@Eric - I'm participating in the MDA Lock-up to raise money and I was looking for a video to include in my blog post... This is it, this is the one. I wish you the best - Karla
Thank you for your video, Your a very strong person.. take care, and i hope all is well.
I have a form of MD... its called FSHMD.. its a SUPER long name, and im sure ill spell it wrong.. but its called Facio Scapular Humeral Muscular Distrophy... I found out i had it when i was 19-20 years old, and im 23 now... its mostly effected my upper right side of my back, and a few other spots... Do you know anything about my disease? that might help me out?
Man, as I was watching this, I couldn't help but cry a little because you seem like such a nice guy, and everything that you've had to deal with just seems unbearable... I couldn't understand how you could say all of that stuff so calmly and without emotion. I'd think most people in your situation would just be broken. I am so sorry for everything that you have to deal with. You've shown me how much I really take for granted.. anyway, thanks for sharing. You're an incredibly strong person
As a 31 yr old with limb girdle md (diagnosed 2003) who walks with much difficulty with a trecking pole (which I encourage others who may be looking for a way to stabalize themselves and not have that old man stigmata along with dealing with md) but I agree that anyone who has the guts to post things like this for the world to see (and hopefully try to understand) gets a major salute from me. Best wishes and much love.
I am a medical student studying genetics. To have a visual representation in my mind, to go along with what I study is very valuable. Thanks so much for sharing your story. Be strong and brave. :)
I am glad that there are others sharing their stories but devastated by this disease. At least I know that my family and I arent alone. You are very inspiring! My dad has LGMD ( limb girdle muscular dystrophy). There is a chance either me or my sister have it to, MD seemed so rare before I started researching it. It turns out that my friend (15) and her sister (11) have it as well but I am not sure what form. I wish there was a cure but sadly not but I am doing as much fund raising as possible:)
your video has touched me and informed me. i have almsot the same diet which is odd i am diabetic with lactose and wheat intolerence. don't listen to idiots on the web, thaks for your time.
your video has touched me and informed me. i have almsot the same diet which is odd i am diabetic with lactose and wheat intolerence. don't listen to idiots on the web, thaks for your time.
Breakthrough Muscular Dystrophy Treatment has been found!!!! Visit my channel to see the featured video of my 6 month progress! I am 22 years old with BMD & am showing more hope than anyone could have possibly imagined!
@munchkin809 Probably because nurses/caretakers are always coming in unannounced and it's good to keep what you're listening to private. That's why I wear them, at least.
@EricNinden I take care of someone who has DMD, and he's the sweetest guy ever. In fact, I've learned a lot from him concerning DMD. In my client's case, he usually wears headphones either to listen to music or if he has to talk on the phone since he can't use his arms and stuff. Anyhow, thanks for posting this.
@DragonDude180 No, exercise cannot help. How could it when the very thing holding a person's muscles together is absent in those who have MD?
Many say a MD cure is on the horizon and there have been many failed trials.. there's a very neat one going on in Canada now.. I personally don't think it's exactly on the horizon, but I think that's just a way to make people feel hopeful. It just depresses us eventually.
hey Eric, thank you for your video. I feel like I really connect with you even though I dont know you. Its the way you talked. I went online trying to find a way to help my friend. He has Duchenne MD and he tells me that he has trouble making friends. I was thinking he would have better luck being understood by people who share his disability. I was trying to find a social networking/dating site for people with MD but I couldn't find anything for college-age people. any advice on helping him?
I have it, I'm twelve, but i've noticed mine isn't as bad as some people. i should have been in a wheelchair when i was nine, but i've passed that by 3. I live a pretty normal life, i play hockey. I'm going to the action duchenne conference in november. Anyone else going?
@dmdguy what are you doing differently or adding to your treatment that has kept you out of a wheel chair this far? My son was recently diagnosed and he's going to be 8 next month. I think it's wonderful you are living a pretty normal life. I would love to hear what you're doing so I can help my son to stay out of a wheel chair for as long as possible. He's doing good at the moment, but thinking about the next couple of years really scares me to think of what may become.
@geditgurl Have your doctors recommended Prednisolone? I have a dose of those and vit.D tablets, they seem to have worked, for me at least. they could well work for your son, but im not a doctor. thank you!
Deleted all the comments involving "FitnessMasterpiece" because they were woefully under informed about the severity of this condition, and I didn't want others with DMD to read these comments and get upset.
I gave you a fair shot, but you just proved how ignorant about the topic you are. Read up on it before coming here, posting advice that couldn't possibly work, then saying a cure exists. It's insulting to people that suffer with this disease for years.
Thank you for sharing this with us, I know it must be difficult to talk about, but a prayer for you goes up with every view. Stay positive and strong!
hard to watch. Thanks for sharing Eric. I turn 22 in December and your video made me think about how my life would have been if I had been diagnosed like yourself. Stay positive bro.
Hey Eric, I'm 15 and I have DMD. My Mom found out b4 I was born. My brother also had it but, he passed away in 2006. They took a sample from my bro when he was a kid, but not me. My cousin Jeff had it, but he also passed away in 2004.
My brother has some for of MD. The doctors told my parents he would not live past 18. He is now 34 with three kids. There is definitely hope. He was on a mixture of Ayurvedic (Medicinal and Physio) and Homopathic medicine. Wish u all the very best. Bless you.
@00782dani That's GREAT to hear! :) With modern technology it's possible to live well past 40 with this disease. It's a misconception that 20 is the norm.
And wish your friend the best of luck! Thanks for sharing. If you don't mind me asking, does his wife sort of similar disorder? If that's too personal, don't worry about it. Just curious is all.
I'm from Phillippines I was diagnosed having muscular dystrophy - Limbgirdle, Im researching foodsupplement and other alternative medicnes that improve our health. Im so worried because it keeps deteriorating fast, we need to be rescued. Wish that the maker of the new health products today share us and give us a try. who knows nothing is impossible with God eventhou if its a simple product it could help and improve us.
I am a maasage therapist who works with someone with Duchenne! he just turned 41 and I beleive that massage has really helped! I thank you so much for this info it means alot to me to see other people like him!
you are really cool man...i lost one of my good friends last year because of this disease...they gave him 3-5 years and he passed a year and a half later.. );
@MP40Sniper99 Yeah, human suffering is pretty hilarious, isn't it? It takes a lot of courage to anonymously insult people on the internet for things that are out of their control.
