Added: 2 years ago
From: salcedo199
Views: 9,482
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  • i have lupus as well... :-/

  • Hey! I have Lupus and I know each one of us can overcome it. Check out my blog :mypurplebutterflies.blogspot.­com

  • Hi. I've been seeing a dr that I was sent to because of low blood count and loss of weight. I found out on thursday after almost a year and a half I asked him and he said I have a touch of lupus. Apparently right now it's mild so it's ok. Basically the only thing I have right now is hair falls out and joint trouble and tiredness. I still have the weight off of me I lost. Sometimes I don't feel like eating much.. esp lately. I also had a fever recently.. :o I'm sorry what you've been through. Tc

  • I think Dr's don't think of Lupus because it's not common in boys or men. Actually I had a copper colored rash, fatigue & joint pain way before I was diagnosed several yrs later after developing lupus nephritis after having my son. I believe I had lupus in my teens because I had blood & protein in my urine & joint pain

  • hello friend, i was wondering if when diagnosed if you were drinking a lot of soda or coca cola? thanks

  • @ncbookz no, never really draink soda. was more of a juice person XD.

  • ever tested 4 lyme ?

  • @maciejwrotek no i haven't

  • @salcedo199 ever had a tickbite ?

  • @maciejwrotek no i have not. ^_^

  • @salcedo199 some ppl dont notice, they r so small

  • @salcedo199 circular rash, expanding ring ? like bulls eye ?

  • Thank you Victor, I really didn't know much on the subject of Lupus and I so appreciate you sharing your experiences in order for someone like me to be more aware. I came across your video due to viewing a tribute song by Julian Lennon who lost a dear school friend to the disease. She was the woman who inspired the song "Lucy In The Sky With Diamonds". All the proceeds from the song is going to Lupus research. Very nobel of him but I wish he would spread the word as to what lupus is.

  • @shine4362 thnak you for watching. my friend Michelle also makes awarness videos she has so much informationon. please see some of her videos. her username is Michellemlm

  • youtube.com/watch?v=BVn-jmCi4z­I

  • OMG Victor! This is my almost exact story about the whole entering high school and stuff. Im going into 10th grade and I recently visited Dr. Mccurdy and Dr. Rullo at UCLA . I have mostly all of the Lupus symptoms and they are looking at my different blood tests.

  • @cooljc57 u see doc. mccurdy, too lol she is a great doctor. hope ur doing better.

  • im so sorry for ur suffering friend INSHALLAH ur condition will not cause u anymore suffering.

  • @TheRulaBaby  thank you

  • Thanks victor for your message.

    I found I had Lupus when I was 23. It's been eight years now. I also went to many hospital until I found out that I had lupus. Same with you, dermatologist found it. I am currently down to 2mg in steroid. Keep working man! We will make it! I stay out from the sun, but I still do a lot of climbing!

  • @cheerioc i hope everything is going good for u

  • you will do just fine. Keep your diet healthy and doing moderate excises.

  • @sonofmanchu thanx for the advise ^-^

  • Hi Victor. I found you thru Michelle.  I'm sorry you have lupus. I have it too. I'm sure I had it my whole life but it wasn't diagnosed until a couple years ago. Keep talking to us. Keep spreading awareness. Reach out when you need us. (((Victor)))

    Love and Light to you

  • @WillowDove40  thank you i will keep on , love and light to you too

  • victor... I left you a comment last night but youtube's stuff isn't working and I just realized it didn't take. :(

    I wanted to tell you how proud I am and how great it is that you did this... You are very brave and courageous. I love that you are educating others about this disease...

    big hugs to you.

  • Ahhh! Victor...I'm so happy to see you in person. Your a handsome guy :) and I love your video..Thanks so much for your video.and your story

  • Great video! Very honest. Your detail of what it's like to find out what's happening when you when your trying to get a diagnoses is so brave. Thanks Victor!

  • @gsteviec thank you for watching ^-^

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