Fibro Hell Michelle, Thanking you for All Comments

[Rhondamarie00]

I am a christian and I do believe that God has helped me thru a lot of things but I don't have all the amswers. I respect that not everyone believes in God and I don't want that to put a barrier between me and my peers because we (people with chronic illnesses) need to stand together! Please check out my channel and watch my video "my life is a PAIN: living with fibromyalgia and chronic fatigue." Blessings, Rhonda

[Rhondamarie00]

THE IBS has gotten so bad... I actually know what it feels like to be constipated and have diahrrea at the same time! I know, it's a gross topic but it needs to be talked about! I'll be so backed up and eventually when I finally do go it will be followed by horrible diahrrea...just horrible! I don't have a B.M. every day. I can go for almost a week without one. I think if i could get regular it would help with my pain and fatigue but nothing seems to help and I've tried it all.

[Rhondamarie00]

It's comforting to hear someone actually talk so openly about our chronic illnesses, especially how it affects the bowel and bladder! I've wondered if what was going on with my bladder and bowel were "normal" for FMS/CFS?ME sufferers. I have such a shy/weak bladder. Takes forever for it to come out and when it does it just rickles forever and God forbid their be someone else in the restroom cuz then my bladder will just shut down. I've had IBS forver too....

[OnlyGeranium]

Wow......I sure can relate to you..especially today. I MADE myself take my lil dog out yesterday to her fav dog park so am whacked out today. I am soooo thankful that I have my dog to motivate me to 'move about' otherwise I would just lie in bed under my heating blanket.

I'm also alone and note that people REALLY don't want to be around especially when I'm in a Fibro flare-up.  Love your paintings....keep on keepin on!

[jdmit75]

I have HIV and yes I totally agree this pain condition need more research. YES FIBRO IS WORSE THAN MY HIV PROBLEMS!

[jdmit75]

I am a 36 Yo male I wish I could hug you I was told I had fibro in 1992 and was told to just call it osteoarthritis sad then of corse most doctors wouldn't beleive it well now as of January 2012 I'm rediagnosed with fibro myalgia and more so myofascial pain syndrome. Please keep posting never stop you have given me a resolve I've never had.

[ardraneala]

wow....



[MARIELEVAMPYRE13]

HI MICHELLE, I WANTED TO THANK YOU FOR YOUR VIDEOS. I HAVE MANY HEALTH PROBLEMS I WAS NEVER SUPPOSE TO LIVE PAST AGE 18 IM NOW 28. I WAS DIAGNOSED WITH FIBRO 6 YEARS BUT I AM CURRENTLY NOT TAKING ANY PAIN MEDS. I AM ALSO BI POLAR, ADHD, EPLEPTIC AND HAVE ANXIETY DISORDERS. I HAVE NO MEDICAL INSURANCE AND CANT SEEM TO GET ANY HELP, IM ALSO TRYING TO GET DISABILITY AND THEY KEEP DENYING ME. YOU ARE COMPLETELY RIGHT ABOUT PEOPLE NO BELIEVEING HOW BAD YOU ARE. I AM CALLED A HYPOCONDRIAC

[Megpieballew]

Thanks for posting a new one!! Great to see you!! I like the way you represent the FM community!! Some say its harsh.... Well FM is harsh!! And after a while you get very sick and frustrated of having to explain it over and over to docs,, <3

[letsjustdance]

This is the first video of yours, that I've seen It is linked on Fibroletters. Thanks for your honesty. I nearly hurt my neck nodding b/c you are so right! Seriously, though, WE do have to be honest, and OUT LOUD because we do need research, and we DO need to change people's minds, and God Help Us, but we DO HAVE TO EDUCATE OUR DOCTORS. They hate it, but they don't know so many things..and we LIVE it and our LIVES DEPEND ON IT. Thanks again, I subscribed...can't wait for the next update.

[mcertonio]

@letsjustdance do you mind if i post your respose on facebook & maybe my Art Show.

[letsjustdance]

@mcertonio of course :) We have to be HEARD!!

[mcertonio]

@letsjustdance ---Thanks Babe! best advice---if A Dr seems stupid---they are--RUN! LOL

[kgillin]

P.S.  I like your paintings!

[kgillin]

Thanks for updating us...keep the videos coming, Michelle. You make me cry, but you also give me hope. Recently, I tried to do SOMETHING to fill the emptiness of my life...I tried to volunteer at the local Humane Society...thinking I could just be with the animals, talking to them, petting them, but...what they wanted were able-bodied volunteers to do the hard work of keeping up all the cages, cleaning and such. I just couldn't physically do it. Very sad. Oh well. Take care for now.

[mcertonio]

@kgillin You have to Do your own thing BECause No one getd why we cant mwpke a schedule like Normal folks Lol!

[XSarenkaX]

Thank you for saying the things I feel.