@willchr@willchr You are a horrible person!!!!!!! I hope you Regret posting this one day!!! I would slap you if i could!!!!!!!!!!!!!! Then kick you where it hurts assuming you had anything you underdeveloped Ken doll!!!!!! GRRRRR!!!!!!!! Stop being mean to these poor people who are an insparation to us nice and obviously not like you you people!!!!!!! YOU LOSER!!!! MEANIE!!!!!
@willchr@willchr You are a horrible person!!!!!!! I hope you Regret posting this one day!!! I would slap you if i could!!!!!!!!!!!!!! Then kick you where it hurts assuming you had anything you underdeveloped Ken doll!!!!!! GRRRRR!!!!!!!! Stop being mean to these poor people who are an insparation to us nice and obviously not like you you people!!!!!!! YOU LOSER!!!! MEANIE!!!!!
@willchr You are a horrible person!!!!!!! I hope you Regret posting this one day!!! I would slap you if i could!!!!!!!!!!!!!! Then kick you where it hurts assuming you had anything you underdeveloped Ken doll!!!!!! GRRRRR!!!!!!!! Stop being mean to these poor people who are an insparation to us nice and obviously not like you you people!!!!!!! YOU LOSER!!!! MEANIE!!!!!
my best friend has md he is 13 and he is in a power chair the coolest thing is that he is beast at it he quit school in third grade and he is still kicking he wants them to find a cure so he can ride dirt bikes again boy i hope they do any way that you think i can encourage him plz let m know
Homeopathy works well for the cases of Muscular Dystrophy. It helps by controlling the disease process and improves muscular strength and mobility, in turn. At Life Force we have worked on this disease and have documented significant results for this incapacitating condition.
@EricNinden Hi Eric, this is one of those cases where ignorance is not bliss :o)
We are born innocent and full of love, yet many will learn the opposite, fear, early on and behave in such cruel ways. Thank you for sharing your story, you are more brave than most!
@willchr Someday when you grow up, you will regret what you just posted. It will make you sad and sorry, but it will be too late. You have to live with yourself, now. Shame on you.
Hey, I'm a first year medical student and can i just say it's incredibly brave of you to do what you're doing.
I see this was uploaded 4 years back..am i right? How're you doing now? Have things changed...?
Also I know it's a sensitive issue so don't answer if you think i'm crossing the line but, how do you feel about the prognosis? do you think the way you feel now has changed from the way you felt say 10 years back?
hey eric i saw that comment dont listen to people like him , if only they could feel your pain they wouldnt be laughing , my mom has MS and i have many mental diseases some people are ignorant yes but dont let it bring you down man , stay strong! this video means alot i know it hurts to share your feelings
@nobiirock It's called "dystrophin". It's essential for healthy muscles. So until they find a way to modify my genes through stem cells or advanced drugs, and on top of that clear away the fat and scar tissue that replaced the healthy muscle, it's irreversible.
Treatments are being experimented with, but that's about 15-25 years until they find anything worthwhile. And since the heart is a muscle, my disease effects that too. So if I'm lucky I might live another 15 years.
@EricNinden Eric, please dont say that. you're going to live till you get old. you can't think like that. my cousin has MD and it breaks my heart every time i see him struggle. you have to stay strong. i believe in you. we all do. stay strong.
cant you like train up your muscles, start out easy?.. or maby testosterone would help you if im thnking right? :S and i really ment it.. i have never heard of this syndrom but i want to help you out.. :)
@nobiirock It's a genetic degenerative muscle disorder. When people without my mutation exercise, their muscles tear and break down, and when they rest they heal again, so they can repeat the process to build muscle.
For people with the mutation (me) exercise, the muscle just breaks down and never heals. It just gets more and more damaged, and gets weaker. So exercise actually makes matters worse and speeds up the damage.
Hi Eric, thank you so much for sharing your story with us. My friend and I have a huge health project and we had to pick a disease to do it on. We chose Muscular Dystrophy and were supposed to do an interveiw with either a person w/ the MD. Would you mind if we interveiwed you? It would be amazing if we could! by the way, my name's Anna.
Thanks for sharing. The beginning sounded just like my brothers story who has DMD. I know how awful this disease is so keep your chin up. I'll be praying.
I can inform you, that everyone can help finding a cure for
Muscular Dystrophy. Please write BOINC or worldcommunitygrid into the search field of Youtube or any search engine for further info
Running the Programm BOINC on your homecomputer you donate unused computer capacity to researchers. One of their projects is about
Muscular Dystrophy. Please note that this is fundametal research. So, a cure cannot be expected too soon, unfortunately. BOINC is safe and has been working several years now.
this disease ruined my life i stopped walking at 10 it ruined my life people make fun of me at school one of my teachers hate me my girlfriend broke up with me a week ago for being in a wheelchair the worst part of the breakup was that ive liked her sence 1st grade and i liked her A LOT its hard and it sucks sometimes so much i just wanna die i dont belive in god because i think its a load of crap but if god is real fuck him for ruining my life
Their are many problems I have overcome for example I couldnt sleep on my back at first and had to be turned every like 4 hours. Due to this affecting my families sleeping hours I now sleep fine on my back now. Also I have fought off pneumonia and countless chest infections and I have one now :( it affects people very differently I am in a wheelchair I can just about lift my arm to my face but I do struggle it takes some time to adjust to knowing the problems you have facing you.
