Understanding Endometriosis

[jlez2626]

I am going through this too and reading everyones comments makes me cry my eyes out :(

I am dealing with the pain bcus I want to have another baby!! This isn't fair that we all have to suffer like this :'(

[MissMaddy881]

i'm on a different birth control pill, and if this doesn't work, i'm going to be put on mirena.

[MissMaddy881]

update: i had a laparoscopy in june, but it came back two months later. i had to drop out of college in oct. i see my GYN next month sometime.

[MsEndoworld]

i really want to answer every comment on here, but video's like theses are fantastic for all women going through this condition.

i myself was used as a case study at UCL Hospital in london for the severeness of my endometriosis

[MissMaddy881]

@MsEndoworld if that started happening in the US, i'd go for it.

[MissMaddy881]

ignore FatherPatOphelia, ladies. he's stupid.

[keracomplex]

will going through surgery help improve fertility???

[jemohseni]

Oh man I just want to cry!!! I hate this soooo much!!! I know when I do a green juice fast it goes away, but I love food and uhh!!!! I seriously just threw up from taking so much IB profin, and now I'm cramping again and I can't stand the pain! So sad right now :( Every freaking month!!! Not fair!

[TheGoddessCaroline]

:(... sucks to be a woman with all of this messed up plumbing we have. I'm so sad right now. My gynocologist's nurse is demented. Who gives you their personal cell number for your results? I gave them all of my symptoms for 2 years now and they should have never over looked them but they did. They would just treat the severe symptoms like it was normal.

[FatherPatOphelia]

@TheGoddessCaroline So wait... does endometriosis mean you have no control over when you expel your watery foul smelling shit? Because if so, you are a disgusting person.

[bananso]

why does she say it is very common? is 15% of the population common?

[xxxLIBBLYxxx]

I'm 17 years old and I've been suffering from it for close to 2 years. The first major episode I had was a mix of both pancreatitus and endometriosis mixed together (PAINFUL), but the doctors only ever caught the pancreatitus. So for close to a year I had been suffering from severe, like, SEVERELY SEVERE pains without even knowing I've had it. Now I have it so bad they're not sure if I will be able to bear children. :'( In October I get the surgery...I hope it helps out somewhat.

[turkishgal3]

Has anyone had/has endometriosis and is on the pill?If yes does it help ease pain?

[MissMaddy881]

@turkishgal3 the pill doesn't help the pain. it only gives you hormones. i had the endo burned off in june, but when i still had pain, i took tylenol with codeine. after i took that medicine, it wasn't long until i fell asleep. i liked that feeling, because it was the only way i could get away from the pain. endo doesn't really go away, so the thought of me having to go through severe pain again scares me.

[FatherPatOphelia]

@MissMaddy881 penis

[turkishgal3]

I'm 17 year old and had this when I was 16 even though I was told it was unlikely I ha endometriosis because I was too young.I had surgery to burn the endometriosis spots but 6 months later I think I have it again.The pain I get is like a bruised feeling which is very severe.It sometimes hits the bottom area all across my stomach and sometimes hits all over.

[MissMaddy881]

@turkishgal3 one teen girl on here said she's had it since she was eight. i had the same surgery as you four weeks ago and my pain didn't feel like a bruised feeling. it was very sharp. endo will come back after the surgery. i'm 21.

[FatherPatOphelia]

@MissMaddy881 Maybe that will teach you to keep your legs shut.

[BlaiddDrwg2009]

That's a bit tactless... Talking about a condition which can wreck a womans sex life then have a video of a couple going at it. =/

[MissMaddy881]

@BlaiddDrwg2009 yeah.

[FatherPatOphelia]

@BlaiddDrwg2009 Ohhhh yeeeeeaaah! In yo face byatch

[saltandlight4him]

I just found out that I have endrometriosis! omggg its sooo painfull!! I have had stomach pain since i started my period when i was 13 and in the last yr it has gotten a lot worse and i had cysts on my ovaries as well! now i am on birth control..hopefully it helps

[SarahSnusk]

Yeah that's a good idea. But the knowledge of endometriosis amongst doctors today is very poor.

