Fibromyalgia: Part III - Friendships & Relationships (cont.)

[babiegryl]

I can so relate with you I have fibromyalgia as well.. I know the feeling of not being able to do things or get out of bed, I have lost friends over my illness too, my family don't really understand my illness either. They tell me to SNAP OUT OF IT, IT'S ALL IN MY HEAD

[happysad321]

it sounds cheesy, but I have seriously found out who my real friends are since I got this horrible illness a year ago...

[ParanoidKitty]

I have lost many friends because of this illness, and I have gained some great ones from it. This illness has given me a new perspective on life, and the time I never took to take care of myself because I was taking care of everyone around me. If my friends can't understand I need time for myself to deal with this, then they can move on without me. Until you are well, you can't handle the stress of everyone else. I have 2 friends who have stuck with me through it all and I love them more for it.

[truemirror]

no it's not cheesy, we sort of disappear from society, they only get to see us on our "good" days.. we move too slow, think too slow, can't guarantee to meet commitments, just aren't acceptable anymore. Plus some fear that it is contagious.. and it might be, just takes months to years before symptoms show up, I won't give blood for fear that it could pass on to someone else.

[truemirror]

lol don't tell us to go to the library, fibro's never get the books back on time, between pain and/or brain fog.

[ParanoidKitty]

You should see my calendar and todo list.. one of the best things when you have fibro.. hehe! My apartment when I first got sick had sticky notes EVERYWHERE because I used to boil the kettle dry, forget what the fridge was called, forget how to use the microwave etc.

[truemirror]

I use a loud egg timer that I carry through out the home when cooking and also set the stove timer. I treat fibro like lymes.. lots of vitamins and teasel root, seems to help with the brain fog and gives strength back to the muscles slightly, and hemp seed oil for the spasms, which I don't know if from the fibro or the damage from the accident.

[danielltaylor]

Thanks for posting this video. I am a 52 year old male who has had FM for 15 years. You hit the nail on head so many times in this vid. It is a relief to know that there are others who understand what I am going through when most do not. God bless you.

[darlingtester1982]

Hello Last video and this video is the best video, i hate people dont understand how i feel espeslly chonic pain etc agree with what you are saying hugs kisses love Gizmo xox

[beck23erz]

i would absolutely love to talk to you sometime. i was just recently diagnosed with fibro, among other things, at mayo clinic. it's been really hard for me to deal with, physically, emotionally, and socially. thanks for posting these heartfelt and helpful videos.

[ParanoidKitty]

The hardest is when you first get diagnosed and they tell you there is little to help you, that they can control the symptoms but you are sick for life. You freak out and wonder how to help yourself, what do you do, etc when the doctors dont even know. It is hard to deal with in every aspect.

[MyPinkRainbow]

it seems to me know one gets it (the pain) you cant function and when you can it is usually the oddest times and sex , well forget that it is not even in your mind, my one son is the only one who really understands he is a brilliant child, i even maid a video just for him bailey check it out i got his report card today and all a's i am proud , he was a miracle child and i dont know what i would do with out him , he is so special and for 14 yrs old is well the kid deserves so much more..

[qtcarla]

I have been married for 27 years...my man Knew me when I was *normal*...He knows what I use to be and he is still with me..Thank God... Our kids are 25 and 21...and our yougest one doesnt remember the old me... that kinda makes me sad....but I am so lucky to have such a GREAT family....I am soooooo lucky.....

[ParanoidKitty]

Aww you really are lucky. Too bad my relationship didn't work out, he knew me when I was normal too. I think it made it harder for him in some ways tho to see me go from lively and ALWAYS doing something somewhere to being bedridden or hurting all the time. You lucky bum you =P

[leanne18leanne18]

I have been let down so very badly by my family. My husband chose to disbelieve I was ill and drove me out of the home by being horrible to me. He poisoned my eldest child against me and told untruths to my family. I had learnt to accept my illness and became very spiritual. Now all my family want me sectioned. I am absolutely devastated. I do not understand why and keep asking WHY?

[ParanoidKitty]

That is one thing I HATE about invisible illnesses. I wish there was some scientific proof so people would SEE that yes, you are really sick. Some ppl are scientific and without proof they refuse to believe because you dont 'look' sick. It's a huge problem we all face. I am sorry to hear about this. =(

[mahoganydreamz]

I have watched your series and I thank you making this video. I have had Fibromyalgia for about 8 years now. So I am still struggling with it, and I do not work anymore. Your video was very encouraging and helpful. I will post my own video in the future.

[ParanoidKitty]

I'm glad some good came from this video. Sorry to hear you have it too. Please send me your video when you do post one, I would love to see it.