It's sad that we can't rely on Doctors anymore, but rather we have to research on our own by utilizing the internet. I just saw my first neurologist. After that cold blooded jerk looked at my MRIs, he said I'm fine and that my pain and symptoms will disappear if I deal with my depression and PTSD. WTF???
I left the appointment and cried all day, broke and hopeless, ready to give up. I know I have a long road ahead of me, if I can even make it. I'm looking into the possibility of M.E. or C.F.S.
Hi. I am currently a PA student learning about neurologic conditions. I think videos and documentaries of patients' experiences (like yours) are invaluable when it comes to learning these not-so-common medical conditions. It's one thing to read it out of a text book, but its a whole new playing field when you put a face to a name and hear someone actually go through the whole experience. Thank you for making this video.
A a fellow sufferer I'm so pleased that you are finding these videos helpful for your studies - the more people like you who can understand the extent of the problems people like Paul suffer, the more chance of things changing!
I think this condition is not so much "not-so-common", as not so recognised or diagnosed. There are estimated to be abount 250,000 sufferes UK, of which 50,000 are severely affected.
Great job with your videos. Thanks for helping to raise awareness about what ME really is. I did get a lot of tiredness but that was more in the first few years of my illness, nowdays its the neuro symptoms eg body spasms, tremors and weakness (along with pain) which bother me now. I tripped over several times today cause one of my legs was dragging some.
This definitely strikes a cord with me. First of all, notice how Neurologists, specialists and other Drs never say outright "you have ME", which in my case left me baffled for a while as to whether I was actually diagnosed with it or not! I don't get much pain or flu either but am having trouble walking.
It's sad that we can't rely on Doctors anymore, but rather we have to research on our own by utilizing the internet. I just saw my first neurologist. After that cold blooded jerk looked at my MRIs, he said I'm fine and that my pain and symptoms will disappear if I deal with my depression and PTSD. WTF???
I left the appointment and cried all day, broke and hopeless, ready to give up. I know I have a long road ahead of me, if I can even make it. I'm looking into the possibility of M.E. or C.F.S.
miasansom 3 years ago
Hi. I am currently a PA student learning about neurologic conditions. I think videos and documentaries of patients' experiences (like yours) are invaluable when it comes to learning these not-so-common medical conditions. It's one thing to read it out of a text book, but its a whole new playing field when you put a face to a name and hear someone actually go through the whole experience. Thank you for making this video.
jcu313 4 years ago
A a fellow sufferer I'm so pleased that you are finding these videos helpful for your studies - the more people like you who can understand the extent of the problems people like Paul suffer, the more chance of things changing!
I think this condition is not so much "not-so-common", as not so recognised or diagnosed. There are estimated to be abount 250,000 sufferes UK, of which 50,000 are severely affected.
ivortick 4 years ago
Great job with your videos. Thanks for helping to raise awareness about what ME really is. I did get a lot of tiredness but that was more in the first few years of my illness, nowdays its the neuro symptoms eg body spasms, tremors and weakness (along with pain) which bother me now. I tripped over several times today cause one of my legs was dragging some.
taniaaust1 4 years ago
This definitely strikes a cord with me. First of all, notice how Neurologists, specialists and other Drs never say outright "you have ME", which in my case left me baffled for a while as to whether I was actually diagnosed with it or not! I don't get much pain or flu either but am having trouble walking.
neelubird 4 years ago