[01Ellera1]

Happy New Year Michele. I am 50 and I swear we are in the same boat. I've been dealing w/ this for 25 years. I told my husband that I am forever saying I'm sorry to everyone.I am going to try to FB you. Thanks and Keep GOING.......... and say Fuck. It seems to help.....

[ModerateMartian]

Hi Michelle, Thanks for the videos. Seems to me most people really don’t give a shit unless it affects them directly, if they cannot see it it doesn’t exist. I have depression, social phobia and possibly had fibro for about 3 years (got worse after being on Paxil), but hey! I don’t always look sick. … I’m wondering if there’s a connection with SSRIs and stress from psychological issues? I believe is where it all started for me or at least made things worse.

[superotter77]

you're such a beautiful person Michelle, i love ur vids & hearing what u have 2 say. ur health is so similar to my wife's (we're all facebook friends, Natasha here). i'm so glad u have a loving supportive partner, we're all in this together. & hell ya @ FUCK EM! u are an inspiration 2 all of us, much love 2 u & some painfree/manageable days. grrr @ so-called pain mgmt specialists who have no compassion/don't get pain. thank gawd 4 the few good ones out there. any advice 4 partners?

[sarahwithstars]

you make it ok to say things as it is. rather than endlessly protecting other people so they dont say "oh poor you" or even worse "how can that be true when you look fine"

broke my jaw during a seizure from an adverse drug reaction; and this localised pain has been all over one side of my head since october. nothing is worse than face pain; it destroys your soul.

the most important thing you can do is get out of bed every day/ cant be fucked to shower every day but DO something!!!!!!!

[mcertonio]

@sarahwithstars Oh BABY! Your Trigeminal Nerve is enflamed! The WORST! Go to my blog I have some good info for you--I WENT THRU HELL WITH THAT! MY BLOG: logicdropout.blogspot.com

[osummuso]

You're not alone though Michelle.

I was deserted by all my able bodied friends, but people with similar troubles I barely knew and had never met, came out of the woodwork to help me this year.

Just don't be to proud to ask when you need it!

[Cissy2cute]

If it weren't for my pain meds, I wouldn't be able to move at all.

I always tell people to think of the worst toothache they've ever had, and then imagine that the pain is all over and never goes away. It might get a bit better, and then it comes back worst than ever. Went to the mall two days ago and my body broke down twice. I started to cry, right there in public. Pure horror. Still recovering.

Thank you Michelle for putting things into words what it's truly like to "live" like this.

[mcertonio]

@Cissy2cute --Oh BABY! Your Trigeminal Nerve is enflamed! The WORST! Go to my blog I have some good info for you--I WENT THRU HELL WITH THAT! MY BLOG: logicdropout.blogspot.com

[treetopteresa]

I gave up on my doctor being helpful; Ive started to smoke marijuana; it helps with pain and tight muscles (at least for a little while). The most recent thing my dr put me on was Gabapantin for nerve pain, but havent noticed much help from it. Hope you have a Merry Christmas. Im staying in bed all day.

[osummuso]

@treetopteresa I'm on Gabapentin, but just can't function on it.

Side effects are horrendous. No concentration, no memory, sleep all the time.

Trying to get onto Lyrica instead to see if it's any better.

[dawnten]

PS you are spot on about good insurance because the drug test paid for a enormous amount and left me with 200 out of pocket. Would love to take a bat to a junkies head right now so they can feel REAL PAIN. Sorry, but its true.

[dawnten]

The pain medication crap makes me so maddddd. Pain meds are made for those of us in pain right? Get this, I was given a drug test because I don't take my pain meds unless I am in terrible pain! All they had to do is look at when or how many times I pick up a perscription, but no and now I have almost 200 dollars to pay for this test. We can thank the losers who are NOT in pain that use these drugs to get high for making our quality of life less than along with our dignity & self esteem.

[dawnten]

Merry Christmas sweetie. xo You are so blessed to have a partner who tries to understand. Just know...that we who are going through this crazy crap do understand you. When you mentioned eating it struck me because I swear its as if we are allergic to food and feel so much worse after eating it. I was extremely ill all the time as a child too It isn't fair that people look at this disease as if we are crazy. We aren't, but the medical community might get me there! love ya xo

[BarbiM04]

Stay strong, although I know easier said than done. Thank you for all your videos.

[mcertonio]

@BarbiM04 --YOU KEEP TRYING!--More info on my blog: logicdropout.blogspot.com



[sacorarwoods]

We are all here for each other.

[blueeyes314]

Merry Christmas Michele thanks for the video I haven't been the same in over 10years thats when my trouble started. I feel like I'm trapped in my pain body I swear,And tonight on a day thats suppose to be wonderful Im sitting her in my recliner on a heating pad. The doctors wont help and I'm so afraid by next year I will be in a wheel chair. I hate this life

[mcertonio]

@blueeyes314 -- What ever made you feel good in your old life--TRY TO DO if only for A hour! Me I love to sing and go to HAPPY HOUR! Do what want DO NOT CARE IF ANYONE JUDGES YOU!