CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
@laurenvparrott dear lauren you to happy new year to you and your family. i did take your advice i know my avonex is only to stop the ms from getting worse i just have a hard time relazing the ms symtoms i just want them to stop i guess i should ask the doctor for some meds to see but i really dont like to take pills you are so positive person thats why i like to see you on u-tube . its been 3 years for me i just know i will get better god is with me as he is with you love april
i feel the same as i did but i just cant stand for a long period of time and it bothers me. i swear if i didnt have the 1 spot in my brain i woudnt think i have ms and something else ha ha , its just odd to me to have the tingling and the ms hug do you have that. thanks so much for emailing me back i know you are a busy lady . merry christmas to you and your family love april
@AWDESIGNS8 Hi April! No, I don't have the MS Hug, but I have definitely heard about it. I can't stand for a long time either...I just make sure there is a chair nearby! I hope you had a wonderful Christmas! Happy New Year!
HOW LONG DID IT TAKE YOU TO GET BETTER WITH YOUR MS. WHEN YOU FIRST GOT YOUR MS HOW DID YOU FEEL .THEN ONCE YOU TOOK YOUR SHOT HOW LONG WAS IT WHEN YOU FELT THAT YOU WERE GETTING BETTER . I KNOW THERE IS NO CURE BUT CAN WE GET RID OF THE SYTMONS WE HAVE LIKE THE WEAKNESS TINGLING . FEELING LIKE WE CANT DO THE THINGS WE USE TO DO / I STLL HAVE THE MS HUG . STILL TINGLING IN MY FINGERS THINGS LIKE THAT . LOVE APRIL
@AWDESIGNS8 Hi April! I have pretty much always felt the same...I'm sure you can take additional medications to help with symptoms because MS medications only slow the progression of the disease. They don't really help with symptoms. I hope this was helpful! Wishing you the best!
@laurenvparrott i take avonex for my ms no side effects yet gods been there for me. i just want the symptoms to go away . so did your tremors and other symptoms you have go away . i meet alot of people on daily strength i talk to people who have ms. i just want to stop my ms where it is now. but i can live with this if i have to because i know god family and friends are with me. i just look at you and others and see that you can stand for a long time and work i cant do that i'll get better
@laurenvparrott I CANT GET OVER THE TINGLING AND THE RIGHT SIDE IS WEAKER BUT I STILL CAN WALK I JUST WISH ALL THE SYMPTOMS WOULD GO AWAY MAYBE IF I DID TAKE SO MEDS FOR THEM THEY WOULD. SOUNDS SILLY. I CAN SILL STAND BUT NOT FOR LONG. I THANK GOD EVERY DAY AND EVEN IF I HAVE MS ITS OK SO I DONT WORRY ABOUT THAT I JUST WANT THE TINGLING TO GO AWAY BUT I GUESS I CANT DIE BECAUSE OF THAT I LOVE LIFE AND YOU ALL THAT CARE ENOUGH TO WRITE BACK LOVE YA APRIL
Thank u for the motivation, one thing id like to add is that really when swiming, ur body is lighter so this makes u able to even excercise more than any other thing.
Hi, Lauren you have a bright smile and very positive attitude and I wish you all the best with your treatment with MS and keep smiling....your amazing!
I Have not been able to watch your videos for awhile but thanks for the information and inspiration. Your video on physical therapy is motivating me to get off my but and do what I can still do... I have to say it as a lifelong Redskin fan. You guys got lucky! Redskins forever!
Hi Lauren.. I ran into your videos while browsing the web. I too have MS and am just coming out of flair up.
I am glad to see your symptoms seem to be improving...not seeing tremors, etc.
I am an OT and it was rather devastating to be diagnosed..It's been 13 years since diagnosis. I work full time; this last flair has been most severe...but expect to recover,
Anyway...I just wanted to tell you I appreciate your videos..stay healthy and happy
You're right about swimming being a great exercise! I live really close to my gym, but I haven't been for ages. I'm going to have to make a concerted effort to start up again!
