i have 2 tell u all

[pandabox94]

i think beebee890 has it aswell?

either way your awesome :)

[shaun1912]

@pandabox94 yer he dose, he is also way more open about it then i am :)

[Gigolo8]

Yet another one of Natures cruel little jokes. Doesn't matter, you're still you.

[shaun1912]

very true

[maniacmonty]

hey hows it going i added you to my friends i have Neurofibromatosis too

just like you i have a lot of birthmarks and bums all over my body i would be glad to talk to people that have it to you take and thanks for you video

[shaun1912]

thanks sorry for the late comment

[53531640]

what a bummer of a disease to have.

But life is what you can make of it, you can either look in the gutter or look up at the stars.

[shaun1912]

yer i no what u mean its not as bad as it could be so im happy

[53531640]

Good on you. I hope you have a great time on your P&O cruise mate!

[shaun1912]

thanks its not till nov but i cant wait im going to have the time of my life

[bigamushead]

what if something awesome was in the gutter asshole

[shaun1912]

lol like what u drugged out?

[wasteddaycollection]

thanx for the information shaun, i make it a rule never to get any illness or condition i cant spell as im dyslexic ill live forever hahah love n hugs matie xxx jade

[shaun1912]

danks jade

[emmancharl]

hi shaun ive asked to be ur friend hope to chat to u soon

[shaun1912]

hey emmancharl i saw that and said yes, how r u going?

[THEytG0D]

Pay me my child support you bastard

[shaun1912]

lol who are ya?

[shaun1912]

and how many kids do i have?

[littlegalah]

Go for it. You have big ball comming out.

[shaun1912]

thanks mate

[BamBamsGurlMoo]

thanks for sharing shaun. keep looking after yourself and get yourself to the doctor for those scans. we all care about you.

[shaun1912]

yer i am happy i did that :D thanks emma

[shaun1912]

Hello Emma, i also have a grouth under my right eye lid but the docs said its nothing to worry about, having say that i havent had a full boady scan for over 5 years and need 2 have one. Its not your fault at all some the people that have nf that iv meet r some of the nicse ppl u can come across, the teachers also thought i had ADHD but i dont i proved them wrong yes skool was hard for me as well.

[emmancharl]

pt2 she also suffers with learning difficulties and has ADHD , i feel this is all my fault and i just hope she doesnt have to suffer the way i did as a child. please write back x take care x

[shaun1912]

Im shore every thing will turn out ok in the end, but if u do ever need 2 chat let me no and im more then happy 2 chat, gd luck with every thing shaun1912

[emmancharl]

pt1 hi shaun i have neurofibromatosis and so does my daughter. i found out i had it wen i was 5. im 37 now. i have had 18 operations in my life. one my back and my legs to remove many tumours. i have also had scoliosis and had a harrington rod in my back. i went to hospital 2day with my daughter , who is 12yrs old and the doc told me she has a growth under her eye brow. she is now being revared to a specialist for more investergation and im worried for her as i know wot its like to go thru this

[vanguelisk]

I am 21 years old and i have nf1.I have a fibroma in my right ankle and i really hate when ppl look at me in the beach at summer.

PS:I have alse a scale model of Titanic

[shaun1912]

ouch that must be pain full, i would hate to have one there dose it stop u from walking around alot? yer i know what u mean as well thats why i dont g down to the beach much at all. even the pool for a wile cozz of my spots, but now i dont care at all if riggy bibs can walk around with his head up high and not care about ppl looking at him why should i. kool what type is it? i have a few titanic things even thing from her sistership olympic. talk soon shaun1912

[Rcokyjay]

What a decent guy.... I have Nf as well. And like you just get on with life as best I can.. I have a deformed face.. and have had tumours removed from face for as long as I can remember. I Am blind in 1 eye and need to wear an eye prosesiss. (how ever you spell it!) Thank you for this great video... you have a great way of making people smile. Keep the faith... emssage me back if you like mate. and where you from?

[shaun1912]

hey, thanks. evn know iv had it all my life i didnt realy know about it till i was 13 cozz mum said my cafe au late spots were coffee stops and nothing to be worryed about, at the min i am living in magnetic island on the nothen part of queensland aust and its all ways a nice time here. thanks for th message to. shaun1912

[Ysabella1301]

Hi I don't have NF but my baby does, I was just wondering has anyone ever told you that you look like Chris Lilley from Summer Heights High and We can be Heros?

[shaun1912]

yer that dose happen as well. they cant find it any were in my family tree at all. thanks yes they have iv even had people ask me for an autergrath "how ever you spell it", i want to meet him and see what he says lol

[angelbaby4444]

I have NF1. I don't have it bad at all but for those who do I am sorry

[shaun1912]

yer i know what you mean

[karenawhittaker]

im 42 and have NF1&NF2

[shaun1912]

ouch, nice to meet you as well. how is with you?

[karenawhittaker]

im good ty how r things with you i had 3 daughters all with NF1&2 they r 22/19 my 2 grand daughters have NF my youngest daughter passed away due to NF turning to cancer she passed in 2003 aged 9

[shaun1912]

sorry 2 here that its always sad when the young die young. but its gd to know that im not alone as well. what do your other daughters do for a living? im working in maggnetic island atm as a cook its fun and i was told i would not work well in hospo and im doing great.

[karenawhittaker]

my eldest daughter is a mother of two daughters the 2 year old is already showing signs of NF the youngest im not sure yet my other daughter is 19 and is due to have her first baby in october we find out next month if its a girl or boy. i lived on maggnetic island when i was 2 whats it like now

[shaun1912]

kool, its great im having a great time im working at the arcadia hotle its fun

[pakchi87]

cool vid, i have NF also. It really sucks, but if feel a lil better when i know im not the only one who has it.

[shaun1912]

yer i know what u mean

[antecer]

hey Shaun,

I love your quote,

"It's gonna have to live with me, not I live with it"

I might just take that on board.

you rock!

[shaun1912]

thanks

[johnofjordan]

That's one great video.

Thanks for sharing. =)

[shaun1912]

thanks, i got the idear from yours and it helped

[morphix007]

are u the guy i had a moment with?

[shaun1912]

lol yep and i am still waiting for the footage to go on this lol, how have u been?

[morphix007]

i might chuck it in a street style

[shaun1912]

lol they are funny, u do a great job on it

[hedepsykoser]

5 stars to you Shaun. As you know, I also have nf1.

[shaun1912]

thanks

[bemyhallelujah]

Well Shaun I want to say thankyou, you have opened my eyes! Have a wonderful christmas :) You are doing a wonderful thing by opening up to chat with people with depression!

[shaun1912]

thats kool i just needed 2 say something about it all. thanks u have a great christmas as well.

[EasyRaoul]

G'day, Shaun the Titanic!

Ain't it wonderful that God looks at our heart instead of our shortcomings?

That's the essence of Christmas!

Bless ya heaps these holidays!

Great vid, mate!

BTW... check out RICHW4 channel!

He makes his shortcomings into comedy!

[shaun1912]

wy, yer he is out there and is looking after us as much as he can, u have a great chrismas as well. kk i will do that. shaun