My uncle just died from Marfan's complications at close to 40 years old...my father, son, and I also suffer from a severe form of the disease..walking is difficult..lifting is impossible..and our pain is rated at "moderate to severe" chronic pain...i find this very offensive.
@TheKnockKnockPenny Hey, I heard if you get diagnosed the life expectancy is 72 years, so it's not as bad as some of the research seems at first. And Michael Phelps has it. I think the point of the skit wasn't to kill yourself, but that people can be insensitive, but I'm sorry it hurt you. Hang in there.
I just found out I may have it. A doc said to read up on it cause I might. A lot of the skelital stuff sounded like me. Reading the possible symptoms and lack of any cure made me feel like the guy in the skit. I feel bad that it hurt people, but it really helped me.
This is offensive to those who have lost family to suicide, as well as those who have, or knows someone who has Marfan. It must take a REALLY Strong couple of douche bags to post such a video.
People, I have Marfan and this is just a bad joke. Come on, if you all are saying people having Marfan can have a long and happy life, you shouldn't be that bothered with this video.
Please vote this down and flag this video as inappropriate. The category would be: hateful or abusive content -> abusing vulnerable individuals. This looks to be covered under the community guidelines as bullet point 6.
If you actually read the information that is on the NMF website that is on your computer screen in this video, you would know that people with Marfan syndrome can live a long and happy life. Your suggested "prescription" amounts to cyber bullying.
You should do the right thing and remove this video before it does real damage!
If you actually read the information that is on the NMF website that is on your computer screen in this video, you would know that people with Marfan syndrome can live a long and happy life. Your suggested "prescription" amounts to cyber bullying.
You should do the right thing and remove this video before it does real damage!
My husband and 13 year old daughter have Marfan Syndrome, I hope she never sees this video. You two are a disgrace. People can live a long and happy life with Marfan Syndrome. You don't even portray the correct way to get diagnosed. I pray that no-one that has been newly diagnosed sees this. This is just horrible. Maybe you should seek mental and medical attention.
I really hope you don't ever have to deal with someone you love having a serious condition. My whole family's been aflicted with marfans including the loss of several family members . Their lives were full of value and meaning and love. They were no less people just because they had Marfans Syndrome. This disease makes my life harder but it doesn't make it worthless.
I really hope you don't ever have to deal with someone you love having a serious condition. My whole family's been aflicted with marfans including the loss of several family members . Their lives were full of value and meaning and love. They were no less people just because they had Marfans Syndrome. This disease makes my life harder but it doesn't make it worthless.
Offensive. I have Marfan Syndrome. This video is appaling. Marfan Syndrome is a serious disorder, but speaking from experience, is 100% livable. You can get through life just fine. This video is awful.
I just saw this video and am appalled. My 13 year old has Marfan Syndrome and uses You Tube. I hope this video never gets seen by him or any other person with this disorder. If someone had just gotten diagnosed or is having a hard time dealing with this life threatening disease, this video could push them over the edge and you could be liable for encouraging it. You could also be charged with practicing with out a license.
What the point to this? So are you going to make video about every type of syndrome or are you just against Marfan syndrome? Should I now compare you to Hitler because you want to shoot the people you decide aren't worth living. Why not reply to our comments and questions are you to much of a coward to face the people you want to murder?
What the point to this? So are you going to make video about every type of syndrome or are you just against Marfan syndrome? Should I now compare you to Hitler because you want to shoot the people you decide aren't worth living. Why not reply to our comments and questions are you to much of a coward to face the people you want to murder?
My uncle just died from Marfan's complications at close to 40 years old...my father, son, and I also suffer from a severe form of the disease..walking is difficult..lifting is impossible..and our pain is rated at "moderate to severe" chronic pain...i find this very offensive.
soithasalwaysbeen 4 months ago
in what way was this supposed to be at all funny?
oh well, you're terrible actors anyway.
itsclarrissa 8 months ago
im 13 and i think i have marfan syndrome , i have been on the web looking for help and what to do , then i come across this , :'(
TheKnockKnockPenny 8 months ago
@TheKnockKnockPenny Hey, I heard if you get diagnosed the life expectancy is 72 years, so it's not as bad as some of the research seems at first. And Michael Phelps has it. I think the point of the skit wasn't to kill yourself, but that people can be insensitive, but I'm sorry it hurt you. Hang in there.
IzzyLizzyNDizzy 8 months ago
I just found out I may have it. A doc said to read up on it cause I might. A lot of the skelital stuff sounded like me. Reading the possible symptoms and lack of any cure made me feel like the guy in the skit. I feel bad that it hurt people, but it really helped me.
