my youngest daughter use to do that and she would sit up against the wall and tear paper up in little peices and put hem in neat piles i took her to more doctors then i could count and never found out a thing she is 20 years old now has a son and a wonderful man she is doing great but still seem to keep into herself ..i hope your little one is fine and you can get answers
@AMCKEJB3 This video was taken 2 years ago now and she barely does it anymore,so fingers crossed that is the end of it,but she is still being watched for any other signs.
Very pleased your daughter is doing well....so many unexplained things going on nowadays!
@5566Trish thank you and i'll keep your little sweetheart in my prayers that she will be just fine and i agree there are a lot of unexplained things going on and doctors dont have any answers it seems like doctors just want the easy way out of things and all kids in their eyes have the same thing because they just dont want to do the research
The're are highly successful people who have an official diagnosis or show traits of autism (high functioning). The diagnose could be a positive thing. Just look at how many people on the autism spectrum have stand out from the rest! Most importantly, they stood up not "in spite of", but "because of" their autism. Having autism gave them the tools to succeed. Dan Aykroyd, Michael Burry, US investment fund manager, James Durbin -finalist American Idol, Daryl Hannah, Gary Numan -British singer
When the mother says the girl does not have autism , she means classic (non-verbal) autism, the type of autism everyone thinks about when the word comes up. Most people don't know there are various degrees of autism, from the high functioning & Asperger's to low-functioning classic autism. Just to give an idea about Asperger's Syndrome, on the high functioning side of the spectrum, Steven Spielberg, Woody Allen and Satoshi Tajiri (creator of Pokemom) have it and they are highly intelligent.
When I replied, I did not mean to make you feel bad. I was hoping I could help based on my experience and knowledge. If you felt offended, I am sorry. My impression was that you were looking for advise and having her examined by a developmental pediatrician was my advise. The medical specialist would know much better than anyone else here on Youtube.
It could be autism, there are differnt stages and levels of the autism spectrum. ive worked with students who have autism and have the hands going but are very smart in certain areas. i would still rule out everything. well good luck!
Hello, I keep reading your comments to other users saying your daughter is on track developmentally and it cannot be autism. I would like to clarify a couple things. 1. Rett is on the autism spectrum. 2. Most young girls with Rett syndrome develop on time and start to regress around 2-4 years old. 3. Aspergers also a part of the spectrum develop normally, this type of autism usually is not totally noticeable until the child is 4-6 years old.
To me, she on the Autism Spectrum. That is exactly how many son moved his hands when he was younger. Later on, the arm movements joined the hand movements. Have her checked by a neurodevelopmental pediatrician, not a regular pediatrician.
@MrChrispflaumer ,she very rarely does it now unless she is stressed or very tired.She doesn't have autism and she is developing perfectly normaly,and is a very bright and cheerful young girl.The video was taken 18 months or so ago but she is still being monitored for any changes in her behaviour.
hand wringing is only one symptom of Rett's , this should be associated with other symptoms like: loss of development, mental retardation, ataxia, etc
to see if he's a gifted child? he has symptoms of autisum, but he is also doing things like counting to 20, colors, letters, talking in 9 word sentences. So we'll see? good luck!! I'll keep u posted:)
hey, to respond, it's not exsactly the same as what Kaden, (my son) did. He would do it non-stop. (she does stop at points) and it wouldn't touch stuff with his right hand! water, food, people, nothing! If u put something infront of his right hand he'd reach with his left everytime! He was in OT and PT for MONTHS before he would even touch anything with his right hand. He has outgrown the hand thing, (he is going to be 3 in September), but now is going for testing to check for autism or
Does she do this when she is tired and falling asleep as well as when she is waking up? I ask because my 2 year old daughter does this all the time and her nerou said she could be on the autistic spectrum PDD-nos but my daughter is a socail butterfly and answers when you call her name. However she has many developmental delays and a major speech delay she only says about 10 words. I just dont see how she could be so loveable and social and be autistic
@Valene615 Hi.she used to do it all the time but now only does it when she is stressed or tired,no she doesnt do it on waking or falling asleep.Her development is coming on great,speech is coming along nicely as well but i do also know some 2yr olds who dont have many words yet,so i wouldnt worry about that just yet.Have you asked if she can be tested for Retts,it's done from bloods,although it does only give a 70% result so even if it came back neg there could still be 30% chance she has it.
