Sophie's Story: Tube Feeding and Cystic Fibrosis

[mimoapple1]

It won't work as I guess

[dionstrezlecki]

what about preposterously large doses of pancreatin?

[mimoapple1]

@childrensmemorial

will there is no g-tube i was so happy when i saw this video & it was like dream becoming true that i will finely become normal & i wont feel shy coze im so SKINNY but the doctors dosent agree with my point & the still want to wait i mean why they are doing these my wight is btween 36-38 and my hight is 160 pllz if anyone have any idea so i can make the doctor agree pllz just replay

[mimoapple1]

I have cf & ll get my g-tube soon -3

[childrensmemorial]

@mimoapple1 Good luck with your G-tube!

[r0xygirl15]

I also have cf. I have reached my body mass index due to maintaining what i eat and taking the correct amounts of creon 10,000. Sophie, i believe that a cure will be found and until then keep maintaining cf. :) I am studying to be a dietician because i want to help other people and apply my nutritional knowledge to food. Keep holding on -3

[DESSERTGECKO]

i hade one to kids ask me what happend all the tim i just tell them i got shot with a 22 rifle once i see there reaction i tell them it was a g tube i also hade the fundo so i just barf foam

[justinbieber2960]

I know how you feel i ha g-tube too and i am shorter than

[sony197]

ive seen her somewhere but I just cant figure out where

[calif92627]

Of course it is cool I got a barbell in my naval and both nipples pierced but how I would love to have one of those.

[marinna205]

She reminds me sooo much like me..I thought i was the only one with Cystic fibroses, and had a g-tube..I'm also 14, Aaah, Exept shes tall..I'm short.. :(

[127crazymonkey]

@marinna205 You are not alone. I am fifteen, I have a g-tube and CF too! I am also really short... Well, not short us CF peeps are fun-sized! XD Don't feel alone, you are never alone.. I'm just 5ft even.

[fantasiandreams]

@maxwell029....my niece also has CF and i too asked that question. I don't know about Sophie, but most people with CF can still eat meals and snacks as well as have the G-tube

[fantasiandreams]

Thank you Sophie for sharing this.

[maxwell029]

Does sophie only do tube feeding to eat . Or does she tube feed and eat?

[childrensmemorial]

@maxwell029 Sophie does both. She eats meals and uses the tube to give her extra calories.

[gleeisthebest1000]

Sophie is hot

[HorseGirl17789]

@gleeisthebest1000  dusgusting

[SIEMMERD]

My lovely sister died from CF.. i wish u the best! Keep holding on <3

[xeloraxyeahx]

Thank you this video was very helpful.