I totally agree with you about Physical Therapy I started doing Physio and yoga for people with ms about 6 weeks ago and its been great my balance and walking has made a great improvment and I have no fatigue now at all i've also been on Tysabri 14 mounths now so between the 3 i've never felt better.
I am sorry that I get to see your video so late but I just got back from Italy last night and I will need some time to get back to my usual life in the States...
This video is very important and I am glad that you talked about exercise and physical therapy because, without it, I wouldn't been walking at the moment, so I know and feel that it is fondamental for all of us to continue to move as much as possible.
Glad to see you are doing so well now. Turned out that I have Dystonia and not MS. The cramping and shakes are the worst, but being such a calm person, and that I never panic, it helps. I agree with the physical therapy part. I had PT for 6 years from shoulder surgeries, so I got used to doing morning stretches, which I found out staved most of my symptoms. Swimming unfortunately is a no-go for me ever. Did hydrotherapy, randomly cramped and sunk like a rock. best of luck to you. Dystonia sucks.
Hello! I don't know too much about Dystonia but from what I've read, I have similar symptoms with my tremors. I'm so glad PT worked for you. Wow, I'm so sorry about your hydrotherapy experience! We're all so different and therapies work different for all of us.
Thank you for the reply. A kind of PT called "Active Release" works best for me. Had it a few years back when I had my shoulder blade replaced. Does wonders on deep muscle damage after shakes and spasms. I have made a few local speeches at childrens hospitals for this treatment. It's used mostly for athletes with injuries, but spasms from MS and Dysonia are almost identical. I can't stress at least trying that treatment enough. It gets rid of most secondary symptoms, which are the worst.
Great too see you looking so well, (nice hair by the way!). I was helped s much by my neurophysiotherapist when i was really struggling with balance. I was sceptical at first as the techniques she taught started with pelvic floor and i hadn't given birth !! but since her input i went from being very wobbly and dizzy to going to the gym 3 times a week. I am on a gym break at the momet as i had surgery a month ago but will go back soon, Stay well and take care,
Hi tricia. The techniques are lying down, activating the pelvic floor, and doing slow controlled stretches with legs and arms. The strong core you get helps lots with balance. Pilates us a good way to learn this too . Good luck :) xx tony
Have you tried hypnosis? Your immune system and nervous system are directly connected to the subconcious mind. I'm a hypnotist with MS. I stopped taking my interferon meds about 7 months ago which made me feel like crap. I feel way better off the meds, and haven't had a symptom since I was first diagnosed 2 years ago. My doctor seemed to think I was onto something. You can control your heart rate, temperature, stress levels, and all sorts of subconciously controlled things in hypnosis.
hi , this is Fahad again , from Saudi Arabia , you look great Lauren , this make me happy really . My sister is fine now after she watched your videos , thanks alot
You know Lauren? This disease varies from a patient to another for me, physiotherapy was very effective at the beginning of the disease but now days "after 15 years" I feel I need an appropriate drug to help me although I had a good experience How to perform some Exercises
Hi Mody! I know exactly what you mean. My body changes as to what it can tolerate on a daily basis...we are all so different and that's what makes it difficult!
What? What are you talking about? Out of this group? Of MS? Hell, if you can get out, I want out too!!!
You see, you are what we call a "Troll", Usually I don't mind trolls, I mean everyone is entitled to their opinion, but you couldn't of picked the most helpful, sweet and endearing vloger on Youtube to troll on.
Maybe you should watch the videos you put hateful things on, you might learn something...
Excellent point Lauren! Physical therapists rock! Occupational & speech therapists too. Swimming is one of the best exercises out there, as long as the water isn't heated.
