Ulcerative colitis: Claire's story - will be replaced by new version 18.10.2011

[Hercnh]

Any complications with the stoma?

[liagrafanakis]

i was diagnosed when i was 11 and im now 14 and have been through alot

[MsAshleyls1]

I was diagnosed with Sever Colitis in December 2005 (I was 17) In the Summer of 2010 my body stopped responding to medical treatment. I had to have my entire colon and rectum removed July 17, 2010. I was in hospital for 4 weeks after because of complications. I currently have a temp. Ostomy and waiting to have J-pouch connected up. I'm Vlogging my entire experience as it happens on my channel. Please check it out and subscribe.

[VirtualSamadhi]

Stick with fruits and veggies.. Digestible ones.

Get yourself tested for a Gluten and Dairy allergy also, they have these blood tests available, and lots of times, a reactionary immune system is not helped by these problems. A blender would help. So would a juicer. Expensive... Worth it. I have suffered 15 years with Crohn's, so I know some basic tips if you need help.

[MrSuperfood1]

For Colitis...Drink at least a Gallon of pure water per day. I highly recommend pure Aloe Vera Juice, you can buy it by the Gallon. Aloe Vera alone would do great here, it is a very diverse plant. Avoid all fried foods, margarine and caffeine. A nice "Green Plant" Juice mixture with Spirulina would also be great. Odwalla has a good one. I suggest an antioxidant rich "liquid vitamin" and also a colloidal mineral supplement.

[Hercnh]

Claire you rock thanks for this informative video. I talk to my daughter who is getting the first surgery July 6, about my friend Claire. She thinks I am a freak but you are my friend. Thanks Herc

[Marianna9351]

I had colitis ten years ago. Had my colon removed and now have a j-pouch. I no longer suffer thanks to this operation.

[pantyflash]

Like, you're absolutely gorgeous. Now that you are both figuratively and literally no longer left holding the bag, you need to enhance the gorgeous effect by wearing bum-skimming micro mini skirts. You go girl!

[pris72]

Smoking doesn't cure it. If that were true, I wouldn't have it.

[thomasbt08]

My mom has ulcerative colotis, she suffers really bad.

[DavidEberhardt]

Have you tried smoking cigarettes? For many years I have read that this CURES uc.

[xoannaox89]

This video really made me tear up. I was diagnosed with UC a year ago and while I'm ok now, the past year was really tough for me. I keep thinking how I'm the only one since I haven't met anyone with UC. After reading the comments I feel like I have some hope. But the idea of an operation is freaking me out. I just hope I'm better in the future.

[mickoliva]

do a search on Peter French Ulcerative Colitis Testimonial

[AnimeFreakLover201]

I was diagnosed near the end of the 4th grade, now I'm in 8th grade and in remission, i think i came a long way =]

[eugrey24]

If you are Filipo and have Ulcerative Colitis pls join

Filipino with Ulcerative Colitis on FACEBOOK

[Parasomnia93]

My story is so similar to hers I'm getting my J-pouch in 2 weeks. I almost find impossible to put up with the stoma, and am looking forward to have my life back.

[KeepingThingsSimple]

@Parasomnia93 I had my stoma taken down on September 1st!...My pouch is doing great. I had my surgeries done at UCSD, amazing cutting edge techniques are going on there....If you have time, look up 'UCSD McLemore Ulcerative Colitis'..I'm the patient in the video haha..As far as she knows I'm the youngest in the nation at 24 to have the j-pouch procedure done with a robot!...Good Luck!

[faitful300]

@KeepingThingsSimple hey me too i had my large intistine removed when i was 10 and now im 15 i had uc for 7 yrs i took keemo ingections and they didnt work and now im still wiith the stomach bag stuck on me!!!

[turtlewax156]

Lizzard I Was Diagnosed with it today and im 14 and it hurts is it perm?

[LizzardArmstrong]

i never had UC bad enough for my bowel to be removed. i've controlled it with tablets. been in remission for neearly four years now (: fuck ! i was only 14 at the time. wow. can't believe it was so long ago.

[TheMcLicious]

My story is pretty much literally the exact same as Claire. Had UC, got C-Dif with UC, had colon removed, had stoma, had reconnect with J-pouch. Now things are way better. This disease along with Crohns needs to end. Digestive disease in general are so difficult to deal with mentally and physically. Hopefully one day we will have a cure, but this surgery does help many people. Cheers

[arkashhhh]

what  s yo way to cure UC ?

[endthedisease]

I have UC but I have some control over it. I assume this is only something you'd want to do in severe cases. I could never see myself getting this procedure done.

I could never live that way. Is it common for doctors to suggest this surgery. I've never been told I need this but it might be because I don't have serious problems with it.

[sockoblocko]

colitis is caused by problems in the billiary system, not the colon. search "liver gallbladder cleanse"

[ArkticHazard]

damn, im scared. my dad got it quite a while ago and hes doinfinenow but he to had to get his large intestine removed. and now my brother has it and im dam scared to get it. im only 16

[arkashhhh]

@ArkticHazard u wil never get it ...

