Autistic Child with Long History of Self Punching Behaviors

[PlusizePopstar]

they followed up on Jamey a mother later the first showing,

but have the followed up now, have the been in contact with you now?

have they offerd any help?

you are a super MOM & Dad,

i want to help but have no medical background or anything,

i have watched your videos on Jamey, and i think he is a beautiful guy,

and has an amazing story, keep you all in my prayers.

for now thats all i can do but know that im thinking about your family,

and wishing you love and good times to share.

[taxfatcats]

that child would probably benefit more from an exorcism than a doctor, the quacks might as well arrive with their duffelbags of leeches

[mercyhurstchic]

How's Jamie now? I know you get this question all the time. This is my first time watching this video. I hope he's doing better.

[milotickz]

Oh my god.

[mymomenttoshine]

hes beautiful :) i have a 4 year old with autism myself, you are both strong parents, and jamey is lucky to have such patient, supportive and caring parents. as parents we are advocates for our children, and somtimes that means screaming at doctors, nurses and other so called professionals to get the help we need.:) keep up the good work :) jamey your such a beautiful boy. it takes someone special to see past the " characteristics' and notice the beauitful person within. I wish you the best xx

[BamfIsKirby]

:'D he was a cute little kid. :)

[vntrusso]

Have you tried sensory integration therapy, the SIB could be a result of sensory overload.

[CDFoakley]

@BluestreakPictures Oh boy, here we go again. You know, you change your profile so many times, and go under so many different names, it's beginning to get comical.WTF is wrong with you? Why are you obsessed with hating autistic persons? And trust me, if anyone is going in an underground warehouse, it would be people like you, not autistic people.

[NannyPani]

@BluestreakPictures SHUT THE FUCK UP u FOOL!

[TypesEvilAspieEyes]

Are you still fighting the courts today for the device?? , CDFoakley

[CDFoakley]

@TypesEvilAspieEyes No, we won, used if for several years and then it was faded, but sadly, when it was faded, his self abuse returned and then the state wouldn't let group home use it, which I agreed with, because I wouldn't trust anyone but us directly supervising someone using it on our son. It can be misused, just like drugs can be misused by people who aren't quailifed to handle these things.

[DutchyVegas420]

aww thats so sad Dx poor him.....just give hima blunt im sure hed be all good ;')

[haileyalexis709]

It may be a source of frustration but has anyone tried to figure out if the stimulus that provokes this behavior is internal? Is it neurological?

[CDFoakley]

@haileyalexis709 It is most likely a combination of factors, both behavioral and neurological. For instance, preictal issues, sub clinical seizures and preictal headaches to adverse reactions to seizure meds and autistic behaviors that are fueled or triggered by internal and external triggers (ie...a simple headache can cause him to punch self but he can't tell us, since he's non verbal). or (noises that we don't find offense may torture him). We desperately need top experts to help us...

[CDFoakley]

@CDFoakley At this point of our lives it's just a major waste of time dealing with the run of the mill professionals. Our son's case is way out of their league. They don't have the skills or knowledge to determine what is going on. Mainly, it's because we need things like SPECT scan (for seizure and behavioral reasons) proper identification of seizure foci, etc..because this is a MIX of issues that must be comprehensively handled. Instead we're stuck in fragmented bureacracy

[haileyalexis709]

@CDFoakley This video was done in 1995 and you are still waiting for help?

[CDFoakley]

@haileyalexis709 Yes, this video was done in 1995 and to this date, NOT ONE autism expert or "behavioral expert" has helped our son, so that has stabbed us in the heart like nothing else could ever do. Likewise, my own familly, a family very wealthy, has done nothing to help us. They spend most their time coddling their daughters who were dating drug dealers.

[haileyalexis709]

@CDFoakley I am a Speech Pathologist. Exactly what types of therapy has he been getting? Are the Occupational therapist doing brushing therapy on him? Is there a Listening Therapy program going on? Has he received ABA? Lots of questions to throw at you but I am just trying to understand what has been going on with him.

[sadafslp]

@haileyalexis709 and you threw very sensible question really we need to know first whats going on with him.... 

[sadafslp]

@CDFoakley i agree with you....

[CDFoakley]

@haileyalexis709 It's internal and externally triggered. For instance, a sudden loud noise can send him into a self injurious frenzy. Or he can display mild SIB while waiting for food or drink (which is why we move quickly or have food ready b4 he begins inevitable mild sib while waiting for anything. He has zero patience. It's a very primitive behavior, his way of communicating in many forms. He'll also punch himself if he, let's say, has a stuffy nose. Also, if he's tired. It's crazy

[CDFoakley]

@haileyalexis709 I think if we could find the areas in his brain that are misfiring and thus making him vulnerable to SIB, we could better help him. Our HMO Doctors won't do SPECT scan, say it's not indicated. 18 years of failed meds prescribed for sib, and they think a spect scan isn't needed. Maybe it's cuz they think jamey won't sit still for it, which is probably true. Gosh, there must be some other test to observe brain function so we'd better see specific problem areas linked to sib

[ballcapmusicbox]

oh thats so sad

[pokelover66544]

wow i havent seen jamey this young before i watch all your videos

[KevinKlinelover]

@pokelover66544 I agree. (I might have repeated myself but) I was a newborn at the time.

[cchasler]

Damn you God!!! Why do you do this to children!!! This is why I stopped being a Christian!!

[sheebi36]

my son has both epilepsi and autism i can imagine the problem

[rqshepherd]

it is a shame that people worry about other planets and don't care about our autistic children. I know, I have a 20yr.old autistic son.

