Kayla, I JUST got a new PC with sound and got to hear this for the first time. I knew you were an amazing person, but you are a truly amazing and sweet soul that touched my heart with your song and with the pics of all of us that you shared. I am proud to have been one of the ones who had their pics chosen for you to use. Thanks for including me in such a meaningful and wonderfully done project. You rock!! ~Leslie O.
I'm 20 and I was diagnosed with IH on April 28th, 2010. LP pressure was at 36. They've got me on zonisamide and diamox. My headaches and slowly easing up and I'm feeling better with each passing day. I've lost 20lbs with the help of the anti-seizure med (zonisamide). It's such a hard thing to deal with b/c no one understand how bad you feel. Thanks for making these videos. Lovely song, btw. :] I'm glad to hear you're recovering.
I like this song my life changed in the fall of 2002 I got the worst haedach you could ever get and it just will not go away I have gotten the right nerv in my eye cut to releive presure I can see alot better but the headachs are still their I take like 30 differnt kinds of meds in the am and then the same in the pm I have 3 shunts in 2 in my head and one on my spine I was told that I am one of the cranit casees I just want to be able to clean my house like a normal person I see a DR every day
that very touching but i dont really understand IH but i do understand wat it is like to lose someone u love to a horrible desise i am 13 years old and i lost my aunt and my grandpa who i love more than anyone else in the world to lukimia he was everything to me and i cant w8 to meet him in heaven. i love this song and you need to keep making them and u should go on american idle and have ur big break i love ya and keep posting plz plz plz
I know what you are going through. I was diagnossed 2 years ago. Last november I got a LPdrain and now i am doing much better. My life will never be the same as before and i will always have a headage, but I am able to dream again...
its a neurological disorder where there is too much CSF (the fluid surrounding your brain & spine) produced which creates extremely high pressures to your brain and optic nerves(eyes). This causes massive headaches (almost unbearable at times) and causes many people to lose vision, and sometimes even go blind, along with many other awful symptoms.
IH is a painful and life-altering disorder...I have had 14 surgeries, to try and help to treat the symptoms of IH, all within a matter of 3 years.
Kayla, I JUST got a new PC with sound and got to hear this for the first time. I knew you were an amazing person, but you are a truly amazing and sweet soul that touched my heart with your song and with the pics of all of us that you shared. I am proud to have been one of the ones who had their pics chosen for you to use. Thanks for including me in such a meaningful and wonderfully done project. You rock!! ~Leslie O.
IHateIH 5 months ago
this video made me cry..
BeckaJane1000 1 year ago
This is wonderful. I have a great friend who struggles with this condition.
vegetablelollipop 1 year ago
I'm 20 and I was diagnosed with IH on April 28th, 2010. LP pressure was at 36. They've got me on zonisamide and diamox. My headaches and slowly easing up and I'm feeling better with each passing day. I've lost 20lbs with the help of the anti-seizure med (zonisamide). It's such a hard thing to deal with b/c no one understand how bad you feel. Thanks for making these videos. Lovely song, btw. :] I'm glad to hear you're recovering.
kbenge89 1 year ago
I like this song my life changed in the fall of 2002 I got the worst haedach you could ever get and it just will not go away I have gotten the right nerv in my eye cut to releive presure I can see alot better but the headachs are still their I take like 30 differnt kinds of meds in the am and then the same in the pm I have 3 shunts in 2 in my head and one on my spine I was told that I am one of the cranit casees I just want to be able to clean my house like a normal person I see a DR every day
mrsondesko 1 year ago
that very touching but i dont really understand IH but i do understand wat it is like to lose someone u love to a horrible desise i am 13 years old and i lost my aunt and my grandpa who i love more than anyone else in the world to lukimia he was everything to me and i cant w8 to meet him in heaven. i love this song and you need to keep making them and u should go on american idle and have ur big break i love ya and keep posting plz plz plz
Bruce12789 1 year ago
I know what you are going through. I was diagnossed 2 years ago. Last november I got a LPdrain and now i am doing much better. My life will never be the same as before and i will always have a headage, but I am able to dream again...
xbitch83 2 years ago
this is a really nce song
Onlygodknows890 2 years ago
I'm really sorry. It must be tough.
-Claire x
xSunshineStarshinex 2 years ago
wait....whos talking??? who has it???
farmgirl81234 2 years ago
I do. My name is Kayla, i'm the person that wrote and sang this song and i'm the founder of The IH Project :)
hilandmileyfan 2 years ago
y does it say water proof
Kbblc 2 years ago
Waterproof is the name of my song that is playing.
hilandmileyfan 2 years ago
i dont understand...
SavyLovesCake 2 years ago
what don't you understand?
hilandmileyfan 2 years ago
wait what is IH?
FroFreak74 2 years ago
its a neurological disorder where there is too much CSF (the fluid surrounding your brain & spine) produced which creates extremely high pressures to your brain and optic nerves(eyes). This causes massive headaches (almost unbearable at times) and causes many people to lose vision, and sometimes even go blind, along with many other awful symptoms.
IH is a painful and life-altering disorder...I have had 14 surgeries, to try and help to treat the symptoms of IH, all within a matter of 3 years.
hilandmileyfan 2 years ago
now i understand IH thank you verymuch
Bruce12789 1 year ago