RSD-Reflex Sympathetic Dystrophy/CRPS-Complex Regional Pain

[armi555mw]

Same story. Fine, crushed my elbow. It gave me hell for months, then pain took over parts of my body. 20 Doctors, told a nut. Neuro finnaly did studies and said I had PN, but many other symptoms that made no sense. My skin goe's ice cold to other people, but feels on fire to me. Now severe pain in hands and feet, but so dizzy. Mayo thought RSD, but couldn't follow up, test spread over 3 months. Finally lost my business. Can hardly get out of bed. Home foreclosed, wife moving.

just think death.

[Evan63052]

My RSD limb is my right arm wrist and hand. I got a shot of cortisone into the wrist for tendonitis. The Dr ruptured the tendon with his needle and it sat off my reaction. I,ve taken Morphine since 2001. Gabapentin does nothing for me. I've been taking Lyrica since it's been out and it has worked to help me sleep. But only marginal results for the pain.

[kitcat1015]

I was denied the SCS........was told its all in my head!!!

3 years suffering, with no real meds to help me deal with this pain.

I try to get my mind on something else, but it is hard.

I use to read, but now i cant concentrate enough to read a book.

If i try....and go back, i forgot what i had read.

I wish i had a real pain Dr.

I rarely leave apt, and no one really understands when i say i am in pain.

[larzo34]

Hi Hon

I have had CRPS for 15 months now, I am on gabapentin and get sympathetic nerve blocks, they have helped alot. Get to a specilist and fight fight fight for your

rights. I am still in pain everyday but I've learned to deal with it better. Good luck

[larzo34]

Sorry hon I also wanted to tell you about an online support group for people with RSD and CRPS. It is called Physicians for Patients. It is wonderful and you will talk with people who had it and understand and give great support. Hope to see you on it soon

Cheryl

[mssherrie]

I had to post what I wrote in two or three different posts. The count here is not accurate. Ohhh well. anyway, would love to hear from any of you.

Sherrie

[mssherrie]

. We need the so called experts to get together on what IS and what ISN'T OK and works , etc.....Every time I see one of these medical experts they differ from the last one I lestened to. Dr. Ronald Harbut of Hot Springs , Arkansas has the most logical, pragmatic and helpful approches to this disease I have seen so far. He is an expert with actual success with the ketamine low dose/awake treatment.

[mssherrie]

After watching a lot of video and reading a lot of patient testimonials and hearing doc talk about it.. bottom line it.... there is still a lot of mis information and confusion and that is BAD for everyone.

[bishopj57]

Prior to my diagnosis, six months after being hospitalized with severe pain and muscle spasms, I was treated so badly just asking for pain medicine while in the hospital. I was treated like a drug seeker. I was only given the minimal dose of pain medication although a larger dose was ordered. It has been an uphill battle with hospitals and staff. If you tell them that it takes you a minute to position your body for a x-ray, they become impatient and pull you into position.

[AskMara]

I have RSD and I found products that help me.

[scooterlady1]

have rsd left foot i live in lou ky

[jesdenm]

I too suffer from RSD. I currently have been implanted with a Spinal Cord Stimulator. It is not 100%, but I am not bedridden as much as I used to be. Hugs to all.

[samgerke]

My wife found these products that have helped her

[1more4theroad]

Thank you for the video. I am having a rough time making it through the evening because the pain is killing me...the pain from my RSD. It somehow helps to watch this.

[rebafanatic16]

I know exactly what your going through. I got my RSD when I was nine...and I'm now sixteen. It was suggested to my mom that I was making up the pain to get attention. It took me a long time to get diagnosed. The other day I fell, and I'm doing really bad...haven't slept decent in nights.

[TCWstopmotion]

me too ive only had it 4 a year and i hate when people say im faking!!!!

[beadbird]

Doctors who abuse patients by telling them that they are crazy are disgraceful and ignorant!