REALHi my name is Hope and I am 40 and found out that I had kfs when I was 27 . It is nice to see someone like me I hope we can somehow talk maybe on facebook let me know through this if so look me up under Hope Belzer
I have KFS.........was diagnosed at birth............you couldn't miss mine, as it's quite severe LOL Glad to see someone has posted about KFS on here..........I am fused C-1 through C-7 so i really don't even have a neck to speak of............but i have NEVER let that stop me from living a full life!! :)
I have KFS - just diagnosed after 34 years of life. I have had a headache going on 4 months now. I am going to have surgery in Dec. to correct the deformities in my skull, cervical spine, and pinched brain stem.
i was born with kfs. i am hard of hearing and 2 fuse connected in back of the neck and low chest and low hair line and cleft palate and lip palate
Mandywhite62 6 months ago
REALHi my name is Hope and I am 40 and found out that I had kfs when I was 27 . It is nice to see someone like me I hope we can somehow talk maybe on facebook let me know through this if so look me up under Hope Belzer
ptbandit1313 1 year ago
I have KFS.........was diagnosed at birth............you couldn't miss mine, as it's quite severe LOL Glad to see someone has posted about KFS on here..........I am fused C-1 through C-7 so i really don't even have a neck to speak of............but i have NEVER let that stop me from living a full life!! :)
Sugrbritches247 1 year ago
I have KFS - just diagnosed after 34 years of life. I have had a headache going on 4 months now. I am going to have surgery in Dec. to correct the deformities in my skull, cervical spine, and pinched brain stem.
KE7EDW 1 year ago
I have KFS too
frankfathom 1 year ago