Any updates on your daughter? My 7 month old has recently started doing this and after seeing this I'm very worried! She also tends to do it often when eating and random times when she is playing.
@meredithgrey829 Hi ,my daughter still does it when stressed or tired,but nothing like she did before.She has been discharged from the hospital now but if we have any concerns we can take her straight back..So far all development has been normal so i no longer worry about it.
Any updates on your daughter? My 7 month old has recently started doing this and after seeing this I'm very worried! She also tends to do it often when eating and random times when she is playing.
It definitely looks a bit like a stereotype. My daughter has rett syndrome. She started out tapping everything and not holding onto anything. I hope for the best. Good luck.
@KMGalvin1 ,Hello,my daughter is now 18 months old,yes she still does it but not as much as before.Seems to be more when she is stressed over something or when she is eating.She is being 'watched' by the pead,and had bloods taken but not tested as typical nhs will only test if she shows more clinical signs.My daughter is so far developing normaly,learning to talk and walking rearly well.
kibbletrish@yahoo.com if you want to chat off here!
My daughter at 8 months did the same thing but grew out of it. The best thing to do is not panic or worry too much. Sometimes children do it just because they can.
@nambrie Autism has been ruled out for my little girl,she has fantastic eye contact and is generally developing at the rate she should.They are keeping an eye on things at the moment,her blood that was taken is being saved until she shows any more clinical signs of 'anything'...so we are still in the dark as to what is going on with her.
Please let me know when you get the results for your little boy!
im sorry but this doesnt look a thing liek dystonia it has more of a chorea nature (search it on google if you dont believe me) i recommend stop talking to the virtual community about it and take that video straight to a pediatric-neurologist. Or get a neurologist to look at the video and recomend a specialist. Dystonia are contractions that are sustained like an iron-pipe some would say...what your daughter is showing is more a dance type movement...
@ToniSkit Hello and thankyou for your feedback! she is being looked at now and is undergoing tests,this video was put up before the appointments came through,so believe me i dont wait for a online diagnosis,it was more for idea's.She is being tested for rett syndrome,the results we are waiting for .I will of course also look up your suggestion.Thankyou.
Hi Kim,she started at about 6 months old,nearly 10 months now.She's under a consultant anyway for a kidney issue but he has not seen her doing it although i have told him about it.She doesnt roll over yet,no attempt to crawl,yet everything else about her seems 'normal'.
The old Picture of Rett's is changing greatly- our daughter as an atypical form of Rett's which made it difficult to diagnose her...
Has she visited with a neurologist? Her movements are of a neurological nature- other things to look for are hypotonia-weak strength( standing rolling etc) She is still very young- has she always done this- or has it recently begun?
Thanks for the swift comment Kimk,i'm obviously not saying it is RS just hopeing to rule it out! She also does alot of back arching,unexplained mood swings.I'm pretty sure they are not limb seizures.
does she have any other signs? Usually, Rett Girls grasp their hands, clap, and mouth- they also ring their hands.. To me this looks like dystonia- which is a feature of rett's but also other disorder- they could also be limb seizures...
my youngest daughter use to do that and she would sit up against the wall and tear paper up in little peices and put hem in neat piles i took her to more doctors then i could count and never found out a thing she is 20 years old now has a son and a wonderful man she is doing great but still seem to keep into herself ..i hope your little one is fine and you can get answers
AMCKEJB3 1 week ago
@AMCKEJB3 This video was taken 2 years ago now and she barely does it anymore,so fingers crossed that is the end of it,but she is still being watched for any other signs.
Very pleased your daughter is doing well....so many unexplained things going on nowadays!
5566Trish 1 week ago
@5566Trish thank you and i'll keep your little sweetheart in my prayers that she will be just fine and i agree there are a lot of unexplained things going on and doctors dont have any answers it seems like doctors just want the easy way out of things and all kids in their eyes have the same thing because they just dont want to do the research
AMCKEJB3 1 week ago
my niece had a VERY similar mannerism and she's fine.
erinpickering 1 week ago
Take her to a N.U.C.C.A. specialist ...there are only 22 in the world ..an instructor would be best.
MsMotherbug 1 month ago
@MsMotherbug So far everything is looking good,she is being monitored but there seems to be no worries about her development etc.
5566Trish 1 month ago
@5566Trish
booboosketti 3 weeks ago
@booboosketti ?????
