yourself on why people bully. Better yet, watch the documentary of our sons "Tourette's Uncovered" which was moved up to air 9/13/10 at 9pm on Discovery Health.
DerbyDaisy, nice to officially meet you! Friend us up on Facebook, Jaylen Arnold :)
Jonah's condition has deteriorated; Deep Brain Surgery was our last hope (after years of meds, therapy, chiropractic, acupuncture...). He had the surgery in June 2010 and is doing fantastic. His tics are now reduced to minor twitches and he's able to fully function on his own, ride a bike, take tae kwon do, play basketball...
Discovery Health and TLC will be doing a show "Tourette's Uncovered" on Sept. 14, 2010 featuring Jonah & his surgery as well as 3 other boys with TS.
@DerbyDaisy so he doesn't have the severity that he used to because I was watching some a trailer of the doc. and it featured Jonah was thar befire or after the surgery? These kids are so inspirational;)
@TammyToe why should he be denied social interaction and education because he is wired differently. It's obvious that he has an OT that comes to class with him, and teachers and classmates who are comfortable and used to him. I went to school where not all the kids were always "normal" it builds empathy in "normal" kids, teaches them tolerance and acceptance and helps them to understand differences, because this world is FULL of differences. That's the beauty of it.
Jonah is in a parochial school where his father is his teacher and we personally pay for an aid to sit with him and help during school. Keeping him out of school would just amplify the fact that he's different. His classmates and the entire school is fiercely protective of him and he is never teased or treated poorly. So Tammy, while I appreciate your concern for my child, next time try asking questions before you resort to name calling.
tourette syndrome maybe,does he understand he is different,if so what are his thoughts,Thank god for a understanding teacher and staff.the other students seem to except and understand.
Hey- I have a movement disorder called dystonia... kinda looks like he may have something like what I do, only a different form of it. A neurologist or movement specialist will be able to help.
Hey!! I have Tourette's too, and I'm making a documentary about it. I was wondering if I could use this video for part of the documentary.
If you would rather me not use it I have no problem, but if I could that would be great too!!
I hope he is doing better now!! He has a wonderful class!! I wish people at my school could be like that, I think if I had one of those episodes in class everyone would just stare the whole time!!
derby daisy....my daughter is 2years old and just this past summer is when she started movements similar to jonah it scares me when she does it but it mainly occurs when shes laying down i have talked to a nuerologist and he said it was a sleep rythmatic disorder is that the same thing jonah has and if so is there anything that can be done for it
They think he has a severe form of Tourette Syndrome. Unfortunately to date we haven't found anything (medication, acupuncture, chiropractic...) to control or even minimize the movements.
this is soo sad i feel bad for this kid i dont know any medical things or im not that smart or know any thing about this person or his illness but im a person and i can feel sympathetic too so i thought i would leave a comment i am dislexic i have gone threw alot in my life but i know if u have ur mind to it you can acchive any thing i wish u the best of luck
bless him!! aww that is very sad that someone has to go threw that and i hope sooner than later they will find a cure for this!!!! god you bless you sweetheart and your family!!!
I feel bad for him, knowing what it's like to have it. I would only suggest that you hold off on the surgery until he is at least 20 years old. In most cases Tourette's symptoms dissipate as a child reaches adulthood and he could very well manage them without the need to have extreamly invasive surgery, In my caswe the surgery did not work, and now I am stuck with equiptment in my body.
Jonah's tics are still pretty severe. Thankfully he's very good natured so he deal with it well. We have great family and friends so he never feels out of place. Still fighting the insurance company to pay for a surgery that would help(since no medication, acupuncture, chiropractic... has touched it) Thanks for your thoughts!
I can totally sympathize with what he's going through. I would only suggest you leave the surgery in the back of your heads until he's an adult, and if his tics haven't become manageable by then, the surgery should at least be mentioned to your doctor. DBS is generally ONLY performed on TS patients who are adults with bad cases of the disease. My DBS didn't work, so you take your chances. But it's a VERY invasive surgery with MANY serious risks. Not really for a 9/10 year old. Best wishes to you
Can you upload tourettes uncovered? cant find it anywhere!
Colin4566 2 months ago
More videos of how hes doingnow?
Colin4566 2 months ago
My son charlie has this condition may godbless you little boy you are very brave.
rarecockneyguvnor 1 year ago
Tammytoe, until you've spent a day in the life of a child with Tourette's Syndrome, stop bullying Jonah's youtube page. You need to google search Jaylens Challenge and educate yourself on why people bully. Better yet, watch the documentary of our sons "Tourette's Uncovered" which was moved up to air 9/13/10 at 9pm on Discovery Health.
DerbyDaisy, nice to officially meet you! Friend us up on Facebook, Jaylen Arnold :)
jaylenschallenge 1 year ago
Jonah's condition has deteriorated; Deep Brain Surgery was our last hope (after years of meds, therapy, chiropractic, acupuncture...). He had the surgery in June 2010 and is doing fantastic. His tics are now reduced to minor twitches and he's able to fully function on his own, ride a bike, take tae kwon do, play basketball...
