Alopecia Areata Universalis Awareness

[HairAngel1000]

It makes me cry...especially that I have no more hope.I lost all my hair 3 months ago..within 3 weeks.The last words are true...we are all still the same.

[lrigeel]

thank you for this message.my husband has the rare form of alopecia which is alopecia areata universalis..we have two kids and we love him very much..may this video inspire people with this disease and let others be informed of this.Thank you

[vitruviandog]

So you always have perfectly smooth, hairless skin, from head to toe and you never have to shave anywhere ever?....and you call this a "disease"? This is the best "disease" ever.

Having loads of horrible hair pushing its way through your skin (which requires constant maintenance) should be considered the "disease".

[darkness12670]

@IsabelleWardz Glad it worked for you too.. that hair loss solution was the only treatment that actually worked for me.. I used it after doing a little research over the internet. I decided to try it and it did what it promised.. I got hair volume back..:)) Anyway, you got the site name mispelled.. It should be HairLoss101. net (w/o space)

[saxtonjammie]

Me too. You look good bald. Just watch more Sci-Fi films, think cyberpunk; it will give you a good mental groove.

[BoredomBrat]

I've had Alopecia since I was four, when my Mama saw bald patches while brushing my hair. It's been ten years since, and though my hair has switched between thickly abundant and non-existing, I now have Universalis type. I can't remember ever really having eyebrows, I have few eyelashes. I do have scant body hairs, I doubt I have more than twenty dark hairs on my body altogether. I'm 14 now, and I don't wear wigs. I go to public high school, and I am a proud girl. Never be ashamed of yourself.

[DrPlepler]

rubberhead!

[wigfanatic]

luswigs.com has a great selection of wigs

[edwinbabi]

if you want your hair back contact me ican solve your pblms , iam facing these pblms now every thing is ok

[Pellentior]

Thank you for a great message. It's tough to live with this shit, I know.

[faithfulann1]

I am now entering high school, and ive had alopecia areata since i was seven. i used to hate my alopecia, but she is right. i am who i am, and its because of my alopecia. i dont care what others think any more. thank you, for helping everyone remain strong

[ArnoldPswagga]

@xangelz123 Ive had alopecia areata since I was 10 I'm now 25 and I really let it affect my life. I don't do anything that requires my hair to be shown. School was hell at times but overall i think I have a good heart because of it and nothing can beat that.

[ThinkerNinja]

what is the instrumental track in the background?

[tlotiger91]

Iam 19 male I suffer from alopecia myself I have lost most of my hair on my scalp all of my hair on my brows no facial hair n losing my hair on my eyelids ever since I started losing my hair I look at life at a differnet perspective but ur video really inspired me to not look down but forward at life thank you my faith is running slim on getting my hair back

[lenity]

My loved seems to have symptoms of Alopecia Universalis. While I am not stressed or concerned on how his appearance has changed (and neither is he -- he is handsome no matter what) I am concerned on what this means to his health. Any tips or clues on any related issues associated to Alopecia Universalis? Is linked to any deadly diseases? His health is my #1 concern.

[Pellentior]

@lenity Don't panic. It's "only" his hair that's sick, nothing more. He can't die from it.

[xangelz123]

im 13 years old. and i have alopecia areata since i was 11. it sucks to have it cuz others may think of you differently. im not gunna let that ruin my life . cause i still have a long way to go :')

[jonmagneson]

I'm jealous. It's a lot of work to keep myself bald all over

[IBBGaming]

im a 13 year old boy with alopecia iniversalis and what you said is all true lost it when i was 6.

[richmanpoman1]

It is great that you are good with it now. You are very attractive, and your voice is very nice.nice....

[ReallyEvilBarbie]

i think i have a beginning of it,though it happend about half month ago

even if i have small place bald and not that big im scared it will fall more and moe >:

[koya25555]

my sister has it now... i am very depressed for her but can't show it and need to be strong for her....

[jeanmichael02]

Damn, I cry :( Cheer up guys. I am one of these.

[mastergionni]

Ciao, ho anche io l'alopecia universale, ti viglio fare i complimenti, per il messaggio che hai mandato , più che a tutti quelli come tè, ma soprattutto a il resto della gente, che guardano a volte in modo surreale chi ha questo problema....ma a questa gente va fatto capire che siamo umani anche noi , e proprio questa condizione alla fine ci rende più forti .....!!!!

[SL4EverSmiles]

I've had the same thing since I was 2. Sometimes I wonder if it will ever grow back. I have no hair anywhere on my whole body. I never understood why it was God's plan for me to have it. When I was about 7 I realized that bald is amazing. I don't have to do much in the morning, I don't have to worry about bed head, or shaving, or any of those issues people complain about. I'm proud to have no hair. I help others to realize that it's what's inside that counts. I never want my hair back!

