Exercise for Fibromyalgia and CFS

[Spo1ledbratbaby1]

No two fibromyalgia patients have the same level of pain. Some, like myself are severe. Others may be able to be active. The moment I get started with the smallest amount of exercise, I either hurt myself and end up with NEW pain in my body or my body shuts down on me. It's not something that I would wish on anybody. I watched my father suffer from it and my sister and I now suffer the same effects. She is more active than I but her heart is not very functional. What do we do?

[ValerieLumley]

I am a recovered fibromyalgic who had to leave the medical profession to discover the simple cause and cure for this horrific illness without drugs, and am living proof that you can completely cure this condition and take back your life. Please, do not give up from failed hope and keep going!!!

Valerie Lumley, Recovered Fibromyalgic and author of

"Curing Chronic Fibromyalgia - Choosing What Works"

[flopsyuk]

Muscle fatigue and muscle pain are not hallmarks of Fibromyalgia.

The diagnostic criteria for Fibromyalgia was written by the American College of Rheumatologists.

It shows tender trigger points.

People with CFS do not have these same tender trigger points.

Exercise causes damage to people with CFS. It is called post exertional malaise and is well documented.

As the woman said in this video exercise helps her with FM. There fore the two diseases are very different.

[synapse131]

@flopsyuk

Quoting The Clinical and Scientific Basis of M.E./CFS:

"A recent symposium on CFS at the NIH in 1991 concluded that Fibromyalgia was a symptom of several disease processes, and that Fibromyalgia Syndrome was a synonym for CFS." FM=central hyperalgesia coupled with micro-circulatory dysfunction that causes generalized hypoxia and loading of non-recyclable metabolic by products into the muscle cells (since circulation is not carrying them away.)

[synapse131]

@synapse131

There are several disease processes that lead to FM, including M.E./CFS. According to Hyde, the small percentage of "CFS" patients without myalgia (10-15%) have missed heart disease, cancer, etc. and do not have M.E. (note the "myalgic" part of M.E..) All M.E./CFS patients have FM/myalgia (incl. a small number of patients with trigger points that are less tender than what would be included in an FM diagnosis; TP tenderness appears to be modified by previous pain resistance.))

[synapse131]

Respond to this video... Fibromyalgia may be more properly viewed as a pain syndrome that occurs with several illnesses including: virally mediated M.E. (via diastolic cardiomyopathy and micro-circulatory dysfunction leading to ischemic excitotoxic damage in the brain resulting in hyperalgesia and the micro-seizure that causes all of the cognitive symptoms) organophosphate related M.E./CFS (which also causes excitotoxic damage and cardiomyopathy,) Lyme related M.E./CFS (cont.)

[synapse131]

And there are likely to be several causes to "pure pain" FM as well. I have read that there is a subset of people who have a compromised blood brain barrier who when they eat dietary excitotoxins, also experience FM hyperalgesia (which makes sense since glutamate [as in monosodium glutamate] is the principal neurochemical involved whether it's an exogenous source [as with dietary excitotoxins] or an endogenous source [as with virally mediated M.E.])

[synapse131]

P.S., you are thinking of "Chronic Fatigue Syndrome" as defined by a bunch of boobs who didn't have a clue what they were doing. The definitions for M.E. have always included myalgia (i.e., fibromyalgia.) Regarding FM tender points, Although its good that they found something reproducible for diagnostic purposes, defining something by a symptom (which can be variable in and of itself) is like defining a Ferrari as being "Ferrari red" though there are many Ferraris that are not red.

[synapse131]

There appear to be a small group with the full symptom complex of FM but have less tender trigger points that most FM patients and as noted below, this appears to be a result of a high previous pain threshold (interestingly, having had a high pain threshold and less tender Tps does not seem to modify the overall illness, again arguing against some type of inherent defect or dysfunction with patients.)

Overall, acc. to Hyde, 80% of FM patients have M.E. and only about 20% have "pure pain" FM.

[synapse131]

Keep in mind that the broad clinical categories that we give to things are artificial and not inherently related to cause. Now that we have a greater understanding of the causes of M.E. and closely related illnesses that result in FM hyperalgesia and micro-circulatory dysfunction, we can more properly define these conditions and understand how they relate to each other. As there are several physiological process that lead to the excitotoxic damage that causes hyperalgesia (cont.)

[synapse131]

we have a greater understanding of how "pure pain" FM patients can exercise without doing as much harm to themselves as M.E. patients since they are unlikely to have the cardiomyopathic features that started off the processes that eventually lead to ischemic damage in the brain and hyperalgesia in most M.E. patients.

P.S., the central hyperalgesia of these illnesses is physiologically similar to what occurs in meningitis or encephalitis and is related to dysfunction in the spinal dorsal horn.

[Baldricblackadder]

So..so true. I hope "the normals" watch this video & maybe they will begin to understand what we go through every minute of every day 24/7. We do try, we cope with the symptoms every day, the best we can & hope that through the spreading of the word "fibromyalgia" one day someone will sit up, take note & pump some serious money into research to find a cure for us & the many millions of people throughout the world who have as well as have not (as yet) been diagnosed with FIBROMYALGIA.

[yelloworangered]

@Baldricblackadder "Normals?" I think you mean healthy people. BTW I have CFS and fibromyalgia.