The definitive test for HD didn't become available until 1993, therefore there are many familys, like mine, who already had children AND grandchildren before they knew what the condition was. It could easily be any one out there.
Some People have put some realy hurt full things on here . I hope from this people will get the FACTS right before they act .Im want to to be a mum and why should i let this stop me . Noone has the right to tell me what i can or cant do. Ive not been tested my dad has the gene ive known for some time and i dont hate him for giveing me live and i dont hate god i love him and hope he will help me. I thank god every day that i wake up healthy and well .
my husband has this disease,we have two lovely boys,age 24 & 21,their grandad died from this disease,( suicide) they are currently looking to have the test,which they are dreading!!!! they have my backing & hope they have my genes to help them through this terrible ordeal,xx
My 18 year old daughter has the Juvenile form of Huntington's Disease,JHD.Been symtomatic since just 9 years old.As a mother to watch this illness take her piece by piece is devastating.She never had the chance to have a normal life and do stuff most kids/teens take for granted.I will never see her marry and have kids of her own.Thankyou Shane for highlighting this cruel disease.
@Michelle. That you would openly post a comment like that only shows that someone with the disease that has children is likely to be twice the parent you are/will be.
Only reason this disease exists is because it only shows up after natural selection would have been able to do anything about it. Now that it can be tested for, even using IVF before a fetus is developed there is no excuse for this disease to continue to be passed on. The only way to stop this disease at all is prevention.
Shame on the people who have children who know they have this terrible disease in their family. There is no excuse to pass on this disease to the next generation when there is a reliable genetic test available!
@Michelle12010 excuse me but have yu or anybody ever been in that situation you need to think before you write things on here and go upsetting people who are in this situation !! take your comments elsewhere !!
@Michelle12010 - It has only been reciently that this disease has been recognised for any type of assistance, unfortunately some of us did not even know that this existed within our family. Unless you know all the facts you should not comment as this often offends!
@Michelle12010 Michelle,picture the scene.A wife and mother of two is worried about some physical and personality changes in her husband.He becomes forgetful,twitchy,maybe even violent.What is going on?They see the doctor and after a number of months HD is diagnosed.A big shock to both of them,never even heard of it.He was brought up by a single mother who's dad done one years ago,even his mother never knew.Too late for any advice on having kids,they are already here.It happens,it could be you.
this proves there is no god , as along with the whole other list of crapy Disease s any all powerfull being that allows this to happen is someone who does not care,
therefore we need to put all the money we spend on bankers and wars into curing all these Diseases,
@jonmel you have to be more precise- as the huntingtons god allows for huntingtons desease (he is exactly like the christian god only at the end of the huntingtons bible it says "oh, and huntingtons- that stuffs awesome". Also you said the money we spend on bankers/wars- what about churches? Overall good comment though
I get my results in 7 days..
Hoops355 1 week ago
why do they have to add incidental music it is distracting and fake
the bbc now think that everything is an american soap(a form of entertainment) even real life((which is not)
jasonfury1 2 months ago
The definitive test for HD didn't become available until 1993, therefore there are many familys, like mine, who already had children AND grandchildren before they knew what the condition was. It could easily be any one out there.
aileenlovinsean 4 months ago
Some People have put some realy hurt full things on here . I hope from this people will get the FACTS right before they act .Im want to to be a mum and why should i let this stop me . Noone has the right to tell me what i can or cant do. Ive not been tested my dad has the gene ive known for some time and i dont hate him for giveing me live and i dont hate god i love him and hope he will help me. I thank god every day that i wake up healthy and well .
saigondaisy 5 months ago
my husband has this disease,we have two lovely boys,age 24 & 21,their grandad died from this disease,( suicide) they are currently looking to have the test,which they are dreading!!!! they have my backing & hope they have my genes to help them through this terrible ordeal,xx
hairdresserju 5 months ago
I have two cousins with the disease. My daughter is hoping to run the Northern Run half marathon in 2012 to raise money for research into Huntington
elilucycas 5 months ago
My 18 yr old son was just diagnosed with JHD, symptomatic since about age 5
I am doing all I can to raise awareness
THank you fo rhe awareness.
tracileepratt 5 months ago
This has been flagged as spam show
My 18 yr old son was just diagnosed with JHD, symptomatic since about age 5 :'(
THank you fo rhe awareness.
tracileepratt 5 months ago
My 18 yr old son was just diagnosed with JHD, symptomatic since about age 5
:'(
THank you fo rhe awareness.
tracileepratt 5 months ago
wow
TheTaha6123 5 months ago
My 18 year old daughter has the Juvenile form of Huntington's Disease,JHD.Been symtomatic since just 9 years old.As a mother to watch this illness take her piece by piece is devastating.She never had the chance to have a normal life and do stuff most kids/teens take for granted.I will never see her marry and have kids of her own.Thankyou Shane for highlighting this cruel disease.
Blondie1973pdb 5 months ago
This has been flagged as spam show
@Blondie1973pdb :((((((
fox454x 5 months ago
Thank you Shane Richie
mumoftwowithhd 5 months ago 3
@Michelle. That you would openly post a comment like that only shows that someone with the disease that has children is likely to be twice the parent you are/will be.
danielwchilds 5 months ago
aw omg favd i wish all the best.
Gjkeane 5 months ago
Only reason this disease exists is because it only shows up after natural selection would have been able to do anything about it. Now that it can be tested for, even using IVF before a fetus is developed there is no excuse for this disease to continue to be passed on. The only way to stop this disease at all is prevention.
Stutodude 5 months ago 2
Shame on the people who have children who know they have this terrible disease in their family. There is no excuse to pass on this disease to the next generation when there is a reliable genetic test available!
Michelle12010 5 months ago
@Michelle12010 yeah but some do not know they have it untiill they have kids
jonmel 5 months ago
@Michelle12010 excuse me but have yu or anybody ever been in that situation you need to think before you write things on here and go upsetting people who are in this situation !! take your comments elsewhere !!
1991mariaf 5 months ago
@Michelle12010 - It has only been reciently that this disease has been recognised for any type of assistance, unfortunately some of us did not even know that this existed within our family. Unless you know all the facts you should not comment as this often offends!
autrac59 5 months ago
@Michelle12010 Michelle,picture the scene.A wife and mother of two is worried about some physical and personality changes in her husband.He becomes forgetful,twitchy,maybe even violent.What is going on?They see the doctor and after a number of months HD is diagnosed.A big shock to both of them,never even heard of it.He was brought up by a single mother who's dad done one years ago,even his mother never knew.Too late for any advice on having kids,they are already here.It happens,it could be you.
Blondie1973pdb 5 months ago 2
this proves there is no god , as along with the whole other list of crapy Disease s any all powerfull being that allows this to happen is someone who does not care,
therefore we need to put all the money we spend on bankers and wars into curing all these Diseases,
"lets the attacks begin"
jonmel 5 months ago
@jonmel you have to be more precise- as the huntingtons god allows for huntingtons desease (he is exactly like the christian god only at the end of the huntingtons bible it says "oh, and huntingtons- that stuffs awesome". Also you said the money we spend on bankers/wars- what about churches? Overall good comment though
yuriythebest 5 months ago