[teri1970]

Its been 2 years since my diagnosis. I don't have universalis, mine is called diffuse type Alopecia. I have bald patches and my head is very sparsely covered with hair. I still have eye brows but very few eyelashes. One arm has hardly any hair, the other is covered.

It took a year to get used to the idea, that it might all fall out, or it might come back. Now I just don't care and shave my head. I go bald when the weather is warm. Covered in winter. I like my bald head.

[cocteaucain]

i have that too and is almost for 10 years .does it mean that there are any treatments ? i am still afraid of depression and pressure will be around me !!!

[khysoon]

@cocteaucain , YES there is hope!! i have it too, last year i lost almost all my body hair, what i think is best treatment is stem cell culture!!! to change your immune cells, and don't worry, a case was cured with stem cell culture even after 12 years of alopecia universalis , proving that alopecia universalis is reversible!! yes there is hope

[petrucci973]

i think bald women are the most amazing women on earth.. theyr are unique not because of AU.. just because of who they are.. dont know how to explain but i swear they are amazing.. i've got alopecia areata and i lost my whole eyebrows and my hair when from full thick hair to a hair that looks like a maybe 40 years old mans hair.. im only 21. Would love to kiss every women with AU on the forehead thats how much i adore them. Stay strong all of you there((K))

[bomaoneuk]

So american and cheesy

[CookieRoxxUrWorld]

So I was very relieved. Well a little of my hair began to grow back everywhere while I was pregnant. My head hair was a mix of my natural black and a few white/gray hairs. I was taking prenatal vitamins religously. Unfortunately 1 mnth after I had her...I lost all my hair again. The doctor said when you are pregnant your body goes into "GET HEALTHY MODE" so it works hard to be healthy. I've done the steroid shots and it has worked but as soon as I stopped my hair fell out again,

[CookieRoxxUrWorld]

I have Alopecia Universalis. I have a wonderful hubbie who has always stood by me and never made me feel weird or ugly. Im 24 and got a bald spot when I was 17 then within 2-3wks all my hair was gone frm head to toe. They say it is not genetic. Also can be triggered by stress. I became Homeless 1 mnth bfre so that probably was a major factor. When I became pregnant with my first child at 19...I was frightened that she may come out completely bald but in fact she had a full head of hair.

[ianisamonkey1]

i have a form of this.

[aadil2a1]

i had this disease since birth :/

[SimonJaekle1]

a huge amount of people make fun out of hair removal

they should let their hair grow without a cut of a single hair for 3 to five years and then shear them off with less cuts as possible. In a moment when thei're NOT "in the mood". Add browes and lushes (somehow) That's healthy further on. My anti-style, I did in 2002, 2006 and 2009 so far. I don't brag. I'm trying to give pleasage to Nature..

I deeply detest laser-eyed people that sting (especially female) skullskin.

selfbaldness can be healthy

[7devilrunner]

@xhemexx:

I hope you are truly one very unhappy person. I too have alopecia universalis, I'm a professional runner, a medical student, and have a gorgeous girlfriend who has stood by my side since day one. You are the reason I am so disappointed in our society. You are uneducated, pathetic, and one sad individual. I truly hope you meet one of us beautiful, amazing people one of these days and we can open your mind up to be more accepting of all.

[jasonchucky11]

im thatguywhodontcamp so wtf

[xninjanickx1]

ThatGuyWhoCamps. 

[singhatar0912]

@xninjanickx1 come on man you dont have to say that about him i feel so bad for him really

[z450cc]

ThatGuyWhoCamps

[lewis2son]

you truly are BEAUTIFUL.....inside and out

[kimbrellababy]

I have that... thanks for your video!!!!

[bbbask]

@kimbrellababy I have it too, and love this vid! Miss my darn eyelashes though! LOL

[gigginp]

sei bellissima

[lineswine]

Sable...you look just fine. Don't sweat it.

[bighoss843]

Thank you for the link-I too am a African American woman who lives w/Alopecia Universalis since the age of 5-yet God has given me the innate ability to be a hair stylist-artist and minister-blessings

[tiffanyscarlet05]

I'm a black woman with this exact condition. As a woman of color, it is common to see other black women who have their own natural hair but wear weaves, and extensions, and it looks natural. I lost my brows, lashes, and hair on my head, but it looks like I have my natural hair still. It's less dectectable in blacks, in my opinion.

[WorldPeace4All6]

That woman is incredibly hot. I think she is even hotter bald. Of course, I may be biased since I had a transient case of alopecia areata a couple years ago, but there is just something so sexy about a bald woman.

To all the women out there who have it, don't fret. There are plenty of men just like me who find bald women uniquely exquisite.

[Beetlejuiceyx]

@WorldPeace4All6 Thank you for your comment. You make me smile :) I've lost my hair in january 2010 (the second time...) and have no hair on my body. sometimes it's hard, but my boyfriend give me lot's of strainge and hold. Never give up, it's only hair!!!

[Drmrfordancing]

July 17, 2010 is International Alopecia Day. Celebrate, raise awareness, and be proud!