 I'm sorry too hear that it got worse : ( that sucks! Was it one of those hormone shots which puts you in a "fake" menopause? How much longer would you have to take these shots until they know if it works?

[MissMaddy881]

@SarahSnusk no, it doesn't put me in a fake menopause. it does cause hot flashes, though. i'm in the middle of one right now. i have no idea of how long it will be before it gets into my system. one of my mom's coworkers said it'd be a long time. i saw my doctor again friday, and he gave me some more advil and nausea medication.

[SarahSnusk]

And since these small cells behave as if they were the endometrium, they still will bleed every month even if there's no uterus. But it's your body and if you feel like an operation is the solution for you then maybe it is. I just wanted you to know that (since you do want children especially) it's not a guarantee for getting rid of the endo. Try to avoid wheat products for about three months or so, I've tried it and my cramps aren't nearly as bad or as long.

[MissMaddy881]

i have a question: does endometriosis seem to get better if you exercise? i'm going to ask my GYN this, but i want to know what any of you think.

[Jenna241]

Every time I come back to this video the more I dislike it.

[Jenna241]

@Dizzey1019 sweetpickles is correct... ALMOST. Most doctors with give a little hope to a patient and say that endo, will "disappear" after the first pregnancy. But its untrue and only gives false hope. There is no cure for the disease, so how can it just simply disappear after giving birth. Theres no logic in it. I have been controlling my endo WITHOUT medication for 2 years, nearly pain free. Its better than nothing, but if you want to know more inbox me!

[BlackMarker]

i'm just learning i have this now, i was stupid enough to neglect my symptoms for a year before telling anyone and now i'm paying for it, my question to you ladies is over the last 6 months because of the pain during sex it has taken a large toll and my boyfriend and I, just wondering if anyone had tips to relieve the pain so i can enjoy sex again? ha thanks.

[MissMaddy881]

@BlackMarker i'm learning, too. i'm 21 and i have it.

[JillAngie3]

Yes I think the genetic link is probable.....due to ET's having visited planet earth thousands of years ago and created us from their DNA and that of early hairy homo erectus. Endometriosis is a weakness due to the Reptilian DNA mixed with another alien race DNA thus creating a weakness....makes perfect sense to me anyway!

[sparksfly2u]

I've a question. I have endometriosis and I heard that it can be painful when you have sex. Is that right?

[MissMaddy881]

@sparksfly2u i read that on some website.

[brokenheartedspirit]

ive had this since i was 8...im 15 now and it hurts really bad some days im bed ridden and it makes me sick to my stomach and weak to my knees...they need to find a cure (if possible)

[MissMaddy881]

@brokenheartedspirit you've had it since you were eight? dang! that sucks. what are you doing for it now? i found out i had it toward the end of last year and i'm 21. i'll be thinking about you :)

[brokenheartedspirit]

@MissMaddy881 I'm not really doing anything I just lay in bed and try to find a comfortable possition, I also take pain killers every 1-2 hrs, thanks for thinking about me :) I'll think about you too :D

[MissMaddy881]

@brokenheartedspirit you're welcome and thank you! i like taking aleve because it puts me to sleep so i don't feel pain. i had severe headaches until last may and the pain reminds me of them. it moves around and my headaches would, too. i'm just on the pill, but i suck at taking it.

[brokenheartedspirit]

@MissMaddy881 I switch the pain killers i use around from ibuprofin to advil to alieve. The headaches for me vary on my days, I try to keep myself hydrated and away from loud noises, i tend to be out of school for 2 days sometimes...relaxing usually helps me. For me though my headaches arent as frequent as my cramping that moves to my lower back area and down to my quads. My dad hasn't taken me in yet to get me on the pill, we havent found a cheap place yet.

