movement disorder while sitting on couch

[tehshit5000]

just smoke some weed itl relax your muscles and make you better temperarily.

[TheDudeWhoLikesTacos]

i don't mean to offend you but this is very interesting. it just happens and its invoulontary? i don't have what you have but some times i'll catch my leg shaking up and down and i usaly dont even notice. and other times i'll find one of my arm muscles spazing. its looks like it really takes you by suprise. does it hurt when you jerk?

[z28chic]

I went to the dr & told him about how I jerk really hard, mainly it only happens when I'm trying to relax. My legs & arms r the highlight of the show but I also jerk in my neck & even stomach. My dr didn't seem 2 know what I meant when I said my stomach jerks, but you did it a few times. He told me I have random limb movement disorder which I've googled & it doesn't seem to line up with what happens 2 me. It's been going on for about 5 yrs now but it started as small twitches back then.

[z28chic]

It's so frustrating because I can't control these & the are REALLY hard jerks. Sometimes, my leg or arm will just jerk hard once out of nowhere then like 30 seconds later it'll jerk again like 5 times together in a row. Then it'll b my arm & it's like I'm tryin to dance layin down or something. I've hit myself in the face a few times but this last time was the worst. It left a knot on my cheek. I've also beat on my bf b4 :( I feel so back but he doesn't let it bother him tho :)

[UmatsuObossa]

I get those sometimes. But usually just one or two jerks and it stops. I would be so annoyed if it happened like yours. At least you have a good attitude. I guess it goes a long way. :3

[seeer77]

hyperbaric therapy will fix her also get the carpet and mold out of your house also check your ph of your body stay balanced alkaline living is key and dont forget Jesus

[pitpalak]

u r amazingly beautiful!

[lilacwinteraire]

you are beautiful, with obviously a lovely attitude about your syndrome. I'm glad to hear you're doing better :) From one epileptic to a semi-epileptic (? haha), I know what those spasms are like.

[Thetruenihilus]

I have epilepsy and its gotten worse, I have these twitches like this.

[mrbluenun]

Hi chloew90,

It's nice to see your thread on your Myoclonus stuff. It will help other if the thread is continued even though you may and I hope you have improved!

Did your last op' help?

Forgive me but I am in touch with several similar people with a mix of conditions and have forgotten what your situation is?

[Eragarev]

Maybe you have the spirit of an ancient overlord and he/she is trying to escape from your body into our world.

[mrbluenun]

Hi chloew90,

Just a quick thank you for your post to me, many thanks,.

My best wishes to you and hope you find some medication that helps, OK?

mrbluenun

[mrbluenun]

Hi chloew90,

Hi and if it is possible, I hope you are better!

I have these sorts of jerky Myoclonic leg movements with both legs but mainly the left or right at one time. I have had it for 20 years. My stomach seems to spasm suddenly and this lifts my leg/s up and they drop down again, and it usually lasts for an hour or so.

I have not been to your site, yet so forgive me asking the obvious, are you Epileptic? I am and it stops me working. It stops me working.

mrbluenun

[chloew90]

@mrbluenun

Hi, thank you, I'm currently doing much better! I'm sorry you are experiencing myoclonus as well. I do not have epilepsy. The birth defect in my brain that was causing this normally causes epilepsy, but I did every test in the book and they never were able to officially diagnose me with epilepsy. Of course, I never actually had full seizures, just the jerking. I'm sorry you're not able to work; I hope you find help for your condition soon.

[DoooDaddXtC]

@chloew90 I had this start a few years ago, mild stomach and left arm/shoulder, now its just like your video! i sometimes feel like im having a heart attack from it! have you found anything that has brought relief, or makes the symptoms less? now it seems like its constant....with only hour(s) long breaks with no jerking........

[chloew90]

@DoooDaddXtC, The best thing, if you can, is to find the cause and address that. For me, it was caused by a birth defect in my brain, and after having surgery to remove it, I'm doing much better. I know it can be hard to find the cause, and I was lucky to find it for me in so short a time. My advice is don't give up, and keep looking for the right doctor. In the mean time, try to find things that make it worse (ex. stress, lack of sleep, caffeine, flashing lights) and try to avoid them.