[DavidLovesToSkate]

That's so sad =[

[kaylinsvlog]

his mother has a youtube account, cdfoakley i believe. this poor child and mother. he can't help it. and god bless his mom for being so brave while this is happeneing.

[BeavisHChrist666]

this is fucking hilarious

[BeavisHChrist666]

this is fucking hilarious

[MultiSnooty]

give him a lobotomy before he beats himself to death!

[BBKF19]

You are an inspiration to every parent.

[PinkPunkyKat]

A "shock" devise would be cruel for a child. I've used a tens unint for my scolosis and it DOES hurt.

[kgaccount]

A breif shock was not cruel at this point of his life. It saved him from taking thousands of hits to head. It saved him from punchin out his teeth and ending up under general anesthesia to repair them. It saved him from a broken nose, lacerated eye and breaking his fingers on his head while he punched it. This was a LAST resort after an army of "professionals" failed to offer anything to stop the self abuse.

[PinkPunkyKat]

Why don't they look into what is causing him so much distress? Look at look at little Jamie's face, something is cleary distressing him. Perhaps his clothes are too strachy, perhaps a noise is too lound or agraviting to him, etc..

[kgaccount]

You make a good point. However, be advised that we had taken Jamey to a plethora of doctors--all of whom told us they could find NOTHING wrong with him.

[bunnyz324]

i mean i did work with some people with SIB before

[CJEB4]

I don't see these "professionals" comming up with any better solutions, they cry inhumane, in my eyes inhumane is taking away the only treatment that works and offering nothing useful in exchange. A small shock, or a visit to the ER with broken bones, sounds like a no brainer to me.

[iamacoolkorean]

it doesnt help anymore?

[kgaccount]

We don't use it now because after we successfully used it for five years and then decided to place him in group home, the state said, "NO, you can't allow others to use it in group home." So, slowly, within 5 years inside group home, his self abuse increased to point of causing himself a hematoma on the ear and permanently damaging his ear. Now, it's too late to go back to skin shock, as he's been off it for too long. Effectiveness has been lost due to inconsistent application across settings

[sammbah]

omg.. I can't get over your story... can I ask why you don't want to use skin shock again...this is outrageous our children being so kinda ignored in a world so wealthy...

[CDFoakley]

The second we tried to get skin shock, alleged "advocates" for disabled went crazy....people who didn't know us or our son judged us in the most harsh way...played God..had the audacity to think they knew MORE than us on what our son needed to protect him...we battled and fought through the apathy and arrogance....we won. But all the people who couldn't help then split when the skin shock worked....they simply couldn't accept there are RARE cases that require temporary use of skin shock

[sammbah]

Thankyou for sharing this information.. don't half have to make these 'pros' move there butts!!

[sammbah]

PS. Lorazepam seems to stop it all almost completely, for a few hrs.. but docs want her off this.. out of interest have you tried this... the genologist says that possibly may give him a clue.. I dunno, she is a different child on this...

[CDFoakley]

Yes, lorazempam (ativan) doubles as both anti-seizure and anti-self injurious intervention. We have used it. Doctors use it in ER situations to calm our son, as unfamiliar settings trigger extreme SIB...Problem is it sometimes has paradoxl effect...where it hypes him up and increases SIB it's hit and miss...Back to skin shock: It's effective, but we don't use it now because device is antiquated...it needs to be re-done more like a Ten's Unit to "re-direct" the pain of acute and chronic SIB.

[sammbah]

Yes it is hit and miss, I've noticed that before... tried her drug free and it was a quick down hill for her....Mmm.. amazing that we can send people into space but no-one has come up with this devise.. amazing!!

[CDFoakley]

Equally odd that America bailed out big buisness and spends billions investigating "life on other planets", but ignores the life on THIS planet...example: California cut funds to almost every agency serving elderly, sick and disabled and their families..and you'd think it's 2009! can someone make a n effective safe creative device that helps these autistic kids stop smashing their skulls to pieces?

[christschool]

There is a more powerful device than the SIBIS, much more powerful and its random (arm,leg,waist). However, from your videos, it appears mild restraint during periods of SIB seem to be helpful. I assume you guys have certainly had an FBA, perhaps too many to count. Is it realistic to use mild restraint in anticipation of triggers or does epileptic episodes make this unrealistic?

[CDFoakley]

Jamey's SIB is fueled by multiple triggers that fluctuate as per his medical and neurological state...Example, SIB could follow seizure activity, but then suddenly laughing follows the seizure activity...it's like living on a roller coster......Mild restraint is helpful, there are times the SIB is so chronic the sound of another punch is like lighting in our brains, Our son can't help it. Once he gets going, he's like a record that gets stuck on the same song...It's very primitive behavior

[sammbah]

Yeah, it makes our hearts ache so much with every blow! I know how your heart must feel,, and supposed to just get on with it.. my 2 yr old has copied her to our horror,, just tryin to teach him that its not normal behaviour!

[sammbah]

I have never heard of this divise.. do you still use it? Oh man.. I so feel for your son.. I know the pain, your story is like a carbon copy of ours! And the red tape and battles. mines is batteling to get nurses to go to Aprils school to give suppositry form of carbamazapine... oh, gosh! You know, like I that people try to help.. but the approaches , diets, etc don't work.. Love to you all xx xx xx

[iamacoolkorean]

its broken now?/

[mikeypwn]

Sad to look back that far and see your family struggling from that point until now.