Added: 1 year ago
From: kumquat509
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  • DaytibCCSVI Thank you for showing the video, for it speaks for it self. I have not updated the video because I'm still the same. I don't have anything different to add or subtract. I hope I inspire newly diagnosed patients, those are the ones with the best chance. Don't wait to process, not everyone is as lucky as I was.

  • I love your video! I have prob shown it to 20 people! Unbelievable! Gave me goose bumps the first time I saw it! Hey, just wanted other to know a Neuroradiologist named Dr. Syed in Dayton Ohio at Dayton Interventional Radiology is now performing this CCSVI “Liberation treatment” through the Hubbard Foundation…

  • Other recent MS patients who have had Autologous Stem Cell Transplantation (ASCT), or stem cell therapy have posted videos and comments on YouTube v=jFQr2eqm3Cg. Log on to ccsviclinic. ca for more information.

  • Teresita~~Te deseo lo mejor. Es muy importante tener personas capaces de diagnosticar esta enfermedad ¿Tiene usted un médico dispuesto a hacer el procedimiento CCSVI?

  • Bárbaro Bárbara. De Argentina un abrazo fuerte.Empiezo con los estudios para diagnosticar si hay estenosis la semana siguiente. Teresita.

  • Thank you so much for posting this video. All I could say was WOW. My mother is playing on having the CCSVI in June and I know it's one of her dreams to be able to walk with my infant son one day. Your video gives us all hope. I wish you continued success

  • Wow amazing Barbara, how can anyone ignore this?!!!!

  • My sister is having this done tomorrow. She was diagnosed at 16 and is 24 now. We are hoping for the best. So happy to see all these people lives improve dramatically.

  • I apologize, I keep meaning to make one and I forget. I'll try to make one this weekend. Thank you for your comment. I can tell you, I'm feeling better than when I made the video. I'm off Rebif, have not had any more migraines, weaning off antidepressants and no more Provigil; I have energy. The only thing that has had ZERO improvement is my cognitive. That's OK, I'm not complaining.

  • would sure love an update video. you're one of my heroes!

  • D. I had depression with MS. I've taken many antidepression pill. I've notice I don't feel depressed and I'm slowly getting off the antidepression pills. This is a slow process because I've been on them for MANY years. I feel the procedure has helped.

    The doctor is cutting down on dosage. Do not do this without doctor supervision.

  • Dear Barbara,

    Did you have depression at all? I have severe depression with the MS. Did the operation help at all with that? Thank you, D.

  • What doctor did you go to?

  • @460gman~~You have no idea how happy I am, to read your comment. I'm so happy for your son and your entire family. I was a bit younger, when I was diagnosed. I wish this process would've been around. I know I wouldn't have gotten as disabled. I'm doing well, but my left leg is still weak. I'm very happy with my results. I pray your son contiues to stay healthy.

  • My son had the Liberation Treatment done Feb 9th- it is amazing

    He is 26 yrs old, 6ft 1in and 205lbs, he was a Police Officer until his MS hit him. He was in perfect health and physical condition.

    Yesterday he and his wife Jaimie danced in the sand on a beach in California 24hrs after having this done.

  • I was and still take Ampyra. I had the procedure a few weeks after starting Ampyra. I haven't stopped; therefore, I don't know if I'd walk the same. I didn't notice a big difference before the procedure. I've decided to stop after I finish this bottle. I'll see if there is a difference. I know of people, it has really helped. I guess it's a case by case; just like the procedure. Everyone has different results.

  • Hi Barbara, I saw that you said you had started the Ampyra prior to the procedure, did you notice any results from taking that? I had tried it, but I had no results! My doctor told me if it was going to work, I would have noticed something within the first couple of days. I guess I'm wondering if the combination of Ampyra, and the angioplasty could have helped in making your difference???

    Ok, one more question..... do they do the Angioplasty on the same day as the venogram? Thanks again!

  • Hello my friend. I just watched this again and am so happy to have met you and seen your miracle first hand. If anyone doubts that CCSVI is real and that treatment works just watch Barbara. I'll see you in March in Tampa!