[chloew90]

@DoooDaddXtC, The best thing, if you can, is to find the cause and address that. For me, it was caused by a birth defect in my brain, and after having surgery to remove it, I'm doing much better.  I know it can be hard to find the cause, and I was lucky to find it for me in so short a time. My advice is don't give up, and keep looking for the right doctor. In the mean time, try to find things that make it worse (ex. stress, lack of sleep, caffeine) and try to avoid them.

[Dryicescream99]

Nice video, great smile. Hope you are doing well.

[mrbluenun]

Hi chloew90,

Hi and if it is possible, I hope you are better!

I have these sorts of jerky Myoclonic leg movements with both legs but mainly the left or right at one time. I have had it for 20 years. My stomach seems to spasm suddenly and this lifts my leg/s up and they drop down again, and it usually lasts for an hour or so.

I have not been to your site, yet so forgive me asking the obvious, are you Epileptic? I am and it stops me working. It stops me working.

mrbluenun

[mrbluenun]

Hi chloew90,

Hi and if it is possible, I hope you are better!

I have these sorts of jerky movements with both legs but mainly the left or right at one time. I have had it for 20 years. My stomach seems to spasm suddenly and this lifts my leg/s up and they drop down again, and it usually lasts for an hour or so.

I have not been to your site, yet so forgive me asking the obvious, are you an Epileptic like me? I have grand mal and also very minor fits as well. It stops me working.

mrbluenun

[bobbydog1990]

u are a natural at popping

[depletable]

Ain't that called the Harlem Shuffle?

[nottinmatterz2day]

oh my restless body syndrome

[MsFleischy]

hello, well I had something slightly different called Sydenham's Chorea. the first time i had it i was 8 years old. I was given a form of medicine used on people with terrets. and ticks. this acutally helped. but mine came back when i turned 12 because my hormones changed. Hormones have a big impact on the neural changes in your body. Differnent medicines help different people. so it might take different medication for you than it would for someone else. Thankfully my chorea left me. =)

[MsFleischy]

thanks sooo much!

[MsFleischy]

Hello, I am making a video for a class based on this condition, because I used to have it as well, would you mind if I used part of this video to show this condition to others? It will be posted on youtube when its done. But I totally understand if you do not want me to show it.

[chloew90]

@MsFleischy that's fine, I don't mind at all

[09157010109]

@MsFleischy hey i really apreciate ths video coz im like this too im already 28 yrs old & i thut its just a manerism didint visit a doctor ever since & people are distracted at me sumtyms... i cna control it wen im w/people but wen i know that nobody s watchng i just let it go..its really hard coz everytym i thut of controlling it the worst it gets:( & i even have facial movements problems.. its like wen its not my trunk its my face or even my eyes..so ru taking meds for this? does it help? tnx

[charvelgtrs]

Sort of resembles Elisabeth Shue. Cute.

[animatedmatter]

I think you are beautiful!

[TheBahaiGirl]

Best wishes! My best friend has Dystonia and she jerks like this. She's a sweet woman :)

[cindytreon]

i was the same way except my leg didn't jerk but everything else did. u can look my videos up on u tube cindy treon

[sheldonmurphy1]

Thank you for posting this video! My 2 1/2 year old daughter has Angelman Syndrom, and we are having to learn about myoclonic jerks for she has it as well. My daughter is my homie and when she starts jerking, it scares her, so she snuggles in my arms and it seems to help. Thank you for posting your video once again!

Ps. Please dont take this wrong, im happily married, so i must state that your a very beautiful girl ya know? And there is nothing "strange wrong" with you !!

Take Care!!

[GamingMadeHilarious]

no offence but its like a fish outta water. What it feels like I never know

[talulah123]

why s she ticking?

[OrthopedicFantasies]

You're beautiful. I hope you are better now.

[5elin]

poor girl :/

[ThePropertyofJustice]

are they really LAUGHING at this?

[chloew90]

@ThePropertyofJustice

no, they weren't laughing AT me, this was just a normal piece of everyday life, and we were just taking the video to show my doctor, while in the meantime we were just enjoying being together and laughing and having a good time and making light of things, like you learn to do when you have something strange wrong with you.

