i was also born with Hydrocephalus i hope and pray that the little guy does better every day i had 10 surgeries because of shunt malfunctions and other complications from a couple of weeks old to the time i was 4 years old i jus had my 11th about a week or two ago at age 20 because the shunt had broken directly under the pump....that little man is a fighter i hope things hav gone well since you posted this i applaud you for hangin in there i kno without my parents i wouldnt be where i am today
your hydrocephalus jiourney sounds ALOT like mine. I was born 7 wks early. on tje 1st attempt at putting my shunt in i coded but came out of it ok. i've had 2 replacements since then (the most recent being this past January. When I was born the Dr.s thought i'd never walk or talk but i fooled them all!
@angelbiter my son to had the same thing he will be two in 16 days he did everything much much later but there is hope so glad your baby boy is doing amazing
Hello, I am working on a Foundation website about Hydrocephalus and I would like to use your video as a testimonial to help other people learn about this medical diagnosis. Please email me at TruFoto@hotmail.com if you could. If possible could you tell you story in the email so I can post it on the website.
You baby boy is absolutely beautiful and perfect just the way he is!!!! I wish you guys nothing but the best!!!!! That baby is so lucky to be loved by so many people!!!!
he's a pretty baby! Although I have wondered if it hurts them to have the fluid on their brain. When it swells up it looks so painful, but he doesnt seem to know it lol.
You have such a beautiful baby, my son also has hydrocephalus from an automobile accident when he was just 2 months old its a blessing that he is seizure free. He is a lucky little boy to have great parents!!!!
your son is beautiful i have a daughter also diagnosed with hydrocephalus early pregnancy i was too told she'd never survive, she is now 20months and is a very happy little girl she cant walk yet but we working on this toogether looking through this video reminded me of what i went through and to see there are others going through this and im not alone gives me confidence that she will be ok, i hope your son is well and continues this way xxxxx
I'm 31 with hydro and i have 2 kids who don't have it luckily...What an amazing clip...Brought me to tears if i'm honest...Having hydro has made into the decent/kind hearted genuine guy i am today as it makes me see life in a different light...Hope alls well and your all loving life as that's what lifes about...=o) X
thanks everyone!! I appreciate all the good thoughts. Robert is doing amazin!!! I will update with a new video soon so everyone can see how good he is doing. Robert is now 17 months old and has learned how to sit and can hold his head very well. He is still not crawling but with his Physical therapy we are sure he will be doing so soon. He also has a helmet to help with the shape with his head. Since his hydrocephalus had made his head swell and his multiple surgeries he had a few flat spots.
@W0nd3rw0m4n im not offended. you have no idea how many people are curious about that. i would rather people ask questions politely than make assumptions rudely. We believe that he will grow into his head. although the top of his head will always seem larger than normal. We wont be 100% sure until that time comes but either way he will be handsome and loved by many!! :)
You have a beautiful baby boy! He is definately a fighter but you are too! My son also had this (i had him at age 17) but he passed away 4 hours after he was born. And i dont think i could handle things as well as you have , but your video truely blessed me :) may God bless you and your beautiful family in the days and years to come :)
HI I HAVE A DAUGHTER THAT IS 10 WEEKS AND WAS BORN WITH HYDROCEPHALUS... SHE IS DOING GREAT SHE HAD SHUNT PUT IN AT 1 WEEK OLD AND HAS HAD TO HAVE IT CHECK CUZ IT WASNT WORKING BUT IT SEEMS TO BE DOING GREAT NOW IT JUST SUCH A GOOD FEELING KNOWING IM NOT THE ONLY ONE GOING THROUGH THIS,.,, IT IS SO HARD WHEN IT COMES TO UR BABY ..HOPE TO GET IN CONTACT IT WOULD BE NICE... THANX FOR READING
i am 8 and i still have it i have been hit in the head of times also i have been rushed many times i am going to have it my whole life one day i rember that when i was getting ready to go to school i colsped and got up coughing and dizzy and rushed too the hospital and i don't remeber anything besides that stay strong Veta
3:43- the most precious picture. He is so so beautiful.