  • Thank you Sungodv, I think you have given me a new goal!!!

  • @kumquat509

    I too have suffered with MS for 20 yrs. Your video was like watching myself! Everything was the same, down to my husband picking my legs up to go up stairs. Can I ask you..... did your insurance pay for the procedure?

    I just received a quote for $8,800 out of pocket, if the insurance won't pay. Thank you for sharing this, it gives me hope!

  • @ILOVEMARCANDREFLEURY my insurance covered the procedure. Since this is an outpatient procedure, I only paid a co-pay. This is not considered an "MS Procedure". This is a venogram that shows the stenosis. An angioplasty is placed, to fix the problem. Interventional Radiologist, do this procedure all the time. We happen to have an effect, after the procedure. I wish you all the best. Let me know if you need any other information.

  • @kumquat509

    Hi again Barbara, I hope you are still doing well! I saw on the video you were taking Ampyra, did you notice any results from taking it prior to having CCSVI and are you still taking this medication?

    I did try the Ampyra, but I had no change from it. My neurologist said I should have noticed something within the first few days. If it worked for you, how soon did you notice?

    I'm scheduled for sometime in March to have the CCSVI, just waiting to hear the exact day.

    Thanks!

  • Thank you, Lord. Keep on walking and getting those muscles back into shape.

    I want to see you dancing come August 2011!

  • awsome!!

  • I can't believe the difference this proceedure has made for you. I wonder whether it would also work for me. I have dystonia. My symptons are very similar.

  • @lynnbond123 ~~I don't know about dystonia but I don't think it would hurt to consult with an Interventional Radiologist. I went to the Society of Interventional Radiologist, looked under Vascuar, searched my State and town. I started with the first one and emailed him. I was fortunate he emailed me back willing to help me. You have nothing to loose. I wish you all the best.

  • Thank you for all of the responses I've recieved. Other symptoms that I had, have gotten better. I no longer have a bladder problem, my grip is stronger and I can stand up without depending on any aides. I was watching a football game and as the team scored the touch down, I stood up to celebrate.

    5 months after the procedure I'm still doing great. There aren't 2 exact cases of MS; therefore, you cannot expect everyone to have the same results.

  • ZZOZZE GOD IS WATCHING!!!!!!!!!

  • This is incredable! Congratulations! I pray you are still improving? I wish you the best ever now and always.. Thanks for sharing.

  • Good job. Thanks for sharing it.

    Such a "placebo effect" is really worth becoming!

  • Congratulations! It looks like a miracle. We are so happy for you. Keep healing! (And, what a lovely home you have!) Evelyn and Paul

  • @enpsaphierable Thank you

  • This is really awesome!Thank you for posting this video!Keep getting better,regards from Europe!

  • dely1112 I know of many people the MRV didn't show stenosis and they had stenosis. The only true test is the Venogram. There is an IR in Gainsville, FL that does not bother to do test. He has not had a single MS patient without stenosis in some vein. The Venogram is the procedure.

  • Thank you Barbara. I walk just a bit better than your before video, but not much. I did have the mrv and it showed no blockages, but I don't think they used the right protocals. I am sending the results to a SIR in my area, to see what else might be done. When I saw your after video, I can only imagine how you are feeling with the improvement, which is almost miraculous. Surely you have gained much as far as quality of life. I am so happy for you!

  • Great video. Thanks for sharing the good news.

    Keep getting better.

  • Call CCSVI Clinic; (404)461-9560 to schedule your screening today in Fargo, ND or email us at apply@ccsviclinic.ca. Yes, get screened within the US. No waiting….find out more at ccsviclinic.ca

  • KUMQUAT - THE DRUG COMPANIES ASND NEUROS HAVE KEPT US PRISONERS- UNLESS THEY ARE DUMB DOCTORS - THEY TOO KNEW - HOW TO EXPLOIT US. THEY WILL PAY A DEAR PRICE - GOD IS WATCHING

  • @MrLeooreo "THE DRUG COMPANIES ASND NEUROS HAVE KEPT US PRISONERS"

    ...and they don't want to give up yet: they invest a lot of money in briberies and phony studies to "prove" that CCSVI is not related to MS (like Van Oosten or Schmierer in Europe).

