Im very Grateful that you made these videos. My son is 4 severly autistic as well. His behavours are identical to your son. Its very hard to watch our children hurt themselves. When i try to restrain my son from punching himself in the face he tries to bite me and pull my hair! does jamie have the sleep problems? I noticed he wasnt in a special needs bed? How do you keep him in his bed? Does jamie hurt you ever?
you are so great... my son is 17 and almost looks exactly like jayme.... his behaviors are almost identical, i also have a son who is 20 with mild autism .... it is a struggle considering i also have multiple sclerosis and arthritis.... God is great ..... Joey is a gift as all of my children are. Don't know what i'd do without them :) God Bless you...
it seems to me like his SIB is a communication technique. When he's bored or wants to do something new, he hits himself but it isn't as severe as when he's in pain or sick. bored hitting is more repetitive "can we do something" but pain or illness he's really nailing himself. Is it like that a lot?
@queenfan45 Yes, it's definately communication related, however once he starts, he can get "stuck" and can't stop himself, so it's a mix of hyperarousal, communication, frustration, compulsion, etc....I just so wish we could get him to a point where he could at least say a word or touch a picture. He occasionally touches a prompt, but then gets angry if you don't give food fast enough and starts punching head...we have to find herbs,etc..to help with impulse control
@GT2582 Yes, he's had sensory profile done. He's tactile defensive, at times, other times, he wants tactile input. He's also got gustatory issues ie...on warm days only eats colder foods, on rainy or colder days, only wants mostly "warm foods" with a crunch. He is also obessed with chewing his "chew necklace" (rep cord band) and flaps his fingers a lot and hums incessantly, as seen here. We've been giving green tea lately, seems to help a bit, at least sometimes, with the humming
I know this may sound totally bizzare, but I had a dream last night and I saw you and your son there. I was walking next to your house and you both were standing outside, in your backyard just walking with a dog.
It's very hard to stop echolalia. My son (PDD NOS) used to do it alot when he was younger. He hardly does it now, but not because I told him to. I used to, but it didn't help. It was a part of him. But once he learned to speak he did it less and less. Still he sometimes he repeats phrases from TV.
I would like to be friends. I never reach out to parents with autistic children, but I identify with you. My son is 18 too. Last year he bit my mom and gave her 16 stitches..his aggression is terrible.
A functional behaviour assessment needs to be carried out to find the function of this behaviour ie what is maintaining it, until this is done no intervention will be sucessfull. Is there not a behaviour analyst involved in this boys care?
He's had approximately 19-23 behavioral assessments, functional analysis, etc...etc...etc..I have BOXES of reports all the way from 1993!!!!!! Year after year after year. The MAIN problem is staff. U can write and analyze until the stars fall from the sky and if NOBODY is reading the behavioral plan or implementing (which happens all the time unless I am obessively hounding people to do it) nothing happens.
Have you tried a DRO? This is a behavior intervention plan. you get a picture showing "quiet mouth", and a preferred ediable reinforcer that you isolate all day until this time. Every 30 mintues, you sit down with him. Hold up the quiet mouth pic, and once he has had a quiet mouth for 5 seconds, you give him that ediable. You can do every 3 seconds if needed. Do this for 5 minutes. Then 30 minutes later do it again. Then once he is consistent with this, increase to 10 sec. w/ a quiet mouth.
DRO was not successful in past, but it doesn't mean it can't work tomorrow....I can fiddle with a modified version, cuz any upset to his routine may trigger sib....
I am an ASD teacher. Have you tried using visual cues? i can send you some. He lives in an austistic world that is very difficult to understand. Does he like swimming? most ASD kids do.
You need a break too, is he challenging behavioural?
Yes, he loves swimming, but it requires 2:1 supervision...and the water isn't always warm enough....the last therapeutic pool for kids like my son was closed due to budget cuts..but that's okay, we give him 2-4 therapy baths a day in a regular bath tub and he loves it.....you have to improvise....and yes, I desperately need breaks....today, he went into sib episode every hour, while laughing and then having seizure activity on top of it...I was basically his siamese twin all day today.
If there is nothing to be found just at the moment, health-wise to explain these unsettled behaviors, there is only one thing to do, to accept it fully. The only positive aspect to this, is that you have to focus on self and you are amendable and able to mold and fit in any situations, in theory at least, unlike Jamie who can only be himself as he is now, until we have a better answer answer for him. But you are right, the responsibility of his care should extend beyond his family.
I am resending this comment, as it did not seem to have been in. I am sure you have tried everything, but it seems that Jamie only has behavior to express himself, so this behavior (and that other video before last) have communicative intents. In a way they are pretty clear, one says, I want to eat, could you have something more effective still to help him? The other says, I am just not well and the question then is why, have you tried everything, could there be something more though?
Im very Grateful that you made these videos. My son is 4 severly autistic as well. His behavours are identical to your son. Its very hard to watch our children hurt themselves. When i try to restrain my son from punching himself in the face he tries to bite me and pull my hair! does jamie have the sleep problems? I noticed he wasnt in a special needs bed? How do you keep him in his bed? Does jamie hurt you ever?
ammandaba 5 months ago
you are so great... my son is 17 and almost looks exactly like jayme.... his behaviors are almost identical, i also have a son who is 20 with mild autism .... it is a struggle considering i also have multiple sclerosis and arthritis.... God is great ..... Joey is a gift as all of my children are. Don't know what i'd do without them :) God Bless you...