I have had the spinal surgery wahidsafi and it is definately the right thing to do. At first it feels like you wont ever be able to sit up again but dont worry in about 1 or 2 weeks you will be back to normal.
hey you guys .....im so sorry to hear the sad and touching stories...this is a wonderful video and you are a wonderful person my brother has DMD as well and has to go through spine surgery due to scoliosis if anyone with DMD went through it please tell me how your doing now thank you
My nephew is 17 and has this. He never complains to us, but I know to his parents. He hurts so much and has to be turned all the time, how do you deal with that? You seem so possitive in your video! Thank you...Do you have any recommendations for family?
hey how are you ...my brother has DMD as well as your nephew and were thinking if we should do spine surgery for him due to scoliosis or no due to all the side effects or no...if your nephew has went through it or you have any info please reply thank you =)
my cousin mat, whom you are subscribed to, has the same disease as you. from what i have seen, you are just as remarkable as him. he plays guitar in his band with our friends, and if anyone else sees this video, go and look at his subscriptions and look at meister. you two are amazing. keep on going with the vlogs eric!
i have a duchenne too but now at the age of 16 I can still walk and manage myself to do some stuff around the house also in school and I dont have any learning disabilities,breathing difficulties,calf muscles enlargement,spinal cord malformation, I FEEL THAT IM LUCKY COZ I DONT HAVE THE ALL KINDS OF SYMPTOMS! I WISH THAT I COULD HAVE A LONG LIFE WITH MY WIFE AND KIDS IN THE FUTURE! I HOPE THERES ALREADY A CURE
Thank you for sharing this. I am a male nurse studying MD and there is nothing more helpfull than seeing video's like this. I don't think its fair that it affects only us guys, girls get away with so much!
how do you use the computer? are you still strong enough to type and play games? i mean i guess u are, im sorry i dont have a better way to word this, my prayers are with you!!!!lets hook up xbox live and whopp some ass at CoD!
No problem. I use a Wacom graphics tablet to use my computer and I type with the Microsoft On-Screen Keyboard program that comes with Windows.
For games I use a modified 360 controller with "string" switches on my feet for the triggers. I'm also saving up for a very complex custom gaming controller rig so I can use my tongue on the analogue sticks.
Yes, both heart and lung muscles are weakened over time. That's why DMD is a fatal disease. Most of us die of lung failure or a heart attack in our sleep.
Thanks for sharing this video. it really means a lot .u really seems to be a strong person. i am working on myotonic dystrophy, people like u make us strong and work to find the cure as early as possible. u really a strong person,and by d way i liked your accent.good luck bro.
Hi, I stumbled upon your video when I was doing some random research of a glower sign (I'm a nursing student). I was really impressed by your video. I read a few of the comments below and I see you play video games. What kind of games do you usually play? Anyway just thought I'd drop you a line and I wish the best of luck to you :)
Usually action and adventure games. Shooters. That sort of thing. My favorites are Zelda, Mario, Grand Theft Auto, Half-Life, Portal... Anything good, really.
I'm so soooooo so sorry dude =[ I don't know what I was thinking asking it like that =} I actually meant to say. I hope you are well and happy =] and I am sorry that you we're unfortunate to have gotten this disease. I cannot imagine what it must be like. you are extremely brave to live life like this and not just say fuck it all and completely disappear. please forgive and be well.
Hey, no worries, man. No hard feelings. Just try and choose your words more carefully.
I've been well, but I'm just not comfortable updating my videos since my tracheostomy a year ago. Between the tube in my neck and the lack of privacy due to constant nurse coverage, I don't really feel like making new videos, unfortunately.
But I'm still making art and playing video games. All is well. Thanks for your concern! :)
best of luck to u. i wish i could say more but its so devistating to seeing u in a bed like tht in the hospital. i dont even want to watch the rest. i cant stand to see ppl with these kind of diseases with out getting emotional. on the bright side ur still hear on earth living a life. u hve a lot of potential, i can jus tell. anyway Best oluck to u
Are you always this cold. I hope one day that someone will ask you a question like that and see how you'd feel. It show's you don't think before you speak. Your dumb.
I'm sorry! I already apologized to him =[ I know I'm a little dumb for asking that =[ but would you really wish that upon someone?...I know i'd feel terrible if I had this condition and someone asked me that. I feel TERRIBLE for having asked that =[ I'm sorry again Eric =[
Hello handsome!I thank you for sharing.I really hope that you are as strong as intelligent you look,and that you will be one that will be cured among all the others.Judit
hey i am a student in grade 10 and right now i am learning about this disease, actually i am doing a report on it and i just wanted to say how horrible these problems can be and i am very impressed on how well you've taken this .. i know its been hard for you and i feel your pain and suffering from this video. duchene is a horrible thing and you are a strong soul for going threw this. i just wanted to say keep strong and keep it up!
Im 14 and i have dmd i was actually adopted so nobody can really test anyone but i was in surgery at 4 when i found out. I was so scared to when i asked when the average age of death is but now i see people like you who give me hope. i pretty much do what you do play video games,make videos, listen to and make music, and hang out with my friends. Anyway i was wondering what it is like to be where you are at with dmd thanks your a real inspirer.
Thank you for talking about your disease, it helps and im sure others too, to understand what you are going threw. My little brothere has DMD, been in a wheelchair since the age of 8. I really appreciate your video!! Thanks
Thank you for sharing your story with us! Duchenne runs in my family as well. I have a little cuz who is 13 that has it he is still walking. But I all so know a little kid that is 12yrs old and he just had his surgery done on his legs. And he will no longer be walking. Well he actualy had stop walking a little bit before the surgery. Again thanks so much for sharing.
I Have DMD, The Doctors Keep Testing My Mum For The Gene That Gave Me The Disease, My Ma' Doesn't have the gene, and they are very confused why this is the case. Dyou Know any another way i could have got this?.. Its Horrible You need help brushin your teeth man, im sorry, you must hate that crap, im 16, i can still hold my whole body weight in my wheelchair up on my arms, i count myself lucky. Kudos To You Eric :D, Good Luck. Your shocke
are you on any medication ? have you used a dystrophin therapy ?
bobinho1992 1 month ago
I have it to .but not Duchenns, I do however have a wheelcair. It suxks you know.
pwnerranger 3 months ago
Thanks for sharing your story
BritishArrow 3 months ago
do you take Deflazacort ?
atomicwheeler 5 months ago
Thank you for sharing, Eric. This vid is pretty old now. How are you now? You seem to have very impressive mental strength.
ZzzzeroCool 5 months ago
Eric, I was moved by your video. I see you haven't posted in a while. How are you?
JerriHardaway 6 months ago
man bro, thats just some fucked up shit!!
HYRTEEEEEE 6 months ago
I'll keep you in my prayers, you inspire many.