[MissMaddy881]

@brokenheartedspirit oh ok. i don't want a hysterectomy because i want kids, but judging from the comments i've read on here, it seems impossible to avoid that surgery. what about you?

[brokenheartedspirit]

@MissMaddy881 im not going for the hysterectomy bc i want kids too, just deal with the pain ive been told that excersizing can help endometriosis, and ive also heard that after having your first kid it can go away... idk though im not a doctor try asking yours :)

[MissMaddy881]

@brokenheartedspirit yeah, my doctor told me those things. i saw him monday and i'm taking one of the shots for it. it's not lupron, but the other one. sometimes i still hurt, but it goes away and isn't as bad. that shot's awesome! ask your doctor about it.

[SarahSnusk]

@MissMaddy881 A hysterectomy is not a 100% sure way to get rid of the endometriosis. There's thousands of women that have done the surgery because they thought the severe pain would go away. But for many the pain and symptoms doesn't go away at all, or they go away for some time, only to come back again and get worse over time. Read "Reclaim your Life - Your Guide to Aid Healing of Endometriosis" By Carolyn Levett. It's written by a woman who had endometiriosis but now is symptom free.

[MissMaddy881]

@SarahSnusk so where can the endo grow back if there's no uterus?

[SarahSnusk]

@MissMaddy881 Well endo doesn't just grow on the uterus, right? Endometriosis implants have even been found all the way up in the brain. You see, these endometriosis implants are just tiny, tiny cells in the beginning and you can't see these implants with the naked eye. Therefore, even if you remove the visible endometriosis, or the whole uterus, these small endometriosis cells are still left.

[MissMaddy881]

@SarahSnusk hmm..interesting. thanks for tellling me this!

[SarahSnusk]

@MissMaddy881 No problem! I didn't know this either until some weeks ago. The doctos sure doesn't tell you much....

Good luck Maddy! Whatever you choose to do it's your body and you know best what it needs, not the doctors, remember that! :) I had to learn that the hard way.

[MissMaddy881]

@SarahSnusk i'll talk with my doctor about what you told me. right now, i'm taking one of the shots and i was fine for a week, but then i started hurting again. my primary doctor said with each shot i'll build up a resistance so i'll feel better with each one.

[EchoXofXsilenceX]

I just had surgery for this. I had two cysts on both ovaries, and a 26 pound tumor twisting my right ovary which i lost. I had no symptoms, and no pain. I looked pregnant, but i knew i wasn't. I had Endometriosis all over both ovaries.

[tzeqin]

All I can say, pot will help with the pain. God speed for all those going for the ops.

[sarahsaysthis]

Just been diagnosed with Endo, due a laparoscomy soon to laser cysts and check to see how bad the Endo is. My Gynacologist says there's a good chance I might need a Hysterectomy. Had problems with my pelvis since I gave birth to my Son, and had SPD too.  Seemed to disappear when I had my daughter, but is now back again. My womb has 'moved' and is in the wrong place apparently. I think I'll opt for the Hysterectomy if asked. You live your life with pain and get used to it I think.

[Deadxbunnies]

Ladies if you are diagnose with endo the best 1st thing to do is change your diet. Endo feeds on highly cabro foods. by cutting out white process flour, beans, sugar, and highly gyclemic foods will help lessen the pain. Also do lots of pelvic exercise helps ( walking, hiking , dancing, and squatting). But really cutting out sugar is very important. There is a big difference . Sorry , sweet and low doesn't count and is not good for you. I am going to try 55 % Raw food into my diet.

[Drucilla66]

I just had laproscopy in which they confirmed and removed extensive amounts of it. Now the doctor wants me to go on some hormone supresent for 6 months then try to have a baby. I don't like the side effects of the supresent or birhth control period for htat matter. I'm thinknig of just playing it safe for the next few month then my husband and I trying to have kids.

[mysterymelody]

I am going to the gyno and they're going to test me for this in the future.

