Added: 4 years ago
From: briancanova
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  • My father died from complications of ALS, he stopped breathing. Poryphoria that is hereditary form has similar ALS symptoms. Now my issue is getting tested. Dr. Edell had mentioned if one has a terminal disease to seek out county services they are much better than private. I found that to be true with my father having the best insurance that paid for very little. Gene testing is called for but I doubt I will get it. In this day and age should be very simple to do deal with uncertainty.

  • This is a great tribute to ALS people and may God Bless them. What Song is at 5:30 ?

  • Jason Becker also has ALS

  • My dad was diagnosed of ALS in september of 2009,im only twelve and i cant imaging loosing my father to this. : (

  • and now shes dead after 3 months in coma...feb.17,2010. we're gonna miss her...i love you mom...goodbye

  • what are they trying to say..are they saying theres no more chance for my mom to survive..are they trying to say just pull the plug and thats it..i want my mom to see one more time..its so hard for me to accept the fact that shes in there fighting for her life while me here working overseas..why is this happening?i feel im the one who is suffering from this ALS desease..i know in my mind in my brain what is going on but I CANT DO ANYTHING!!!!!I i dont know if its right to ask GOD WHY?....

  • It is not god who gave it to her, people always blame god for diseases ect. You should be praying for god day and night until she comes back, blaming him won't help..trust me.

  • It's all diet man, I can guarantee you this!

    Get her to eat all Raw foods until she's better and check out some of the superfoods at my store - StopTheRobbery . com

    Peace and good luck!

  • Comment removed

  • @keenandwhat009

    Give it to him, whos a big cry baby

  • Comment removed

  • people just push ALS off i did to until a loved one was diagnosed. there isnt enough money donated to research

  • fortunately things are actually looking up for ALS research. It's still not moving at a fast enough pace as most wish... but the momentum is increasing. My specialist told me that he feels confident for new treatments on the horizon, for the first time in his 40+ year career.

    hopefully this pans out. disgusting disease.

  • I believe most people with ALS have undiagnosed Chronic Lyme disease and coinfections. I had ALS symptoms and I'm getting better on long term antibiotic therapy.

    This use to be a RARE disease... now just about everyone you know knows someone who had it. Thats because Lyme disease has become more prevailant than AIDS and affects everyone so differently.

  • feel for anyone with this disease and am utterly discusted and apalled that the government isnt do a heck of a lot more to make it a priority to at least find a drug to really slow this down!! Its same diag rate as ms!!!!

  • there is an experimental drug to slow it down.

    can't say it does much though in my opinion.

  • amazing vid

  • LYME DISEASE is known as the "GREAT IMITATOR." It can mimic ALS, MS, ANOREXIA NERVOUSA, AND MANY MORE DISEASE. I am not trying to give false hopes but my info is accurate. Will email anyone a brochure on Lyme disease.

    Elaine in VA

  • My Dad also passed away from ALS, he lived about 9 months after he was diagnosed. Our family is in the unlucky 10% I have lost my dad, two uncles and an aunt to ALS. It's a sad terrible disease. It's sad to watch a love one die for this cruel disease.....

  • Hello. My dad also had als, when he died he was 50. How old were people from your family when they died?

  • so educational...

  • nice video thx :) next time use larger fonts joke hehehe its ok its tolerable :P

  • My grandfather died of ALS and now my uncle has ALS. I would love to get the information from your video, but the text is in a difficult font and size to read.

  • To slow/stop progression of ALS & MNDs, try coenzyme Q10 along with other immune boosters and of course the prescribed medicine (Rilozule). It has stabalized my sisters condition. It may be coincidence but her degeneration was first noticed after giving birth (physical trauma?)

    It's hard to believe that environmental pollutants & chemicals found in our air, water & food have nothing to do with the increase numbers of respiratory, neurological, and other diseases common in todays society.

  • what songs did you use?

  • Please Sign My Petition To Support The Stem Cell Research Enhancement Act that could help my Brother (and thousands more) With ALS-Lou Gehrigs Disease. There are no Cures for these and many more horrible death sentence of Diseases.

    Please Help! Go to i p e t i t i o n s .c o m and searach for als.

    ALS-Advocate

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