Added: 3 years ago
From: billycoffman
Views: 25,585
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  • In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.

  • Schlim das wieder zu sehen, meine Freundin hat diese Krankheit auch, sie ist jetzt aber im Pflegeheim. Alles was man hier sieht habe ich so erlebt, die Bewegungen in spastischer Form, das zwanghafte Schlucken usw., alles wirklich schlimm. Es tut voll weh, habe gerade Tränen in den Augen.

  • thanks for sharing. I appriciate you giving me the opportunity to put a human face on this life changing disease.

  • Life really sucks some times with cards we get dealt. Makes you wonder if there is a god.. because why is he so cruel to decent people. Anyway all the best Billy you seem like a great dad :)

  • Life really sucks some times with cards we get dealt. Makes you wonder if there is a god.. because why is he so cruel to decent people. Anyway all the best Billy you seem like a great dad :)

  • Thats so sad to watch, it must be even harder for you's. I hope the little ones done have it as well. God bless you and your family.

  • Why should she be in a nursing home?

  • Are the lil girls tested yet?

  • Like, each & every day, she attains an unprecedented level of deterioration.  Mercifully, she is more than likely unaware of that. So sad, babes!

  • Billy how long has your wife had Huntingtons? Whats great about her is the way she accepts going back to the nursing home. Most people resist. My cousin, her mom & uncle had this, so I know what you guys are going thru. Hang in there & God bless all of you.

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