[rachaelanduze]

@mysterymelody just so you know, they can't see it in a scan or anything. the only possibly way to detect it is through laproscopic surgery. i'm goin through the same exact thing. no fun.,

[AimeeLG11]

i just underwent hysterectomy due to endometriosis.

[maddybum111]

Yeah and it grows back even with surgery it sux

[iEmma1974]

Does it stop when you get your menopause??

[ksha]

Alot of doctors aren't even knowledgable about this condition. They always claim it's just bad cramps. Makes me want to slap the shit outta them b/c this is serious.

[sweetpickles87]

Hello all. I just had the surgery on the 7th and they found endo, cists and tumors. I have been suffering for six long years. I am a film student and trying to make a camercial or have some sor of event that will get publicity so that we can make this disease known. I currently reside in Co, but I want to talk to as many other women and girls who have the same story as myself. The local newspaper is going to do a story on me. So write me on here and as a team, let's do something about endo.

[RockenGangster]

ive been dealing with a severe stomach issue for the last year. all gastro tests.. negative. finally thought over the last several weeks it might be ENDO. but its bizarre of what im going thru.. i lost pretty much 1yr of my college life (which i just started fall 08) because of this stomach issue.

suggestions to maybe its ENDO? all my doctors are oblivious.. i think i need to make a video.....to get some feed back...

[maddybum111]

Herbal medicine can help see a naturopath

[Jenna241]

Im not downing the information in this video because its all true...but holy eff. they should get a woman WITH endometriosis to do an information video so that theres a little bit of connection and emotion.

endometriosis is fucking painful. i lost my teenage years to this disease and missed almost 6 months total of school days because of it.

&controlled by medication? ive been on 15 different birth controls and hormone replaces and hormone balancers since i was 12...not one made it better.

[maddybum111]

@Jenna241 so true totally relate

[smartndumb101]

@Jenna241 Have you had surgery? It's supposed to help reduce the pain.

[Jenna241]

@smartndumb101  I've had 16 surgeries to date. All of them did help at first, but it only helps for the first 3-5 months, if I'm lucky.

p.s. I've discovered through my own experiment that taking on a the vegan lifestyle helps. I've been on this "experiment" for the past year, and I've had problems with the endo, BUT not nearly as much as I use to. I'm glad I took on the challenge... however I wouldn't recommend it for all women. Speak to your doctor or a nutritionist first!!! =]

[tzeqin]

@Jenna241 - I hear you. What kind of treatment did you seek in the end that has helped?

[Jenna241]

@tzeqin changing my lifestyle helped dramatically. I took on the vegan life style. Now it hasn't eliminated the pain, but it has reduced the irritation.

Not to get into the TMI territory, but I'm currently on a cycle right now, and I haven't had to take any pain medication. I have some pressure, but nothing that I can't live with. This is the 4th month in a row that I haven't had to pop pills to get through it. I'm guessing this is what it feels like to have a "normal" cycle.

[sweetpickles87]

@Jenna241 I'm 23 and have been suffering from about...15 up until last month. Never had a normal period, but last month it was as close to normal as it has ever been. I was put on a lot of different birth control pills. Then they gave me prescription Ibuprofen, then muscle relaxers, then Tremodol and finally Vicodin. I have been to the ER so many times and basically laughed out of the hospital each time. Finally I found somebody and they did the surgery on April 7, 2010,

[Dizzey1019]

@sweetpickles87 If u dont mind me asking. What type of surgery was performed???

[sweetpickles87]

@Dizzey1019 I think it was an endoscopy. They made three incisions into the abdomen and inserted a camera along with two other instruments. Then they cut all of the endo out of me. However, she said that it can grow back.

[Dizzey1019]

@sweetpickles87 Im asking because Im dating someone who has adhesions in conjunction with endo. We're trying to find ways of alleviating the pain with them being in her abdomen.