    "GOD IS WATCHING"

    Perhaps a class action lawsuit would have a quicker effect?

  • MrLeooreo ~ Thank you for such a lovely comment. The sad thing is, this was discovered back in 1839. I can't type the URL, but if you go to google and type

    ms-mri history; go to History of MS, you can read how we have been held prisoners of this illnness.

  • KUMQUA - WE LOVE YOU FOR SHARING THE TRUTH.

  • NEUROS -  150 YEARS LATER - WHAT ARE YOUR FINDING???? YOU ARE SUPPOSE TO BE THE BRILLIANT ONES. YOU HAVE LET US DOWN.

  • Canada and the United States. This is not a placebo and everytime I hear of a neurologist say "this does not work"; it makes my blood boil. This is why I made this video public; I hope all nay sayers watch this and OPEN their eyes and minds.

  • That was amazing Barb. Simply amazing. Why doesn't Canada's Health Politicians get it. All these amazing videos should be sent to overcrowd the politicians email boxes. I'm so happy for you. Thanks for sharing.

  • One word: AMAZING!

  • Thank you Barbara - i can use all the prayers I can get! I am a pretty positive person but you know, everyone has their "off" days and today was a tough one until I got the email from nurse A.  They both sound like wonderful people and I just can't wait. If my results are even half as good as yours I'll be happy. The fatigue, mobility and balance are my main issues. I can deal with the other stuff - but to ease the fatigue and be able to walk better would be such a blessing.

  • I am so happy for you Barbara. I'm getting my procedure done hopefully in October by the same doctor who did yours. I'm so excited and hopeful, but I'm also realistic. But your improvements are really wonderful - thank you for sharing your joy with us.

  • @msandisue Don't loose hope. I went in just wanting to get rid of some of the fatigue and be able to walk a little. I didn't expect these results though I hoped for them. You have to go in thinking positive. Pray a lot as I willl pray for you. This Dr. is the best. I was one of his first patients, you can tell him you saw my video and hope for the same results;-)

  • I hope everyone watching this video, will recommend it to believers and non believers. This is not a placebo. This really works and I hope one day everyone, with MS is able to have this easy procedure.

  • - HOW DARE THE NMSS ALLOWS THIS TO CONTINUE - IT IS ABOUT MONEY, JOBS AND BUSINESS AS USUAL. WATCH OUT NMSS - YOUR GRAVE IS BEING DUG. Have some of the bird poison you your drug friends developed for us.

  • Amazing!!!

    Congratulations Barbara for your improvements, it's so wonderful!!!

  • Thank you for the wonderful blessings. I'm so happy to be helping some of you. My biggest advice to all of you is contact Interventional Radiologist and ask them to write a script for an MRV checking your Jugular Vein and Azygos Veins. Follow Dr. Haacke's Protocol. Try to get it with and without contrast. The procedure takes about 2 to 3 hours; 4 hours recovery and then the results. That is how quick.

  • god Bless you. I am tearful  for your improvements

  • how dare you sob neuros.  This is you handy work. The end is near for all neuros. WHO WANTS TO BE A NEUREO NOW????

  • OMG, Barbara! The improvements are amazing - congratulations! (and thanks for posting a before and after video all in one) I hope you discover more and more improvements every day - although this is fantastic!

  • I typed captions because I noticed the video downloaded without sound. Yiwie40 How are you doing, after your procedure? I want to thank everyone for their blessings and kind words.

  • This is so wonderful Barbara!!! I wasn't able to get sound, but watched the whole thing and was moved to tears watching you after your procedure. I was Liberated on July 6th.

  • @apsugovs32 I wish the best for your mom. I hope she has the improvements I've had.

  • oh my god, this is just amazing! epic improvements!

  • Bless You!!

  • Amazing! Congrats. My mom will be liberated on Wednesday!

  • Thanks for sharing! Congratulations! WOW!  Keep healing, rest & drink lots of water :)

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