[guns4good]

Sable is a beautiful woman!

[monalopecie]

Great video, link on the website mon.alopecie.free.fr

[realar]

That woman is younger than me? DANG. Girl, you look great, wear that no hair with pride.

[PeterSiouxsie69]

thank you!

[orangedac]

you look beautiful babe

[chocolatebenya]

This literally mad me cry. I believe my boyfriend suffers from this but this person is very brave...

[pajaji]

My daughter is 14 and she has the same thing.

[aloedajazzite]

bonjour mademoiselle you did

a dynamic job on educating those

with alopecia and without. I also have

3hird stage alopecia yet it has not stopped me from loving,living,and

learning. you've gained a brother for life.

much respect! "Jah" bless your efforts

[elguitarista88]

God bless u

[Drmrfordancing]

Beautiful video! Thank you for helping spread the message that WE ARE OKAY. That's why I started National Bald Out Day last year. Check out my channel for more.

Mary

[kisslena]

Bless you and continued success as a positive voice for alopecia.

~k*L

[aaaakar]

we are always who we are.

we are beautiful.

Thank you!

[sablejonsson]

FROM SABLE: Thank you all for your continued support!! Keep watching, Keep speading the knowledge. Best I can do with this is to get, eventually, support to discover more resources on how to prevent&treat this. In meantime live your life Grand..I am. Im not saying its an easy road (is it for anyone?) , but we all keep goin strong! Life is so beautiful, cherish the great times, step up to challenges. I am Still me. nothing's changed. God Bless everyone. XO

[LittleBigBrady96]

I CRY !!!

:^(

[LittleBigBrady96]

I have alopecia universalis one of the rarest of all but im here to say even if people make fun of u like they do to me stay strong and dont back down

GOD BLESS EVERY LIVING SOUL WITH ALOPECIA

[tammy1ize]

YOU ARE CUTE!BE YOURSELF

[BeatriceYatch]

There are shots you can receive (immunosuppresants) for your eyebrows without side-effects. It works. How do I know? I now have my original eyebrows back due to those shots. I suggest you try it. Visit your dermatologist and he'll/she'll set you up with c. monthly shots (which don't really hurt at all if you use a numbing cream on your eyebrow area). These shots have a very good success rate!!!!! I..HAVE..EYEBROWS!!!

[Spy0nu]

For the first time in my life afther 6 years of this I took the blade and shaved it all.The first time in my life afther 6 years feel's like living again!Areata.

[SandraDubose]

Great job Sable. I commend you on your bravery and strength. Continue to be strong and let your light shine for all the world to see. Your very presence, automatically- liberates others. Love and Light!

[sablejonsson]

Thanks for watching my video!!

The support is everything to me. Thank you for helping me send out my message to everyone that: 1) Alopecians "be strong and positive because you are always still you, and always still beautiful --inside and out!!""

2) Awareness is number 1! Because the more people aware of the condition, and what it is Really about, the less judgments on us if we don't feel like wearin' that wig ;-) *HUGS and thank you all, again, for watching.

[BeatriceYatch]

i posted below : you can at least recover your eyebrows if you visit your dermatologist to get immunosuppresant shots c. every month. I have, and my eyebrows are thick and normal and NOT falling out =) try it. also, there's a place up in Canada that apparently claims they can recover head hair-it's some kind of 'poison ivy-like' treatment you put on your head to illicit an immune response and 'apparently' it recovers your head permanently. check it out. and... get yer EYEBROWS BACK!

[Drmrfordancing]

Cortisone shots can cause side effects including depressions in the skin. Maybe it worked for you, but it doesn't work for everyone.

[BeatriceYatch]

@Drmrfordancing i'm not getting Cortisone shots, though. I'm receiving an immunosuppresant(and it's pissing me off because i have been getting them for a year, and i haven't memorized the name)lol, but they are working, and my dermatologist says these shots have a high success rate. incidently, 0 side-effects, with thick eyebrows. I'll call my dermatologist and ask him the name, wait...let me check my files..cant fit it, how disconcerting, but next reply, i'll have it.

[StephaniePage123]

@Drmrfordancing My hair started growing back within a few days. I only had about 3 bald spots. 2 big ones and a tiny one. I had depressions in my scalp for a while, but they've gone away,

[CookieRoxxUrWorld]

@BeatriceYatch Oh yeah I got that 'poison ivy-like' treatment IT ITCHED LIKE HELL. If you get a reaction it's a good thing bcse they can proceed with the next step. I itched, got red bumps and it was horrible. But I smile now that I know I can go forward with the next step. I will try those immunosuppresant shots for my eyebrows =) Thanks!

[Tendoking]

Nice video. A friend of mine has Alopecia Areata (not Universalis). She's amazing, as are you.

[elizacal94]

I LOVED IT!!!... :)

[Kittin3456]

Good job sister...stay strong!