[eevans02]

@chloew90 my family is the same way. Both my mom and I have dystonia. We joke around and tell each other to 'relax' or 'hold still'. We laugh and everyone else is horrified xD

[ThePlayboyBarbie]

they are making fun of her??

[RAWRAWRWAR]

OMG SHES A Q.T.

[DrugstoreCFH]

Chorea?

[chloew90]

@DrugstoreCFH Actually it's myoclonus that's frequent enough to resemble chorea.

[Drealoc1123]

You are amazing! I am so happy brain surgery was able to improve your life.

[jaroncyr]

but i got high on some opiates a few years back and my dr put me on methadone and i havnt had any muscle spasms or vocalization for 3 years, i was also part of a long term study because of the meraculous lack of symptoms while under opiates, the only bad part is that there is severe withdrawals from opiates and sometimes you fall asleep for no reason and itch but my life has never been better because of this, opiates some how are affecting the relationship between my synapses

[jaroncyr]

chloew90, i have a sort of undiagnosed version of what you're doing, it has been called tourettes and it has been called more recently "mytocondrial" disease, i have almost 30 and it took more then 10 years for a proper diagnosis, my brother passed away at 14 because of it, it has been trying at some times and depression has been far worse.....continued

[swiftbird2C]

Have you had her go on a gluten free diet. This helped my similar movements and with the med Synamet as well as help from a great neurologist has me sleeping through the night and more comfortable.

[drevyl]

I have cervical dystonia. Good Luck with being completely normal and staying that way!

[elle02ph]

what meds r u currently taking to control this? have U seen a neurologist?

[mermaidsrok]

Hello everyone, I recently read an extremely inspirational book about a boy who had Tourettes syndrome and many other tics induced by new medications. it's a phenomenal TRUE STORY about his optimism and perseverance through his life! You may want to check it out. It's an easy read too!

"Against Medical Advice" by James Patterson and Hal Friedman

[PostHuman2113]

lol weird!

[dojufitz]

I get this when i try to sleep.

[tonystark7827502]

You are so very brave for posting this video...it really inspires people like me..i developed dystonia from taking haldol to treat my paranoid schizophrenia. I get the spasms in my neck, hands and mouth. Thank you so much for posting this. I only recently got a name for this, even though i have been dealing with it for close to a year! Keep fighting!

[Draziom203]

@tonystark7827502 how long u took haldol?

[tonystark7827502]

@Draziom203

i took it for only 2 months

[TissTime4Tea]

beautiful girl. keep going.

[DawnVoncCraven]

Glad to see you are in good spirits ^_^

[LeviLeraz]

Beautiful girls. They have wonderful smiles :)

L.Leraz

[maryssng]

I have had a very frustrating journey concerning similar issues that were oddly triggered and connected to eating and my hiatal hernia. I don't seem to be able to put links in comments but if anyone's issue is similar, check my profile for links about Sandifer's syndrome and hiatal hernia and vagal or vagus nerve connectiions. Definitely worth looking into if you are not finding answers. Be well, M

[peak199]

Can they help you? Wish I could help you!

[stracinsrt4]

You're a cute girl!

[123iheartfish321]

that's amazing!

you must be a very strong and secure person to put that on the internet.

I appluad you.

[xclandestinex33]

i get those jerks when im high..

[Unlimited035]

Yeah you're right, not so extremely as that, but like short shocks :P

[Kirbymcbadass]

She's a cutie.

[Rbuck2110]

I get those jerks sometimes. Certainly not that frequent. They seem to be stress related in my case.

[Kirbymcbadass]

Yeah me to. I get them randomly about 20-40 times a day.

[bachak1]

looks fake

[JeniferDenise]

How I wish it had been! My daughter could have avoided some really tough medical treatments.

[gagnome]

I am starting to get these jerks but they aren't as severe as yours. But they are getting more regular. My left hand was constantly "ticking" the wrist and fingers were going rhythmically for almost 4 hours yesterday morning. If its not too much trouble I am curious if your "jerks" started out the same. Today my right hand started spasming. Muscles in my hand I cant use just going crazy un-rhythmically. 20 seconds and then stopped.

[gagnome]

Also my arm does the same thing yours does but again not as severe its more like a small bounce. Not anything as powerful as yours. They get more pronounced when I am tired or relaxing.

