Transverse Myelitis 21 Months post injury (c3-6)

[alisha3163]

I was diagnosed with TM at the age of 21. I was paralyzed from the neck down within only hours of my first noticing something was wrong. I was lucky and walked out of the hospital with a walker after 8 days. Today after just over 1 year I'm 22 and I still have problems walking I wear an ankle brace to help my drop foot. Everybody's words on this video are so inspirational and I hope everybody keeps their chin up, and progresses each and everyday.

[defrasier]

Yes!! Awesome work! I'm right there with you!

[weeda221]

this is my first time EVER posting........my mother had been diagnosed almost a year now. ive had to move my family( 2 kids + husband) to take care of her. so far i feel shes has been neglected from all the doctors. as in she's left at home with just a home attendant and thats it.....seeing this video and reading the comments has inspired me to push everyone harder....

[tono108]

Exelemte video que fuerzas. Ahora yo estoy pasando por la enfermedad de mielitis transversa temgo 23 años y es muy dificil gracias a dios y a mis papas por todo el apoyo a 2 meses de que me paso esto ya puedo caminar torpe pero camino mis manos ya las puedo mover pero mis brazos aun no puedo. Sigo con terapias y con mucha fe en dios en volver hacer el mismo de antes

Mi lesion fue de c2 c3 c4 y c5

[KatherineIrenee]

I got transverse myelitis on nov 2007, and I had it from my waist down. I'm 16 now (almost 3 years later) and I walk independently but I still can not move my ankles. So my gate is deffiently different.

[umbilicaltapeworm]

I got this in boot camp and ignored it until I collapsed in formation. after watching this I realize that I am very lucky to have regained complete use and strength of my limbs, but I rarely sleep due to intense spasms in my back and legs due to nerves "shorting out".

[freshsnow1986]

i remember doing that i go back to pt tommorow..i thinkim scarred to walk again normally...everythings going to change..n i dont know how to be normal anymore i'm praying 4 u...

[luntianako]

what i really hate about my TM was the one year peeing through a catheter.. i got my bladder and urethra working just this january. and lotsa progress after that. although i may still have urine retention problem. gained so much weight also. never give up. and also we need people for moral support

[umlqqknatu]

I been through this myself it took me close to a year to become 100% better. I had a bunch of MRIsto check for any brain lesions and spinal taps to check the fluid for rings and plaque. so far my brain looks good and healthy. TM has the same symptoms as MS. but you only have 1 spot on the cord with no progression. Best of luck i hope you get better.

[tramakanth]

It has been nine months now after accident(spinal cord injury C3-C4). I was paralyzed for 3 nearly months. After continuous physical therapy now I am able to walk and do things by my own. My left hand(can't lift up and lost grip) and leg is more affected and have severe pain in chest area and left hand fingers. I also lost sensation on the other side(hand and leg). Will this nerve pain be for the rest of my life ?

[kimpoy74]

Hi, Im Jonathan Antonio, 35 yrs old from Manila, Philippines. I had TM when I was 15, I was paralyzed from waste down. I had difficulty walking and urinating then. After 3 months of therapy I was able to walk with the help of a crutch. I can walk freely now but I still have this foot drop that is sometimes making it difficult to walk with a low cut shoe. I still live with nerve pains every now and then.

[paule720]

I have TM. It's been since April 09. It's now September. My T-12/11 I'm paralyzed from the waist down. I'm never going to walk again and it really hard to try to come to grips with. Im 31...

[cubbiesfan88]

paule720:

Don't give up! It hasn't even been a year post diagnosis for you. You could still regain the ability to walk! I was completely paralyzed when I was hit with TM in 2001 at T-10 and I walk almost unassisted now (I use AFOs). Don't let TM beat you, you can do this. Miracles do happen.

[shonmixen95]

Please don't give up, i really think that if you really say i will, and i mean it you will get better, don't ever say your cant, believe me, i to have TM and i was paralyzed mid chest and left arm. I never gave up i always said i will, i was diagnosed at 13 and now im 14, don't look at it as something bad but take it and say to yourself that i can really learn from this, i really tests your will power to NEVER give up! So please don't say i cant, say i will!. And! before you know it you will!

[paule720]

very wise words. thank you both for the inspiration to move forward

[danielnatal]

i have tm and rehab was painful, thank God that my case wasnt as dramatic but my heart goes out to her, i kno how tiring it can be. i can walk but cant fel hot or cold sensations in my legs and feet and my balance is fucked up. one hardly ever regains 100%.

[Floridahottie184]

Well its good that she atleast can get up, My brother is just wais down, augusst will be 2 years and hasnt walked yet , he just went to libon for a month of threapy so he doesnt do it every single day . its really hard seeing them go through this, but im sure they will get through this they just have to have strength & believe in theirselves

[mattgarciatx]

Just keep on fighting. Please, with everything you are. Keep on trying. A couple weeks more for me will make one year and I'm still holding on to hope, because life is worth it.

[rax7]

OMG! 2 years? i can really understand her pain. because i am suffering Transverse Myelitis now. its been 3 weeks. luckily i am getting better now. i hope she will be better too.