090504 HMRI Linda Campbell VCFS & Schizophrenia web

[lanaaw1]

I have it, I made a video of what I have. Add me if you want to talk about it!

[JeepBunny]

Thx it's so refreshing to hear that somebody in the medical profession has heard and is researching this syndrome. My daughter was diagnosed 2 years ago but only has a few of the symptoms. The most severe symptom is the mental illness which still isn't diagnosed. She is listed as an undefined psychosis & is being treated with anti-psychotics only which is frustrating. I hope you have more research I can look at and hopefully the more I bring to the dr maybe he will start to read it finally

[happymomist07]

He he he!! I think most of these VCFS people is very normal. I wonder how many doc's who have Schisophrenia?? I think it's a lot of them.

[JessicaKirbyshire]

Hi , I am a 26 year old girl with VCFS and i didnt know that i ad the syndrome untill the age of 18 years old. im from the Uk

[kracckers]

Thank you so much for all the work you do in trying to understand this syndrome. My son Derrik is 19 and I have had to manage my sons care pretty much on my own, learning as we go, without much help from medical professionals. Not because they don't care but because they are uneducated about VCFS. My son is doing well for now, at least until the next issue arises. It's something new with these kids every day, but I wouldn't trade one moment of it.

[HMRIAustralia]

Hi Tonya,

Thanks for commenting on the video. Your page is impressive. It's a great way to raise awareness of the condition for family members of people who have been diagnosed with VCFS.

I will pass the link onto Linda Campbell.

Kind regards,

Lauren Eyles, HMRI

[davidNtonya]

My husband was born with 22q11.2 Deletion Syndrome(VCFS) and passed it on to our youngest daughter...he didn't know he had it until she was born with health issues.