Kra2ybros 6 months ago
@Eric - I'm participating in the MDA Lock-up to raise money and I was looking for a video to include in my blog post... This is it, this is the one. I wish you the best - Karla
TheKarlaPorter 6 months ago
Be brave my man...takes a strong person to talk about md the way you do
steve1849 8 months ago
This is so touching. You are so brave and I hope you stay as healthy as you are if not healthier. Thanks for explaining alot.
suwakee 9 months ago
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Be strong and brave, big hug from AZORES Portugal.
Wolfshamil 9 months ago
Thank you for your video, Your a very strong person.. take care, and i hope all is well.
I have a form of MD... its called FSHMD.. its a SUPER long name, and im sure ill spell it wrong.. but its called Facio Scapular Humeral Muscular Distrophy... I found out i had it when i was 19-20 years old, and im 23 now... its mostly effected my upper right side of my back, and a few other spots... Do you know anything about my disease? that might help me out?
Thank you for your video, and take care.
arthurlafave 9 months ago
@arthurlafave lol check Wikipedia !
jubinjibin 9 months ago
Man, as I was watching this, I couldn't help but cry a little because you seem like such a nice guy, and everything that you've had to deal with just seems unbearable... I couldn't understand how you could say all of that stuff so calmly and without emotion. I'd think most people in your situation would just be broken. I am so sorry for everything that you have to deal with. You've shown me how much I really take for granted.. anyway, thanks for sharing. You're an incredibly strong person
FTE666 9 months ago
As a 31 yr old with limb girdle md (diagnosed 2003) who walks with much difficulty with a trecking pole (which I encourage others who may be looking for a way to stabalize themselves and not have that old man stigmata along with dealing with md) but I agree that anyone who has the guts to post things like this for the world to see (and hopefully try to understand) gets a major salute from me. Best wishes and much love.
spacemanjoeb 10 months ago
I am a medical student studying genetics. To have a visual representation in my mind, to go along with what I study is very valuable. Thanks so much for sharing your story. Be strong and brave. :)
wallywald 10 months ago
I am glad that there are others sharing their stories but devastated by this disease. At least I know that my family and I arent alone. You are very inspiring! My dad has LGMD ( limb girdle muscular dystrophy). There is a chance either me or my sister have it to, MD seemed so rare before I started researching it. It turns out that my friend (15) and her sister (11) have it as well but I am not sure what form. I wish there was a cure but sadly not but I am doing as much fund raising as possible:)
Brook3Lynn3 10 months ago
This made me not complain for the silliest things. I am grateful and may God give you all the riches in His kingdom.
HANGER187 10 months ago
I want to give you such a big and long hug <3 you are so brave.
rentothemaxx 10 months ago
You have touched me in my heart, may god bless you good man
Kadabra42 10 months ago
Thank you for sharing your experience with us. It's nice that you could share with us.
I'm doing a presentation about Duchenne muscular dystrophy in a college biology class.
FatBird11 11 months ago
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your video has touched me and informed me. i have almsot the same diet which is odd i am diabetic with lactose and wheat intolerence. don't listen to idiots on the web, thaks for your time.
toryroseiii 11 months ago
your video has touched me and informed me. i have almsot the same diet which is odd i am diabetic with lactose and wheat intolerence. don't listen to idiots on the web, thaks for your time.
toryroseiii 11 months ago
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Breakthrough Muscular Dystrophy Treatment has been found!!!! Visit my channel to see the featured video of my 6 month progress! I am 22 years old with BMD & am showing more hope than anyone could have possibly imagined!
DefyingDystrophy 11 months ago
Seig hail meinen kamaraden, we all deserve to be able to walk I say you are the greatest and most intelligent people, suspect the unexpected...
truss601 11 months ago
I will pray for u and hope u get better :)
TheKlempYz 11 months ago
Don't let what anybody else on here says that is negative hurt you - they do the same thing on ANY video and are soulless.
ifautumnends 1 year ago
I have a brother with this diesese and had a brother with it.
AcoolDwarf 1 year ago
Eric, why are not on any treatments? and may I ask who your doctor is? and where you go for Treatment?
hannahw2071 1 year ago
can i ask why i always see guys with duchenne dystrophy with headphones on?
munchkin809 1 year ago
@munchkin809 Probably because nurses/caretakers are always coming in unannounced and it's good to keep what you're listening to private. That's why I wear them, at least.
EricNinden 1 year ago
@EricNinden i have two brothers with Duchenne, thanks for this video!
xplzf 8 months ago
@EricNinden I take care of someone who has DMD, and he's the sweetest guy ever. In fact, I've learned a lot from him concerning DMD. In my client's case, he usually wears headphones either to listen to music or if he has to talk on the phone since he can't use his arms and stuff. Anyhow, thanks for posting this.
punkqueentheresa 8 months ago
@munchkin809 umm it's the microphone
MrRealtalk1111 1 year ago
='[
gratituded 1 year ago
I have a question if you have MD can light exerise help a bit?
I'm finding out a MD cure is on the horizion...I hope they end this genetic disease!
DragonDude180 1 year ago
@DragonDude180 No, exercise cannot help. How could it when the very thing holding a person's muscles together is absent in those who have MD?
Many say a MD cure is on the horizon and there have been many failed trials.. there's a very neat one going on in Canada now.. I personally don't think it's exactly on the horizon, but I think that's just a way to make people feel hopeful. It just depresses us eventually.
hannahw2071 1 year ago
Your story is very touching and thank you for sharing it.
chestercheeseface 1 year ago
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KaciQuill 1 year ago
hey Eric, thank you for your video. I feel like I really connect with you even though I dont know you. Its the way you talked. I went online trying to find a way to help my friend. He has Duchenne MD and he tells me that he has trouble making friends. I was thinking he would have better luck being understood by people who share his disability. I was trying to find a social networking/dating site for people with MD but I couldn't find anything for college-age people. any advice on helping him?
knittingfriend2010 1 year ago
@knittingfriend2010 You're a wonderful person and I hope every person with DMD or MD has a friend like you:)
hannahw2071 1 year ago
Thanks for sharing. Can we email away from u-tube?
