Added: 2 years ago
From: laurenvparrott
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  • MERRY CHRISTMAS TO YOU AND YOU FAMILY AND HAVE A HEALTHY NEW YEAR. YOU ARE A GOOD PERSON AND YOU DO CARE LOVE YA APRIL

  • @AWDESIGNS8 April you are so sweet! I hope you are having a Happy New Year!!

  • @laurenvparrott dear lauren you to happy new year to you and your family. i did take your advice i know my avonex is only to stop the ms from getting worse i just have a hard time relazing the ms symtoms i just want them to stop i guess i should ask the doctor for some meds to see but i really dont like to take pills you are so positive person thats why i like to see you on u-tube . its been 3 years for me i just know i will get better god is with me as he is with you love april

  • i feel the same as i did but i just cant stand for a long period of time and it bothers me. i swear if i didnt have the 1 spot in my brain i woudnt think i have ms and something else ha ha , its just odd to me to have the tingling and the ms hug do you have that. thanks so much for emailing me back i know you are a busy lady . merry christmas to you and your family love april

  • @AWDESIGNS8 Hi April! No, I don't have the MS Hug, but I have definitely heard about it. I can't stand for a long time either...I just make sure there is a chair nearby! I hope you had a wonderful Christmas! Happy New Year!

  • HOW LONG DID IT TAKE YOU TO GET BETTER WITH YOUR MS. WHEN YOU FIRST GOT YOUR MS HOW DID YOU FEEL .THEN ONCE YOU TOOK YOUR SHOT HOW LONG WAS IT WHEN YOU FELT THAT YOU WERE GETTING BETTER . I KNOW THERE IS NO CURE BUT CAN WE GET RID OF THE SYTMONS WE HAVE LIKE THE WEAKNESS TINGLING . FEELING LIKE WE CANT DO THE THINGS WE USE TO DO / I STLL HAVE THE MS HUG . STILL TINGLING IN MY FINGERS THINGS LIKE THAT . LOVE APRIL

  • @AWDESIGNS8 Hi April! I have pretty much always felt the same...I'm sure you can take additional medications to help with symptoms because MS medications only slow the progression of the disease. They don't really help with symptoms. I hope this was helpful! Wishing you the best!

  • @laurenvparrott i take avonex for my ms no side effects yet gods been there for me. i just want the symptoms to go away . so did your tremors and other symptoms you have go away . i meet alot of people on daily strength i talk to people who have ms. i just want to stop my ms where it is now. but i can live with this if i have to because i know god family and friends are with me. i just look at you and others and see that you can stand for a long time and work i cant do that i'll get better

  • @laurenvparrott I CANT GET OVER THE TINGLING AND THE RIGHT SIDE IS WEAKER BUT I STILL CAN WALK I JUST WISH ALL THE SYMPTOMS WOULD GO AWAY MAYBE IF I DID TAKE SO MEDS FOR THEM THEY WOULD. SOUNDS SILLY. I CAN SILL STAND BUT NOT FOR LONG. I THANK GOD EVERY DAY AND EVEN IF I HAVE MS ITS OK SO I DONT WORRY ABOUT THAT I JUST WANT THE TINGLING TO GO AWAY BUT I GUESS I CANT DIE BECAUSE OF THAT I LOVE LIFE AND YOU ALL THAT CARE ENOUGH TO WRITE BACK LOVE YA APRIL

  • Thank u for the motivation, one thing id like to add is that really when swiming, ur body is lighter so this makes u able to even excercise more than any other thing.

  • Yeah you're right!

  • I never get the warranty. Knock on wood.

  • Good luck!

  • Hi, Lauren you have a bright smile and very positive attitude and I wish you all the best with your treatment with MS and keep smiling....your amazing!

  • Wow, thank you so much for your kind comment! I really appreciate it so much!

  • I Have not been able to watch your videos for awhile but thanks for the information and inspiration. Your video on physical therapy is motivating me to get off my but and do what I can still do... I have to say it as a lifelong Redskin fan. You guys got lucky! Redskins forever!

  • I'm so glad this video motivated you to move! Haha you're funny...go Redskins! The Lions did get lucky! But I'll still be their fan :)

  • Hi Lauren.. I ran into your videos while browsing the web. I too have MS and am just coming out of flair up.

    I am glad to see your symptoms seem to be improving...not seeing tremors, etc.

    I am an OT and it was rather devastating to be diagnosed..It's been 13 years since diagnosis. I work full time; this last flair has been most severe...but expect to recover,

    Anyway...I just wanted to tell you I appreciate your videos..stay healthy and happy

  • Thank you so much for your comment! I'm sorry you're going through a flair up - hopefully you'll recover quickly.

    I wish you the best and I hope to keep in touch!!

  • My thinking is that you want to make muscle fibers that are getting signals as strong as possible.

  • Right, exactly!

  • You're right about swimming being a great exercise! I live really close to my gym, but I haven't been for ages. I'm going to have to make a concerted effort to start up again!

  • That's wonderful! Good luck!

  • You have made me so excited! I am starting PT for the first time next week! Thank you Lauren!

    And I totally agree on swimming. It feels so good!!!!!!

  • That's great! I'm so happy for you!

  • I totally agree with you about Physical Therapy I started doing Physio and yoga for people with ms about 6 weeks ago and its been great my balance and walking has made a great improvment and I have no fatigue now at all i've also been on Tysabri 14 mounths now so between the 3 i've never felt better.

    All the best Markxx

  • Hi Mark! That is awesome!! I am so happy for you!