Not sure if you have facebook, but we have a huge community on there I can direct you to if you fancy joining us, we all have hydrocephalus, or have children with it. Everyone helps eachother out and gets everyone through hard times
I was also diagnosed with hydrocephalus when I was an infant (around 6 months old), although the cause of it was not determined. It was something that just sorta happened. Although the doctors pretty much predicted I would have mental retardation, I've been able to lead a very normal life. I did take medicine for seizures and swelling, but stopped when I was 7 or 8 years old. Throughout my school career, I did have special ed services, but was able to "wean" myself off of them in college.
thnks for sharin....how is ur son doing now? i really can say that i kno the pain and hurt u must have been tru... my daughter had it and also did the surgery... but my question is...it does have side affects but do u c like signs of like he is not hearin? somehow i think thats is happening to me. am not sure atm but we should take her to the doc soon to get that checked out. reply asap please thnks<3
i was also born with Hydrocephalus i hope and pray that the little guy does better every day i had 10 surgeries because of shunt malfunctions and other complications from a couple of weeks old to the time i was 4 years old i jus had my 11th about a week or two ago at age 20 because the shunt had broken directly under the pump....that little man is a fighter i hope things hav gone well since you posted this i applaud you for hangin in there i kno without my parents i wouldnt be where i am today
mikeykarisniey 5 days ago
Love you, buddy! Stay strong.
TheJames1745 1 week ago in playlist Liked videos
Look at those beautiful baby blues! What a cutie! It's nice to hear he's doing so well. :)
kemoshea713 2 weeks ago
your hydrocephalus jiourney sounds ALOT like mine. I was born 7 wks early. on tje 1st attempt at putting my shunt in i coded but came out of it ok. i've had 2 replacements since then (the most recent being this past January. When I was born the Dr.s thought i'd never walk or talk but i fooled them all!
disneydanny2 3 weeks ago
God Bless you all -3
mjoysmith81 1 month ago
@angelbiter my son to had the same thing he will be two in 16 days he did everything much much later but there is hope so glad your baby boy is doing amazing
MultiDominator16 1 month ago
@W0nd3rw0m4n My son has grow into his head :) so yes they do but his head does appear larger in some spots
MultiDominator16 1 month ago
My dad actually has hydrocephalus so I definitely understand your journey. God Bless
rebar351 1 month ago
AWW him toe cute (baby talk)
damnshebad691 1 month ago
Thank you for this video. Uplifting.. God bless you both and Robert.
keyscowboy 2 months ago
Hello, I am working on a Foundation website about Hydrocephalus and I would like to use your video as a testimonial to help other people learn about this medical diagnosis. Please email me at TruFoto@hotmail.com if you could. If possible could you tell you story in the email so I can post it on the website.
Daddygoodfun 2 months ago
You baby boy is absolutely beautiful and perfect just the way he is!!!! I wish you guys nothing but the best!!!!! That baby is so lucky to be loved by so many people!!!!
sgalbreath0408 2 months ago
he's a pretty baby! Although I have wondered if it hurts them to have the fluid on their brain. When it swells up it looks so painful, but he doesnt seem to know it lol.
AbneyParkFan 3 months ago
You have such a beautiful baby, my son also has hydrocephalus from an automobile accident when he was just 2 months old its a blessing that he is seizure free. He is a lucky little boy to have great parents!!!!
