Shana Martin: Channel 15 Huntington's Disease Profile

[DJoyceR]

Thank you for providing me with a video that I can show my 10 and 11 year old granddaughters whose Mom (my daughter) is becoming symtomatic. You are an inspiration with the best message on all the web. I will use this when I approach the issue of what is happening to their Mom. Unfortunately, their Dad is not at all helpful in this awful situation and has behaves angrily and mean around their Mom. I try to tell him how important it is that he respect her so that her daughters will as well.

[AudioPhilister]

I am one of eight in my family. I love you all.

[townsendshelly]

that is what i had,,my mom been sick sence i was young,i got test at 26,,i am 37,,i am full of fear

[robertdeboor]

i've got a 50/50 chance for HD as well, my mother has it and i havent been tested for it and just having other things to concentrate on and focus on really does help stop the stress of weighing what could or could not be everyone who is fighting against this disease and diseases like it should be commended for everything that gets done for it and hope for a cure

[BrokenBisquits]

why does she put her mom in front of a camera?

I would never ever want my mom to feel embarressed. Maybe that's just my opinion. But it makes me cry to see her. Huntington's disease is sooooo difficult to live with and she plays it so cool. She doesn't even know if she got it.

Well, In my familly , no one escaped from it.

All of my brothers, uncles, aunts.

No one of them has children, only my mom. she got me.

And I haven't got tested yet. Just got 18 .

So I'm sorry for my writing mistakes x

[njbartholomew]

@FreddyThaNightmare is there something wrong with you?. i mean come on, this is a horrible disease and you say something like that?. what goes around comes around. i'm sure what you got coming will get to you eventually.

[njbartholomew]

@FreddyThaNightmare what is wrong with you???? what goes around comes around and im sure a petty person like yourself will get theirs in due time. If you ever had a close relationship with someone who had this awful disease then you wouldnt be making comments like that...your disgraceful!!

[FreddyThaNightmare]

@njbartholomew that was awful thing to say indeed, i can't even remember writing that.. im sorry, i truely am.

ive had my close relations with people in worse condidtions so i dont wanna go in on that subject.. But why even bother ? why go down to that chlidish level and respond to a negative comment like that ? is that your way to deal with the issue? i have no idea what ignorance was over me when i wrote that. but i came here to say sorry for attacking you personally, i suppose

[Patriessmits]

Hi Shana, my mom died 3 years ago, she looks like your mom with her moves. My aunt have it too. I don't have the HD also as my twin sister but my little sister (19) know that she wil have HD when she is arround 35.

I just read the comment from welwitcha who is she to judge about. Many people thinks that they know what we experience but they can only say it when they have someone in the family who have HD. It's a very hard disease.

Good luck with everything wat you wil do.

Best Regards Pat

[sasafraz11]

my family has a history of huntington disease wich means i and my twin brother and older sister have a chance of getting it

[welwitcha2000]

The patient is a social parasite, having reached a certain state, it is inappropriate to live a long time, the stubbornness to vegetate cowardly, slave doctors and medical practices,

after we lost the meaning of life right to life, society should despise,

Physicians are responsible beings intermediaries contempt, they will bring more order, but each day their patient another dose of disgust

[shanaUW]

@welwitcha2000 my mom is unresponsive but DOES know what is happening. I do not see her as a "social parasite" and am sickened by your words.

[frewcc]

@shanaUW did you decide to get tested? my uncle had it and have 2 kids. my aunt decided not to test.. i think testing is better so they can plan for the future, but maybe its better for my cousins to decide if they want to be tested later on. do you think it will make your life worse if you knew you were going to get it too? how old are you now?

[addisonroadfan12]

@welwitcha2000 Wow, you are an awful person.

[none331]

Good job <3

[robbspencer]

huntingtons just took my father. he was misdiagnosed "paranoid schizophrenic" for years...my sister just tested positive.I am going to be tested soon.i'm 34 years old, and i want to create awareness of this dreadful disease through my music.

[keenandwhat009]

God can you imagin how her mum was feeling when she found out, what a shock that must of been.

[marygenna]

Shana reminds me of myself.before hd. i was like bionic woman. runner,biker hiker and more. slowly the disease has taken much of this. i pray that she does not have this tormenting gene. i must say it was hard to hear her say "sitting around feeling sorry for yourself" but i realise it is because she does not know "personally" what the disease is. i watched my mom,and aunts and uncles,but until the symptoms hit you.....you really don't know the struggle. I appreciate her speaking out .

[markluyk]

Thanks Shana, good to see you and your mum together.

[MrCasey741]

that is so sad

[leslielounge]

great video..it is inspirational

[keenandwhat009]

I wonder if she's got it now, and how does that feel? like after been so fit and everything. Now that would be a knock-out

After been so fit, and to stuggle with jd would be just the worse.

[britskin88]

my mum died at 47 from hd.ive got it now