Hi, I have SLE and have to be on dialysis. I am currently on the kidney list. Thanks for doing what you do for the people with Lupus. Your AWESOME!!! I was diagnosed 4 years ago and recently a friend of mine was diagnosed with it 2 weeks ago.
I appreciate your support. I've had Lupus for 25+ years and still going strong, well still going anyway - be strong and know that we are united together to fund research and support patient outreach services & to find new medications and a cure for Lupus soon.
I don't know if you know about stem cells to treat Lupus somewhere in a hospital in Chicago. I was wondering if you knew because I'm really curious about that. I really admire you and I'm sure there are so much more people out there that feels the same way as I do. Please keep doing what you do and how can I get more involved?
Hi, I LOVE that you got to go to DC. I have severe SLE and right now..well it's acting up so after a lot of thought and prayers I am about to do something to get the word out. I figure if someone can do an "experiment" with their telephone number just to see how many calls they can get then I can do it in order to raise Money and awareness for all of us "LUPIES". Much Love and Prayers~~Josie Kay~~
Good to hear it went well. I'm glad there's a future in finding a solution to this illness. And a future for people who have it when the solution is found.
Great video! Love your enthusiasm
theleepchatchannel 3 years ago
Thank You Jesus!
PETEYSOFINE 3 years ago
Hi, I have SLE and have to be on dialysis. I am currently on the kidney list. Thanks for doing what you do for the people with Lupus. Your AWESOME!!! I was diagnosed 4 years ago and recently a friend of mine was diagnosed with it 2 weeks ago.
ilovenoy 3 years ago
I appreciate your support. I've had Lupus for 25+ years and still going strong, well still going anyway - be strong and know that we are united together to fund research and support patient outreach services & to find new medications and a cure for Lupus soon.
LALupusLady 3 years ago
I don't know if you know about stem cells to treat Lupus somewhere in a hospital in Chicago. I was wondering if you knew because I'm really curious about that. I really admire you and I'm sure there are so much more people out there that feels the same way as I do. Please keep doing what you do and how can I get more involved?
ilovenoy 3 years ago
Great and informative video. You look good and taught me about Lupus. Thanks!
sleblang 3 years ago
I'm glad it went well!!
xAccordianGuyx 4 years ago
The day was great & an added bonus, a picture of me with California's Senator Barbara Boxer is featured in the monthly National LRI email.
I am so happy by this honor.
LALupusLady 4 years ago
Hi, I LOVE that you got to go to DC. I have severe SLE and right now..well it's acting up so after a lot of thought and prayers I am about to do something to get the word out. I figure if someone can do an "experiment" with their telephone number just to see how many calls they can get then I can do it in order to raise Money and awareness for all of us "LUPIES". Much Love and Prayers~~Josie Kay~~
ajsmommy 4 years ago
Good to hear it went well. I'm glad there's a future in finding a solution to this illness. And a future for people who have it when the solution is found.
Inbasul 4 years ago
IM happy the meeting went well
michaelgeorgebroad 4 years ago