Added: 4 years ago
From: fusantima
Views: 11,845
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  • What a beautiful child, and extra special parents.... God Bless YOu...

    

  • God Bless him. He is just too cute! My son is 15 years old and was just diagnosed this week. I don't know if to be glad because we didn't know or to be glad because we finally know. Please think about him. His name is Lucas. I love him dearly.

  • Mmg he's so adorable and you're lucky to have him! :-)

  • my brother has fragile x, Cutest thing ever :) he inspires me a lot.

  • yes! my friend is retarded and he's very funny to.

  • he is a beautiful boy.

  • What a truly beautiful child you have been blessed with. X

  • God bless you and your beautiful baby boy. My son has Autism and is 10, believe, I know your strength and love

  • I normally don't comment on things like this because I cant relate to it.. but after seeing the pictures of this child, and seeing how his smile just lightened my heart and touched me, I cant help but to comment on this and say that tonight when i do go to sleep I will pray that someday he may live a life that is without any obstacles.

    God Bless

  • god bless this child of god

  • my brother is affected but not me........

  • Thanks for the video!

  • Thank you, thank you. I wouldn't change my Rachael for the world. She is 7 and affected by fragile X.

  • i have 2 little brothers w/ FXS and my mom and i r carriers. Thank u so much 4 putting this vid on the internet i think it will give so mant ppl out there hope.

    again THANK U

  • Hello,

    my name is Jenny I come from Germany my son Jeremy also has the Fragile X syndrome. He is 4 years and an angel. Jeremy begins to slow to speak. Your video is beautiful. I wish you and your son all the luck in the world.

  • just wanted to let you know that this video was so touching, my son Tyrone also has fragile x and he is the most amizing guy i know that is why he is my special guy as well. it may be hard at times but i know that we will make it threw this together and we still have a long and fun time to go...good luck luck and god bless you and your family

  • You have a beautiful son,

    God always bless you.

  • A friend of mine has FX, and she's doing very good :) She's living her life to the fullest, and has never let anything stop her in her believings. She's living with her girlfriend, and is simply enjoying her life. Hang in there, it WILL get easier :)

    Love from Norway.

  • hey thank you very much about the video i am doing research paper on fragile x and there were some info on here that u woulnt be able to find out on if u searched fragile x on a search engine

  • yeah. same here. thanks and God bless

  • yeah. same here. God bless

  • This is an amazing video. My friend and I are in elementary education and are doing a presentation to raise awareness on Fragile X Syndrome. I found your video extremely moving and was wondering if you could do a testimony on having a son with Fragile X for the presentation? Either video or text. It would be so appreciated and helpful for us.

    Thanks so much!

  • Wonderful video! I have a son (11) and a daughter (12) with Fragile X. It's nice to see people putting out information about it, as it is so unknown. Thank you and God Bless.

  • Thankyou for watching. I can't imagine how busy you would be with 2 children with Fragile X.

  • My son has also just been diagnosed with fragile x syndrome.Thank you for doing this video. I had not heard of it until he was diagnosed.

  • How long ago was your son Diagnosed? How old is he?

  • He was diagnosed in January. He will be 3 in April.

  • wow i had never heard of that before,my son has adhd,he is a hand full alone.

  • very touching Sal...thankyou for drawing this illness to my attention...until watching your story i had never heard of this...

  • Alot of people aren't aware of it. People with Fragile X don't tend to look any different to everyone else so it doesn't really stand out like other disabilities can.

  • Sally special mums get special kids!I worked as an integration aide with special needs children,I cannot tell you how much joy it brought me!I'm wondering if from the symptoms if Aspergers syndrome is part of the Fragile X syndrome? He looks to be a happy little boy,who knows he's loved,that's the most important gift we can give our children,cos it only happens when they feel secure! Good luck with it all <3

  • Thanks Glenda, I honesty do believe that things happen for a reason.

  • aww Sal..hes a treasure..Im so plzd to see another vid from u...but sad about the subject...luvya....

  • Yeah he is my pot of gold for sure. Thanks Pete

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