Added: 3 years ago
From: littleblakduk
Views: 9,260
Sort by time | Sort by thread (beta)

Link to this comment:

Share to:
see all

All Comments (32)

Sign In or Sign Up now to post a comment!
  • How absolutely heartbreaking. My love is for you and your son. No one can imagine how brave you are to tell your story. Keep the faith and god bless

  • please keep your son's nutrition up! nutrition is the key. i promise.

  • My son has recently been diagnosed with DMD he is 7yrs old. I have been processing this for 6months and have found it hard to absorb. A mothers tears helped me find mine and I often catch myself thinking your last words - when I am alone I cry, this I know will be true for me for the rest of my life. I am grateful for a glimps at your story, I am on the journey of my own now.... May the small things reward you and your family with love!

  • Thank you for this touching and sensitive video. It shows the "new normal" in a family when a child is diagnosed with DMD. I had the gift of being able to visit with a boy with DMD for 3 years...it changed my life. I always feel that he was the reason I chose to go to graduate school, and study children who have illnesses.

  • i have never even heard of this before and im sorry to hear your pain, very touching video made me cry. god bless you all

  • Hi i m from pakistan and this kids story is similar to my own brother.He died this year in january suffering with DMD.His name was BILAL and was fattso like him.Bilal died may he rest in peace and for this kid may GOD give him a chance for cure.Bilals age was 14 and was really cute like him. LOVE TO BOTH

  • beautiful job, DMD has been a part of my life for many years... I have watched a friend and later a boyfriend pass away... too many have lost this battle. I have been part of the fight now for over 40 years, I will never stop. I feel this pain too. I wish you less tears, and more smiles in your day to day life.

  • i have friends with md keep fighting....hugs

  • I just lost a friend to Duchenne's last night. I was surfing around, looking for a good way to get my tears out - and I found this. Absolutely beautiful song - I have cerebral palsy and am fundraising in the US for the Muscular Dystrophy Association (MDA). My " kid" (he has parents, it's an endearing term) is turning 9 soon, and he has DMD. This video and song deepens my passion, even though I work 24/7/365 for MDA here in America. God bless you and your son. What an inspiration and a hero.

  • Our 6-yr-old son has DMD. I've watched a lot of videos. I've read a lot of articles. But I want to say that this video has best expressed my deepest feelings. I've never met you, but I feel I know you--or at least--you know me. God bless you and your son. Delanna

  • My brother has this. I know all of your pain. I've seen it first hand. We were blessed in the fact that he is midly austic. I hope your son has a great quality of life. I wish you the best.

  • sooo beautiful

  • I feel so sorry for you and your family, I hope they find a cure real soon. Good luck in all you do.

  • I am a medical student here in trinidad and i wish to commend all of you who support these children with DMD. Its a struggle I can't begin to imagine for all involved but pray and have hope because 1 day there will be a cure. Have faith and be strong

  • I'm a mum of two children and my heat bleeds for you and your family!!! My friend has just been told her new born baby has Duchenne, Muscular Dystrophy. I never knew what is was until now. I'm going to try and raise money for the charity. PS, your son is lovely you should be proud of him! x

  • I wouldnt change my boys fr all the gold in the world, my boys have give so much joy not only pain. I have 2 boys Niclas 23 y Richard 27 y. Richard died 10 june 2008

    I miss him soo much my heart is brooken

    Hugs and kisse to y and y family//Carla

  • How many tears!!!! I know how it´s like.

    Have 2 boys whit DMD.....many hugs to u from a sister in pain...

  • only those that have "been there" will understand. My heart goes out to you as you have double the pain, the grief etc. ...yes we are sisters in pain....But I wouldnt change my boy for the world...yes, if I could make the disease disappear, I would. But we do have our times of joy and celebration. I would rather have had him for this time - however long or short, than to not have had him at all. My hugs to you and your family too......

  • this is so so so so so so sad i felt like crying i feel really bad

  • yes, there are many times when I feel sad , but there are good times too. The tragedy is that this disease is continually degenerating, so there is a constant sense of mourning for what has been lost and for what might have been. Many thanks for taking the time to comment

  • so so sad

  • I had never heard about this disease until yesterday which just proves how unknown this dieases is. My teacher has written a song for a 5 year old boy who has the disease called Edward, the song is 'never say goodbye' and it is being released into the charts on the 8th of december to not only raise awareness but to help find a cure for all the families going through the pain this disease causes. I can't say in words how upset i was when i watched your video and all my love goes to your family.

  • Beautiful song and video clip.....yes our boys are our sunshine....

  • I can feel the love of the mother and this I hope to bring a message this boy that he is still the brave one in his life. Cheer up!

  • Yes, the boys with Duchenne are so brave...it is very rare for the boys to lament about their lot in life...my son is my hero

  • Yes a great hero...<3 we understand each eder...dear sister in pain...hugs and kiss

  • @littleblakduk i can ur pain cause i am also suffering md but thankfully not duchenne

  • I share your tears. My 12yr old son also has duchenne muscular dystrophy. He has recently had surgery to correct a spinal curve. We must keep fighting to find a cure, i'll never give up. I'm sending my love to you and your son. Kelly + Matthew xx

  • hi ,i was a caregiver to my best friend for the last ten years.he recently passed at age 40,the docters gave him till the age of 18 to live. he was a great man, he had children and a grandchild!he never gave up hope,he lived a fullfilling life!please dont ever give up hope... anything is possible.we never dreamed we would have that many years with him and we did.i pray for all of you and a cure....

  • Im so sorry about this tragedy. I hope DMD gets cured.

  • Hello, Your video really touched me, I am a medical student and I am doing a report about DMD, that's how I got here, and I just have no words that can describe this feeling while I watch the video, The only thing I can do now is pray for your son, family and all the boys with DMD,and hope that in the near future will be a cure for it, or maybe in a future I could contribute researching about it. Have strenght and faith.

    sorry about my english

  • Many thanks to all of you for your kind words and support. You can also show your support by going to the Parent Project Australia website and signing the E-Petition. The web addresses are listed under the "more info" heading on the top right corner of this page. Thanks again!

  • ur so blessed coz god chosen you to take care of one of his angels!..

  • I really enjoyed this photo-story. Your son seems like a wonderful kid. I wish you family all the best :>)

  • hey Pam, Jim, Dom, && Nick..

    this video brang tears to my eyes.

    this kid is a ledgend.

    proud to call him family. :)

    love you all.

    xxx

  • Sublime photo-story Pam. You've nailed our lives with DMD...a mother.

  • Hey Auntie Pam, Jim, Dommie and Nicky.

    The video was beautiful.

    Brought tears to my eyes.

    Love you all.

    Hope to see you in November!

    Love always and forever.

    Kirra

Loading...
0 / 00Unsaved Playlist Return to active list
    1. Your queue is empty. Add videos to your queue using this button:
      or sign in to load a different list.
    Loading...Loading...Saving...
    • Clear all videos from this list
    • Learn more