Mitosynergy 1 year ago
I'm inspired
SEROTONlN 1 year ago 4
@SEROTONlN Thanks for the kind words. :)
EricNinden 1 year ago 2
I have it, I'm twelve, but i've noticed mine isn't as bad as some people. i should have been in a wheelchair when i was nine, but i've passed that by 3. I live a pretty normal life, i play hockey. I'm going to the action duchenne conference in november. Anyone else going?
dmdguy 1 year ago
@dmdguy what are you doing differently or adding to your treatment that has kept you out of a wheel chair this far? My son was recently diagnosed and he's going to be 8 next month. I think it's wonderful you are living a pretty normal life. I would love to hear what you're doing so I can help my son to stay out of a wheel chair for as long as possible. He's doing good at the moment, but thinking about the next couple of years really scares me to think of what may become.
geditgurl 10 months ago
@geditgurl Have your doctors recommended Prednisolone? I have a dose of those and vit.D tablets, they seem to have worked, for me at least. they could well work for your son, but im not a doctor. thank you!
dmdguy 10 months ago
Comment removed
love101981 1 year ago
My aunt and uncle have Muscular Dystrophy. My uncle just passed away in July. He was in the hospital with pneumonia. I wish you the best of luck
TyB810 1 year ago
G'day Eric : ), i am very grateful that You shared Darl, I have got some revelations listening & Thank You For You... Hugz From Australia.
11Tigeress11 1 year ago
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DefyingDystrophy 1 year ago
Deleted all the comments involving "FitnessMasterpiece" because they were woefully under informed about the severity of this condition, and I didn't want others with DMD to read these comments and get upset.
I gave you a fair shot, but you just proved how ignorant about the topic you are. Read up on it before coming here, posting advice that couldn't possibly work, then saying a cure exists. It's insulting to people that suffer with this disease for years.
EricNinden 1 year ago 8
Thank you for sharing this with us, I know it must be difficult to talk about, but a prayer for you goes up with every view. Stay positive and strong!
MsNextSht2020 1 year ago
hard to watch. Thanks for sharing Eric. I turn 22 in December and your video made me think about how my life would have been if I had been diagnosed like yourself. Stay positive bro.
rhinowalsh 1 year ago
Hey Eric. You're a brave guy. Thankyou for raising awareness of this condition. Best wishes from me.
mongungadin 1 year ago
Hey Eric, I'm 15 and I have DMD. My Mom found out b4 I was born. My brother also had it but, he passed away in 2006. They took a sample from my bro when he was a kid, but not me. My cousin Jeff had it, but he also passed away in 2004.
TomStanitisJr 1 year ago
@TomStanitisJr I'm sorry to hear that. I'm fortunate enough to not have any family with MD. :\
EricNinden 1 year ago
My brother has some for of MD. The doctors told my parents he would not live past 18. He is now 34 with three kids. There is definitely hope. He was on a mixture of Ayurvedic (Medicinal and Physio) and Homopathic medicine. Wish u all the very best. Bless you.
pophess11 1 year ago
A friend of mine with Muscular Dystrophy just got married yesterday! He is 37. Doctors said he wouldn't live past 20... there IS hope!
00782dani 1 year ago
@00782dani That's GREAT to hear! :) With modern technology it's possible to live well past 40 with this disease. It's a misconception that 20 is the norm.
And wish your friend the best of luck! Thanks for sharing. If you don't mind me asking, does his wife sort of similar disorder? If that's too personal, don't worry about it. Just curious is all.
EricNinden 1 year ago
I'm from Phillippines I was diagnosed having muscular dystrophy - Limbgirdle, Im researching foodsupplement and other alternative medicnes that improve our health. Im so worried because it keeps deteriorating fast, we need to be rescued. Wish that the maker of the new health products today share us and give us a try. who knows nothing is impossible with God eventhou if its a simple product it could help and improve us.
Clairren 1 year ago
I am a maasage therapist who works with someone with Duchenne! he just turned 41 and I beleive that massage has really helped! I thank you so much for this info it means alot to me to see other people like him!
tumikia1 1 year ago
@willchr your a fucking loser, if i ever see you ill fucking rip your throat out
StevenBTT 1 year ago
you are really cool man...i lost one of my good friends last year because of this disease...they gave him 3-5 years and he passed a year and a half later.. );
Kayylinnn 1 year ago
Thanks for sharing your live with us my friend.
This vid is pretty old, how are you doing now days? Hope you are felling good :)
Danzaiver01 1 year ago
Comment removed
EnglishAmericanMate 1 year ago
I think your great for making a video like this.
Codyoshow 1 year ago
@MP40Sniper99 How is that funny?!
sparklyAli 1 year ago
incredibly brave of you to do this video :)
lukegregy10 1 year ago
@MP40Sniper99 Yeah, human suffering is pretty hilarious, isn't it? It takes a lot of courage to anonymously insult people on the internet for things that are out of their control.
You ignorant twat.
EricNinden 1 year ago 17
@EricNinden i beat the fuckin shit out of ass holes like MP40Sniper99 on a daily basis almost.
;)
AntarcticanPRIDE 1 year ago
@AntarcticanPRIDE lol sure you do with your weak little flimsy muscles lololol
rxonez1 8 months ago
@EricNinden Thats right!! Tell that douchebag! I am sorry for peoples ignorance.
oliverbunny 1 year ago
This has been flagged as spam show
@willchr @willchr You are a horrible person!!!!!!! I hope you Regret posting this one day!!! I would slap you if i could!!!!!!!!!!!!!! Then kick you where it hurts assuming you had anything you underdeveloped Ken doll!!!!!! GRRRRR!!!!!!!! Stop being mean to these poor people who are an insparation to us nice and obviously not like you you people!!!!!!! YOU LOSER!!!! MEANIE!!!!!
AmethystHuntress 1 year ago
@willchr @willchr You are a horrible person!!!!!!! I hope you Regret posting this one day!!! I would slap you if i could!!!!!!!!!!!!!! Then kick you where it hurts assuming you had anything you underdeveloped Ken doll!!!!!! GRRRRR!!!!!!!! Stop being mean to these poor people who are an insparation to us nice and obviously not like you you people!!!!!!! YOU LOSER!!!! MEANIE!!!!!