[sweetpickles87]

@Dizzey1019 I understand the pain...Once a month I would be rushed to the ER where they would never take me seriously or understand. The paramedics in the ambulance one time laughed at me even though I was in the middle of throwing up for the tenth time and again, on the verge of passing out. Eventually, the only medicine regiment that was keeping me out of the ER was Vicodin and Tremadol. Has her doc given her any pain meds? How was she diagnosed with endo?

[Dizzey1019]

@sweetpickles87 She's had 10 surgeries and has a machine in her back that's "supposed" to control the endo and adhesions from growing in addition to taking care of the pain. She's on demeral...if I spelled that right...and was diagnosed with endo after her first pregnacy. She has adhesions on her left, right side of her abdomen as well as her colon.

[sweetpickles87]

@Dizzey1019 That is really severe and I'm sorry that she has to go through this. Are you in the UK? My doctor said that it almost all cases, endo goes away after the first pregnancy, so I am surprised to hear that in her case it did not go away.

[Jenna241]

@sweetpickles87 youre close with the endoscopy! its actually a laparoscopic surgery. youre right with the procedure, and that it can and I ensure you WILL grow back until you have a hysterectomy. (Even then, some women have what is called "phantom" pains.) It also sounds like you have been on quite a few medications, which makes me wonder if you were ever looked at by a professional who looks after patients with endometriosis? Or even a gynochologist?

[sweetpickles87]

@Jenna241 It wasn't until about my seventh visit to the ER, when a doctor finally took me seriously. He told me about endo, which I had NEVER heard of before. So I went to a gyno and told her I thought I had something called endometriosis and all of my symptoms. She said No, that I did not have it and if I did there couldn't be anything done about it. All she did was give me birth control pills. Then, about two months later, I ended up in the ER again and I went to a different gyno

[sweetpickles87]

@Jenna241 (part 2) and that gyno finally agreed to do something and she did the laproscopy. Since then, I lost my health insurance so I haven't done anything else. I didn't get a normal period until last month and I had the surgery last april.

[MissMaddy881]

@Jenna241 you've had it since you were 12? wow. i'm 21 and i have it. i found out towards the end of the year and i'm wondering if it's rare for endometriosis to occur in women my age. i had severe headaches last year and they caused me to drop out of college. i'm back in school now, though. what did you have to end up doing?

[CullenLover421]

My doctor thinks that have this and i have to go to a specialist, I have alot of pain and I take birthcontrol and still have pain. Does anyone know if I do have this will this effect my chances of haveing children later oin life or if it will effect pregnancy?

[AEEarls]

a good way to take care of the endometriosis is to have a laproscopy and get it removed. Usually the surgery will be followed by a hormone treatment (mine was continious birthcontrol for 6 months). Pregnancy will also help. Unfortunately there is no final cure for endometriosis. Surgery and hormones will ease symptoms and help you get pregnant, but not cure the endometriosis. Considering all the other diseases out there, it could be a lot worse...

[Luvmypets123]

I was in agony with Endometriosis for 6 years and I ended up having a full hysterectomy - tubes, womb, cervix. It has taken another 5 years, but at last the pain has eased a lot. The trouble is I couldn't take hormone replacement for 5 years and this has left me with painful joints.

[yourboyken]

could taking regular doses of vitamin k help? im new to this but i know vitamin k is good for the blood? maybe some olive leaf extract because it is a blood thinner? does anyone have an opinion about this?

[kaitlynthegreat0]

@yourboyken no. your blood doesn't have anything to do with it. it's the endometrium growing in other areas that causes pain.

[Luvmypets123]

@Luvmypets123

Update;

Consultant put me on Livial and now I'm in bloody agony again !

[dumadum1234]

i hav found this video on you tube under the title.....BABA RAMDEV-YOGA FOR CHILDLESS COUPLE(ENGLISH).It not only tells abt excercises for reproduction, but for all the fybroids, endo..., bloc fallopain.Just watch....im not saying it will intrest everyone but its worth it.

[FailtacularWin]

Its so painfull...