  • Hey, I was hoping to get in on a NMS swimming / excercise class near by me. I sent in paper work so prayerfully I will be going soon!

  • I hope you can go soon too!!

  • You are looking great, Lauren!

  • Thank you so much!!!

  • great vid

  • Thank you!

  • Dear Lauren,

    I am sorry that I get to see your video so late but I just got back from Italy last night and I will need some time to get back to my usual life in the States...

    This video is very important and I am glad that you talked about exercise and physical therapy because, without it, I wouldn't been walking at the moment, so I know and feel that it is fondamental for all of us to continue to move as much as possible.

    Thank you for talking about this.

    I hope you are doing well.

    Angela

  • Hi Angela!! How was Italy??? I'm so happy you made it home safely!

    Thank you for your comment - I'm so glad PT helped you with your walking!

    I can't wait to hear about your trip!!

    xoxoxo

    Lauren :)

  • Glad to see you are doing so well now. Turned out that I have Dystonia and not MS. The cramping and shakes are the worst, but being such a calm person, and that I never panic, it helps. I agree with the physical therapy part. I had PT for 6 years from shoulder surgeries, so I got used to doing morning stretches, which I found out staved most of my symptoms. Swimming unfortunately is a no-go for me ever. Did hydrotherapy, randomly cramped and sunk like a rock. best of luck to you. Dystonia sucks.

  • Hello! I don't know too much about Dystonia but from what I've read, I have similar symptoms with my tremors. I'm so glad PT worked for you. Wow, I'm so sorry about your hydrotherapy experience! We're all so different and therapies work different for all of us.

    I wish you the very best with everything!!

  • Thank you for the reply. A kind of PT called "Active Release" works best for me. Had it a few years back when I had my shoulder blade replaced. Does wonders on deep muscle damage after shakes and spasms. I have made a few local speeches at childrens hospitals for this treatment. It's used mostly for athletes with injuries, but spasms from MS and Dysonia are almost identical. I can't stress at least trying that treatment enough. It gets rid of most secondary symptoms, which are the worst.

  • Hi Lauren,

    Great too see you looking so well, (nice hair by the way!). I was helped s much by my neurophysiotherapist when i was really struggling with balance. I was sceptical at first as the techniques she taught started with pelvic floor and i hadn't given birth !! but since her input i went from being very wobbly and dizzy to going to the gym 3 times a week. I am on a gym break at the momet as i had surgery a month ago but will go back soon, Stay well and take care,

    Your friend Tony xxx

  • Hi Tony!!! Thank you SO MUCH for saying that about my hair!! I'm so glad you liked your neurophysiotherapist - that's great.

    You had surgery? How are you feeling? I wish you the best with your recovery! I'll keep thinking about you!

    Love, Lauren :)

  • tony what was the technique that helped your wobblyness?

    tricia

  • Hi tricia. The techniques are lying down, activating the pelvic floor, and doing slow controlled stretches with legs and arms. The strong core you get helps lots with balance. Pilates us a good way to learn this too . Good luck :) xx tony

  • Have you tried hypnosis? Your immune system and nervous system are directly connected to the subconcious mind. I'm a hypnotist with MS. I stopped taking my interferon meds about 7 months ago which made me feel like crap. I feel way better off the meds, and haven't had a symptom since I was first diagnosed 2 years ago. My doctor seemed to think I was onto something. You can control your heart rate, temperature, stress levels, and all sorts of subconciously controlled things in hypnosis.

  • Thank you for telling me this!

  • Very helpfull.Thank you. Im off to buy a pair of speedos now

  • Thank you! Haha...you'll have to send me a picture with your speedos! :)

  • You do NOT want to see that! I have an irish tan,it's not quite white but more tranclucent than anything

  • Hahah aww, that's really funny :) I'm sure you would like great though!

  • hi , this is Fahad again , from Saudi Arabia , you look great Lauren , this make me happy really . My sister is fine now after she watched your videos , thanks alot

  • Hi Fahad! Thank you so much!! I am so glad your sister is fine and she watched my videos! I wish you both the very best!

  • You know Lauren? This disease varies from a patient to another for me, physiotherapy was very effective at the beginning of the disease but now days "after 15 years" I feel I need an appropriate drug to help me although I had a good experience How to perform some Exercises

    I think every MS is different Regards

    Mody .. :)

  • Hi Mody! I know exactly what you mean. My body changes as to what it can tolerate on a daily basis...we are all so different and that's what makes it difficult!

    I wish you the best!

    Lauren :)

  • Trojantjl:

    What? What are you talking about? Out of this group? Of MS? Hell, if you can get out, I want out too!!!

    You see, you are what we call a "Troll", Usually I don't mind trolls, I mean everyone is entitled to their opinion, but you couldn't of picked the most helpful, sweet and endearing vloger on Youtube to troll on.

    Maybe you should watch the videos you put hateful things on, you might learn something...

  • Thank you so much for writing this! I don't even know what trojantji said but I appreciate your comment so much!!

  • Excellent point Lauren! Physical therapists rock! Occupational & speech therapists too. Swimming is one of the best exercises out there, as long as the water isn't heated.

    Luv 2 U

    Jolie

  • I agree Jolie! Love to you!!

  • Nothing to do with the topic but you look really pretty! :)

  • Oh my gosh, thank you so much!

  • as always.awesome topic...

    I love to swim,walk,and all these things to keep my muscles.

    But I could use some work on my arms.

    take care,

    aly

  • Hi Aly! Thank you! I need work on my arms too :)

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