Lyme Disease - what it does to me - Video 2

[birdyluv21]

I have the same excact symptom, i found that not eating carbs, alot of fruits and stuff helps stop them for me, i stopped eating any kind of sugar, i eat raisons and fish lol that all i eat really, i try stay in cool places and stuff too, does your skin hurt when this happens too and your tummy? i feel pain everywhere, i also stutter if trying to talk and can't walk, try see what triggers your episodes, i avoid mine as much as i can, add me on fb my name is whitney busby.

[CactusCuddler09]

@birdyluv21, wow, I'm glad you found something that helps! This vid was shot a while back and I no longer have those episodes, just occasional jerking. My symptoms seem to change as time goes on. Right now I'm on a celiac/alkaline/high carb diet..lol. It's pretty crazy. Going off wheat has helped settle my tummy, the alkaline part is to make my body less hospitable to the bacteria, and the high carb is to calm episodes of what my doctor thinks is a blood disorder known as porphyria.

[ecftube]

Wrote a Lyme disease brochure with the help of 2 Lyme specialists. Will email to anyone. God bless, Elaine

[TheAngelwhisperer]

I'm so sorry you're going through so much. Hang in there. You're not alone.

[fleurdelune13]

My ILADS trained naturopathic doctor let me know that the homeopathic preps of lycopodium or arsenic album can help with the muscle jerking/tics. Or a preparation called Restful Legs has both lycopodium and arsenic album in it. I found it to work for mild muscle tics anyway, it may work for you if your willing to try it.

[CactusCuddler09]

Thank you very much for the info. I have not had an episode like that since I posted the video, but it would be nice to have something to help next time.

[newmoongathering]

You poor person. I hope that goes away. That sucks so much. I hope the best for you. F this lyme disease its like the most dehumanizing thing ever. I had a seizure recently from it again and woke up hallucianting it lasted like an hour. THE WORST THING YOU COULD EVER DO IS SEE A SHRINK DONT DO THAT!

[CactusCuddler09]

Thank you for your reply, and I'm so sorry to hear about your seizures, I've been lucky enough not to have them. As for seeing a shrink, I have a wonderful psychologist who understands that I have a real medical condition and has helped me grieve the loss of my old life and handle the pain and frustration I feel as a result. I would really recommend it to anyone who has this disease...not as a cure because it is certainly NOT "all in your head", but for support. Shop around if need be. Tvgc.

[mitchbguitars]

your not alone I came a long way from dieing not having fealing in my legs going blind not knowing what a mother was in a wheel chair having grand mall siezers being called crazy after three iv treatments for 90days each i was able to think have less siezers got my vision/feeling in legs back & you are NOT crazy & don't let any one convince you of that there are drs that may say its all in you head well you tell them that yea its called bacteria now fix it dr . I WILL PRAY FOR YOU .

[CactusCuddler09]

Wow, I feel for you. I have had many doctors tell me it was all in my head. Stress they said. Ha! They would not listen when I told them my stress was a result of the disease, not the other way around. I love your response though, I wish I would have thought of that one.

[mitchbguitars]

how is your sugar intake. why I ask most in our state of health tend to eat alot of sugar. if you do please cut back alot because it feeds the lyme. I found when I cut back i felt better not perfect but less pain and fatuige ext...also if you can adjust your ph level in your body and make it alkaline that to also helps together of corse there is a herb that helps adjust your ph level its called ph balance . or you can just eat alot more vegitable greens I hope this helps you .oo

[CactusCuddler09]

I have cut out most processed sugars and eat mainly fruit etc to balance my blood sugars as I am hypoglycemic. As far as veggies, I love them! I would take a bowl of green beans and broccoli over most foods any day.

[mitchbguitars]

Im pleased to hear that . I really pray you will get better I will keep you in my prayers. oo

[birdyluv21]

@CactusCuddler09 Green beans and brocolli trigger my partial seizures and stuff. look up the cave man diet, i'm almost all better after two weeks.

[ecftube]

I have had small jerky episodes but nothing that lasted long at a time. Would like to offer anyone a Lyme disease brochure. Wrote this with the help of 2 Lyme specialists. Will email to anyone. God bless

[CactusCuddler09]

I would love a copy of your Lyme disease brochure. I Any and all information is greatly appreciated! Would you include the name of the doctor? thanks!

[thane17]

I'm sorry you have these symptoms. I have lyme but I have only had minimal neuro symptoms. Does this happen all the time? I really hope you are feeling better soon and have some relief from what must be pure torture. Thank you for making this video.

[001puddle]

I feel for you! Are you getting any treatment at this point? Are you getting better or worse?