[timsgirl1099]

BS Is right until the CDC Says we have found a cure, there is not cure

I Have had endo for 23 yrs now.

listen to what the doctor said there is no cure!

[6miranda0]

According to the medical establishment there is no cure,

you can believe what they say and stay with endometriosis if that;'s OK with you.

It was not OK with me. I have no intention to convince you or anybody else for that matter. This is not about discussing it. It is not a concept or an academic discussion. It is reality for me. That;s all.

[6miranda0]

that is, there is no cure for you.

You can live with endo 23 more years if you prefer to believe that.

I have chosen to experiment instead of believing. I am now free of endometriosis. It is up to you indeed.

[MsNanina]

do u have endometriosis? I do suffer from it. How did you become free of it? Thank you

[angielova]

surgery!!! thats how i did it!

[6miranda0]

well, it is of course up-to-you to believe what ever you want to believe. I tend not to believe, I rather experiment with lots of common sense.

Thanks to that, I will not have endometriosis for 23 years.

[damadum1234]

Hi, myself is diagnosed with stage 4 endo...last year, i went thru lapro...than IVF as i hav no kids yet, during IVF i got some virus in my blood, and i was in constant pain for 2 mths on my left ovary, i went from one doc to another, everyone was suggesting the painkillers, only one doc came to know that my blood was highly affected with that virus,somehow with antibiotics got some relief. But my most of the days are horrible, pain is like somebody piercing u,am in australia, mel, any good doc?

[AlmaLuna1]

the do not mention enough symptoms. i had none of what they mantioned

[6miranda0]

LISALOW89!

please, send me your e-mail address, I can not find it!!!

[6miranda0]

I have cured myself from endometriosis.

I am posting here for those women who want to know how. It is up-to-you to believe it or not and I really am not interested in convincing anyone.

But if you want to know how I did it, write me an e-mail and I will tell you what and how I did it.

For the records, I do not sale anything or are in any kind of business related to health care or otherwise. I just want to help, so if you want the info write me and i will give it to you.

[1995faith]

please help me..i want to have a baby

[damadum1234]

pls help me,

[ladydayana]

BULLSHIT!

[6miranda0]

Please, do not write me mails, I am not interested in your opinion, you can believe what you want.

[ladydayana]

I did not write any mails you ignorant! I can have an opinion about what you're tryng to sell.... and I think is BULLSHIT!

[6miranda0]

I do not sell anything.. and you are just a rude and frustrated individual. You are the bullshit

[MIMIPR]

I have endometreosis for many years. I have constant pain...every single day. I hate when my period comes, just horrible. Depo, pain killers and even birth control pills etc hasn't work on me. I wish their was a cure =/

[othfan45]

I have absolutely horrible period pains. They are so bad, I feel like I am going to die. My doctor thinks I might have it. Hee said its the only possibility since we have done everything else. I am supposed to do in for surgery on 3/18. Can anyone tell me about the procedure, and what happens if they find it?

[AgilityLover94]

I have this..it is the most painful thing...its like getting stabbed in the side over and over.

[LadyVailen]

I've not had a go at you, I think it's great you can cope so well, takes willpower :3

I'm coping better now I've had most of my adhesions lasered, so I'm almost back to being a normal person. And everyone else here, don't give up, my gyno did a brilliant job with me.

I'm putting awareness leaflets up in my college though in March since it's endo awareness week. There's got to be some girls who have it and don't find out until their ovaries are scarred, and they become infertile.

[damadum1234]

hi , just wanna know that it can be removed with laser?

[ciap4life]

I have had laproscopy.. and it can be removed but not always all of it and it can grow back.. I had laproscopy and then was put on hormone treatments.. The pain came back in three months.. I have had a child since then and have been pain free for 11 months.. This is the longest my endo has been in remission since i was 13..

[sparksfly2u]

@damadum1234 Yes, but it can crow back in a couple of months..

[Jewlum]

Interestingly enough, often times women with the most amount of endometriosis do not have that much pain, and women with a minimal amount of endometriosis have intense, chronic pain.