AmethystHuntress 1 year ago
@willchr You are a horrible person!!!!!!! I hope you Regret posting this one day!!! I would slap you if i could!!!!!!!!!!!!!! Then kick you where it hurts assuming you had anything you underdeveloped Ken doll!!!!!! GRRRRR!!!!!!!! Stop being mean to these poor people who are an insparation to us nice and obviously not like you you people!!!!!!! YOU LOSER!!!! MEANIE!!!!!
AmethystHuntress 1 year ago
@willchr I bet you think you're so cool, Willchr.
sophxboo 1 year ago
I'm studying Duchenne Muscular Dystrophy (& muscular dystrophy in general) for school. You are inspiring. God Bless:)
sophxboo 1 year ago
my best friend has md he is 13 and he is in a power chair the coolest thing is that he is beast at it he quit school in third grade and he is still kicking he wants them to find a cure so he can ride dirt bikes again boy i hope they do any way that you think i can encourage him plz let m know
zumarblast 1 year ago
Homeopathy works well for the cases of Muscular Dystrophy. It helps by controlling the disease process and improves muscular strength and mobility, in turn. At Life Force we have worked on this disease and have documented significant results for this incapacitating condition.
lifeforcehomeopathy 1 year ago
@EricNinden Hi Eric, this is one of those cases where ignorance is not bliss :o)
We are born innocent and full of love, yet many will learn the opposite, fear, early on and behave in such cruel ways. Thank you for sharing your story, you are more brave than most!
saipanpt 1 year ago
I am sorry that you have had to be so strong and brave. You are in my prayers.
OriginalMissKitty 1 year ago
@willchr Someday when you grow up, you will regret what you just posted. It will make you sad and sorry, but it will be too late. You have to live with yourself, now. Shame on you.
OriginalMissKitty 1 year ago
@OriginalMissKitty This was to nobiirock...dunno if it posted right.
OriginalMissKitty 1 year ago
Hey, I'm a first year medical student and can i just say it's incredibly brave of you to do what you're doing.
I see this was uploaded 4 years back..am i right? How're you doing now? Have things changed...?
Also I know it's a sensitive issue so don't answer if you think i'm crossing the line but, how do you feel about the prognosis? do you think the way you feel now has changed from the way you felt say 10 years back?
hotrock321 1 year ago
@willchr When I grow up, I wanna be just like you. Your comments are as bad as your shit golfing.
ChadMaestro 1 year ago
hey eric i saw that comment dont listen to people like him , if only they could feel your pain they wouldnt be laughing , my mom has MS and i have many mental diseases some people are ignorant yes but dont let it bring you down man , stay strong! this video means alot i know it hurts to share your feelings
chronicflames0 1 year ago
what do your body not make so it dosent repair the muscle after?
nobiirock 1 year ago
@nobiirock It's called "dystrophin". It's essential for healthy muscles. So until they find a way to modify my genes through stem cells or advanced drugs, and on top of that clear away the fat and scar tissue that replaced the healthy muscle, it's irreversible.
Treatments are being experimented with, but that's about 15-25 years until they find anything worthwhile. And since the heart is a muscle, my disease effects that too. So if I'm lucky I might live another 15 years.
EricNinden 1 year ago
@EricNinden God bless you Eric. you will be in my prayers!!
iHsKx 1 year ago
@EricNinden Eric, please dont say that. you're going to live till you get old. you can't think like that. my cousin has MD and it breaks my heart every time i see him struggle. you have to stay strong. i believe in you. we all do. stay strong.
StevenBTT 1 year ago
cant you like train up your muscles, start out easy?.. or maby testosterone would help you if im thnking right? :S and i really ment it.. i have never heard of this syndrom but i want to help you out.. :)
nobiirock 1 year ago
@nobiirock It's a genetic degenerative muscle disorder. When people without my mutation exercise, their muscles tear and break down, and when they rest they heal again, so they can repeat the process to build muscle.
For people with the mutation (me) exercise, the muscle just breaks down and never heals. It just gets more and more damaged, and gets weaker. So exercise actually makes matters worse and speeds up the damage.
And no, it has nothing to do with hormones.
EricNinden 1 year ago 2
Eric.........How are you doing now?
doctorted 1 year ago
Hi Eric, thank you so much for sharing your story with us. My friend and I have a huge health project and we had to pick a disease to do it on. We chose Muscular Dystrophy and were supposed to do an interveiw with either a person w/ the MD. Would you mind if we interveiwed you? It would be amazing if we could! by the way, my name's Anna.
annabonona 1 year ago
Thanks for sharing. The beginning sounded just like my brothers story who has DMD. I know how awful this disease is so keep your chin up. I'll be praying.
Lithium2373 1 year ago
thank you for posting. Will make me better understand my future patients. Nursing Student
CarolineJDillard 2 years ago
I can inform you, that everyone can help finding a cure for
Muscular Dystrophy. Please write BOINC or worldcommunitygrid into the search field of Youtube or any search engine for further info
Running the Programm BOINC on your homecomputer you donate unused computer capacity to researchers. One of their projects is about
Muscular Dystrophy. Please note that this is fundametal research. So, a cure cannot be expected too soon, unfortunately. BOINC is safe and has been working several years now.
Adamus70 1 year ago
DYU ever had a gf
i hav same
fanjap 2 years ago
this disease ruined my life i stopped walking at 10 it ruined my life people make fun of me at school one of my teachers hate me my girlfriend broke up with me a week ago for being in a wheelchair the worst part of the breakup was that ive liked her sence 1st grade and i liked her A LOT its hard and it sucks sometimes so much i just wanna die i dont belive in god because i think its a load of crap but if god is real fuck him for ruining my life
color57 2 years ago
@color57 dude shut the fuck up!
your so fuking lucky to have had tht kind of relationship. since the fist GRADE u knew
im 19 never been on a date
u kno i hav all same problems n tourettes
YEA
so never FUCKIN TALK LIKE THT i had thosse kind of teachers too
fanjap 2 years ago
This has been flagged as spam show
Jesus loves you!
