Hello Michelle, first of all I want to THANK you for having the gutts to say what alot of us fibro people want to say, but can't or don't for whatever reason. I've had fibro for 7 years now. Well, i was idagnosed with it 7 years ago BUT, i know now that I have it longer.... ANyway... I am posting about your song... I love it! With your permission I would love to have it mixed by a very talented music engineer. ? If so, send me a note with your permission... Thank You & GOd Bless You!
@shellbunique Hi Michelle, my son and his g/f and I! listened to this song.. and it just stuck to our heads, we we're all singing it for most of the morning...lol great song... my son asked if you could so accapella. Because he would like you get a song completed. and for FM awareness! You have a great voice! and the song about fm was great! take care and hope to hear from you soon!
i usually warn my husband and daughter ahead of time that i am having a "sick day" when the pain is unbearable, when i say "i can't stay awake", usually my daughter will take over what i am doing. when i go somewhere i have to go, i look at my daughter and say "you know the drill", she understands it to mean i cannot move without assistance and will get my chair out or get me an electric cart. when i say "air hugs today" she knows that my skin is on fire.
Teresa was listening to this, Michelle. She is determined to be heard. She says "Mom, when I find the woman I love more than anything and want to be with, I don't want anything to stop us from marriage and having kids either by adoption or otherwise." I told her, "You know what you have to do." She has been studying a lot. So, she is finally wanting her voice to be heard on this. I am very proud of her. She is very smart and strong willed.
@mcertonio oh i'm sure. already caught it from my mother, told ya that. its my job to be her mother and suppert her, no one else's. they can piss off.
This is my response to the question, how you feeling or doin? I always say Iam tired lol......yes The lol is part of my response. I actually had a friend ask me the other nite, why are you tired? I was like wtf!? he has even done a awareness show for me! Yet he is like why are you so tired, why do u want to go to sleep at 6? I was like dude! It's called ME/CFS...................gave him a reminder in the nicest way. lol
@mcertonio Let me get this straight. Your disabled friend told you that what you are suffering from is comparable to a paper scratch? I would have been too offended to hold my tongue. She obviously has no clue how you are day to day. (this is a problem I have with people) If she can travel and have fun without a second thought is not disabled and the reason she isn't getting a check. right? Some people! I looked up Lymphedema. You are blessed with a doc that at least looks for things.*sighs*
@dawnten How are they treating Lymphederma? Im going to my neurologist tomorrow and haven't been able to keep awake or sit up straight for days. Hope you know that someone on here realizes how terrible you feel and how special and far between what we say good days are. Our good days are what a normal might consider as being a bad one. Going to write instead, this thing isn't big enough. Your perspective on things or advise would be invaluable. Don't stop singing hun. We can't give up. Love xo
Hello Michelle, first of all I want to THANK you for having the gutts to say what alot of us fibro people want to say, but can't or don't for whatever reason. I've had fibro for 7 years now. Well, i was idagnosed with it 7 years ago BUT, i know now that I have it longer.... ANyway... I am posting about your song... I love it! With your permission I would love to have it mixed by a very talented music engineer. ? If so, send me a note with your permission... Thank You & GOd Bless You!
shellbunique 9 months ago
@shellbunique Thanks, I would love to work with Musicians/ producers, i have ALOT of material
And NO energy to complete anything. I had 2 CD's out--IN MY FORMER LIFE--
I was Co-Writer. I really want to Produce my songs Along with my ART-- AGAIN- NO energy.