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CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
Gregmills007 10 months ago
MERRY CHRISTMAS TO YOU AND YOU FAMILY AND HAVE A HEALTHY NEW YEAR. YOU ARE A GOOD PERSON AND YOU DO CARE LOVE YA APRIL
AWDESIGNS8 1 year ago
@AWDESIGNS8 April you are so sweet! I hope you are having a Happy New Year!!
laurenvparrott 1 year ago
@laurenvparrott dear lauren you to happy new year to you and your family. i did take your advice i know my avonex is only to stop the ms from getting worse i just have a hard time relazing the ms symtoms i just want them to stop i guess i should ask the doctor for some meds to see but i really dont like to take pills you are so positive person thats why i like to see you on u-tube . its been 3 years for me i just know i will get better god is with me as he is with you love april
AWDESIGNS8 1 year ago
i feel the same as i did but i just cant stand for a long period of time and it bothers me. i swear if i didnt have the 1 spot in my brain i woudnt think i have ms and something else ha ha , its just odd to me to have the tingling and the ms hug do you have that. thanks so much for emailing me back i know you are a busy lady . merry christmas to you and your family love april
AWDESIGNS8 1 year ago
@AWDESIGNS8 Hi April! No, I don't have the MS Hug, but I have definitely heard about it. I can't stand for a long time either...I just make sure there is a chair nearby! I hope you had a wonderful Christmas! Happy New Year!
laurenvparrott 1 year ago
HOW LONG DID IT TAKE YOU TO GET BETTER WITH YOUR MS. WHEN YOU FIRST GOT YOUR MS HOW DID YOU FEEL .THEN ONCE YOU TOOK YOUR SHOT HOW LONG WAS IT WHEN YOU FELT THAT YOU WERE GETTING BETTER . I KNOW THERE IS NO CURE BUT CAN WE GET RID OF THE SYTMONS WE HAVE LIKE THE WEAKNESS TINGLING . FEELING LIKE WE CANT DO THE THINGS WE USE TO DO / I STLL HAVE THE MS HUG . STILL TINGLING IN MY FINGERS THINGS LIKE THAT . LOVE APRIL
AWDESIGNS8 1 year ago
@AWDESIGNS8 Hi April! I have pretty much always felt the same...I'm sure you can take additional medications to help with symptoms because MS medications only slow the progression of the disease. They don't really help with symptoms. I hope this was helpful! Wishing you the best!
laurenvparrott 1 year ago
@laurenvparrott i take avonex for my ms no side effects yet gods been there for me. i just want the symptoms to go away . so did your tremors and other symptoms you have go away . i meet alot of people on daily strength i talk to people who have ms. i just want to stop my ms where it is now. but i can live with this if i have to because i know god family and friends are with me. i just look at you and others and see that you can stand for a long time and work i cant do that i'll get better
AWDESIGNS8 1 year ago
@laurenvparrott I CANT GET OVER THE TINGLING AND THE RIGHT SIDE IS WEAKER BUT I STILL CAN WALK I JUST WISH ALL THE SYMPTOMS WOULD GO AWAY MAYBE IF I DID TAKE SO MEDS FOR THEM THEY WOULD. SOUNDS SILLY. I CAN SILL STAND BUT NOT FOR LONG. I THANK GOD EVERY DAY AND EVEN IF I HAVE MS ITS OK SO I DONT WORRY ABOUT THAT I JUST WANT THE TINGLING TO GO AWAY BUT I GUESS I CANT DIE BECAUSE OF THAT I LOVE LIFE AND YOU ALL THAT CARE ENOUGH TO WRITE BACK LOVE YA APRIL
AWDESIGNS8 1 year ago
Thank u for the motivation, one thing id like to add is that really when swiming, ur body is lighter so this makes u able to even excercise more than any other thing.
omarshawky84 2 years ago
Yeah you're right!
laurenvparrott 2 years ago
I never get the warranty. Knock on wood.
dj160e 2 years ago
Good luck!
laurenvparrott 2 years ago
Hi, Lauren you have a bright smile and very positive attitude and I wish you all the best with your treatment with MS and keep smiling....your amazing!
gazastott2009 2 years ago
Wow, thank you so much for your kind comment! I really appreciate it so much!
laurenvparrott 2 years ago
I Have not been able to watch your videos for awhile but thanks for the information and inspiration. Your video on physical therapy is motivating me to get off my but and do what I can still do... I have to say it as a lifelong Redskin fan. You guys got lucky! Redskins forever!
crazilynsane 2 years ago
I'm so glad this video motivated you to move! Haha you're funny...go Redskins! The Lions did get lucky! But I'll still be their fan :)
laurenvparrott 2 years ago
Hi Lauren.. I ran into your videos while browsing the web. I too have MS and am just coming out of flair up.