5566Trish 3 weeks ago
The're are highly successful people who have an official diagnosis or show traits of autism (high functioning). The diagnose could be a positive thing. Just look at how many people on the autism spectrum have stand out from the rest! Most importantly, they stood up not "in spite of", but "because of" their autism. Having autism gave them the tools to succeed. Dan Aykroyd, Michael Burry, US investment fund manager, James Durbin -finalist American Idol, Daryl Hannah, Gary Numan -British singer
MrChrispflaumer 4 months ago
When the mother says the girl does not have autism , she means classic (non-verbal) autism, the type of autism everyone thinks about when the word comes up. Most people don't know there are various degrees of autism, from the high functioning & Asperger's to low-functioning classic autism. Just to give an idea about Asperger's Syndrome, on the high functioning side of the spectrum, Steven Spielberg, Woody Allen and Satoshi Tajiri (creator of Pokemom) have it and they are highly intelligent.
MrChrispflaumer 4 months ago
Hi Trish,
When I replied, I did not mean to make you feel bad. I was hoping I could help based on my experience and knowledge. If you felt offended, I am sorry. My impression was that you were looking for advise and having her examined by a developmental pediatrician was my advise. The medical specialist would know much better than anyone else here on Youtube.
MrChrispflaumer 4 months ago
@MrChrispflaumer ,you didnt make me feel bad,why would you think that! i'm open to all opinions..
5566Trish 4 months ago
It could be autism, there are differnt stages and levels of the autism spectrum. ive worked with students who have autism and have the hands going but are very smart in certain areas. i would still rule out everything. well good luck!
cjmichaud91 4 months ago
Hello, I keep reading your comments to other users saying your daughter is on track developmentally and it cannot be autism. I would like to clarify a couple things. 1. Rett is on the autism spectrum. 2. Most young girls with Rett syndrome develop on time and start to regress around 2-4 years old. 3. Aspergers also a part of the spectrum develop normally, this type of autism usually is not totally noticeable until the child is 4-6 years old.
martosfl 4 months ago
Yes this is classic Retts
Playingwithpaper 5 months ago
@Playingwithpaper would you like to expand on that comment! what makes you think it is definatley Retts!
5566Trish 5 months ago
To me, she on the Autism Spectrum. That is exactly how many son moved his hands when he was younger. Later on, the arm movements joined the hand movements. Have her checked by a neurodevelopmental pediatrician, not a regular pediatrician.
MrChrispflaumer 5 months ago
@MrChrispflaumer ,she very rarely does it now unless she is stressed or very tired.She doesn't have autism and she is developing perfectly normaly,and is a very bright and cheerful young girl.The video was taken 18 months or so ago but she is still being monitored for any changes in her behaviour.
5566Trish 5 months ago
hand wringing is only one symptom of Rett's , this should be associated with other symptoms like: loss of development, mental retardation, ataxia, etc
shovad1 5 months ago
to see if he's a gifted child? he has symptoms of autisum, but he is also doing things like counting to 20, colors, letters, talking in 9 word sentences. So we'll see? good luck!! I'll keep u posted:)
pixie1310 7 months ago
hey, to respond, it's not exsactly the same as what Kaden, (my son) did. He would do it non-stop. (she does stop at points) and it wouldn't touch stuff with his right hand! water, food, people, nothing! If u put something infront of his right hand he'd reach with his left everytime! He was in OT and PT for MONTHS before he would even touch anything with his right hand. He has outgrown the hand thing, (he is going to be 3 in September), but now is going for testing to check for autism or
pixie1310 7 months ago
Does she do this when she is tired and falling asleep as well as when she is waking up? I ask because my 2 year old daughter does this all the time and her nerou said she could be on the autistic spectrum PDD-nos but my daughter is a socail butterfly and answers when you call her name. However she has many developmental delays and a major speech delay she only says about 10 words. I just dont see how she could be so loveable and social and be autistic
Valene615 8 months ago
@Valene615 Hi.she used to do it all the time but now only does it when she is stressed or tired,no she doesnt do it on waking or falling asleep.Her development is coming on great,speech is coming along nicely as well but i do also know some 2yr olds who dont have many words yet,so i wouldnt worry about that just yet.Have you asked if she can be tested for Retts,it's done from bloods,although it does only give a 70% result so even if it came back neg there could still be 30% chance she has it.
5566Trish 8 months ago
It might not be Rett syndrome. She might just have Autism.