If you have FACEBOOK I have 35 original pieces. A couple Are FM & my Fibro hell Michelle SELF PORTRIAT
Speaks for itself. Thanks For any help
mcertonio 9 months ago
@shellbunique Hi Michelle, my son and his g/f and I! listened to this song.. and it just stuck to our heads, we we're all singing it for most of the morning...lol great song... my son asked if you could so accapella. Because he would like you get a song completed. and for FM awareness! You have a great voice! and the song about fm was great! take care and hope to hear from you soon!
shellbunique 9 months ago
@shellbunique You bet babe!
mcertonio 4 months ago
i usually warn my husband and daughter ahead of time that i am having a "sick day" when the pain is unbearable, when i say "i can't stay awake", usually my daughter will take over what i am doing. when i go somewhere i have to go, i look at my daughter and say "you know the drill", she understands it to mean i cannot move without assistance and will get my chair out or get me an electric cart. when i say "air hugs today" she knows that my skin is on fire.
tamra1975 1 year ago
Teresa was listening to this, Michelle. She is determined to be heard. She says "Mom, when I find the woman I love more than anything and want to be with, I don't want anything to stop us from marriage and having kids either by adoption or otherwise." I told her, "You know what you have to do." She has been studying a lot. So, she is finally wanting her voice to be heard on this. I am very proud of her. She is very smart and strong willed.
tamra1975 1 year ago
@tamra1975 SPEAK LOUD & CARRY A BIG STICK! And if you do it right----- You will be CRITICIZED! Fibro Hell Michelle
mcertonio 1 year ago
@mcertonio oh i'm sure. already caught it from my mother, told ya that. its my job to be her mother and suppert her, no one else's. they can piss off.
tamra1975 1 year ago
It is amazing! Take nothing said--Personally, I realize that is difficult.
As A former Singer & now Artist, You get A thick skin--OUTSIDE AT LEAST) LOL, NO ONE and I mean NO ONE will understand.
Even If we could put them in our bodies for 10 minutes, it would
Only be 10 minutes! I showed my DAD A 300 page Book, He went
To the chapter on exercise because he WANT TO HELP, But There
Will always be blinders on people (Even though they love us).
We have to KEEP STRONG! WE KNOW! more later
mcertonio 1 year ago
This is my response to the question, how you feeling or doin? I always say Iam tired lol......yes The lol is part of my response. I actually had a friend ask me the other nite, why are you tired? I was like wtf!? he has even done a awareness show for me! Yet he is like why are you so tired, why do u want to go to sleep at 6? I was like dude! It's called ME/CFS...................gave him a reminder in the nicest way. lol
ironbith 1 year ago
@ironbith Gosh i hate it when people ask "Hey! How you doing? you look great!" ugh, what t hell am i supposed to say??? so awkward!
shellbunique 9 months ago
Its sooo good to see you!! {{hugs}} Your song brought tears to my eyes. love you!!
dawnten 1 year ago
@dawnten So CHECK OUT THIS!
Went to A movie for the 1st time this year & my "friend" knew before
Disabled compared my disability to a "PAPER SCRATCH". She travels- works full time I realize she problems-- BUT said I was lucky because of my Gov.
Check! & yes i am, I worked 2 to 3 jobs since I was 13. My d/x is Central Nervous disorder, Demyelinating
Nerves elbows & wrists. Disks C3 & C4- CFS/ Epstein barr/CMV
My new favorite Lymphedema. She thinks Our Lifestyles are the SAME! ANY COMMENTS?
mcertonio 4 months ago
@mcertonio Let me get this straight. Your disabled friend told you that what you are suffering from is comparable to a paper scratch? I would have been too offended to hold my tongue. She obviously has no clue how you are day to day. (this is a problem I have with people) If she can travel and have fun without a second thought is not disabled and the reason she isn't getting a check. right? Some people! I looked up Lymphedema. You are blessed with a doc that at least looks for things.*sighs*
dawnten 4 months ago
@dawnten How are they treating Lymphederma? Im going to my neurologist tomorrow and haven't been able to keep awake or sit up straight for days. Hope you know that someone on here realizes how terrible you feel and how special and far between what we say good days are. Our good days are what a normal might consider as being a bad one. Going to write instead, this thing isn't big enough. Your perspective on things or advise would be invaluable. Don't stop singing hun. We can't give up. Love xo
dawnten 4 months ago