[KeepingThingsSimple]

@ArkticHazard...I wouldn't worry buddy. I was diagnosed at 20 with UC, four years later the medicine wasn't doing its job any longer so this past April I had my entire large intestine removed. My second surgery was in June and I had my rectum removed and a new one created with my small intestine. I had my final surgery on September 1st and I'm doing great! Things were not always easy but there is a cure..Check out UCSD, Dr. McLeMore, she is the best!

[gsharpshooter80]

Yep my sister has this and she's 16 and it started to kick in this yr and it sucks because she has it early :-(

[bandiekarma]

@gsharpshooter80 Ya I can relate to her. I also got diagnosed at 16 with it, but not to worry, I'm sure she'll live life as normal as she did before :) She is not alone.

[oschino03]

I have ulcerative colitis people at work dont understand I take sometimes 20 tablets of immodium in one day to control it but ive tooken less of it since dealing with an african healer into a religion called ifa she made an herbal patch called an osanyin which controlled the uc and actually has made me more healthier uc sucks becausei use to box in i have less the strenght i use tohave this condition is serious people especially employers should know about

[Gavboy41]

What an awsome woman, a truely brave person, I myself have had this awful disease since I was 8, and after alot of heartache, drugs and pain, am now 44 and still waiting on somthing solid to happen in our health system in New Zealand, You have inspired me to "Make some noise" and attempt to get it sorted.. May you have many happy,healthy years ahead of you... Gav

[xxdance99xx]

I've had UC since I was 11, now 15 I take canasa..great medication after trying others and they didn't work...great video and very informative!

[TheElymus]

definitely in love with UK NHS!!

[crow4eva]

You are absolutely BEAUTIFUL!!!

[kmpkingshorse]

I'm not saying "please go to Asia for a month" but something about the diet over there really helped. I also just read that Mangosteen (a fruit that is grown in Asia) really can help with the symptoms.

Mangosteen cannot be naturally grown in CA, but there are juices. Try it out! Hope that helps.

[kmpkingshorse]

I've heard stress and diet plays a big roll. Someone I know went to Asia for the summer, and he spent a month enjoying his time; eating food and relaxing. His UC was significantly better and it went away for a whole year. He said he got it back because he took some probiotics (which I guess patients should avoid).

[xxDWL]

Aww, I've been reading the comments and a lot of you have been saying that you were just diagnosed with the disease. I have had it for 12 years now, and trust me, it does get easier to manage! I've not had surgery, I've been taking the medication and seeing the specialist in the clinic at hospital. The flare ups are the worst, but as long as you keep in contact with your GP and specialisst, keep taking the medication, you will be in good hands. This is a fantastic video, very informative!

[veese2008]

May God bless everyone with this horrrible disease, I know exactly what everyone is going through. I've had it for 4 years now and all I can say is keep your head high and try to make the best of life!

[angelpearl2471]

@veese2008 i agree ive only had uc for one year

[sannayy]

i'm 19 and i've recently been diagnosed. do most people end up having to get surgery? that is the one thing that really terrifies me.

[veese2008]

@sannayy For the most part people can control it with medication. I've had it for 4 years now and still have flares but the medication helps. Surgery is the last resort option, mainly for people that didn't detect it right away. All I can say is keep going in for check ups and wait it out, your doctor will know if you have to take that road.

[kevinxcal1]

Just found out 2 days ago i have it, at the age of 19. Sucks but i never had pain so i went over 6 months without visiting a doctor until my mom decided i should go. I had blood the whole time but it never hurt....

[Hercnh]

Claire, My daughter is 18 and considering surgery. Have you had any problems since the operation? such as pouchitis? Thanks Herc

[bsbfan05]

i was diagnosed with UC when i was 21 (2 years ago) the same month i was diagnosed with diabetes. it was because of diabetes and the medicine i was started on and after being switched to differant medicine on two differant occasions and still haveing systems. i was tested for colon disorders and finally a colonscopy diagnosed me with uc. having both diabetes and coalitis has been quite a change for me.

[Serenityblu23]

@bsbfan05 , Omg I have uc and diabetes. Any advice about the diabetes?

[torirochelle]

I was diagnosed 3 years ago and I wonder how was I going to live with this disease. I begin to label myself as a sick person because of this chronic disease. Well, I became a sick person through genetics...my family has a history of ulcers. I grateful because I had a great GI doctor who helped get me back on track after being violently ill for 4 weeks. I lost 30lbs within that month. Im taking Asacol now and it really helps. I have only had 1 flare-up since being diagnosed. Thanks for the video.

[lightningstruck444]

i got diagnosed with this a week ago, i hate it alot

[torirochelle]

Hang in there, I was diagnosed with UC 3 years ago and luckily it was caught early. My doctor told me that it was hereditary and I realized that my aunt has CD but I never knew that there was a correlation between the two. It takes some getting used to and just try to be positive about it. I had to give up alot of foods I loved but when i think about the pain I endured for 4 weeks before I was diagnosed. Im now taking Asacol twice a day three times a day . You'll be okay......

[Serenityblu23]

@torirochelle , I was on asacol until my doctor realised it was making my hair fall out.

