My daughter was diagnosed with this about 13 years ago she has no medical issues but does have seizures and learning dificuties. Glad to see these videos out there to help people becoume more aware.
my lil girl was born 10-18-97 with di georges syndrom her name is orion and shes gotta alot heart problems no holes learning probs and bowls are twisting but shes awsome
My son was 3 years of age when diagnosed with DIgeorge syndrome! He had open heart surgery at 7 weeks old to fix an ASD and VSD, multiple surgeries with his ears, and just recently surgery to fix his cleft pallet common in DiGeroge Syndrome Children. He doesn't speak but signs and is the most amazing kid ever. God bless all the lil ones out there going through it, and even more God Bless the parents, you'll need it! Good luck!
The syndrome is caused by a deletion of a small piece of chromosome 22 near the middle at an area called q11.2 it is estimated that it affects 1 in 4000 though doctors reckon this to be higher as a lot of people may only have light symptoms and have never been tested.
My son was born on the 26.07.05 and was diagnosed with Di George syndrome he was Oxygen dependant , needed fed through a nasal gastric tube and had to have open heart surgery for a hole in the heart.
Since age 3 he has gone from strength to strength he is now in his pre school year and although his language is still slow he makes himself very clear on what he wants to do.
My daughter has VCFS, and we have just recently gotten this diagnosis. She was born on 11-22-2006. I had never even heard of this disease until the doctor called to tell us her results. I felt so lost...and empty. I love my little girl more than life, and was terrified of all the things she might have to face. She has only very mild symptoms, so far. We are awaiting test results for our other daughter. I hope that more people watch this, and get informed about VCFS. God Bless!
In my class Special Education Early Childhood. We had a little boy with digeorges. He's going into regular kindergarten. He was just alittle delayed with his speach and language but he isn't anymore.
My daughter was diagnosed with this about 13 years ago she has no medical issues but does have seizures and learning dificuties. Glad to see these videos out there to help people becoume more aware.
koolztar007 1 year ago
my lil girl was born 10-18-97 with di georges syndrom her name is orion and shes gotta alot heart problems no holes learning probs and bowls are twisting but shes awsome
oceanstar1224 1 year ago
my sister is 16 teen and her daughter has digeorge syndrome and she is not doin good with it.
brandybritton02 1 year ago
My son was 3 years of age when diagnosed with DIgeorge syndrome! He had open heart surgery at 7 weeks old to fix an ASD and VSD, multiple surgeries with his ears, and just recently surgery to fix his cleft pallet common in DiGeroge Syndrome Children. He doesn't speak but signs and is the most amazing kid ever. God bless all the lil ones out there going through it, and even more God Bless the parents, you'll need it! Good luck!
BAILDNC1986 2 years ago
Described in 1968 by geneticist Angelo Di George
The syndrome is caused by a deletion of a small piece of chromosome 22 near the middle at an area called q11.2 it is estimated that it affects 1 in 4000 though doctors reckon this to be higher as a lot of people may only have light symptoms and have never been tested.
Donnie303 2 years ago
My son was born on the 26.07.05 and was diagnosed with Di George syndrome he was Oxygen dependant , needed fed through a nasal gastric tube and had to have open heart surgery for a hole in the heart.
Since age 3 he has gone from strength to strength he is now in his pre school year and although his language is still slow he makes himself very clear on what he wants to do.
Wee josh looks very happy great vid
Donnie303 2 years ago
My daughter has VCFS, and we have just recently gotten this diagnosis. She was born on 11-22-2006. I had never even heard of this disease until the doctor called to tell us her results. I felt so lost...and empty. I love my little girl more than life, and was terrified of all the things she might have to face. She has only very mild symptoms, so far. We are awaiting test results for our other daughter. I hope that more people watch this, and get informed about VCFS. God Bless!
hoss12686 2 years ago
what is VCFS?
thuruma 2 years ago
I just did a quick look on google and it stands for "velocardiofacial syndrome", hope everything goes well with your precious children....
best wishes
thuruma 2 years ago
In my class Special Education Early Childhood. We had a little boy with digeorges. He's going into regular kindergarten. He was just alittle delayed with his speach and language but he isn't anymore.
Aluapay 3 years ago
It can range from mild to very severe..
hazeleyyes 2 years ago