[chloew90]

Yes, it started out in my left hand, just very small jerks. But it was never rhythmic, and it didn't get to my right hand until much later. First it spread from my left hand to my left arm, shoulder, then down my side to my leg and so forth. Then, after my entire left side was affected, my right arm started going. But my jerks did get worse when I was tired. Relaxing didn't seem to do anything, but in sleep they were completely gone.

[MrFreshVibes]

@chloew90 That scares me =/ This has started happening to me maybe once a week. Yesterday it woke me up in my sleep but usually it's when I'm awake. Just small jerks. Do you remember if you had been taking any sort of medicine before hand? Muscle relaxers or otherwise that you think may have been the culprit? These questions are kinda aimed at everyone that has experienced this... I'm a little worried!

[kidkock69]

Wow!! Thanks for sharing, Of course I have it bad and some other illness too, This is why i get a check. Somethime I stay in my house, all day just because I feel so embarised, and the other mental illnesses I have just add to it. I wish there was someone out there who can relate to me.

[buckyrox2008]

Hi hun! I was just curious if one side was more effected. Like I noticed that your left side seemed worse. Is that true? I kinda hav something going on on one side of my body. Thanks!

[Barisaxlover]

I also have similiar tics to that, I also suspect that I have blepharospasm which is an eye twitch..It causes me great discomfort.

[alastair78]

I have similar tics to that, I have fairly severe Tourette Syndrome. I always wanted to date a girl with a similar problem to myself because then they would know what I was going through. I hope you are ok now.

[zaeema]

wow are you okay now ?

[chloew90]

after several brain surgeries I am taking keppra and trileptal, two medications generally used to treat seizures, and I am doing very well. At the moment I look pretty much normal.

[Varda87]

Oh dear :( I'm sorry to hear that.. i'm glad your doing better! x

[Horseflies12]

she looked like she was going to laugh

[monjanse]

has the girl on left site the same seizure as you, and what is the name of this condition?

[chloew90]

The girl sitting next to me has the same brain condition (cortical dysplasia) and has had similar surgeries, but her movements were quite different, and significantly worse.

[monjanse]

was you born with it?

is it spasms, or cramps?

[chloew90]

No I wasn't born with it. It just started when I was 17. They were spasms, they didn't hurt at all. Unless I hit my hand against the wall.

[guschamber]

ya know it sucks to have that,well i have epilepsy myself but i would marry ya even with ya having this disorder...hehe

cheers

[TubeViewer2009]

I am so glad you got better.

Happy for you.

[ColonelMarksman]

OMGOSH, someone else who twitches like me!!! Almost... I twist and wiggle my arms... yours seems to be concentrated on the left side of your body.

[chloew90]

yes mine is concentrated on the left side of my body. What you describe as twisting sounds a bit like chorea to me but I'm no expert. Have you seen a doctor about this?

[ColonelMarksman]

I'm in the process of getting this looked over by a neurologist, but my research suggests the very rare condition of Wilson Disease, less than 100,000 people in the entire world have it. It comes from high copper content of which a specific side of my family have most all the symptoms (heretical). It takes two specific gene defects to come together: I'm the only one in my family with Asian background (where it most likely came from). It does have chorea-diagnosed movements.

[darthgon]

Hi! i live in argentina and my mom diagnostic is spinal myoclonus. she was in the hospital for 2 days and had a lumbar puncture and all kind of studies about what she have. The diagnostic is Propio Spinal Myoclonus and she has ato take clonazepan. she was with mioclonias for 17 hours non stop. if you can share with me your experience i will be very grateful with you so i can help my mother. do you know if theres is a center in usa that is the best to care this illness? thank you.

[chloew90]

No, instead of stimulating the problem area, I had it removed. DBS was an option, but after a lot of testing we decided it wasn't the best option.

[FlashSammy86]

Did you have DBS done? i had the surgery 4 months ago im doing much better now.

[Sigma911011]

I'm so sorry. What is causing this?

[chloew90]

I had a heterotopia nodule in the center of my brain, which is basically a lump of gray brain cells where only white cells should be. The nodule was sort of acting of it's own accord and sending out random signals. It wasn't a tumor or anything, it was a birth defect that didn't act up until I was 17. I had brain surgery to have this removed and I am doing SO MUCH BETTER!