Added: 3 years ago
From: mrslisafryer
Views: 11,416
Sort by time | Sort by thread (beta)

Link to this comment:

Share to:

All Comments (14)

Sign In or Sign Up now to post a comment!
  • Thanks for uploading this. I believe more people have this disease than currently estimated, only they just don't know it because their case is mild and it is never diagnosed. We need people like you to raise more awareness so that doctors will start thinking of this disease as a possible diagnosis more often. I wasn't diagnosed until I was nineteen and I lived with it my whole life.

  • Comment removed

  • Thank you so much, Lisa.

    Your posting greatly comforts me,

    I was in the deepest sadness for

    my close friend diagnosed with the disease.

    I wish your happiness with all my heart.

  • thank you very much, many ppl do dont understand what acromegaly can do to ppl thier lives nd ppl around them. im thankful that ime to watch tou took the time to watch the videos. i wish your friend all the best.

  • Dear Lisa,

    I had a very difficult time for my very close friend who was diagnosed with that disease. Your movie gives me a great peace to me. Thank you so much for this posting, and wish your happiness with all my heart.

  • Hi Lisa, I myself had acromegly I was diagnosed in 1999 I had my op in 2000, thankfully all I have to have is regular check ups every 12 months, it's not pleasent and very few people understand, thanks for sharing.

    Colin

  • Good job Lisa. My husband has acrom. The new web site I just registered on had this video link.

  • hey, i'm 21 years old. i think i have acromegaly. i have protruding forehead, thick lips  prominenting jaw and knuckles. i think that is getting bigger. i will be recived checkup.

    i love this song and coldplay. thanks.

  • your welcome. this is why i made the video so that poeple who may think they are not well or are getting no where with docs they can see symptoms and get checked out again with a bit of knowledge of acromegaly that they didnt have before. i wish you good luck with seeing the doctor, be sure to add that you want to see an endocrinologist and get blood taken. this disease is easy to diagnose and treat so dont back down, if you think you may have it push the doctors untill you get a result.

  • sorry to hear that. im glad to meet another fellow acromegalic. when did you get diagnosed?? i was diagnosed 2 years ago now and drugs are helping.

  • i am going for an operation soon sometime next week.

  • i have acromegaly.

  • Hey Lisa! 991 views in just two month!

    People will understand more what we have to live with for sure !!

    Your friend CoolCat :-)

  • thanks laisa for doing this vido on your condation it help others out there going though the same thing and the pit foudation is a org for anyone with any endacryne condtions hope all is well thanks again for posting hope we see more dorm

  • thank you, im glad you liked it.

    it os called the scientist by All Angels. i have that song as a fave on my profile.

  • great vid :)

    thanks for the info.

    what song is it?

Loading...
Alert icon
0 / 00Unsaved Playlist Return to active list
    1. Your queue is empty. Add videos to your queue using this button:
      or sign in to load a different list.
    Loading...Loading...Saving...
    • Clear all videos from this list
    • Learn more