The problem with having surgery is that many surgeons only recognize the black powder-burn type scarring as endometriosis and ignore the clear blisters which are also endo.

[chicamommy]

I'm 13 and have endometriosis. it sucks. and iwanturlawnboy, some women are in constant pain. I know I am...

[bead162002]

really good explanation of endometriosis.

[flaplilbit]

i am only 15 years old and have to have the surgery soon to figure out if i have this or not because i get horrible pelvic pains when i am on my period, i layed in bed for a few days it was so bad.

[sparksfly2u]

@flaplilbit Hey, I have the same. The pain is dramatic, and people just don't understand you. I miss a lot of school work, and I hate the pain so badly. It's a awful ''disease''.

[LadyVailen]

Glad you're not suffering too much with it ^_^

sadly I am in constant pain with it, it varies with each woman who has it. Some even have no pain, when some other women are almost disabled by the pain.

No it's not the end of the world, but for some women who want kids but can't have them because of endo, or some other women who have lost their jobs it can feel like it :(

and it took me over two weeks to recover from my surgery for endo as it was stuck everywhere.

[z28chic]

I am in constant pain ever waking moment. I have had surgery & unfortunately It's attacking my bladder so it cannot be lasered off & the endo didn't respond to 2 rounds of lupron or syranel

I am glad to hear you are "lucky" enough to not be a prisoner in your own body.

[Jewlum]

I suggest you do some research before making such statements. Its great that you are not in constant agony, but many of us are.

[wisconsin4]

This is very educational.. thanks for sharing.. (*^__^*).v..

[loveapparatusJMR]

Can someone describe what it feels like???

I get pelvic pains but I don't know if it's that serious...

[jociethemagus]

its pain that is in the lower part of the body that makes it feel like you have appendix pain. I have had this for about a year and I just had a dnc which really didn't help. I would go get it checked out by the doctor.

[Ovalet]

very informatif. Thank's

[Key1978]

Thank you for posting this, I think now maybe people will understand what I have been trying to explain to them. I have lost organs due to this. It has been horrid aweful pain regularly for years. Sometimes you get a good day or even week, but you never know when the pain is going to flare up and stop you in your tracks. My prayers are with all of you going thru this.

[slumlumm]

It is really sad that we women are suffering with this disease and there is so little information out there about it or even studies of how to treat this disease. I recently lost my gallbladder, it was covered with tissue and I believe its because of my endometriosis. I am so eager to find natural ways of treating it. I know that a healthy diet that doesn't include soy products of fried foods really helps, yoga helps too, anything else??

[LadyVailen]

Tomatos. Seriously, researchers believe they help with the scarring. Even tomatos in pasta sauce can help.

[x0nonnah0x]

@Key1978 u nearly got me in tears cuz honestly u said some unspoken words within me, that i was never able to put in words. "It has been horrid aweful pain regularly for years. Sometimes you get a good day or even week, but you never know when the pain is going to flare up and stop you in your tracks. My prayers are with all of you going thru this." God bless u & help u. I've been going thro this for years and years & sometimes people have no feelings nor a heart to understand the awful pain.

[sweetbabie90]

@x0nonnah0x i truthly understand how you feel mate, i just have this for the 3rd month, before my period come it already kill me and i am just 20 year old :( it kill me for the first 2 month...it is really awful pain and nobody else will understand T.T

[ultimategold31]

@Key1978 are you serious? thats so scary because im 17 and i have it. my pains are getting worse and worse, and im just afraid i wont be able to have kids someday. has it gotten any better for you? ive been praying about it seriously and just want this all to go away

[relvex]

Can anyone tell me how painful it has been for them? My dad seems to think that I am pretending even though it has been surgically proven to be everywhere. Also do any of you get worse througout a day at times? My day starts out grand and then ends up with me being on the bed.

