It's probably too late, but has she been tested for Niemann Pick Type C? There is a blood test and a skin biopsy. There is no cure, but it sounds like her symptoms.
continued) but since not one single person in the media would help I hope u can sleep at night knowing that by making that decision a beautiful angel has died!!!!!!!!!!! sometimes its better to let down the gates a little put down ur fame for one minute stop worrying about your ratings I am sure if Oprah herself heard my story she would have listened and helped but all the damn gatekeepers around the people that can make things happen block it from happening.
Well Jocelyn has passed to be with the lord.....thank you again Oprah and Gail king and Good morning america and every other show I tried to contact to try to get this story out there to save a little girls life apparently it is more important to cover stories like making someone famous rather than saving a little girls life all we wanted was to at least find an answer to what went wrong we felt by airing her story nationally that there might be a doctor out there somewhere that would know.
Thank u so much to good morning america and the today's show and the Oprah show FOR NOT COVERING OUR STORY NATIONALLY THANKS TO THOSE PEOPLE WE NEVER GOT AN ANSWER TO JOCELYN'S ILLNESS AND JOCELYN HAS NOW BEEN SENT HOME TO DIE.....THEY EXPECT THAT SHE ONLY HAS A FEW DAYS LEFT TO LIVE...THESE SHOWS KILL ME THEY CAN MAKE JUSTIN BEIBER AND SOILDER BOY FAMOUS OVERNIGHT BUT CAN NOT COVER A STORY FOR A LITTLE GIRL WHO SPENT THE LAST YEAR SUFFERING AND DYING SLOWLY..
********OK IF JUSTIN BEIBER AND SOLDIER BOY AND MANY OTHERS CAN GET FAME OFF OF YOUTUBE THEN WE CAN DRIVE A MILLION HITS TO THIS YOUTUBE ACCOUNT......WE NEED NATIONAL COVERAGE TO SAVE A LIFE PLEASE TELL EVERYONE YOU KNOW FROM EVERYWHERE TO RUN AS MANY HITS AS POSSIBLE FOR JOCELYN......THANK YOU EVERYONE FOR ALL OF YOUR SUPPORT........
Retts syndrom
tmf1222 7 months ago
It's probably too late, but has she been tested for Niemann Pick Type C? There is a blood test and a skin biopsy. There is no cure, but it sounds like her symptoms.
jillflinton 8 months ago
I am so sorry for your loss... no one can possibly know the depth of heart ache. Angel's wings sweet Jocelyn :...(
RampantArtist 8 months ago
continued) but since not one single person in the media would help I hope u can sleep at night knowing that by making that decision a beautiful angel has died!!!!!!!!!!! sometimes its better to let down the gates a little put down ur fame for one minute stop worrying about your ratings I am sure if Oprah herself heard my story she would have listened and helped but all the damn gatekeepers around the people that can make things happen block it from happening.
SAVEJOCELYN 8 months ago
Well Jocelyn has passed to be with the lord.....thank you again Oprah and Gail king and Good morning america and every other show I tried to contact to try to get this story out there to save a little girls life apparently it is more important to cover stories like making someone famous rather than saving a little girls life all we wanted was to at least find an answer to what went wrong we felt by airing her story nationally that there might be a doctor out there somewhere that would know.
SAVEJOCELYN 8 months ago
Thank u so much to good morning america and the today's show and the Oprah show FOR NOT COVERING OUR STORY NATIONALLY THANKS TO THOSE PEOPLE WE NEVER GOT AN ANSWER TO JOCELYN'S ILLNESS AND JOCELYN HAS NOW BEEN SENT HOME TO DIE.....THEY EXPECT THAT SHE ONLY HAS A FEW DAYS LEFT TO LIVE...THESE SHOWS KILL ME THEY CAN MAKE JUSTIN BEIBER AND SOILDER BOY FAMOUS OVERNIGHT BUT CAN NOT COVER A STORY FOR A LITTLE GIRL WHO SPENT THE LAST YEAR SUFFERING AND DYING SLOWLY..
SAVEJOCELYN 10 months ago
PLEASE HELP MAKE THIS VIDEO HIT A MILLION HITS.......
SAVEJOCELYN 1 year ago
PLEASE HELP MAKE THIS VIDEO HIT A MILLION HITS.......
SAVEJOCELYN 1 year ago
i have been trying to contact this people so i can help, but they dont answer.
ojuanimelli 1 year ago
********OK IF JUSTIN BEIBER AND SOLDIER BOY AND MANY OTHERS CAN GET FAME OFF OF YOUTUBE THEN WE CAN DRIVE A MILLION HITS TO THIS YOUTUBE ACCOUNT......WE NEED NATIONAL COVERAGE TO SAVE A LIFE PLEASE TELL EVERYONE YOU KNOW FROM EVERYWHERE TO RUN AS MANY HITS AS POSSIBLE FOR JOCELYN......THANK YOU EVERYONE FOR ALL OF YOUR SUPPORT........
SAVEJOCELYN 1 year ago