IzzyLizzyNDizzy 8 months ago
i have marfans syndrom and this is really rude and offensive
2010thecamman2010 9 months ago
i swear if i woudld see you bastards on street i would kill you guys
bestknifer 10 months ago
wow really i hope yur wife cheats on u and gets aids so she could pass them on 2 you
ffx9999killer 1 year ago
assholes! it's not funny!
futher2k 1 year ago
what's the point of this?
s4jt 1 year ago
If you're going to mock the sick, you should at least be bloody funny. Best get back to the drawing board.
jismith1989 1 year ago
I have marfan syndrome and I thought this was funny
yeahtoast22 1 year ago
Comment removed
IzzyLizzyNDizzy 8 months ago
Comment removed
IzzyLizzyNDizzy 8 months ago
This is offensive to those who have lost family to suicide, as well as those who have, or knows someone who has Marfan. It must take a REALLY Strong couple of douche bags to post such a video.
sum1bord 1 year ago
I consider this video as extremely inappropriate. I ask that it be removed from UTube immediately. I have this disorder and find this offensive.
Singer13071 1 year ago
People, I have Marfan and this is just a bad joke. Come on, if you all are saying people having Marfan can have a long and happy life, you shouldn't be that bothered with this video.
coldito 1 year ago
Please vote this down and flag this video as inappropriate. The category would be: hateful or abusive content -> abusing vulnerable individuals. This looks to be covered under the community guidelines as bullet point 6.
mykaen 1 year ago
This has been flagged as spam show
Rude. Offensive. Irresponsible. Hurtful.
If you actually read the information that is on the NMF website that is on your computer screen in this video, you would know that people with Marfan syndrome can live a long and happy life. Your suggested "prescription" amounts to cyber bullying.
You should do the right thing and remove this video before it does real damage!
Shame on you!
NationalMarfanFndtn 1 year ago
Rude. Offensive. Irresponsible. Hurtful.
If you actually read the information that is on the NMF website that is on your computer screen in this video, you would know that people with Marfan syndrome can live a long and happy life. Your suggested "prescription" amounts to cyber bullying.
You should do the right thing and remove this video before it does real damage!
Shame on you!
NationalMarfanFndtn 1 year ago
My husband and 13 year old daughter have Marfan Syndrome, I hope she never sees this video. You two are a disgrace. People can live a long and happy life with Marfan Syndrome. You don't even portray the correct way to get diagnosed. I pray that no-one that has been newly diagnosed sees this. This is just horrible. Maybe you should seek mental and medical attention.
Marfmomomma 1 year ago
what a stupid thing to suggest
yboud3 1 year ago
This has been flagged as spam show
I really hope you don't ever have to deal with someone you love having a serious condition. My whole family's been aflicted with marfans including the loss of several family members . Their lives were full of value and meaning and love. They were no less people just because they had Marfans Syndrome. This disease makes my life harder but it doesn't make it worthless.
GeoJam2008 1 year ago
I really hope you don't ever have to deal with someone you love having a serious condition. My whole family's been aflicted with marfans including the loss of several family members . Their lives were full of value and meaning and love. They were no less people just because they had Marfans Syndrome. This disease makes my life harder but it doesn't make it worthless.
GeoJam2008 1 year ago
Offensive. I have Marfan Syndrome. This video is appaling. Marfan Syndrome is a serious disorder, but speaking from experience, is 100% livable. You can get through life just fine. This video is awful.
kaitlynrene97 1 year ago 2
Comment removed
MrsJCPreuss 1 year ago
I just saw this video and am appalled. My 13 year old has Marfan Syndrome and uses You Tube. I hope this video never gets seen by him or any other person with this disorder. If someone had just gotten diagnosed or is having a hard time dealing with this life threatening disease, this video could push them over the edge and you could be liable for encouraging it. You could also be charged with practicing with out a license.
MrsJCPreuss 1 year ago
I pray that you never have a child or loved one who is stricken with any disabilities. I am truly sad for you two. May God have mercy on your souls.
joethefireman 1 year ago
What the point to this? So are you going to make video about every type of syndrome or are you just against Marfan syndrome? Should I now compare you to Hitler because you want to shoot the people you decide aren't worth living. Why not reply to our comments and questions are you to much of a coward to face the people you want to murder?
webmeupscotty 1 year ago
What the point to this? So are you going to make video about every type of syndrome or are you just against Marfan syndrome? Should I now compare you to Hitler because you want to shoot the people you decide aren't worth living. Why not reply to our comments and questions are you to much of a coward to face the people you want to murder?
webmeupscotty 1 year ago
I wish Marfan syndrome was infectious and these two caught it...really.
Gillian Mellström.
monkmell 1 year ago
I hate healthy people ....
rastatouf2225 1 year ago
horrrrrrrrible
fentanylo 1 year ago
I don't get it.
PashupatiFR 2 years ago 2
WTF?!? I have Marfan Syndrome and I find this very offensive.Karma is really gonna bite you in the azz!
bigjohntexan 2 years ago 10
sad people, sad
rastatouf2225 2 years ago 2
WTF idiots
JMMJLTBOY 2 years ago 2
Can you explain whats meant to be funny about this video?
I totally agree with abbeyashton1, its not a joke!!!
1988cl 2 years ago 3
this is rude to those who have Marfan Syndrome. It's not a joke
abbeyashton1 2 years ago 7
this doc is gay shit
reliancesify 2 years ago 2