I am glad to see your symptoms seem to be improving...not seeing tremors, etc.
I am an OT and it was rather devastating to be diagnosed..It's been 13 years since diagnosis. I work full time; this last flair has been most severe...but expect to recover,
Anyway...I just wanted to tell you I appreciate your videos..stay healthy and happy
tricia0925 2 years ago
Thank you so much for your comment! I'm sorry you're going through a flair up - hopefully you'll recover quickly.
I wish you the best and I hope to keep in touch!!
laurenvparrott 2 years ago
My thinking is that you want to make muscle fibers that are getting signals as strong as possible.
MegF142857 2 years ago
Right, exactly!
laurenvparrott 2 years ago
You're right about swimming being a great exercise! I live really close to my gym, but I haven't been for ages. I'm going to have to make a concerted effort to start up again!
haiqin 2 years ago
That's wonderful! Good luck!
laurenvparrott 2 years ago
You have made me so excited! I am starting PT for the first time next week! Thank you Lauren!
And I totally agree on swimming. It feels so good!!!!!!
2BinCali 2 years ago
That's great! I'm so happy for you!
laurenvparrott 2 years ago
I totally agree with you about Physical Therapy I started doing Physio and yoga for people with ms about 6 weeks ago and its been great my balance and walking has made a great improvment and I have no fatigue now at all i've also been on Tysabri 14 mounths now so between the 3 i've never felt better.
All the best Markxx
markolad 2 years ago
Hi Mark! That is awesome!! I am so happy for you!
laurenvparrott 2 years ago
Hey, I was hoping to get in on a NMS swimming / excercise class near by me. I sent in paper work so prayerfully I will be going soon!
Tracysees 2 years ago
I hope you can go soon too!!
laurenvparrott 2 years ago
You are looking great, Lauren!
librarising79 2 years ago
Thank you so much!!!
laurenvparrott 2 years ago
great vid
jermeal385 2 years ago
Thank you!
laurenvparrott 2 years ago
Dear Lauren,
I am sorry that I get to see your video so late but I just got back from Italy last night and I will need some time to get back to my usual life in the States...
This video is very important and I am glad that you talked about exercise and physical therapy because, without it, I wouldn't been walking at the moment, so I know and feel that it is fondamental for all of us to continue to move as much as possible.
Thank you for talking about this.
I hope you are doing well.
Angela
angelusa73 2 years ago
Hi Angela!! How was Italy??? I'm so happy you made it home safely!
Thank you for your comment - I'm so glad PT helped you with your walking!
I can't wait to hear about your trip!!
xoxoxo
Lauren :)
laurenvparrott 2 years ago
Glad to see you are doing so well now. Turned out that I have Dystonia and not MS. The cramping and shakes are the worst, but being such a calm person, and that I never panic, it helps. I agree with the physical therapy part. I had PT for 6 years from shoulder surgeries, so I got used to doing morning stretches, which I found out staved most of my symptoms. Swimming unfortunately is a no-go for me ever. Did hydrotherapy, randomly cramped and sunk like a rock. best of luck to you. Dystonia sucks.
jstark069 2 years ago
Hello! I don't know too much about Dystonia but from what I've read, I have similar symptoms with my tremors. I'm so glad PT worked for you. Wow, I'm so sorry about your hydrotherapy experience! We're all so different and therapies work different for all of us.
I wish you the very best with everything!!
laurenvparrott 2 years ago
Thank you for the reply. A kind of PT called "Active Release" works best for me. Had it a few years back when I had my shoulder blade replaced. Does wonders on deep muscle damage after shakes and spasms. I have made a few local speeches at childrens hospitals for this treatment. It's used mostly for athletes with injuries, but spasms from MS and Dysonia are almost identical. I can't stress at least trying that treatment enough. It gets rid of most secondary symptoms, which are the worst.
jstark069 2 years ago
Hi Lauren,
Great too see you looking so well, (nice hair by the way!). I was helped s much by my neurophysiotherapist when i was really struggling with balance. I was sceptical at first as the techniques she taught started with pelvic floor and i hadn't given birth !! but since her input i went from being very wobbly and dizzy to going to the gym 3 times a week. I am on a gym break at the momet as i had surgery a month ago but will go back soon, Stay well and take care,
Your friend Tony xxx
tonywilde1234 2 years ago
Hi Tony!!! Thank you SO MUCH for saying that about my hair!! I'm so glad you liked your neurophysiotherapist - that's great.