Jesusfreak3378 8 months ago
it seems to me like his SIB is a communication technique. When he's bored or wants to do something new, he hits himself but it isn't as severe as when he's in pain or sick. bored hitting is more repetitive "can we do something" but pain or illness he's really nailing himself. Is it like that a lot?
queenfan45 11 months ago
@queenfan45 Yes, it's definately communication related, however once he starts, he can get "stuck" and can't stop himself, so it's a mix of hyperarousal, communication, frustration, compulsion, etc....I just so wish we could get him to a point where he could at least say a word or touch a picture. He occasionally touches a prompt, but then gets angry if you don't give food fast enough and starts punching head...we have to find herbs,etc..to help with impulse control
kgaccount 11 months ago
have you had a sensory profile done?
he could be self regulating.
GT2582 1 year ago
@GT2582 Yes, he's had sensory profile done. He's tactile defensive, at times, other times, he wants tactile input. He's also got gustatory issues ie...on warm days only eats colder foods, on rainy or colder days, only wants mostly "warm foods" with a crunch. He is also obessed with chewing his "chew necklace" (rep cord band) and flaps his fingers a lot and hums incessantly, as seen here. We've been giving green tea lately, seems to help a bit, at least sometimes, with the humming
kgaccount 1 year ago
how come he didnt get free "novacane' from beck? (novacaine) He's useless anyway. Might as well just make him a giant robot.
returnoftheramble3 1 year ago
I know this may sound totally bizzare, but I had a dream last night and I saw you and your son there. I was walking next to your house and you both were standing outside, in your backyard just walking with a dog.
sidandmoi 1 year ago
@sidandmoi That's interesting. I suppose all of us who are dealing with children in autism spectrum are "connected" in some ways...
kgaccount 1 year ago
It's very hard to stop echolalia. My son (PDD NOS) used to do it alot when he was younger. He hardly does it now, but not because I told him to. I used to, but it didn't help. It was a part of him. But once he learned to speak he did it less and less. Still he sometimes he repeats phrases from TV.
sidandmoi 1 year ago
I CAN RELATE TO THIS. MY SON IS 20 AND AUTISTIC.
rqshepherd 1 year ago
I would like to be friends. I never reach out to parents with autistic children, but I identify with you. My son is 18 too. Last year he bit my mom and gave her 16 stitches..his aggression is terrible.
jimigirl38 1 year ago
A functional behaviour assessment needs to be carried out to find the function of this behaviour ie what is maintaining it, until this is done no intervention will be sucessfull. Is there not a behaviour analyst involved in this boys care?
dtwie82 2 years ago
He's had approximately 19-23 behavioral assessments, functional analysis, etc...etc...etc..I have BOXES of reports all the way from 1993!!!!!! Year after year after year. The MAIN problem is staff. U can write and analyze until the stars fall from the sky and if NOBODY is reading the behavioral plan or implementing (which happens all the time unless I am obessively hounding people to do it) nothing happens.
kgaccount 2 years ago
Can he just randomly do very genius stuff?
sweffe96 2 years ago
In his mind I'm sure there is genius that we have no idea is going on
kgaccount 2 years ago
Have you tried a DRO? This is a behavior intervention plan. you get a picture showing "quiet mouth", and a preferred ediable reinforcer that you isolate all day until this time. Every 30 mintues, you sit down with him. Hold up the quiet mouth pic, and once he has had a quiet mouth for 5 seconds, you give him that ediable. You can do every 3 seconds if needed. Do this for 5 minutes. Then 30 minutes later do it again. Then once he is consistent with this, increase to 10 sec. w/ a quiet mouth.
courtlamod 2 years ago
DRO was not successful in past, but it doesn't mean it can't work tomorrow....I can fiddle with a modified version, cuz any upset to his routine may trigger sib....
kgaccount 2 years ago
I am an ASD teacher. Have you tried using visual cues? i can send you some. He lives in an austistic world that is very difficult to understand. Does he like swimming? most ASD kids do.
You need a break too, is he challenging behavioural?
jenbrown007 2 years ago
Yes, he loves swimming, but it requires 2:1 supervision...and the water isn't always warm enough....the last therapeutic pool for kids like my son was closed due to budget cuts..but that's okay, we give him 2-4 therapy baths a day in a regular bath tub and he loves it.....you have to improvise....and yes, I desperately need breaks....today, he went into sib episode every hour, while laughing and then having seizure activity on top of it...I was basically his siamese twin all day today.
kgaccount 2 years ago
If there is nothing to be found just at the moment, health-wise to explain these unsettled behaviors, there is only one thing to do, to accept it fully. The only positive aspect to this, is that you have to focus on self and you are amendable and able to mold and fit in any situations, in theory at least, unlike Jamie who can only be himself as he is now, until we have a better answer answer for him. But you are right, the responsibility of his care should extend beyond his family.
Skymaker69 2 years ago
I am resending this comment, as it did not seem to have been in. I am sure you have tried everything, but it seems that Jamie only has behavior to express himself, so this behavior (and that other video before last) have communicative intents. In a way they are pretty clear, one says, I want to eat, could you have something more effective still to help him? The other says, I am just not well and the question then is why, have you tried everything, could there be something more though?
Skymaker69 2 years ago