Let's hope so.
reidrules45 11 months ago
@reidrules45 She's doing well,only does this hand thing when she is tired or stressed.Deffinatly not autism
5566Trish 11 months ago
I dunno , all my kids did this. And I have had 4. I wouldn't worry to much. She is prob just learning and exploring hand movements.
celestialeyes1269 1 year ago
Any updates on your daughter? My 7 month old has recently started doing this and after seeing this I'm very worried! She also tends to do it often when eating and random times when she is playing.
meredithgrey829 1 year ago
@meredithgrey829 Hi ,my daughter still does it when stressed or tired,but nothing like she did before.She has been discharged from the hospital now but if we have any concerns we can take her straight back..So far all development has been normal so i no longer worry about it.
5566Trish 1 year ago
Any updates on your daughter? My 7 month old has recently started doing this and after seeing this I'm very worried! She also tends to do it often when eating and random times when she is playing.
meredithgrey829 1 year ago
It definitely looks a bit like a stereotype. My daughter has rett syndrome. She started out tapping everything and not holding onto anything. I hope for the best. Good luck.
Kaurene65 1 year ago
it looks absolutely normal to me. like she is moving to music.
teenymi 1 year ago
Did you find anything out? My daugther is 6 months and has just started these same hand movements. I am worried sick.
KMGalvin1 1 year ago
@KMGalvin1 ,Hello,my daughter is now 18 months old,yes she still does it but not as much as before.Seems to be more when she is stressed over something or when she is eating.She is being 'watched' by the pead,and had bloods taken but not tested as typical nhs will only test if she shows more clinical signs.My daughter is so far developing normaly,learning to talk and walking rearly well.
kibbletrish@yahoo.com if you want to chat off here!
5566Trish 1 year ago
My daughter at 8 months did the same thing but grew out of it. The best thing to do is not panic or worry too much. Sometimes children do it just because they can.
crabbypants1978 1 year ago
My son does this he is 10 months old. He is going to nuro b/c his ped thinks he may have autism
nambrie 1 year ago
@nambrie Autism has been ruled out for my little girl,she has fantastic eye contact and is generally developing at the rate she should.They are keeping an eye on things at the moment,her blood that was taken is being saved until she shows any more clinical signs of 'anything'...so we are still in the dark as to what is going on with her.
Please let me know when you get the results for your little boy!
5566Trish 1 year ago
im sorry but this doesnt look a thing liek dystonia it has more of a chorea nature (search it on google if you dont believe me) i recommend stop talking to the virtual community about it and take that video straight to a pediatric-neurologist. Or get a neurologist to look at the video and recomend a specialist. Dystonia are contractions that are sustained like an iron-pipe some would say...what your daughter is showing is more a dance type movement...
ToniSkit 1 year ago
@ToniSkit Hello and thankyou for your feedback! she is being looked at now and is undergoing tests,this video was put up before the appointments came through,so believe me i dont wait for a online diagnosis,it was more for idea's.She is being tested for rett syndrome,the results we are waiting for .I will of course also look up your suggestion.Thankyou.
5566Trish 1 year ago
Rett syndrome becomes more apparent in the 2nd year of life.... The hand wringing usually starts at the start of the 1st regression.
nicnak1181 2 years ago
Hi Kim,she started at about 6 months old,nearly 10 months now.She's under a consultant anyway for a kidney issue but he has not seen her doing it although i have told him about it.She doesnt roll over yet,no attempt to crawl,yet everything else about her seems 'normal'.
5566Trish 2 years ago
The old Picture of Rett's is changing greatly- our daughter as an atypical form of Rett's which made it difficult to diagnose her...
Has she visited with a neurologist? Her movements are of a neurological nature- other things to look for are hypotonia-weak strength( standing rolling etc) She is still very young- has she always done this- or has it recently begun?
kimklingler007 2 years ago
Thanks for the swift comment Kimk,i'm obviously not saying it is RS just hopeing to rule it out! She also does alot of back arching,unexplained mood swings.I'm pretty sure they are not limb seizures.
5566Trish 2 years ago
does she have any other signs? Usually, Rett Girls grasp their hands, clap, and mouth- they also ring their hands.. To me this looks like dystonia- which is a feature of rett's but also other disorder- they could also be limb seizures...
why do you think Rett's?
kim
kimklingler007 2 years ago