amotherslove75 3 months ago
im was a peds nurse,and he is a beautiful baby,hang in there!!prayers
sbelalei 3 months ago
your son is beautiful i have a daughter also diagnosed with hydrocephalus early pregnancy i was too told she'd never survive, she is now 20months and is a very happy little girl she cant walk yet but we working on this toogether looking through this video reminded me of what i went through and to see there are others going through this and im not alone gives me confidence that she will be ok, i hope your son is well and continues this way xxxxx
siennasmummy10 4 months ago
I'm 31 with hydro and i have 2 kids who don't have it luckily...What an amazing clip...Brought me to tears if i'm honest...Having hydro has made into the decent/kind hearted genuine guy i am today as it makes me see life in a different light...Hope alls well and your all loving life as that's what lifes about...=o) X
bentdog89 4 months ago
He is a gorgeous little boy , I hope he is going well , And i wish you alll the best for your future
LyricAndPoem101 5 months ago
thanks everyone!! I appreciate all the good thoughts. Robert is doing amazin!!! I will update with a new video soon so everyone can see how good he is doing. Robert is now 17 months old and has learned how to sit and can hold his head very well. He is still not crawling but with his Physical therapy we are sure he will be doing so soon. He also has a helmet to help with the shape with his head. Since his hydrocephalus had made his head swell and his multiple surgeries he had a few flat spots.
angelbiter 6 months ago 2
Just a quick question. Do kids with this condition grow into their head (not meant to be offensive sorry if it does)? Just a question..
W0nd3rw0m4n 6 months ago
@W0nd3rw0m4n im not offended. you have no idea how many people are curious about that. i would rather people ask questions politely than make assumptions rudely. We believe that he will grow into his head. although the top of his head will always seem larger than normal. We wont be 100% sure until that time comes but either way he will be handsome and loved by many!! :)
angelbiter 6 months ago 3
You have a beautiful baby boy! He is definately a fighter but you are too! My son also had this (i had him at age 17) but he passed away 4 hours after he was born. And i dont think i could handle things as well as you have , but your video truely blessed me :) may God bless you and your beautiful family in the days and years to come :)
isaacsmommy1100 6 months ago
your little boy is precious.... i don't think this will ever leave my memory. how is your little angel doing now?
ricksbitch777 6 months ago
HI I HAVE A DAUGHTER THAT IS 10 WEEKS AND WAS BORN WITH HYDROCEPHALUS... SHE IS DOING GREAT SHE HAD SHUNT PUT IN AT 1 WEEK OLD AND HAS HAD TO HAVE IT CHECK CUZ IT WASNT WORKING BUT IT SEEMS TO BE DOING GREAT NOW IT JUST SUCH A GOOD FEELING KNOWING IM NOT THE ONLY ONE GOING THROUGH THIS,.,, IT IS SO HARD WHEN IT COMES TO UR BABY ..HOPE TO GET IN CONTACT IT WOULD BE NICE... THANX FOR READING
arykike11 6 months ago
i am 8 and i still have it i have been hit in the head of times also i have been rushed many times i am going to have it my whole life one day i rember that when i was getting ready to go to school i colsped and got up coughing and dizzy and rushed too the hospital and i don't remeber anything besides that stay strong Veta
carole8910 6 months ago
3:43- the most precious picture. He is so so beautiful.
Not sure if you have facebook, but we have a huge community on there I can direct you to if you fancy joining us, we all have hydrocephalus, or have children with it. Everyone helps eachother out and gets everyone through hard times
Take care xx
tobybelchy 7 months ago
He is just so gorgeous!
thewarisdiscusting 7 months ago
I was also diagnosed with hydrocephalus when I was an infant (around 6 months old), although the cause of it was not determined. It was something that just sorta happened. Although the doctors pretty much predicted I would have mental retardation, I've been able to lead a very normal life. I did take medicine for seizures and swelling, but stopped when I was 7 or 8 years old. Throughout my school career, I did have special ed services, but was able to "wean" myself off of them in college.
jfluter 8 months ago 2
thnks for sharin....how is ur son doing now? i really can say that i kno the pain and hurt u must have been tru... my daughter had it and also did the surgery... but my question is...it does have side affects but do u c like signs of like he is not hearin? somehow i think thats is happening to me. am not sure atm but we should take her to the doc soon to get that checked out. reply asap please thnks<3
Undisputeable 9 months ago
thx for sharing your story xoxox
MrBremik 9 months ago
u have a lovely son x
tracybabiexx 10 months ago
Amazing video. So glad that your prayers were answered and that your son lived.
aSongScout 11 months ago
if anyone wants to know about hydro or has any questions feel free
angelbiter 1 year ago