Discovery Health and TLC will be doing a show "Tourette's Uncovered" on Sept. 14, 2010 featuring Jonah & his surgery as well as 3 other boys with TS.
DerbyDaisy 1 year ago
@DerbyDaisy so he doesn't have the severity that he used to because I was watching some a trailer of the doc. and it featured Jonah was thar befire or after the surgery? These kids are so inspirational;)
brlaranjo 1 year ago
it looks like touretts syndrome to me
rslnvss 1 year ago
How stupid for this kid to be in a public school setting. Hey PARENTS! HOME-SCHOOL THIS KID FOR CRYING OUT LOUD! IDIOTS!
TammyToe 1 year ago
@TammyToe why should he be denied social interaction and education because he is wired differently. It's obvious that he has an OT that comes to class with him, and teachers and classmates who are comfortable and used to him. I went to school where not all the kids were always "normal" it builds empathy in "normal" kids, teaches them tolerance and acceptance and helps them to understand differences, because this world is FULL of differences. That's the beauty of it.
jaemarie830 1 year ago
Thank you! That's exactly why we keep him in school! We have stressed that maybe his disability is to teach others a lesson in compassion as well.
DerbyDaisy 1 year ago
Jonah is in a parochial school where his father is his teacher and we personally pay for an aid to sit with him and help during school. Keeping him out of school would just amplify the fact that he's different. His classmates and the entire school is fiercely protective of him and he is never teased or treated poorly. So Tammy, while I appreciate your concern for my child, next time try asking questions before you resort to name calling.
DerbyDaisy 1 year ago
@TammyToe well mabby he wants to be with kids
ginniepogo1 1 year ago
tourette syndrome maybe,does he understand he is different,if so what are his thoughts,Thank god for a understanding teacher and staff.the other students seem to except and understand.
inagod 2 years ago 2
@inagod i think it is
mybirthdayisinfeb 1 year ago
Hey- I have a movement disorder called dystonia... kinda looks like he may have something like what I do, only a different form of it. A neurologist or movement specialist will be able to help.
bennasdwarf 2 years ago
Comment removed
breakdancerQ 2 years ago
definitely not something you should see a doctor about
drrobotnik999 2 years ago
he has tourette syndrome..
IsThisTourettes 2 years ago
Hey!! I have Tourette's too, and I'm making a documentary about it. I was wondering if I could use this video for part of the documentary.
If you would rather me not use it I have no problem, but if I could that would be great too!!
I hope he is doing better now!! He has a wonderful class!! I wish people at my school could be like that, I think if I had one of those episodes in class everyone would just stare the whole time!!
=D
God bless this kid!!
IsThisTourettes 2 years ago
derby daisy....my daughter is 2years old and just this past summer is when she started movements similar to jonah it scares me when she does it but it mainly occurs when shes laying down i have talked to a nuerologist and he said it was a sleep rythmatic disorder is that the same thing jonah has and if so is there anything that can be done for it
sellsmelissa09 2 years ago
They think he has a severe form of Tourette Syndrome. Unfortunately to date we haven't found anything (medication, acupuncture, chiropractic...) to control or even minimize the movements.
DerbyDaisy 2 years ago
this is soo sad i feel bad for this kid i dont know any medical things or im not that smart or know any thing about this person or his illness but im a person and i can feel sympathetic too so i thought i would leave a comment i am dislexic i have gone threw alot in my life but i know if u have ur mind to it you can acchive any thing i wish u the best of luck
Supergrant22 2 years ago
Thanks so much for your kind thoughts.
DerbyDaisy 2 years ago
bless him!! aww that is very sad that someone has to go threw that and i hope sooner than later they will find a cure for this!!!! god you bless you sweetheart and your family!!!
nicoleandwill2008 2 years ago
I feel bad for him, knowing what it's like to have it. I would only suggest that you hold off on the surgery until he is at least 20 years old. In most cases Tourette's symptoms dissipate as a child reaches adulthood and he could very well manage them without the need to have extreamly invasive surgery, In my caswe the surgery did not work, and now I am stuck with equiptment in my body.
Chrisrex83 2 years ago
Jonah's tics are still pretty severe. Thankfully he's very good natured so he deal with it well. We have great family and friends so he never feels out of place. Still fighting the insurance company to pay for a surgery that would help(since no medication, acupuncture, chiropractic... has touched it) Thanks for your thoughts!
DerbyDaisy 3 years ago
I can totally sympathize with what he's going through. I would only suggest you leave the surgery in the back of your heads until he's an adult, and if his tics haven't become manageable by then, the surgery should at least be mentioned to your doctor. DBS is generally ONLY performed on TS patients who are adults with bad cases of the disease. My DBS didn't work, so you take your chances. But it's a VERY invasive surgery with MANY serious risks. Not really for a 9/10 year old. Best wishes to you
Chrisrex83 2 years ago
Poor Kiddo. How is he doing now?
buckyrox2008 3 years ago
He has a very rare but severe form of Tourette Syndrome. Our local new station did a report on him for awareness in our community.
DerbyDaisy 3 years ago
this is so sad poor baby. what does he have?
hotlez008 3 years ago