When I get my attack at first(this only happens some times) my face gets goosebumbs in a numbing way, then I get all tired and then start to vomit like crazy! if the pain is on my right my right eye starts to hurt as hell, and the right side of my face drops down. super sensitivity to light and sound :( my last attack was just a few days ago on Christmas, I spend the 1st day of Christmas at the hospital, arghh this is ruining my life, I can't even get a job. :(
I've watched this video before and all your symptoms are hemiplegic migraine...but the one that seems strange is loss of movement on both sides of your body at the same time. That doesn't seem right.....it should only be one-sided. What do your MRI's look like? Did they do an MRA too of the vessels in the head and neck? I noticed someone had mention in the comment section (chiari malformation)......I knew someone with that and they had pain in the back of the head and many other symptoms.
Hi, just found a link to your video from facebook. I've had these migraines I'm guessing since I was born, but my family didn't notice anything wrong till I was three. I found sometime last year that I'm having hemiplegic migraines. They're horrible. They've ruined my chances of going into the military. I have to be careful when I'm training(I train in martial arts) because we never know if i'll have one. Good thing is, I'm going to college for free because of them.
It's very scary! I've had it since I was 3 years old. I asked my neurologist if I'd be able to tell the difference between a hemiplegic migraine and a stoke and he said no. So, of course we won't get those clot busting drugs!! I turn 39 years old tomorrow and it's only gotten worse. Did you know that it's a genetic disease involving 1 of 3 proteins that carry out nerve conduction. We either don't have that protein or it's damaged. :-(
1. You have no idea how happy I am to see another person's face who has Hemiplegic migraine, because I don't think anyone else can understand this unless they actually go through it. I have had it for almost 3 years now and it has been really difficult. The information on hemiplegic migraines is scant so most doctors I had been to did not even know what was wrong with me when I went for a primary diagnosis. I have heard it all!! I have been through so many doctors and so many medications.
I have right-sided paralysis, transient aphasia, slurred speech, etc. etc. Currently, I am very symptomatic and have migraines daily. What are the names of some of the active support groups you have been able to find? I haven't found any, only some message boards, but there are very few people with hemiplegic migraine on it so the boards are inactive. I hope to hear lots more from you about your journey. Thanks for sharing. I really appreciate it. :-)
When I get my attack at first(this only happens some times) my face gets goosebumbs in a numbing way, then I get all tired and then start to vomit like crazy! if the pain is on my right my right eye starts to hurt as hell, and the right side of my face drops down. super sensitivity to light and sound :( my last attack was just a few days ago on Christmas, I spend the 1st day of Christmas at the hospital, arghh this is ruining my life, I can't even get a job. :(
jonathanfater 2 months ago
I've watched this video before and all your symptoms are hemiplegic migraine...but the one that seems strange is loss of movement on both sides of your body at the same time. That doesn't seem right.....it should only be one-sided. What do your MRI's look like? Did they do an MRA too of the vessels in the head and neck? I noticed someone had mention in the comment section (chiari malformation)......I knew someone with that and they had pain in the back of the head and many other symptoms.
Wivanunu 8 months ago
did you have blood testing to get this diagnosis?? its a gene test that can take months
hope your'e doing ok today!
FlyinHyy 11 months ago
Hi, just found a link to your video from facebook. I've had these migraines I'm guessing since I was born, but my family didn't notice anything wrong till I was three. I found sometime last year that I'm having hemiplegic migraines. They're horrible. They've ruined my chances of going into the military. I have to be careful when I'm training(I train in martial arts) because we never know if i'll have one. Good thing is, I'm going to college for free because of them.
Renegade17441 1 year ago
It's very scary! I've had it since I was 3 years old. I asked my neurologist if I'd be able to tell the difference between a hemiplegic migraine and a stoke and he said no. So, of course we won't get those clot busting drugs!! I turn 39 years old tomorrow and it's only gotten worse. Did you know that it's a genetic disease involving 1 of 3 proteins that carry out nerve conduction. We either don't have that protein or it's damaged. :-(
Wivanunu 1 year ago
1. You have no idea how happy I am to see another person's face who has Hemiplegic migraine, because I don't think anyone else can understand this unless they actually go through it. I have had it for almost 3 years now and it has been really difficult. The information on hemiplegic migraines is scant so most doctors I had been to did not even know what was wrong with me when I went for a primary diagnosis. I have heard it all!! I have been through so many doctors and so many medications.
lnm00996 1 year ago
I have right-sided paralysis, transient aphasia, slurred speech, etc. etc. Currently, I am very symptomatic and have migraines daily. What are the names of some of the active support groups you have been able to find? I haven't found any, only some message boards, but there are very few people with hemiplegic migraine on it so the boards are inactive. I hope to hear lots more from you about your journey. Thanks for sharing. I really appreciate it. :-)
lnm00996 1 year ago