hi my name is veronica im 14 and also have pompe disease. i have type 2. i get treatments every 2 weeks through an i-v.i live in PA. if i can get any contact with the parents of there daughter please right back to me and i will personally give u my email address.It is very rare for me to see children with the same disease as i do. if u would like any information on my disease please write back to me! - veronica
hi my name is veronica im 14 and also have pompe disease. i have type 2. i get treatments every 2 weeks through an i-v.i live in PA. if i can get any contact with the parents of there daughter please right back to me and i will personally give u my email address.It is very rare for me to see children with the same disease as i do. if u would like any information on my disease please write back to me! - veronica
VeronicanKendra 4 months ago
my dad got that. cant walk & cant understand him @ ALLLL
Q0n3K0Q 1 year ago
@Q0n3K0Q i'm sorry
astrologer201 7 months ago