You had surgery? How are you feeling? I wish you the best with your recovery! I'll keep thinking about you!
Love, Lauren :)
laurenvparrott 2 years ago
tony what was the technique that helped your wobblyness?
tricia
tricia0925 2 years ago
Hi tricia. The techniques are lying down, activating the pelvic floor, and doing slow controlled stretches with legs and arms. The strong core you get helps lots with balance. Pilates us a good way to learn this too . Good luck :) xx tony
tonywilde1234 2 years ago
Have you tried hypnosis? Your immune system and nervous system are directly connected to the subconcious mind. I'm a hypnotist with MS. I stopped taking my interferon meds about 7 months ago which made me feel like crap. I feel way better off the meds, and haven't had a symptom since I was first diagnosed 2 years ago. My doctor seemed to think I was onto something. You can control your heart rate, temperature, stress levels, and all sorts of subconciously controlled things in hypnosis.
ChucknMcNuggets 2 years ago
Thank you for telling me this!
laurenvparrott 2 years ago
Very helpfull.Thank you. Im off to buy a pair of speedos now
MrKingbyname 2 years ago
Thank you! Haha...you'll have to send me a picture with your speedos! :)
laurenvparrott 2 years ago
You do NOT want to see that! I have an irish tan,it's not quite white but more tranclucent than anything
MrKingbyname 2 years ago
Hahah aww, that's really funny :) I'm sure you would like great though!
laurenvparrott 2 years ago
hi , this is Fahad again , from Saudi Arabia , you look great Lauren , this make me happy really . My sister is fine now after she watched your videos , thanks alot
alareem9 2 years ago
Hi Fahad! Thank you so much!! I am so glad your sister is fine and she watched my videos! I wish you both the very best!
laurenvparrott 2 years ago
You know Lauren? This disease varies from a patient to another for me, physiotherapy was very effective at the beginning of the disease but now days "after 15 years" I feel I need an appropriate drug to help me although I had a good experience How to perform some Exercises
I think every MS is different Regards
Mody .. :)
medad1 2 years ago
Hi Mody! I know exactly what you mean. My body changes as to what it can tolerate on a daily basis...we are all so different and that's what makes it difficult!
I wish you the best!
Lauren :)
laurenvparrott 2 years ago
Trojantjl:
What? What are you talking about? Out of this group? Of MS? Hell, if you can get out, I want out too!!!
You see, you are what we call a "Troll", Usually I don't mind trolls, I mean everyone is entitled to their opinion, but you couldn't of picked the most helpful, sweet and endearing vloger on Youtube to troll on.
Maybe you should watch the videos you put hateful things on, you might learn something...
MsGirlOnline 2 years ago
Thank you so much for writing this! I don't even know what trojantji said but I appreciate your comment so much!!
laurenvparrott 2 years ago
This comment has received too many negative votes show
GET ME OUT OF THIS AWFUL GROUP
trojantjl 2 years ago
Excellent point Lauren! Physical therapists rock! Occupational & speech therapists too. Swimming is one of the best exercises out there, as long as the water isn't heated.
Luv 2 U
Jolie
OSA503 2 years ago
I agree Jolie! Love to you!!
laurenvparrott 2 years ago
Nothing to do with the topic but you look really pretty! :)
Xynne 2 years ago
Oh my gosh, thank you so much!
laurenvparrott 2 years ago
This comment has received too many negative votes show
BULL SHIT
trojantjl 2 years ago
as always.awesome topic...
I love to swim,walk,and all these things to keep my muscles.
But I could use some work on my arms.
take care,
aly
macycj 2 years ago
Hi Aly! Thank you! I need work on my arms too :)
laurenvparrott 2 years ago