[FoxyGal18]

@Serenityblu23 Really? That same thing happened to me! I lost so much hair from asacol until just 2 years ago.

[KatrinaThomas1990]

i have just been diagnosed with UC today... im absolutely gutted but i will eventually learn to live with it and with the meds im on i will adapt to give myself a better life.

[kbxj9]

i got UC in third grade. im 17 now. considered surgery about 2 years ago but they put me on some new drugs that help a lot. but ill prob have the surgery eventually.

[megasarahanne]

I also had the same surgery but mine was not the typical uc case. I had fistulas, abceses and ended up having 8 major surgeries and 4 minor due to not having ulcertive eolitus but crohns disease. Today I am hooked up and my j pouch is doing great. So thankfull not to have a stoma anymore.

Thank you for your story because when tell people I have a J pouch they think I'm crazy to go thru all those surgerys.  I am believer in Finding a cure for UC and CD

[Theisibisi]

I have been diagnosed at the age of 12., but my symptoms are not as bad as yours. I'm only 15 and I am relly scared, I don't want to be that ill!

[guns4good]

I was diagnosed with colitis at 14... Had a coloectomy last year--I was on the verge of colon cancer. They were supposed to do a "j-pouch", but they found hardening on my ileum, an indicator of Crohn's disease, and I now have a permanent ileostomy. It's hard to deal with sometimes.

[PINOYREBEL91]

God bless. I was diagnosed with UC when I was 16. It's hard when you're a rising high school football star and it hits you like that.

[rossboss2010]

@PINOYREBEL91 yea i here you i was 15 when i got diagonesed im 19 now but i was playing football in high school i had to stop for a few years and i have other problems linked with it

[Saddestsmile]

I carnt belieave people speak so bad about the NHS. I wouldnt be alive to write this if it wasnt for the NHS. I too have UC, and have had the surgery.

[boysarefun]

same here

[NeoOne110]

my sister has colitis,but its not as bad as this type.

[arkashhhh]

she is  beauty ))

[MamoonNaseer]

u r 1 brave gal...kleep it up

[TheeNatNat]

Nice video, good ending! I have Crohn's disease and it's an absolute nightmare, been hsopitalized 4 times this year - I'm in so much pain, lots of bad symptoms, suffer bleeding etc and had to go on a liquid diet because I couldn't eat anything. Watching this makes me think there is hope of a better quality of life on the horizon somewhere. :)

[FarhanK501]

The truth is, NHS is just a corporation and are only there to make money. The government has the cure for AIDS, Cancers and other diseases such as UC - they just don't want to provide us with the cures as it's part of their "depopulation" program, the less people, the more control, a one world government is what they want, the people who really control the world from behind the scenes.

These people are sick.

[Debbersaurr]

i was diagnosed with UC at 13 :\

i had this operation not but 3 months ago,just aged 16 and its drasticaly changed my life for the better.

good luck claire, and to anyother who has to suffer through this

[eagles3643]

na man thatll make things worse

[ephraim0000]

Does this mean she has to have a bag attached for the rest of her life?

[BruceIsSoCool]

no they can reverse it

[kprice1990]

my mum has had this and has done for 8 years.. NHS is a fuckin joke.. she hasent had this operation mind u .. and i for one have to watch her go through pain every day cuz they wont pull the finger outa the arse and do something about it .. load of shite

[ebbisnake]

Good luck claire x

And by the way you kinda look like lily allen

[sophie0200]

i had this op at 18 had the bag now for 27 years was diagnosed at 12 had the op later youre doing great good luck x

[3Johnnnn]

i had this. It all happened in three months, at the age of 14. it hurts man. But you're brave, i know how you feel x

[mozzaragan]

you are a very brave young lady,good luck claire.

[VaneKoS]

My son had this op at 16 - was the youngest at that time in Somerset. He is now 21 and doing great. - no side affects and he healed up really fast.

[mattbiker419]

poor claire, much love xx

[granger18trains]

was so good of her to do this to help others.

[granger18trains]

great of her to comment like this to help others......

[gmonkey808]

I note she only got diagnosed after her Grandma brought up the family history.

I'm sure she would have just had the 'You have IBS deal with it' speach if it was not for her intervention.

[carolinedexter]

I'm sure they would have investigated further, she was obviously really unwell. It sounds like they did a fantastic job, and she's really happy with how things have turned out.

[vtwinlunatic]

Thanks for this, a very eloquent and brave young lady, I have been diagnosed with this too, my Gp's missed it for over 6 months until I was finally sent to hospital for tests. However it must be said Im very impressed by the level of care at the hospital since going.

[Sliced49]

Thanks Claire for making this film, my Daughter was diagnosed two years ago at the age of 11. She has had a rough couple of years. So glad you are feeling much better.

[sweetypie000]

It's good to know you are well.

I hope the NHS help more people as they are there to do it. Too many people slipping through the net and also getting a very basic 'service' from an organisation that has deteriorated to a very unsavoury image and practise.

This girl is lucky she got help, it would be nice to know her experience because i was in hospital awhile ago and it was bloody awful. uncaring rough nurses, filthy rooms wards and rooms. i hope to god when i'm old i'm not at their mercy omg