God Bless him. He is just too cute! My son is 15 years old and was just diagnosed this week. I don't know if to be glad because we didn't know or to be glad because we finally know. Please think about him. His name is Lucas. I love him dearly.
I normally don't comment on things like this because I cant relate to it.. but after seeing the pictures of this child, and seeing how his smile just lightened my heart and touched me, I cant help but to comment on this and say that tonight when i do go to sleep I will pray that someday he may live a life that is without any obstacles.
i have 2 little brothers w/ FXS and my mom and i r carriers. Thank u so much 4 putting this vid on the internet i think it will give so mant ppl out there hope.
my name is Jenny I come from Germany my son Jeremy also has the Fragile X syndrome. He is 4 years and an angel. Jeremy begins to slow to speak. Your video is beautiful. I wish you and your son all the luck in the world.
just wanted to let you know that this video was so touching, my son Tyrone also has fragile x and he is the most amizing guy i know that is why he is my special guy as well. it may be hard at times but i know that we will make it threw this together and we still have a long and fun time to go...good luck luck and god bless you and your family
A friend of mine has FX, and she's doing very good :) She's living her life to the fullest, and has never let anything stop her in her believings. She's living with her girlfriend, and is simply enjoying her life. Hang in there, it WILL get easier :)
hey thank you very much about the video i am doing research paper on fragile x and there were some info on here that u woulnt be able to find out on if u searched fragile x on a search engine
This is an amazing video. My friend and I are in elementary education and are doing a presentation to raise awareness on Fragile X Syndrome. I found your video extremely moving and was wondering if you could do a testimony on having a son with Fragile X for the presentation? Either video or text. It would be so appreciated and helpful for us.
Wonderful video! I have a son (11) and a daughter (12) with Fragile X. It's nice to see people putting out information about it, as it is so unknown. Thank you and God Bless.
Alot of people aren't aware of it. People with Fragile X don't tend to look any different to everyone else so it doesn't really stand out like other disabilities can.
Sally special mums get special kids!I worked as an integration aide with special needs children,I cannot tell you how much joy it brought me!I'm wondering if from the symptoms if Aspergers syndrome is part of the Fragile X syndrome? He looks to be a happy little boy,who knows he's loved,that's the most important gift we can give our children,cos it only happens when they feel secure! Good luck with it all <3
What a beautiful child, and extra special parents.... God Bless YOu...
MrTommytucker56 7 months ago
God Bless him. He is just too cute! My son is 15 years old and was just diagnosed this week. I don't know if to be glad because we didn't know or to be glad because we finally know. Please think about him. His name is Lucas. I love him dearly.
lisadianemoreno 1 year ago
Mmg he's so adorable and you're lucky to have him! :-)
Winter077 2 years ago
my brother has fragile x, Cutest thing ever :) he inspires me a lot.
kaijordan00 2 years ago
yes! my friend is retarded and he's very funny to.
plutie 2 years ago
he is a beautiful boy.
SuperPooh80 2 years ago
What a truly beautiful child you have been blessed with. X
Tonje72 2 years ago
God bless you and your beautiful baby boy. My son has Autism and is 10, believe, I know your strength and love
BluDolls 2 years ago
I normally don't comment on things like this because I cant relate to it.. but after seeing the pictures of this child, and seeing how his smile just lightened my heart and touched me, I cant help but to comment on this and say that tonight when i do go to sleep I will pray that someday he may live a life that is without any obstacles.
God Bless
LatinElectroLvr 2 years ago
god bless this child of god
numbahoneknd 2 years ago
my brother is affected but not me........
deathtobill5 2 years ago
Thanks for the video!
livingwithfragilex 3 years ago
Thank you, thank you. I wouldn't change my Rachael for the world. She is 7 and affected by fragile X.
kellirae78 3 years ago 2
i have 2 little brothers w/ FXS and my mom and i r carriers. Thank u so much 4 putting this vid on the internet i think it will give so mant ppl out there hope.
again THANK U
angeloflove9191 3 years ago
Hello,
my name is Jenny I come from Germany my son Jeremy also has the Fragile X syndrome. He is 4 years and an angel. Jeremy begins to slow to speak. Your video is beautiful. I wish you and your son all the luck in the world.
tiddel1977 3 years ago
just wanted to let you know that this video was so touching, my son Tyrone also has fragile x and he is the most amizing guy i know that is why he is my special guy as well. it may be hard at times but i know that we will make it threw this together and we still have a long and fun time to go...good luck luck and god bless you and your family
nrobertson1979 3 years ago
You have a beautiful son,
God always bless you.
belengalu 3 years ago
A friend of mine has FX, and she's doing very good :) She's living her life to the fullest, and has never let anything stop her in her believings. She's living with her girlfriend, and is simply enjoying her life. Hang in there, it WILL get easier :)
Love from Norway.
NorwEllen 3 years ago
hey thank you very much about the video i am doing research paper on fragile x and there were some info on here that u woulnt be able to find out on if u searched fragile x on a search engine
supermohi 3 years ago
yeah. same here. thanks and God bless
ewcallierIII 2 years ago
yeah. same here. God bless
ewcallierIII 2 years ago
This is an amazing video. My friend and I are in elementary education and are doing a presentation to raise awareness on Fragile X Syndrome. I found your video extremely moving and was wondering if you could do a testimony on having a son with Fragile X for the presentation? Either video or text. It would be so appreciated and helpful for us.
Thanks so much!
torirockness 3 years ago
Wonderful video! I have a son (11) and a daughter (12) with Fragile X. It's nice to see people putting out information about it, as it is so unknown. Thank you and God Bless.
ladisess 3 years ago
Thankyou for watching. I can't imagine how busy you would be with 2 children with Fragile X.
fusantima 3 years ago
My son has also just been diagnosed with fragile x syndrome.Thank you for doing this video. I had not heard of it until he was diagnosed.
missymarionripper 4 years ago
How long ago was your son Diagnosed? How old is he?
fusantima 4 years ago
He was diagnosed in January. He will be 3 in April.
missymarionripper 3 years ago
wow i had never heard of that before,my son has adhd,he is a hand full alone.
lmosack 4 years ago
very touching Sal...thankyou for drawing this illness to my attention...until watching your story i had never heard of this...
barbylicious56 4 years ago
Alot of people aren't aware of it. People with Fragile X don't tend to look any different to everyone else so it doesn't really stand out like other disabilities can.
fusantima 4 years ago
Sally special mums get special kids!I worked as an integration aide with special needs children,I cannot tell you how much joy it brought me!I'm wondering if from the symptoms if Aspergers syndrome is part of the Fragile X syndrome? He looks to be a happy little boy,who knows he's loved,that's the most important gift we can give our children,cos it only happens when they feel secure! Good luck with it all <3
gleegirloz 4 years ago
Thanks Glenda, I honesty do believe that things happen for a reason.
fusantima 4 years ago
aww Sal..hes a treasure..Im so plzd to see another vid from u...but sad about the subject...luvya....
TheFatAussieBarstard 4 years ago
Yeah he is my pot of gold for sure. Thanks Pete
fusantima 4 years ago