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  • thanks for this video,

  • beautiful

  • Thank you for showing us your precious angel.

  • I am sooo truly sorry for your & your families loss. I too lost a child to ARPKD, Kolby Brian, on June 22, 2001. He was only with us for 15minutes before GOD took him to be in Heaven with him, but I have & always will treasure every minute we were able to share with him, & he is forever in our hearts. I have since had a beautiful daughter, Kassie Lynn, who is perfectly healthy and is now 8yrs old. My heart goes out to you always.

  • I am so sorry for you guys, as I know exactly how you feel. Our firstborn He was a boy names Tristan was also born with ARPKD, and lived for 7 weeks in the icu. We also miss him everyday and will always cherish him in our hearts. Since then we had a healthy boy he is now 5 years old, and a girl she is 2 years old, she was also born with ARPKD but is doing very well. A real pillar of strenght. Our prayers go out to you. Love Jeanette Oosthuizen

  • I cant even begin to imagine your sadness and your loss. Your family must share a very beautiful strength to hold each other up. I have heard that when children are lent to us for a short time..that they are truley Angels sent from heaven.

    My son has just turned 2years old, and he is loosing his mummy to PKD, I grieve for him.. although I am still holding him, its hard knowing that soon I will have to let him go

  • i am so sorry for your loss. he looks so perfect. cant believe that he had to leave you.

  • this is one of the sadest things i have ever seen, how you must be feeling no one would know.

    i have PKD and so do 2 of my sons lets all pray for a cure.

  • hugs

  • What a beautiful family! I'm so sorry for your loss, thank you for sharing Jody with us.

  • I am so sorry guys for all your lossess. I am a PhD student who is studying proteins involved in Polycystic Kidney disease....

    God bless you all

  • I am very sorry for ur loss.

  • I had PKD and I was supposed to die at 12 months the doctors said I had no chance of living. It really is sad that other kids died when I didnt but i dont know what happened neither does my mom. They just told her that the kidney dissapeared along with the PKD.

  • i just loss my nephew he had PKD and he never got to breath and i never got to see him, this video brought me some comfort.. thank you

  • So very sorry about you loss

  • Thanks for sharing your angel with all of us! My husband and I just had a baby last August with polycystic kidney disease but he has the dominant form instead. It runs on my side of the family. I cried through this video. We pray for a cure. May you have comfort and know that God has a special plan for all of us.

  • I am very sorry for your loss.

    We need a cure for all forms of PKD; I can only pray that one day there will be one so we won't lose anymore children.

    You are in my thoughts.

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