Added: 2 years ago
From: DysautonomiaMD
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  • luminescentfeeling, MD your lectures and keeping us updated with Journal Club is a boost of the highest order. Knowledge is power.

    dhronicallykyliMD: thanks for your support.

    radlikemadMD: I'm sorry you're so young, but you represent the future.

    dysautonomia1: keep stopping the suicides.

    God will send a wave of help soon.

    Everyone: please pray with us as to whether the timing is right to start a nonprofit organization. ? .

    We could bring food to someone who is bed-bound.

    dysautonomia1:

  • Thank you for keeping us in prayer as this year ends and we are thinking of starting a Foundation for Dysautonomia next year. We would need support from our Brothers and Sisters, including Prayer for stopping the suicides from dysautonomia.

    You have no idea how much good you are doing for us.

    Thank you a million times over.

    Your Sister in Christ,

    Margaret

    P.S. Love the congregation of prayers going up to God's ear! Thank you! Keep the bubbles of prayers going up to God's ears! :-)

  • This is the first vid of yours Ive watched and its really lovely, thanks for being to open and honest, is good to know we are never alone xx

  • Yes, it is true.

    No one is ever alone.

    God has a specific Plan for each and every one of us SURVIVORS are we all! Fondly, Dr M

  • Sending love and prayers xx

  • Accepting love and prayers from an angel.

    You made my day. I don't think we've met yet, but I love it when 'new' people drop in on 'us'. We are all a Team of SURVIVORS and I hope to have a big New Year's Surprise for everybody with Dysautonomia.

    Today, you are my angel. Thank you. Lots of Love, Dr M

  • aww thanks for that lovely reply. No we havent met yet, Im angelsolace AKA amy. Am friends with luminescent feeling on facebook.

    Am also on myspace too, are you on either of those?I have ME & Fibro and suspected POTS, seeing specialist in new year about it.

    Thanks so much for the lovely reply Dr M, hope you have an improved week.

    A x

  • Hi, I'm on FB but I hardly look at it; I'm usually on my lifeline, helping figure out this quagmire we are in together.

    Thinking of starting up a nonprofit organization? We are. ?

    Please be with us in prayer as God shows us the way.

    Hoping that 2010 brings ALL of us, and EACH of us, together in a way we never thought of. I THANK GOD He is with us. Highest Personal Regards, Dr M

  • Just wondering, R U okay ~ wassup w/ Urself:

  • I think I was in the hospital 2 weeks ago...dehydrated and received fluid replacement.

    Fluids..fluids..fluids...PICC Line or drink? I'll go have some more hot chocolate... Recuperating, still. Thanks so much for asking. Stay outa trouble will ya?

  • What trouble is that ~ hun :

  • I think being a Mich Chevious Trouble Maker Rebel Rouser Warrior for Christ, a SURVIVOR of this hell of dysautonomia that we are in...hey. I hope to get in a little bit of trouble every day. Fun trouble. The kind that makes you laugh so hard it makes you cry. Or, some people snort with their nose.

    Of course, I honestly have been known to snorkle/snort when I'm really, really, really, really laughing. I know if I don't tell you, you will find out the truth anyway.

    So snorkle snorkle & LOL!

  • More of a tribble myself :-) ... How's the vid comin' along ~

  • Btw ~Ur not snorting any "snow candy" ? ~ & did U hear about Roberts:

  • some nice co-co, xbox live, & Ur all set :)

  • Actually, fluids are important; my fingers are swollen so my rings leave puff marks. I'm hoping that is because I am hydrated..but boy, do I ever feel waterlogged.

    Co-co with marshmallows on top...the best on a cold day!

  • Thank you so much for taking the time to show you care.

    God's children need to join me on this one....the job is too big for any one person.

    You are an answer to prayer, and I thank God for Pastorgeorgec also.

    Your Sister in Christ,

    Margaret

  • Thanks be to God that we found Pastorgeorgec...

    I believe a new light has begun to shine.

    Thank you so much for your loving acceptance as a Friend.

    Highest Personal Regards,

    Dr M

  • Keep on doing great job M. My self ME for over year, POTS is one of 40 symptoms I have..

  • I think you have found a great place to be, You Tube.

    Welcome, albeit I'm sorry, to our Place.

    Looking forward to getting to know you better.

    Since everyone knows that I'm 49 now, does that made me the oldest one with dysautonomia? Who's the youngest? Who's had it the longest?

    My heart is so heavy for ME/Dysautonomia.

    Things are changing, and the winds are turning.

    Highest Personal Regards, Dr M

  • I prefer a Private video - before I'll give myself to chain mail

  • Thank you. Your plaque is still in the making ;-).

    Margaret

  • ..and thankyou for your dedication, diligence and knowledge in setting up such a medium where knowledge and hope can be gathered together all for one good...change that will and must happen.Take great care of yourself.

  • I thank all of you for your trust in me , a doctor, who is also jailed in the same body that you have. Good thing we all have each other. Dr M

  • So sorry to hear you guys are particularly poorly at the moment.May you be blessed with stronger bodies very soon.Dr M, your spirit is strong and our mission for justice and dignity to be restored for precious human lives can never be extinguished. What is right and just will prevail.Luminescentfeelings channel is a meeting place of 'real' people who care and CAN change things with knowledge and words that can never be erased. So many depend on this happening.

    Many Blessings.

  • Thank God that I got dysautonomia, some would say, so that a real MD could tell the medical world. Thank God for luminescentfeeling...I was just thinking today that were it not for him, I would not have had a 'jumping board' onto YT.

    This Cause Will Win. Highest Personal Regards, Dr M

  • Bless you Margret - wow you surely don't look to be 49

    I will go visit with your friend and sit with them a while - like it or not I am now part of your team.

    I don't know too much about medicine but I got a good hook up with a great Physician

  • Yes, it is Jesus the Great Physician. I knew I could count on you. Especially because we will get to spend ETERNITY together! Seriously, thanks. And seriously, you crack me up.

    God love ya!

    :-)!

  • hope your all feeling better soon! have some ~sparkles~ to help you on the way! i'm thinking of you! ~lots of huggles~

    lil sis xxx

  • I was just thinking about you today...wishing you Pixie Dust from Tinkerbell splashed all over your head! LOL, Margaret XXX

  • My prayers are with you my friend and I know that God has already taken care to protect you and all of your family from the flu. I, too feel that we are "real" friends and will remain as such for eternity. May the Lord bless you and keep you safe in His loving care!

    Your Brother In Christ,

    Jeff

  • Thank you...I'm sorry, but I want luminescentfeeling to be together with us in Heaven.

    Please send him some encouragement/Video Response so he knows how much he is loved and needed. Sometimes, we just have to KNOW we are needed.

    LOL,

    Margaret

  • How are you with your toothache?

  • The swelling has gone down considerably since I went to the ER and got some penicillin and pain pills. I had to d/c the pain pill because they caused severe urinary retention...not good. The pain is tolerable now and I have an appointment for a consultation with the oral surgeon on Friday and hopefully by Saturday or at the latest Monday, he will do the surgery. PRAISE THE LORD, NO MORE TOOTHACHES!!! Hope you are doing well Margaret, talk to you later!

    Your Brother In Christ,

    Jeff

  • I am praying for all of you to get past the flu!!! It hit our house pretty bad.Thank you for being so passionate for the "cause". May God bless you and your sweet family ;) -Cindy

  • All my thanks to God and to luminescentfeeling, whose YT Channel has changed my life. Thank you so much! And even more, I thank God that he is not just a virtual friend. He is a real friend that I love dearly. ((Hugs)) Margaret

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