I have Dysautonomia and one other condition with which I have been diagnosed, is ulnar neuropathy in my left arm and hand. Just as you, I cannot hold anything in my left hand without it shaking uncontrollably. (This is just for general information). My prayers are with you and I pray someone will find a treatment that will lessen the symptoms you have or even eliminate them altogether. Don't worry about what others think, please continue to keep us informed.
@FallaciesDetective Thanks Mike. I'll have a look. The problem is trying to raise the funds to get these tests done. They should be available on the NHS, after all we paid our taxes, But as you know, the NHS doesn't care about people with ME, Fibro etc.
great video! have you ever tried the exa test? it tests the electrolytes INSIDE the cells, not in the blood
jeru333 1 year ago
I have Dysautonomia and one other condition with which I have been diagnosed, is ulnar neuropathy in my left arm and hand. Just as you, I cannot hold anything in my left hand without it shaking uncontrollably. (This is just for general information). My prayers are with you and I pray someone will find a treatment that will lessen the symptoms you have or even eliminate them altogether. Don't worry about what others think, please continue to keep us informed.
God Bless,
Jeff
jd450lh 1 year ago
Dear folks,
I would encourage everybody to get their
cytokine-levels tested...(interleukines,
like IL-1, IL-6, IL-8).
They are pro-inflammatory and in general
they seem to be very high in certain diseases,
especially also in CFS/ME and Fibromyalgia ...
all the best!
Mike
FallaciesDetective 1 year ago
@FallaciesDetective
PS: they can be tested in the blood, like e.g. with "r.e.d. labs" in Belgium (Prof. Dr. De Meirleir).
FallaciesDetective 1 year ago
@FallaciesDetective Thanks Mike. I'll have a look. The problem is trying to raise the funds to get these tests done. They should be available on the NHS, after all we paid our taxes, But as you know, the NHS doesn't care about people with ME, Fibro etc.
kaazoom 1 year ago
@kaazoom
Yes, sir! In fact they forget and/or fool us.
But the test is not too expensive, maybe around 200EUR or pounds...
I hope that you find a doctor who would do it and/or could send
it to Belgium/ r.e.d. labs. There might be other labs and also there might be
a limited time for the sending (it must be sent quick, I guess). So yeah, the best would be to go directly to the lab. God bless!
PS: you can also try taking banjo (Dr. Steve Roberts, also on facebook , a Christian doctor, nice man)
FallaciesDetective 1 year ago
@FallaciesDetective Do you have a link to Dr Steve Roberts facebook page Mike? perhaps you could PM it to me. I am on Face book too. Paul Winter
kaazoom 1 year ago
@kaazoom Thank you Mike. Now I know who you are on Facebook! I have so many people on my FB page I am not sure who everyone is!!
kaazoom 1 year ago