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"But, you look good!" I really hate that...because it makes you feel like, they think you're making it up. What they don't know...is that I stay in on a bad day...So, of course on a good day, when I can get out. I look like everyone else. People make me so angry. My therapist told me something once and it made since!
Much like you, I have people in my life that don't "GET IT!"...and she told me..."THEY might not ever "GET IT" and you need to be ok with that."
daviscnc 1 year ago
This has been flagged as spam show
I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific disease after 15 years of failed treatments. I understand this illness completely from the inside and back out again. Symptoms are often mistaken as a cause and what can help does not cure. Please, do not give up and keep going. See my You Tube video "Curing Chronic Fibromyalgia - Choosing What Works" and my best wishes to you all!!!
ValerieLumley 1 year ago
I totally know what you mean. Im only 18 and I dont have any friends. All I have is my amazing boyfriend who ive been with for over 4yrs now. He is the only one who has always been there for me and believed me and he takes care of me so well. I feel bad for him sometimes though. Because I want to be able to go out with him and do stuff, but I just cant most of the time. His family is awesome too and they have little get togethers and I never know whether I will be able to go or not.
PiercerJenn 2 years ago
Straight up!! your my tower and i totally get you.
I first found your vidios the other day and i could not stop crying, someone knew me! someone that was not me!
i cried for you and all those in fibro-hell.
i cried so hard i hurt but my heart aint so heavy as it once was...
Thankyou for you.
bless you, be strong. as all diamonds are*******
Ratzuko 2 years ago
Let me guess. Youtube cut off your video. Well I am 100% with you on what you did say. As is every other Fibro sufferer. You are not alone. Non-suuferers are the losers for their lack of compassion - but I know what you mean. Their attitude hurts just the same. We deserve support, compassion & understanding like anyone else - but we almost never get it. I appreciate your courage in making these videos, & the validation you bring to your fellow sufferers. Thank you! RESPECT~PEACE
Euterperocks 2 years ago
michelle. one of the worse things is the lack of understanding from friends.I know you could say yes Id love that. you could wake up on that morning and feel well, ive a few hours to get my self sorted. and as the day and time goes on you start to feel overwhelmed.then guilty this makes your pain worse. a true friend will drop things every now and then, when you have a odd spur of energy. good luck with that everybody.
catherine81227 2 years ago
I know just what you mean - its hard being a guy with this -woman have more of an idea of pain I cant get across to my guy friends, and its frustrating and my god, it hurts being alone. I hope you find some comfort knowing youre not alone!
QueerDude73 2 years ago 3
queer dude73. It must be very hard being a man with fibro.Its lonley for a woman. but we have so much more people to understand us. women!
I hope you know that you are not alone.and hope you find comfort in your friends. dont try and make anybody understand. they cant.sad but true. blessings.
catherine81227 2 years ago