[mysweetcorpse]

I've heard about a lot of women who have go to the emergency room it's been so bad, this includes myself.If you do have endo, or any other female reproductive disease expect to get a lot of skeptic looks when you describe to them exactly what you're going through. I've encountered plenty of people who thought I was being exaggerative, even from female doctors.

[misscrystalyn]

Just tell your father that the pain is like him getting punched or getting kicked in the groin. That's how I got my dad to understand. Good luck!

[aleoliva86]

Id rather have my boobs kicked than spending one more day with this pain. fortunatly, i just got my surgery and i hope to never have to endure this again!!

[charlab]

this is really helpful since i have endo myself

[GuitarRockinChick18]

i tried talking to my doctor about my momhaving endo, because it's genetic, and she blew me off like i was crazy or something. she just kept saying "oh everyone gets cysts". my mom had painful cysts and endo and had to have a complete hystorectomy. and so it worries me because i know i'll get it since i just started getting cysts on my one ovary. but thankfully i can take birthcontrol and it will keep it at bay so i wont have to have a hystorectomy.

[sarahbearP]

well no offense, but if you had done more research, you'd find out that it has not been proven that endometriosis is genetic; there are several theories

[GuitarRockinChick18]

well w/e, then explain y is it that every woman in my family has gotten it? my doctor hasnt told me anything of that either. i even told her it was genetic and she said nothing. she acted like it was no big deal, but then again shes a fucking bitch.

[sarahbearP]

well im sorry about that. i didnt mean it like that( my mom has it to as well as I) If anything, i'd say it is too, i just wanted to say that it has not been said that it is in fact genetic. is it possible to see another doctor?

[GuitarRockinChick18]

nope. i have to get permission or i have to have my doc recommend someone for me. she didnt even do a thorough check to see if it was just scarring or something. they need to study up on this more because i believe its genetic. it just doesnt make any sense.

[sarahbearP]

what kind of doctor is she? is she a GYN? or just a "normal" doctor? did u have an ultrasound? i did,but it didnt really show ne thing. yes, i agree, there needs to be much more studies done. r u under age, is that y u cant go to another? whatabout if ur mom said something

[GuitarRockinChick18]

my husband is in the military so i have to go to this doc otherwise our med insurance wont cover it or something. its some long drawn out crap that says basically i have to get permission and stuff. no she didnt give me an unltrasound, she just did the hand thing around my uterus. i know i havent gotten edno yet, but i am getting the cysts my mom and my gma had gotten when they were my age, and i know its only a matter of years before i get the endo. so im getting birthcontrol after we have kids

[sarahbearP]

birthcontrol always helps, even before u have kids. well im very sorry about that tho

[GuitarRockinChick18]

o no, its not ur fault. lol, its nobody's fault. yea i know bc can help b4 kids too, but were trying to have kids now lol. i think it would defeat the purpose of trying lol. anyways, no its not ur fault. im going to see if i cant see a specialist after i have my kids.

[sarahbearP]

lol, well i didnt exactly no if u were trying now, but thats awesome. yay for u. i am just praying that i will be able to, and i really hope u do to!

[GuitarRockinChick18]

yea i hope so too. good luck to you too!

[sarahbearP]

thanks very much

[amytamez]

Congratulations to all who get pregned even having endo. Not all of us can. And yes... is very painful, physical and emotionally.

Wish the best to you all.

[ijjklj]

I have endo and have four kids...three of which I had after getting my left ovary and left tube removed..........so it is not always and infertility sentence

[Sdude92]

pain diving sex lol.

[alamanski]

chimmychangasmmm I have endometriosis and have wonderful 2-year-old babygirl.

[chimmychangasmmm]

I found out I have endometriosis and I skip my period with the pill every month and have no pain. Does anyone know anyone who has had children with endometriosis

[mommy2aidenc]

This is the worst thing to have! Living with pain everyday, is not how i thought I would live my life.

[aria1993]

I suscribed to you - pretty interesting things.

[madcaddieson]

why would you write that? get a life.