ShinaSouza 2 years ago 2
Thanks so much for sharing your experience ( :
ElisaMeakin 2 years ago 19
Hey mate, you look like a really intelligent man - the eyes have it.
scopsie 2 years ago
Their are many problems I have overcome for example I couldnt sleep on my back at first and had to be turned every like 4 hours. Due to this affecting my families sleeping hours I now sleep fine on my back now. Also I have fought off pneumonia and countless chest infections and I have one now :( it affects people very differently I am in a wheelchair I can just about lift my arm to my face but I do struggle it takes some time to adjust to knowing the problems you have facing you.
mikeytwace 2 years ago
I have had the spinal surgery wahidsafi and it is definately the right thing to do. At first it feels like you wont ever be able to sit up again but dont worry in about 1 or 2 weeks you will be back to normal.
mikeytwace 2 years ago
hey you guys .....im so sorry to hear the sad and touching stories...this is a wonderful video and you are a wonderful person my brother has DMD as well and has to go through spine surgery due to scoliosis if anyone with DMD went through it please tell me how your doing now thank you
wahidsafi 2 years ago
My nephew is 17 and has this. He never complains to us, but I know to his parents. He hurts so much and has to be turned all the time, how do you deal with that? You seem so possitive in your video! Thank you...Do you have any recommendations for family?
6agenthawk 2 years ago
hey how are you ...my brother has DMD as well as your nephew and were thinking if we should do spine surgery for him due to scoliosis or no due to all the side effects or no...if your nephew has went through it or you have any info please reply thank you =)
wahidsafi 2 years ago
GOD BLESS!
robmac411 2 years ago
my cousin mat, whom you are subscribed to, has the same disease as you. from what i have seen, you are just as remarkable as him. he plays guitar in his band with our friends, and if anyone else sees this video, go and look at his subscriptions and look at meister. you two are amazing. keep on going with the vlogs eric!
DarksideSnowboardsVt 2 years ago
I am so touched ... there must be much more publicized, how horrible this disease is ... my brother had it, I miss him so much. :(
nhpk84 2 years ago
amazing person and so brave, i have two sons with MD life is just so unfair scumbags just seam to sail through life
leebuzzin09 2 years ago
you are amazing
bendickbendike 2 years ago
Thank you so much or this video. Two of my cousins both have MD and one just passed recently.
ilypatty 2 years ago
Thank you for the video. You are a beautiful person.
nltate 2 years ago
i have a duchenne too but now at the age of 16 I can still walk and manage myself to do some stuff around the house also in school and I dont have any learning disabilities,breathing difficulties,calf muscles enlargement,spinal cord malformation, I FEEL THAT IM LUCKY COZ I DONT HAVE THE ALL KINDS OF SYMPTOMS! I WISH THAT I COULD HAVE A LONG LIFE WITH MY WIFE AND KIDS IN THE FUTURE! I HOPE THERES ALREADY A CURE
dilan678 2 years ago
Comment removed
cooldit1 2 years ago
Some of you cunts dont know how lucky you are, keep ya shitty comments to yourselves!
Zeebo1uk 2 years ago
Who is this directed toward? Me?
EricNinden 2 years ago
No mate, i was acually aiing my comment towards the narrowminded andidiotic out there, sorry you thought it was aimed at you.
Zeebo1uk 2 years ago
No problem.
EricNinden 2 years ago
Thanks man. You'd make a great dietitian.
richardkuk 2 years ago
Thanks for the video - I'm about to volunteer for a MD organization and wanted to learn more about it. You are amazing.
aec0275 2 years ago
Your strength does not go unnoticed.
Kirbymcbadass 2 years ago
Good on ya mate!
Try Jon Kabbat Zim for meditation tips.
I've got simmilar to FSH MD.
Got to love Sushi-try Australian Salmon.
Cam
chicksdigcam 2 years ago
Thanks for the video eric
phct 2 years ago
Yeah, thanks for sharing. You are a beautiful person. Enjoy the transpersonal exchange.
NinjasEatGlass 2 years ago
i have a diffrent kind of MD i have spinal mucular attrophy type 3
TattooToad16 2 years ago
Much agree with Adam above. It is very helpful to hear. MD runs in my family. Thank you for sharing.
terriesales 2 years ago
this is realy very hard disease
ileft with it
my little brother
may he is in paradise w much better
vetnet2000 2 years ago
this shit sucks myotonic dystrophy
and it hurts!
well i say at least let me life live joyfully
and help me get SAFE ACCESS NOW to holy ancient sacred cannabis!
i want to stop going to the streets to buy a plant with great medical value
i SHOULD be able to go into a pharmacy and buy an herb that helps me fucking walk regularly and skateboard with less pain
my father had this disease without even knowing what it was.
now i know.
WORLD WIDE [ RE ! ] LEGALIZATION!
keep fighting eric, i sure am
diegopunk 2 years ago
Hi Eric, I hope you are doing fine. =]
STARRhyding 2 years ago
Heres to hoping for a cure.
vidcritic27 2 years ago
Thanks for the video Eric. My son (age 5) has DMD we found out 4 months ago.
kuvholt 2 years ago
Thank you for sharing this. I am a male nurse studying MD and there is nothing more helpfull than seeing video's like this. I don't think its fair that it affects only us guys, girls get away with so much!
adamcaul 2 years ago
thats really cool, where are u located? just curious
slackmastercg 2 years ago
Massachusetts.
EricNinden 2 years ago
how do you use the computer? are you still strong enough to type and play games? i mean i guess u are, im sorry i dont have a better way to word this, my prayers are with you!!!!lets hook up xbox live and whopp some ass at CoD!
slackmastercg 2 years ago
No problem. I use a Wacom graphics tablet to use my computer and I type with the Microsoft On-Screen Keyboard program that comes with Windows.
For games I use a modified 360 controller with "string" switches on my feet for the triggers. I'm also saving up for a very complex custom gaming controller rig so I can use my tongue on the analogue sticks.
EricNinden 2 years ago
...thats amazing...just out of curioustiy, does microsoft make controllers for people with motor disabilities?
asands123 2 years ago
no microsoft and nintendo dont give a crap about wheelchair bound people wireless controllors are good though
color57 2 years ago
thnx 4 sharing..i needed this 4 my project
thnx uve been a great help and good luck dude!
kajin011 2 years ago
ive heard that this disease weakens muscles so would youre heart be affected with DMD? btw youre a strong person! good luck and god bless you!
kirisakiten 3 years ago
Yes, both heart and lung muscles are weakened over time. That's why DMD is a fatal disease. Most of us die of lung failure or a heart attack in our sleep.
And thanks for the kind words. :)
EricNinden 3 years ago
Thanks for sharing this video. it really means a lot .u really seems to be a strong person. i am working on myotonic dystrophy, people like u make us strong and work to find the cure as early as possible. u really a strong person,and by d way i liked your accent.good luck bro.
ARYAN4FIRE 3 years ago
Thanks for sharing, you are a strong person. Your video is great, i've learned alot from you. Thanks. And good luck.
aidanne07 3 years ago 2
Thank you very much! :3
EricNinden 3 years ago
Hi, I stumbled upon your video when I was doing some random research of a glower sign (I'm a nursing student). I was really impressed by your video. I read a few of the comments below and I see you play video games. What kind of games do you usually play? Anyway just thought I'd drop you a line and I wish the best of luck to you :)
vitsmouth 3 years ago
Usually action and adventure games. Shooters. That sort of thing. My favorites are Zelda, Mario, Grand Theft Auto, Half-Life, Portal... Anything good, really.
EricNinden 3 years ago
do you play on ps3?
TheTexanAtheist 3 years ago
No. PS2, Gamecube, and XBox 360. Getting a PS3 later this year, though.
EricNinden 3 years ago
are you still alive?
TheTexanAtheist 3 years ago
Yes I am, but could you have perhaps been a bit more polite? Asking someone essentially "Are you dead?" is a bit rude, to be honest.
EricNinden 3 years ago
I'm so soooooo so sorry dude =[ I don't know what I was thinking asking it like that =} I actually meant to say. I hope you are well and happy =] and I am sorry that you we're unfortunate to have gotten this disease. I cannot imagine what it must be like. you are extremely brave to live life like this and not just say fuck it all and completely disappear. please forgive and be well.
TheTexanAtheist 3 years ago
Hey, no worries, man. No hard feelings. Just try and choose your words more carefully.
I've been well, but I'm just not comfortable updating my videos since my tracheostomy a year ago. Between the tube in my neck and the lack of privacy due to constant nurse coverage, I don't really feel like making new videos, unfortunately.
But I'm still making art and playing video games. All is well. Thanks for your concern! :)
EricNinden 3 years ago
best of luck to u. i wish i could say more but its so devistating to seeing u in a bed like tht in the hospital. i dont even want to watch the rest. i cant stand to see ppl with these kind of diseases with out getting emotional. on the bright side ur still hear on earth living a life. u hve a lot of potential, i can jus tell. anyway Best oluck to u
Luxord322 3 years ago
I'm not in a hospital in this video. But thanks just the same!
EricNinden 3 years ago
How on earth can you ask a question like that.
Are you always this cold. I hope one day that someone will ask you a question like that and see how you'd feel. It show's you don't think before you speak. Your dumb.
aidanne07 3 years ago
I'm sorry! I already apologized to him =[ I know I'm a little dumb for asking that =[ but would you really wish that upon someone?...I know i'd feel terrible if I had this condition and someone asked me that. I feel TERRIBLE for having asked that =[ I'm sorry again Eric =[
TheTexanAtheist 3 years ago
Hello handsome!I thank you for sharing.I really hope that you are as strong as intelligent you look,and that you will be one that will be cured among all the others.Judit
juditkarajko 3 years ago
Eric thank you for your videos
LifeStylesPriceless 3 years ago
Thank you for sharing your story.
indent1 3 years ago
hey i am a student in grade 10 and right now i am learning about this disease, actually i am doing a report on it and i just wanted to say how horrible these problems can be and i am very impressed on how well you've taken this .. i know its been hard for you and i feel your pain and suffering from this video. duchene is a horrible thing and you are a strong soul for going threw this. i just wanted to say keep strong and keep it up!
TheFrenchAmbasitor13 3 years ago
greetings from London, stay strong my friend - thank you for the video
kamlondonuk 3 years ago
Thank you for sharing your story. We all appreciate the time you take to make these videos for us.
monkeyintrouble 3 years ago
i wish you all the best my friend
:-)
minimal08 3 years ago
Im 14 and i have dmd i was actually adopted so nobody can really test anyone but i was in surgery at 4 when i found out. I was so scared to when i asked when the average age of death is but now i see people like you who give me hope. i pretty much do what you do play video games,make videos, listen to and make music, and hang out with my friends. Anyway i was wondering what it is like to be where you are at with dmd thanks your a real inspirer.
wpd80000 3 years ago
Thank you for talking about your disease, it helps and im sure others too, to understand what you are going threw. My little brothere has DMD, been in a wheelchair since the age of 8. I really appreciate your video!! Thanks
apugh7 3 years ago
Dear, you did a nice job !
thank you ;)
CintiaZuccon 3 years ago
whats the muscle disorder that makes you buff as hell that belgium bulls have
appppppppple 3 years ago
Thank you for sharing your story with us! Duchenne runs in my family as well. I have a little cuz who is 13 that has it he is still walking. But I all so know a little kid that is 12yrs old and he just had his surgery done on his legs. And he will no longer be walking. Well he actualy had stop walking a little bit before the surgery. Again thanks so much for sharing.
christopherinsc1981 3 years ago
i was 14 when i stopped walking. Im almost 15 now.
cooldit1 2 years ago
I just now heard of muscular dystrophy... What do you do for fun if you have a hard time moving around???
Doblosky19 3 years ago
Video games, artwork, 3D modeling, movies, music, TV, good food, friends. Pretty much it.
EricNinden 3 years ago
that's pretty much what I do and my muscles are fine.
johkonut 3 years ago 2
I Have DMD, The Doctors Keep Testing My Mum For The Gene That Gave Me The Disease, My Ma' Doesn't have the gene, and they are very confused why this is the case. Dyou Know any another way i could have got this?.. Its Horrible You need help brushin your teeth man, im sorry, you must hate that crap, im 16, i can still hold my whole body weight in my wheelchair up on my arms, i count myself lucky. Kudos To You Eric :D, Good Luck. Your shocke